Constantly changing policies. Increasing bureaucratic regulations. These are just a few of the challenges health care providers face every day; challenges that limit the ability to provide excellent patient care. Marcus' insights will give health care providers new and essential strategies to rediscover the magic and compassion between caregiver and patient.

    Clear, cogent, compelling analyses of the tension between the 'social model' of disability and the material details of impairment; of identity politics and unstable identities; of capability rights and human interdependence; of disability and law, disability as masquerade, disability and sexuality, disability and democracy---they're all here, in beautifully crafted and intellectually startling essays. Disability Theory is a field-defining book: and if you're curious about what 'disability' has to do with 'theory,' it's just the book you've been waiting for, too."---Michael Bérubé, Pennsylvania State University "Disability Theory is magisterially written, thoroughly researched, and polemically powerful. It will be controversial in a number of areas and will probably ruffle feathers both in disability studies as well as in realms of cultural theory. And that's all to the good."---Michael Davidson, University of California, San Diego"Not only is Disability Theory a groundbreaking contribution to disability studies, it is also a bold, ambitious and much needed revision to a number of adjacent and overlapping fields including cultural studies, literary theory, queer theory, and critical race studies. Siebers has written a powerful manifesto that calls theory to account and forces readers to think beyond our comfort zones."---Helen Deutsch, University of California, Los AngelesIntelligent, provocative, and challenging, Disability Theory revolutionizes the terrain of theory by providing indisputable evidence of the value and utility that a disability studies perspective can bring to key critical and cultural questions. Tobin Siebers persuasively argues that disability studies transfigures basic assumptions about identity, ideology, language, politics, social oppression, and the body. At the same time, he advances the emerging field of disability studies by putting its core issues into contact with signal thinkers in cultural studies, literary theory, queer theory, gender studies, and critical race theory.

    Yet the surprising story behind how the bill came to be is little known.In this riveting account, acclaimed disability scholar Lennard J. Davis delivers the first behind-the-scenes and on-the-ground narrative of how a band of leftist Berkeley hippies managed to make an alliance with upper-crust, conservative Republicans to bring about a truly bipartisan bill. Based on extensive interviews with all the major players involved including legislators and activists, Davis recreates the dramatic tension of a story that is anything but a dry account of bills and speeches. Rather, it’s filled with one indefatigable character after another, culminating in explosive moments when the hidden army of the disability community stages scenes like the iconic “Capitol Crawl” or an event some describe as “deaf Selma,” when students stormed Gallaudet University demanding a “Deaf President Now!”From inside the offices of newly formed disability groups to secret breakfast meetings surreptitiously held outside the White House grounds, here we meet countless unsung characters, including political heavyweights and disability advocates on the front lines. “You want to fight?” an angered Ted Kennedy would shout in an upstairs room at the Capitol while negotiating the final details of the ADA. Congressman Tony Coelho, whose parents once thought him to be possessed by the devil because of his epilepsy, later became the bill’s primary sponsor. There’s Justin Dart, adorned in disability power buttons and his signature cowboy hat, who took to the road canvassing fifty states, and people like Patrisha Wright, also known as “The General,” Arlene Myerson or “the brains,” “architect” Bob Funk, and visionary Mary Lou Breslin, who left the hippie highlands of the West to pursue equal rights in the marble halls of DC. Published for the twenty-fifth anniversary of the ADA, Enabling Acts promises to ignite readers in a discussion of disability rights by documenting this “eyes on the prize” moment for tens of millions of American citizens.

    The story was collected in his anthology Welcome To The Monkey House. The story centers on a character named Harry Nash, who is an extremely shy & characterless small-town man. However, whenever he takes a part in the local, amateur theater production he becomes the character to an overwhelming extent. Soon Helene Shaw, a recent addition to the town, falls in love with Nash--or with his character in the play.

