Making Peace with Autism: One Family's Story of Struggle, Discovery, and Unexpected Gifts


Susan Senator - 2005
    In this insightful narrative, a courageous and inspiring mother explains why a diagnosis of autism doesn't have to shatter a family's dreams of happiness. Senator offers the hard-won, in-the-trenches wisdom of someone who's been there and is still there today and she demonstrates how families can find courage, contentment, and connection in the shadow of autism.In Making Peace with Autism, Susan Senator describes her own journey raising a child with a severe autism spectrum disorder, along with two other typically developing boys. Without offering a miracle treatment or cure, Senator offers valuable strategies for coping successfully with the daily struggles of life with an autistic child.Along the way she models the combination of stamina and courage, openness, and humor that has helped her family to survive and even to thrive. Topics include: the agony of diagnosis, grieving and acceptance, finding the right school program, helping siblings with their struggles and concerns, having fun together, and keeping the marriage strong.

Be Different: Adventures of a Free-Range Aspergian


John Elder Robison - 2011
    This book will help you bring out those gifts.” In his bestselling memoir, Look Me in the Eye, John Elder Robison described growing up with Asperger’s syndrome at a time when the diagnosis didn’t exist. He was intelligent but socially isolated; his talents won him jobs with toy makers and rock bands but did little to endear him to authority figures and classmates, who were put off by his inclination to blurt out non sequiturs and avoid eye contact.By the time he was diagnosed at age forty, John had already developed a myriad of coping strategies that helped him achieve a seemingly normal, even highly successful, life. In Be Different, Robison shares a new batch of endearing stories about his childhood, adolescence, and young adult years, giving the reader a rare window into the Aspergian mind.In each story, he offers practical advice—for Aspergians and indeed for anyone who feels “different”—on how to improve the weak communication and social skills that keep so many people from taking full advantage of their often remarkable gifts. With his trademark honesty and unapologetic eccentricity, Robison addresses questions like:• How to read others and follow their behaviors when in uncertain social situations• Why manners matter• How to harness your powers of concentration to master difficult skills• How to deal with bullies• When to make an effort to fit in, and when to embrace eccentricity• How to identify special gifts and use them to your advantageEvery person, Aspergian or not, has something unique to offer the world, and every person has the capacity to create strong, loving bonds with their friends and family. Be Different will help readers and those they love find their path to success.

There's a Boy in Here: Emerging from the Bonds of Autism


Judy Barron - 1992
    Together, they chronicle Sean’s young life and the effects of autism on him and his family. As a youngster, Sean was confrontational, uncontrollable, “isolated and desperately unhappy.” Baffled about how to interact with others, he felt “like an alien from outer space.” Then, at seventeen, Sean experienced a breakthrough that began his release from autism. Today he’s a public speaker, college student, and reporter—and close to his family. You absolutely must read this book.

Carly's Voice: Breaking Through Autism


Arthur Fleischmann - 2012
    Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at the age of ten, she had a breakthrough. While working with her devoted therapists Howie and Barb, Carly reached over to their laptop and typed in "HELP TEETH HURT," much to everyone's astonishment. This was the beginning of Carly's journey toward self-realization. Although Carly still struggles with all the symptoms of autism, which she describes with uncanny accuracy and detail, she now has regular, witty, and profound conversations on the computer with her family, her therapists, and the many thousands of people who follow her via her blog, Facebook, and Twitter. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to explore firsthand the challenges of living with autism, it brings readers inside a once-secret world and in the company of an inspiring young woman who has found her voice and her mission.

Nerdy, Shy, and Socially Inappropriate: A User Guide to an Asperger Life


Cynthia Kim - 2014
    Her own life presents many rich examples. From being labelled nerdy and shy as an undiagnosed child to redefining herself when diagnosed with Asperger Syndrome as an adult, she describes how her perspective shifted to understanding a previously confusing world and combines this with the results of extensive research to explore the 'why' of ASD traits. She explains how they impact on everything from self-care to holding down a job and offers typically practical and creative strategies to help manage them, including a section on the vestibular, sensory and social benefits of martial arts for people with autism.Well known in the autism community and beyond for her popular blog, Musings of an Aspie, Cynthia Kim's book is rich with personal anecdotes and useful advice. This intelligent insider guide will help adults with ASDs and their partners, family members, friends, and colleagues, but it also provides a fresh and witty window onto a different worldview.

Thinking in Pictures: My Life with Autism


Temple Grandin - 1995
    She also lectures widely on autism—because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us. In this unprecedented book, Grandin delivers a report from the country of autism. Writing from the dual perspectives of a scientist and an autistic person, she tells us how that country is experienced by its inhabitants and how she managed to breach its boundaries to function in the outside world. What emerges in Thinking in Pictures is the document of an extraordinary human being, one who, in gracefully and lucidly bridging the gulf between her condition and our own, sheds light on the riddle of our common identity.

Life, Animated: A Story of Sidekicks, Heroes, and Autism


Ron Suskind - 2014
    It is the saga of Owen Suskind, who happens to be the son of one of America's most noted writers, the Pulitzer Prize-winning journalist and author Ron Suskind. He's also autistic. The twisting, 20-year journey of this boy and his family will change that way you see autism, old Disney movies, and the power of imagination to heal a shattered, upside-down world.

