The Out-of-Sync Child: Recognizing and Coping with Sensory Processing Disorder


Carol Stock Kranowitz - 1998
    This newly revised edition features additional information from recent research on vision and hearing deficits, motor skill problems, nutrition and picky eaters, ADHA, autism, and other related disorders.

Keep Clear: my adventures with Asperger’s


Tom Cutler - 2019
    The final realisation that he has Asperger’s allows a light to dawn on the riddles of his life: his accidental rudeness, maladroitness, Pan Am smile, and other social impediments. But, like many with Asperger’s, Tom possesses great facility with words, and this shines through this exceptionally warm, bright, and moving memoir, which is alternately strikingly revealing, laugh-out-loud funny, and achingly sad.Tom explores his eccentric behaviour from boyhood to manhood, examines the role of autism in his strange family, and investigates the scientific explanations for the condition. He recounts his anxiety and bewilderment in social situations, his sensory overload, his strange way of dressing, and his particular trouble with girls. He shares his autistic adventures in offices, toyshops, backstage in theatres, and in book and magazine publishing houses, as well as on — or more often off — roads.

The Girl with the Curly Hair - Asperger's and Me


Alis Rowe - 2013
    They have been by my side at the doctor’s. They have brought me out of shutdowns. They have supported me through depression. Yet, despite being a part of all of these things, they still don’t really know what it’s like being me, having Asperger’s Syndrome. So I wrote this book.The hardest thing about having Asperger’s Syndrome is that it can seem like an invisible condition. Females in particular, can be expert at masking their symptoms. Tomorrow I will get up and leave the house, go into work and get on with things, my challenges totally oblivious to the people around me. The next day will be the same. And the day after. I hope this book will build the bridge between people with Asperger’s Syndrome and the rest of the world. Most people with Asperger’s Syndrome are able and willing to work and live a “normal” life, with the right support and adjustment. The main problem is that most people are just unaware of how they can help. So, let us begin our journey into the wearing but wonderful world that is Asperger’s Syndrome.

The Diving Bell and the Butterfly


Jean-Dominique Bauby - 1997
    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.

Asperger's on the Inside


Michelle Vines - 2016
    The book follows Michelle in exploring her past and takes the reader with her on her journey to receiving and accepting her diagnosis. Instead of rehashing widely available Asperger's information, Michelle focuses on discussing the thoughts, feelings and ideas that go along with being an Aspie, giving us a rare peek into what it really feels like to be a person on the spectrum. A must read for all those who enjoy deep personal stories or have a loved one on the spectrum that they wish to understand better.

Sincerely, Your Autistic Child: What People on the Autism Spectrum Wish Their Parents Knew About Growing Up, Acceptance, and Identity


Sharon daVanportMallory Cruz - 2021
    Furthermore, it is widely believed that many autistic girls and women are underdiagnosed, which has further limited the information available regarding the unique needs of girls and nonbinary people with autism.Sincerely, Your Autistic Child represents an authentic resource for parents and others who care about autism written by people who understand this experience most, autistic people themselves. From childhood and education to culture, gender identity, and sexuality, this anthology of autistic contributors tackles the everyday challenges of growing up while honestly addressing the emotional needs, sensitivity, and vibrancy of the autistic community with a special focus on autistic girls and nonbinary people. Written like letters to parents, the contributors reflect on what they have learned while growing up with autism and how parents can avoid common mistakes and overcome challenges while raising their child.Sincerely, Your Autistic Child calls parents to action by raising awareness and redefining "normal" in order to help parents make their child feel truly accepted, valued, and celebrated for who they are.Contributors: B. Martin Allen, B. Rankowski, K. Asasumasu, M. Baggs, L. Wiley-Mydske, H. Moss, L. XZ Brown, K. Rodriguez, A. Schaber, J. St. Jude, M. Sparrow, M. Cruz, A. Sequenzia, K. Lean, L. Soraya, K. Smith, A. Forshaw, H. Wangelin/HW, V.M. Rodríguez-Roldán, J. Strauss, O.M. Robinson, K. Levin, J. Winegardner, D. Lyubovskaya, E.P. Ballou, S. daVanport, and M. Giwa Onaiwu. Foreword and Afterword by J. Wilson and B. Ryan.

Trapped: My Life with Cerebral Palsy


Fran Macilvey - 2014
    However, right after she gave birth in the hospital, she felt strange. Unbeknownst to anyone, another daughter was on the way, but before anybody responded, an hour had passed. Because of the delay, Fran was born with cerebral palsy.Growing up with her siblings in Africa, Fran always felt different. When everyone else was playing and having fun, she would watch and wish she could join in. After the family moved to Scotland and Fran grew older, her hurt turned into anger, self-hatred, and suicidal depression. Then one day, someone looked at her and saw a woman to love, and that was the start of her journey to self-acceptance.Fran has written the painful truth about her life to help readers understand how disabled adults really feel. In her revealing account, she shows just how hard it is to maintain the appearance of a “normal” life. More importantly, out of her million and one mistakes have come lessons in real acceptance, peace, and joy, which she would like to share with her readers.

