Nurses On The Inside: Stories Of The HIV/AIDS Epidemic In NYC


Ellen Matzer - 2019
    It is the story of two nurses who witnessed the early years of the HIV/AIDS epidemic from the frontline. It focuses on their lives and their experiences. Some of the story is raw, sometimes graphic, but familiar for people with HIV infection, family members, friends, and other nurses and medical professionals such as Ellen and Valery. There were hundreds of nurses who went through what Ellen and Valery experienced. They want to tell this story to give a voice to a generation lost, encouraging the world to remember one simple thing: this history cannot be repeated.

The Wisdom of Whores: Bureaucrats, Brothels, and the Business of AIDS


Elizabeth Pisani - 2008
    With swashbuckling wit and fierce honesty, she dishes on herself and her colleagues as they try to prod reluctant governments to fund HIV prevention for the people who need it most—drug injectors, gay men, sex workers, and johns.Pisani chats with flamboyant Indonesian transsexuals about their boob jobs and watches Chinese streetwalkers turn away clients because their SUVs aren't nice enough. With verve and clarity, she shows the general reader how her profession really works; how easy it is to draw wrong conclusions from "objective" data; and, shockingly, how much money is spent so very badly. "Exhibit A": the 45 billion taxpayer dollars the Bush administration is committing to international AIDS programs.

Something for the Weekend: Life in the Chemsex Underworld


James Wharton - 2018
    In his search for new friends and potential lovers, he becomes sucked into London’s gay drug culture, soon becoming addicted to partying and the phenomenon that is ‘chemsex’. Exploring his own journey through this dark but popular world, James looks at the motivating factors that led him to the culture, as well as examining the paths taken by others. He reveals the real goings-on at the weekends for thousands of people after most have gone to bed, and how modern technology allows them to arrange, congregate, furnish themselves with drugs and spend hours, often days, behind closed curtains, with strangers and in states of heightened sexual desire.Something for the Weekend looks compassionately at a growing culture that’s now moved beyond London and established itself as more than a short-term craze.

How to Survive a Plague: The Inside Story of How Citizens and Science Tamed AIDS


David France - 2013
     A riveting, powerful telling of the story of the grassroots movement of activists, many of them in a life-or-death struggle, who seized upon scientific research to help develop the drugs that turned HIV from a mostly fatal infection to a manageable disease. Ignored by public officials, religious leaders, and the nation at large, and confronted with shame and hatred, this small group of men and women chose to fight for their right to live by educating themselves and demanding to become full partners in the race for effective treatments. Around the globe, 16 million people are alive today thanks to their efforts. Not since the publication of Randy Shilts's classic And the Band Played On has a book measured the AIDS plague in such brutally human, intimate, and soaring terms. In dramatic fashion, we witness the founding of ACT UP and TAG (Treatment Action Group), and the rise of an underground drug market in opposition to the prohibitively expensive (and sometimes toxic) AZT. We watch as these activists learn to become their own researchers, lobbyists, drug smugglers, and clinicians, establishing their own newspapers, research journals, and laboratories, and as they go on to force reform in the nation s disease-fighting agencies. With his unparalleled access to this community David France illuminates the lives of extraordinary characters, including the closeted Wall Street trader-turned-activist, the high school dropout who found purpose battling pharmaceutical giants in New York, the South African physician who helped establish the first officially recognized buyers club at the height of the epidemic, and the public relations executive fighting to save his own life for the sake of his young daughter. Expansive yet richly detailed, this is an insider's account of a pivotal moment in the history of American civil rights. Powerful, heart-wrenching, and finally exhilarating, How to Survive a Plague is destined to become an essential part of the literature of AIDS.