    Although people with autism live in the same physical world and deal with the same `raw material' their perceptual world turns out strikingly different from that of non-autistic people. It is widely reported that autistic people have `unusual' sensory perceptual experiences that may involve hypo- and hypersensitivity, fluctuation between different `volumes' of perception and difficulty interpreting a sense.In this book, Olga Bogdashina attempts to define the role of sensory perceptual problems in autism identified by autistic individuals themselves. Often ignored by many professionals, this is one of the main problems highlighted by autistic individuals. This book singles out possible patterns of sensory experiences in autism and the cognitive differences caused by them. The final chapters are devoted to assessment and intervention issues with practical recommendations for selecting appropriate methods and techniques to eliminate the problems and enhance the strengths.Sensory Perceptual Issues in Autism and Asperger Syndrome is vital to teachers and other professionals working with autistic individuals to fully comprehend sensory perceptual differences in autism. This book will help readers select appropriate methods for dealing with autistic individuals. In addition, parents of autistic individuals and autistic individual themselves will find the information will enable them to initiate relevant strategies and environmental changes to facilitate more effective learning.

    Francesco Clark was a twenty-four-year-old with a bright future when he went to Long Island for the weekend--but a nocturnal dive into the pool's shallow end changed everything, forever. Paralyzed from the neck down, Francesco was told by his doctors that he would never move from his bed or even breathe without assistance. But Francesco fought back. Within days, he was breathing on his own. His father, a doctor himself, investigated every opportunity for experimental treatment, and Francesco used every resource available to speed his recovery. To avoid having his lungs painfully suctioned, he sang, loudly, for hours--and that was just the beginning. Francesco moved back home with his parents and began the long process toward recovery. Many doctors discourage patients with spinal cord injury from pursuing physical therapy beyond very basic movements, but Francesco embarked on a five-hour daily regimen, including the treadmill program that Christopher Reeve had made famous. Soon he astounded the medical establishment with his progress. Francesco's accident also left him unable to sweat out toxins, leaving his complexion poor. He and his father began to experiment, and the Clark's Botanicals skin-care line was born. Now CB products are sold worldwide in stores such as Saks Fifth Avenue, and the company has won many major fashion awards and is enjoyed by a host of celebrities. The lessons Francesco learned about persistence from his recovery process, and the loving support of his amazing family, have both contributed to his incredible business success. Seven years after the accident, Francesco continues to improve and to surprise his doctors--for instance, he can now work on a computer. Walking Papers is the inspiring story of how, with individual determination and unconditional family support, Francesco Clark overcame extreme adversity and achieved an extraordinary triumph.

    The heartbreaking story of this mysterious sonata—Schubert’s last, and his most elusive and haunting—is the soundtrack of Andrea's story.Sonata is a breathtaking exploration of a “Janus-head miracle”—Andrea's extraordinary talent and even more extraordinary illness. With no cure for her R.A. possible, Andrea must learn to live with this disease while not letting it define her, even though it leaves its mark on everything around her—family, relationships, even the clothes she wears. And in this riveting account, she never loses her wit, humor, or the raw artistry of a true performer.As the goshawk becomes a source of both devotion and frustration for Helen Macdonald in H is for Hawk, so the piano comes to represent both struggle and salvation for Andrea in her extraordinary debut.

    None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

    So when the all-natural, vegetarian, yoga-practising, marathon-running mother of three young boys was diagnosed with breast cancer, the world stopped making sense.In an increasingly perilous environment, the promise of order amid chaos is so tantalizing.Every busy woman will recognize herself in Gill’s striving—if we just get through our to-do list of achievements and improvements, we can get our lives under control …can’t we? The illusion of perfection is a powerful motivator, propelling so many of us on a breakneck pace toward somewhere other than where we are right now. But as only a brush with death can teach us, Gill learns the folly of believing we are in control.Readers will be inspired to appreciate the ragged imperfection of right now and learn to find glimpses of gratitude in every moment of any day.