Unstrange Minds: Remapping the World of Autism


Roy Richard Grinker - 2007
    His search took him to Africa, India, and East Asia, to the National Institutes of Mental Health, and to the mountains of Appalachia. What he discovered is both surprising and controversial: There is no true increase in autism. Grinker shows that the identification and treatment of autism depends on culture just as much as on science. As more and more cases of autism are documented, doctors are describing the disorder better, school systems are coding it better--and children are benefiting. Filled with moving stories and informed by the latest science, Unstrange Minds is unlike any other book on autism. It is a powerful testament to a father's quest for the truth, and is urgently relevant to anyone whose life is touched by one of history's most puzzling disorders.

The Center Cannot Hold: My Journey Through Madness


Elyn R. Saks - 2007
    She has managed to achieve this in spite of being diagnosed as schizophrenic and given a "grave" prognosis—and suffering the effects of her illness throughout her life.Saks was only eight, and living an otherwise idyllic childhood in sunny 1960s Miami, when her first symptoms appeared in the form of obsessions and night terrors. But it was not until she reached Oxford University as a Marshall Scholar that her first full-blown episode, complete with voices in her head and terrifying suicidal fantasies, forced her into a psychiatric hospital.Saks would later attend Yale Law School where one night, during her first term, she had a breakdown that left her singing on the roof of the law school library at midnight. She was taken to the emergency room, force-fed antipsychotic medication, and tied hand-and-foot to the cold metal of a hospital bed. She spent the next five months in a psychiatric ward.So began Saks's long war with her own internal demons and the equally powerful forces of stigma. Today she is a chaired professor of law who researches and writes about the rights of the mentally ill. She is married to a wonderful man.In The Center Cannot Hold, Elyn Saks discusses frankly and movingly the paranoia, the inability to tell imaginary fears from real ones, and the voices in her head insisting she do terrible things, as well as the many obstacles she overcame to become the woman she is today. It is destined to become a classic in the genre.

Raising Blaze: Bringing Up an Extraordinary Son in an Ordinary World


Debra Ginsberg - 2002
    What she didn't know was that Blaze's differences would be regarded by the outside world not as gifts, but as impediments to social and academic success. Blaze never crawled. He just got up and walked when he turned one. He called his mother 'Zsa Zsa' until he was three. By kindergarten, he loved the music of Miles Davis and Ella Fitzgerald. He fears butterflies and is fascinated by garbage trucks.With the same honesty that made Waiting a success, Raising Blaze: Bringing Up an Extraordinary Son in an Ordinary World chronicles Debra's experience in raising a child who has defied definition by the host of professionals who have sought to label his differences. Ginsberg introduces us to a remarkable child and her own unusual childhood. She writes about a family which shows us the redemptive power of faith, humour and love.

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

Elijah's Cup: A Family's Journey into the Community and Culture of High-functioning Autism and Asperger's Syndrome (Revised edition)


Valerie Paradiž - 2002
    Her inspiring narrative offers compelling insights into daily life with Elijah's Asperger's syndrome and her own 'shadow syndrome', which affects many family members of autistics. It is also a celebration of the idiosyncratic beauty of the Asperger mind and the sense of mutual support and self-respect in the ASD community.This revised edition includes a contribution from Elijah and a new chapter that brings the story up-to-date: the author successfully sets up a specialist educational unit for Asperger pupils, Elijah experiences his first two years of school, and the author's dawning recognition of her own Asperger's Syndrome leads to major life changes.Elijah's Cup offers moving and insightful observations as well as factual information for parents and anyone working with people with ASDs.

Songs of the Gorilla Nation: My Journey Through Autism


Dawn Prince-Hughes - 2004
    Specifically, it is about my autism, which is both like and unlike other people’s autism. But just as much, it is a story about how I emerged from the darkness of it into the beauty of it.”In this elegant and thought-provoking memoir, Dawn Prince-Hughes traces her personal growth from undiagnosed autism to the moment when, as a young woman, she entered the Seattle Zoo and immediately became fascinated with the gorillas.Having suffered from a lifelong inability to relate to people in a meaningful way, Dawn was surprised to find herself irresistibly drawn to these great primates. By observing them and, later, working with them, she was finally able to emerge from her solitude and connect to living beings in a way she had never previously experienced.Songs of the Gorilla Nation is more than a story of autism, it is a paean to all that is important in life. Dawn Prince-Hughes’s evocative story will undoubtedly have a lasting impact, forcing us, like the author herself, to rediscover and assess our own understanding of human emotion.

Pretending to Be Normal: Living with Asperger's Syndrome


Liane Holliday Willey - 1999
    Chronicling her life from her earliest memories through her life as a university lecturer, writer, wife and mother, Liane Holliday Willey shares, with insight and warmth, the daily struggles and challenges that face many of those who have Asperger's Syndrome. Pretending to be Normal invites its readers to welcome the Asperger community with open acceptance, for it makes it clear that, more often than not, they are capable, viable, interesting and kind people who simply find unique ways to exhibit those qualities.The last part of the book consists of a series of substantial appendices which provide helpful coping strategies and guidance, based on the author's own experience, for a range of situations. This positive and humane book will provide not only insight into the Asperger world which will prove invaluable for the professionals who work with people with Asperger's Syndrome, but also hope and encouragement for other people with Asperger's Syndrome, their families, and their friends.

The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.