Book picks similar to
Rescuing Jeffrey: A Memoir by Richard Galli
nonfiction
non-fiction
memoir
disability
Never Broken: Songs Are Only Half the Story
Jewel - 2015
In the tradition of Joan Baez and Joni Mitchell (she has been compared to both), a singer-songwriter of her kind had not emerged in decades. Now, with over 30 million albums sold worldwide, Jewel tells the story of her life and the lessons learned from her experience and her music.Living on a homestead in Alaska, Jewel learned to yodel at age three and joined her parents' act, working in hotels, honky-tonks, and biker bars. Behind a strong-willed and independent family life, with an emphasis on music and artistic talent, was also instability, abuse, and trauma.At age 15 Jewel was accepted into the prestigious Interlochen Arts Academy in Michigan, where she began writing her own songs as a means of expression. She was 18, homeless, and living out of her car in San Diego when a radio DJ aired a bootleg version of one of her songs. It was requested in the top-10 countdown, something unheard of for an unsigned artist. By age 21, her debut album went multiplatinum.There is so much more to Jewel's story, one complicated by family and financial woes, by crippling fear and insecurity, by parents who forced a child to grow up far too quickly, and by the extraordinary circumstances in which she became a world-famous singer and songwriter. Here Jewel reflects on how she survived and how writing songs, poetry, and prose have saved her life many times over. She writes beautifully about the natural wonders of Alaska, about pain and childhood trauma, and about discovering her own identity years after the entire world had discovered the beauty of her songs.
Broken Places & Outer Spaces: Finding Creativity in the Unexpected
Nnedi Okorafor - 2019
A college track star and budding entomologist, Nnedi’s lifelong battle with scoliosis was just a bump in her plan—something a simple operation would easily correct. But when Nnedi wakes from the surgery to find she can’t move her legs, her entire sense of self begins to waver. Confined to a hospital bed for months, unusual things begin to happen. Psychedelic bugs crawl her hospital walls; strange dreams visit her nightly. Nnedi begins to put these experiences into writing, conjuring up strange, fantastical stories. What Nnedi discovers during her confinement would prove to be the key to her life as a successful science fiction author: In science fiction, when something breaks, something greater often emerges from the cracks.In Broken Places & Outer Spaces, Nnedi takes the reader on a journey from her hospital bed deep into her memories, from her painful first experiences with racism as a child in Chicago to her powerful visits to her parents’ hometown in Nigeria. From Frida Kahlo to Mary Shelly, she examines great artists and writers who have pushed through their limitations, using hardship to fuel their work. Through these compelling stories and her own, Nnedi reveals a universal truth: What we perceive as limitations have the potential to become our greatest strengths—far greater than when we were unbroken.A guidebook for anyone eager to understand how their limitations might actually be used as a creative springboard, Broken Places & Outer Spaces is an inspiring look at how to open up new windows in your mind.
What My Heart Wants to Tell
Verna Mae Slone - 1979
So He sent us His very strongest men and women." So begins the heartwarming story of Verna Mae and her father, Isom B. "Kitteneye" Slone, an extraordinary personal family history set in the hills around Caney Creek in Knott County, Kentucky.
Life in Rewind
Terry Weible Murphy - 2009
Well-rounded, powerful, and inspirational.”—Kirkus Reviews In the vein of Manic and Girl, Interrupted, and the popular stories of Oliver Sacks, Life in Rewind is the captivating true story of promising young athlete Ed Zine’s sudden descent into severe mental illness, and the brilliant Harvard doctor, Michael A. Jenike, who broke through the boundaries of traditional medicine to save him. Written by Terry Weible Murphy with Zine and Jenike, Life in Rewind provides a shocking picture of severe Obsessive Compulsive Disorder and the surprising and unorthodox lengths to which a doctor goes to help his patient. The Washington Times calls this, “[An] extraordinary story.” It is that and much more.