    After all, the ogre never gets the princess. And since fairy tales are the foundational myths of our culture, how can a girl with a disability ever think she'll have a happy ending?By examining the ways that fairy tales have shaped our expectations of disability, Disfigured will point the way toward a new world where disability is no longer a punishment or impediment but operates, instead, as a way of centering a protagonist and helping them to cement their own place in a story, and from there, the world. Through the book, Leduc ruminates on the connections we make between fairy tale archetypes—the beautiful princess, the glass slipper, the maiden with long hair lost in the tower—and tries to make sense of them through a twenty-first-century disablist lens. From examinations of disability in tales from the Brothers Grimm and Hans Christian Andersen through to modern interpretations ranging from Disney to Angela Carter, and the fight for disabled representation in today's media, Leduc connects the fight for disability justice to the growth of modern, magical stories, and argues for increased awareness and acceptance of that which is other—helping us to see and celebrate the magic inherent in different bodies.

    In this classic study of the very nature of that fascination, the renowned literary and cultural critic Fiedler offers an in-depth examination of man's views of the freak from classical times to present. 150 photos and line drawings.

    They’re humorous, odd, and full of all the unreasonable truth of love. This book is the real thing.” —Publishers Weekly Weise’s collection “examines the daily life and consciousness of a speaker with a disability willing to confront all taboos associated with sex, intimacy, identity, gender, and love.” - Coldfront MagazineThe Los Angeles Times described Jillian Weise's debut poetry collection as "a fearless dissection of the taboo and the hidden." In this second collection she forwards her bold, sexy poetics by chronicling an affair with a man she names "Big Logos." These poems throw into question sex, the law, identity, sentiment, and power, shifting between lyric and narrative, hyper-realism and magical realism, fact and fiction.I've Been Waiting All NightI reckon you were asleep with your girlbefore the phone rang. Make something up.I've been waiting all night to tell youabout the couple in post-War France,the woman fresh in her graveand the man who didn't like his mistress dead,no sir, and so exhumed her, to the dismayof his wife, who had him arrestedfor the stink he made.She was reburied, returned to the dead.After jail, he dug her up to fuck again.Attached suction cups and crafteda wig from a broom. You can go now.I'm more in the mood than you're used to.Jillian Weise—an above-the-knee amputee with a computerized prosthetic—identifies as a cyborg and has discussed the identity in essays for the New York Times and Drunken Boat. Her books include The Amputee's Guide to Sex (Soft Skull Press, 2007) and The Colony (Counterpoint/Soft Skull Press, 2010). She is an assistant professor at Clemson University, a contributing editor at the South Carolina Review, and co-director of the Annual Clemson Literary Festival.

    But when she found herself on the floor of her apartment wailing into the phone, 'but I don’t want to be sick,' her entire world came crashing down.A doctor had just revealed that she had Multiple Sclerosis, a potentially debilitating disease, her good friend was getting married that weekend and the only people she wanted to call were her parents. In a time when she was supposed to be coming into her own as an adult, all she could think was who's going to want to marry me now?As she embarked on a medical quest, subjecting herself to countless MRIs and a painful spinal tap that landed her in the ER, Cory simultaneously threw herself head first into dating. She was determined to find love before the disease took over her body. But no matter how many doctors she saw or men she met there would never be a cure for MS. And if you think it's hard to get the guy you’re dating to give you a ride to the airport, try getting him to drive you to the hospital. Add to that an unfortunate incident with a blue thong and a cute young doctor, and Cory quickly realized that learning to deal with MS would take a whole lot more strength than a ring on her finger could ever provide.Love Sick is a smart and witty account of dating while navigating a life of uncertain health. Writing from a place of strength and vulnerability, Cory Martin faces her fears head on with humor and grace. Her tales are real life. There is no magical ending and no grand epiphany. Instead it is her desire to be loved and feel normal that makes her journey so poignant.

    She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.

    Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.What’s most extraordinary about Jacinta’s story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen.With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality, and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It’s a story of trying to fix an unfixable illness, getting beaten down then clawing back up, and how that experience can shape a life.