Body Counts: A Memoir of Politics, Sex, AIDS, and Survival


Sean Strub - 2014
    He also harbored a terrifying secret: his attraction to men. As Strub explored the capital’s political and social circles, he discovered a parallel world where powerful men lived double lives shrouded in shame. When the AIDS epidemic hit in the early 1980s, Strub was living in New York and soon found himself attending “more funerals than birthday parties.” Scared and angry, he turned to radical activism to combat discrimination and demand research. Strub takes you through his own diagnosis and inside ACT UP, the organization that transformed a stigmatized cause into one of the defining political movements of our time. From the New York of Studio 54 and Andy Warhol’s Factory to the intersection of politics and burgeoning LGBT and AIDS movements, Strub’s story crackles with history. He recounts his role in shocking AIDS demonstrations at St. Patrick’s Cathedral as well as at the home of US Sen­ator Jesse Helms. With an astonishing cast of characters, including Tennessee Williams, Gore Vidal, Keith Haring, Bill Clinton, and Yoko Ono, this is a vivid portrait of a tumultuous era: “A page-turner…[with] the suspense and horror of Paul Monette’s memoir Borrowed Time and the drama of Larry Kramer’s play The Normal Heart….What a lot of action—and life—there is in this gripping book” (The Washington Post).

All the Young Men


Ruth Coker Burks - 2020
    She witnesses nurses drawing straws to see who would tend to the patient inside, all of them reluctant to enter the room. Out of impulse, Ruth herself enters the quarantined space and immediately begins to care for the young man who cries for his mother in the last moments of his life. Before she can even process what she's done, word spreads in the community that Ruth is the only person willing to help these young men afflicted by AIDS, and is called upon to nurse them. As she forges deep friendships with the men she helps, she works tirelessly to find them housing and jobs, even searching for funeral homes willing to take their bodies - often in the middle of the night. She cooks meals for tens of people out of discarded food found in the dumpsters behind supermarkets, stores rare medications for her most urgent patients, teaches sex-ed to drag queens after hours at secret bars, and becomes a beacon of hope to an otherwise spurned group of ailing gay men on the fringes of a deeply conservative state.Throughout the years, Ruth defies local pastors and nurses to help the men she cares for: Paul and Billy, Angel, Chip, Todd and Luke. Emboldened by the weight of their collective pain, she fervently advocates for their safety and visibility, ultimately advising Governor Bill Clinton on the national HIV-AIDS crisis.This deeply moving and elegiac memoir honors the extraordinary life of Ruth Coker Burks and the beloved men who fought valiantly for their lives with AIDS during a most hostile and misinformed time in America.

Patient Zero and the Making of the AIDS Epidemic


Richard A. McKay - 2017
    Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.

Somebody to Love: The Life, Death and Legacy of Freddie Mercury


Matt Richards - 2016
    Including interviews from Freddie Mercury's closest friends in the last years of his life, along with personal photographs, Somebody to Love is an authoritative biography of the great man.Here are previously unknown and startling facts about the singer and his life, moving detail on his lifelong search for love and personal fulfilment, and of course his tragic contraction of a then killer disease in the mid-1980s. Woven throughout Freddie's life is the shocking story of how the HIV virus came to hold the world in its grip, was cruelly labelled 'The Gay Plague' and the unwitting few who indirectly infected thousands of men, women and children - Freddie Mercury himself being one of the most famous. The death of this vibrant and spectacularly talented rock star, shook the world of medicine as well as the world of music. Somebody to Love finally puts the record straight and pays detailed tribute to the man himself.

Unbelievable!: The Bizarre World of Coincidences


Jenny Crompton - 2013
    So the next time the fates collide and you're reminded of what a small world it can be, you'll realize we're all victims of coincidence ...

The Origins of AIDS


Jacques Pepin - 2011
    Inspired by his own experiences working as an infectious diseases physician in Africa, Jacques Pepin looks back to the early twentieth-century events in Africa that triggered the emergence of HIV/AIDS and traces its subsequent development into the most dramatic and destructive epidemic of modern times. He shows how the disease was first transmitted from chimpanzees to man and then how urbanization, prostitution, and large-scale colonial medical campaigns intended to eradicate tropical diseases combined to disastrous effect to fuel the spread of the virus from its origins in Leopoldville to the rest of Africa, the Caribbean and ultimately worldwide. This is an essential new perspective on HIV/AIDS and on the lessons that must be learnt if we are to avoid provoking another pandemic in the future.