Pain Woman Takes Your Keys, and Other Essays from a Nervous System
Sonya Huber - 2017
What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author’s specific condition but an exploration that transcends pain’s airless and constraining world and focuses on its edges from wild and widely ranging angles. Huber addresses the nature and experience of invisible disability, including the challenges of gender bias in our health care system, the search for effective treatment options, and the difficulty of articulating chronic pain. She makes pain a lens of inquiry and lyricism, finds its humor and complexity, describes its irascible character, and explores its temperature, taste, and even its beauty.
The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery
Barbara K. Lipska - 2018
As the cancer progressed and was treated, the author experienced behavioral and cognitive symptoms connected to a range of mental disorders, including her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, recalled her experience and, through her knowledge of neuroscience, identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist McArdle, shows that strength and courage but also a encouraging support network are vital to recovery
Uncomfortably Numb: a memoir
Meredith O'Brien - 2020
Then it spreads. Even though an MRI finds a “mass” on her brainstem, it takes two more years for Meredith O’Brien to learn what is causing that numbness. Months after her 65-year-old mother dies from a fast-moving cancer, weeks after her father is hospitalized and she experiences an unexpected job change, she learns she has multiple sclerosis.Suddenly, Meredith, a married mother of three teens, has to figure out how to move forward into a life she no longer recognizes. Reimagining her life as a writer and an educator, as a mother and a spouse, she has to adjust to the restrictions MS imposes on her. It is a life, altered.
Identity Theft: Rediscovering Ourselves After Stroke
Debra Meyerson - 2019
In addition to providing realistic expectations for the hard work needed to regain everyday capabilities, Meyerson focuses on the less frequently documented emotional journey in recovery. Virtually every survivor is haunted by questions like: “Who am I now?” and “How do I rebuild a meaningful and rewarding life?” after losing so much of what they had before—capabilities, careers and jobs, relationships, and more. This is a book full of hope for survivors—from stroke or other injuries—as well as their families and support networks.Debra Meyerson and her husband, Steve Zuckerman, have created Stroke Onward (strokeonward.org), a non-profit initiative of the Social Good Fund, to provide stroke survivors, families and caregivers with more resources to help them navigate the emotional journey to rebuild their identities and rewarding lives.”Winner of the 2019 Silver Nautilus Book Award, Identity Theft centers on Debra’s experience: her stroke, her extraordinary efforts to recover, and her journey to redefine herself. But she also draws on her skills as a social scientist, sharing stories from several dozen fellow survivors, family members, friends, colleagues, therapists, and doctors she has met and interviewed. By sharing this diversity of experiences, Debra highlights how every person is different, every stroke is different, and every recovery is different. She provides a valuable look at the broad possibilities for successfully navigating the challenging physical recovery—and the equally difficult emotional journey toward rebuilding one’s identity and a rewarding life after a trauma like stroke.
Shoot the Damn Dog: A Memoir of Depression
Sally Brampton - 2008
But behind the successful, glamorous career was a story that many of her friends and colleagues knew nothing about—her ongoing struggle with severe depression and alcoholism. Brampton's is a candid, tremendously honest telling of how she was finally able to "address the elephant in the room," and of a culture that sends the overriding message that people who suffer from depression are somehow responsible for their own illness. She offers readers a unique perspective of depression from the inside that is at times wrenching, but ultimately inspirational, as it charts her own coming back to life. Beyond her personal story, Brampton offers practical advice to all those affected by this illness. This book will resonate with any person whose life has been haunted by depression, at the same time offering help and understanding to those whose loved ones suffer from this debilitating condition.
The Family Gene: A Mission to Turn My Deadly Inheritance into a Hopeful Future
Joselin Linder - 2017
After years of misdiagnoses, doctors discovered a deadly blockage in her liver. Struggling to find an explanation for her unusual condition, Joselin compared the medical chart of her father—who had died from a mysterious disease, ten years prior—with that of an uncle who had died under similarly strange circumstances. Delving further into the past, she discovered that her great-grandmother had displayed symptoms similar to hers before her death. Clearly, this was more than a fluke. Setting out to build a more complete picture of the illness that haunted her family, Joselin approached Dr. Christine Seidman, the head of a group of world-class genetic researchers at Harvard Medical School, for help. Dr. Seidman had been working on her family’s case for twenty years and had finally confirmed that fourteen of Joselin’s relatives carried something called a private mutation—meaning that they were the first known people to experience the baffling symptoms of a brand new genetic mutation. Here, Joselin tells the story of their gene: the lives it claimed and the future of genomic medicine with the potential to save those that remain. Digging into family records and medical history, conducting interviews with relatives and friends, and reflecting on her own experiences with the Harvard doctor, Joselin pieces together the lineage of this deadly gene to write an exploration of family, history, and love.
Rosemary: The Hidden Kennedy Daughter
Kate Clifford Larson - 2015
The daughter they secreted away made all the difference.Joe and Rose Kennedy’s strikingly beautiful daughter Rosemary attended exclusive schools, was presented as a debutante to the Queen of England, and traveled the world with her high-spirited sisters. And yet, Rosemary was intellectually disabled — a secret fiercely guarded by her powerful and glamorous family. Major new sources — Rose Kennedy’s diaries and correspondence, school and doctors' letters, and exclusive family interviews — bring Rosemary alive as a girl adored but left far behind by her competitive siblings. Kate Larson reveals both the sensitive care Rose and Joe gave to Rosemary and then — as the family’s standing reached an apex — the often desperate and duplicitous arrangements the Kennedys made to keep her away from home as she became increasingly intractable in her early twenties. Finally, Larson illuminates Joe’s decision to have Rosemary lobotomized at age twenty-three, and the family's complicity in keeping the secret. Rosemary delivers a profoundly moving coda: JFK visited Rosemary for the first time while campaigning in the Midwest; she had been living isolated in a Wisconsin institution for nearly twenty years. Only then did the siblings understand what had happened to Rosemary and bring her home for loving family visits. It was a reckoning that inspired them to direct attention to the plight of the disabled, transforming the lives of millions.
Lucky
Alice Sebold - 1999
What propels this chronicle of her recovery is Sebold's indomitable spirit - as she struggles for understanding ("After telling the hard facts to anyone, from lover to friend, I have changed in their eyes"); as her dazed family and friends sometimes bungle their efforts to provide comfort and support; and as, ultimately, she triumphs, managing through grit and coincidence to help secure her attacker's arrest and conviction. In a narrative by turns disturbing, thrilling, and inspiring, Alice Sebold illuminates the experience of trauma victims even as she imparts wisdom profoundly hard-won: "You save yourself or you remain unsaved."
My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome
Amy Silverman - 2016
And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.
An Unquiet Mind: A Memoir of Moods and Madness
Kay Redfield Jamison - 1995
The personal memoir of a manic depressive and an authority on the subject describes the onset of the illness during her teenage years and her determined journey through the realm of available treatments.
Gracefully Insane: The Rise and Fall of America's Premier Mental Hospital
Alex Beam - 2001
There are no fences, no guards, no locked gates. But McLean Hospital is a mental institution-one of the most famous, most elite, and once most luxurious in America. McLean "alumni" include Olmsted himself, Robert Lowell, Sylvia Plath, James Taylor and Ray Charles, as well as (more secretly) other notables from among the rich and famous. In its "golden age," McLean provided as genteel an environment for the treatment of mental illness as one could imagine. But the golden age is over, and a downsized, downscale McLean-despite its affiliation with Harvard University-is struggling to stay afloat. Gracefully Insane, by Boston Globe columnist Alex Beam, is a fascinating and emotional biography of McLean Hospital from its founding in 1817 through today. It is filled with stories about patients and doctors: the Ralph Waldo Emerson prot'g' whose brilliance disappeared along with his madness; Anne Sexton's poetry seminar, and many more. The story of McLean is also the story of the hopes and failures of psychology and psychotherapy; of the evolution of attitudes about mental illness, of approaches to treatment, and of the economic pressures that are making McLean-and other institutions like it-relics of a bygone age. This is a compelling and often oddly poignant reading for fans of books like Plath's The Bell Jar and Susanna Kaysen's Girl, Interrupted (both inspired by their author's stays at McLean) and for anyone interested in the history of medicine or psychotherapy, or the social history of New England.