Last Watch of the Night: Essays Too Personal and Otherwise


Paul Monette - 1994
    Brimming with outrage yet tender, this is a “remarkable book” (Philadelphia Inquirer).Puck --Gert --My priests --3275 --The politics of silence --Mustering --A one-way fare --Getting covered --Sleeping under a tree --Mortal things --Some afterthoughts

AIDS and Its Metaphors


Susan Sontag - 1989
    By demystifying the fantasies surrounding cancer, Sontag shows cancer for what it is—just a disease. Cancer, she argues, is not a curse, not a punishment, certainly not an embarrassment and, it is highly curable, if good treatment is followed. Almost a decade later, with the outbreak of a new, stigmatized disease replete with mystifications and punitive metaphors, Sontag wrote a sequel to Illness as Metaphor, extending the argument of the earlier book to the AIDS pandemic.These two essays now published together, Illness as Metaphor and AIDS and Its Metaphors, have been translated into many languages and continue to have an enormous influence on the thinking of medical professionals and, above all, on the lives of many thousands of patients and caregivers.

Queer and Loathing: Rants and Raves of a Raging AIDS Clone


David B. Feinberg - 1994
    . . here's one book that truly deserves a place in a time capsule."--Armistead MaupinThis is as close to the truth as I can get, writes David Feinberg in what he calls his personal Portrait of the Artist as a Young Diseased Jew Fag Pariah. Queer and Loathing is a collection of autobiographical essays, gonzo journalism, and demented Feinbergian lists about AIDS activism and living, writing, and dying with AIDS.

Moving Politics: Emotion and ACT UP's Fight against AIDS


Deborah B. Gould - 2009
    But by the early 1990s, the organization they founded, ACT UP, was no more; even as the AIDS epidemic raged on. Weaving together interviews with activists, extensive research, and reflections on the author's time as a member of the organization, Moving Politics is the first book to chronicle the rise and fall of ACT UP, highlighting a key factor in its trajectory: emotion.Surprisingly overlooked by many scholars of social movements, emotion, Gould argues, plays a fundamental role in political activism. From anger to hope, pride to shame, and solidarity to despair, feelings played a significant part in ACT UP's provocative style of protest, which included raucous demonstrations, die-ins, and other kinds of street theater. Detailing the movement's public triumphs and private setbacks, Moving Politics is the definitive account of ACT UP’s origin, development, and decline as well as a searching look at the role of emotion in contentious politics.

When We Rise: My Life in the Movement


Cleve Jones - 2016
    There were. Like thousands of other young people, Jones, nearly penniless, was drawn in the early 1970s to San Francisco, a city electrified by progressive politics and sexual freedom.Jones found community--in the hotel rooms and ramshackle apartments shared by other young adventurers, in the city's bathhouses and gay bars like The Stud, and in the burgeoning gay district, the Castro, where a New York transplant named Harvey Milk set up a camera shop, began shouting through his bullhorn, and soon became the nation's most outspoken gay elected official. With Milk's encouragement, Jones dove into politics and found his calling in "the movement." When Milk was killed by an assassin's bullet in 1978, Jones took up his mentor's progressive mantle--only to see the arrival of AIDS transform his life once again.By turns tender and uproarious--and written entirely in his own words--When We Rise is Jones' account of his remarkable life. He chronicles the heartbreak of losing countless friends to AIDS, which very nearly killed him, too; his co-founding of the San Francisco AIDS Foundation during the terrifying early years of the epidemic; his conception of the AIDS Memorial Quilt, the largest community art project in history; the bewitching story of 1970s San Francisco and the magnetic spell it cast for thousands of young gay people and other misfits; and the harrowing, sexy, and sometimes hilarious stories of Cleve's passionate relationships with friends and lovers during an era defined by both unprecedented freedom and possibility, and prejudice and violence alike.When We Rise is not only the story of a hero to the LQBTQ community, but the vibrantly voice memoir of a full and transformative American life--an activist whose work continues today.