All the Things We Never Knew: Chasing the Chaos of Mental Illness


Sheila Hamilton - 2015
    Even as a reporter, Sheila Hamilton missed the signs as her husband David's mental illness unfolded before her. By the time she had pieced together the puzzle, it was too late. Her once brilliant and passionate partner was dead within six weeks of a diagnosis of bipolar disorder, leaving his wife and nine-year-old daughter without so much as a note to explain his actions, a plan to help them recover from their profound grief, or a solution for the hundreds of thousands of dollars in debt that they would inherit from him.All the Things We Never Knew takes readers on a breathtaking journey, from David and Sheila's early romance through the last three months of their life together and into the year after his death. It details their unsettling spiral from ordinary life into the world of mental illness, examines the fragile line between reality and madness, and reveals the true power of love and forgiveness.

Boy Alone: A Brother's Memoir


Karl Taro Greenfeld - 2009
    He couldn't crawl, and he had trouble making eye contact or interacting with his family. As Noah grew older, his differences became even more pronounced—he was unable to communicate verbally, use the toilet, or tie his shoes, and despite his angelic demeanor, he often had violent outbursts.No doctor, social worker, or specialist could pinpoint what was wrong with Noah beyond a general diagnosis: autism. The boys' parents, Josh and Foumi, dedicated their lives to caring for their younger son with myriad approaches—a challenging, often painful experience that the devoted father detailed in a bestselling trilogy of books.Now, for the first time, acclaimed journalist Karl Taro Greenfeld speaks out about growing up in the shadow of his autistic brother, revealing the complex mix of rage, confusion, and love that defined his childhood. Boy Alone is his brutally honest memoir of the hopes, dreams, and realities of life with a mentally disabled sibling.Seamlessly weaving together the social history of autism and autism research—as the Greenfelds lived through it in seeking treatment for Noah—with the deeply affecting story of two very different boys growing up side by side, this book raises crucial philosophical questions: Can relationships exist without language? How should aging parents care for a nonverbal, violent child, and then a grown man who is not self-sufficient? Is there anything that can be done to help an extremely autistic child or adult become a member of mainstream society?Haunting, tragic, and unforgettable, this chronicle of autism is a beautiful, wholly original exploration of what it means to be a family, a brother, and a person.

Sick: A Memoir


Porochista Khakpour - 2018
    For most of that time, she didn't know why. All of her trips to the ER and her daily anguish, pain, and lethargy only ever resulted in one question: How could any one person be this sick? Several drug addictions, three major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's arduous, emotional journey—as a woman, a writer, and a lifelong sufferer of undiagnosed health problems—through the chronic illness that perpetually left her a victim of anxiety, living a life stymied by an unknown condition.Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, New Mexico, and Germany—as she meditates on both the physical and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. With candor and grace, she examines her subsequent struggles with mental illness, her addiction to the benzodiazepines prescribed by her psychiatrists, and her ever-deteriorating physical health. A story about survival, pain, and transformation, Sick is a candid, illuminating narrative of hope and uncertainty, boldly examining the deep impact of illness on one woman's life.

The Shaking Woman, or A History of My Nerves


Siri Hustvedt - 2009
    Despite her flapping arms and shaking legs, she continued to speak clearly and was able to finish her speech. It was as if she had suddenly become two people: a calm orator and a shuddering wreck. Then the seizures happened again and again. The Shaking Woman tracks Hustvedt’s search for a diagnosis, one that takes her inside the thought processes of several scientific disciplines, each one of which offers a distinct perspective on her paroxysms but no ready solution. In the process, she finds herself entangled in fundamental questions: What is the relationship between brain and mind? How do we remember? What is the self?During her investigations, Hustvedt joins a discussion group in which neurologists, psychiatrists, psychoanalysts, and brain scientists trade ideas to develop a new field: neuropsychoanalysis. She volunteers as a writing teacher for psychiatric in-patients at the Payne Whitney clinic in New York City and unearths precedents in medical history that illuminate the origins of and shifts in our theories about the mind-body problem. In The Shaking Woman, Hustvedt synthesizes her experience and research into a compelling mystery: Who is the shaking woman? In the end, the story she tells becomes, in the words of George Makari, author of Revolution in Mind, “a brilliant illumination for us all.”

The Warner Boys: Our Family’s Story of Autism and Hope


Curt Warner - 2018
    When they dropped from the public eye after Curt’s retirement, everyone assumed it was for a simpler life. But the reality behind their seclusion was a secret they hid from even their closest friends: their twins, Austin and Christian, had been diagnosed with severe autism. What followed was a painful struggle to hold their family and their marriage together in a home filled with chaos, emotional exhaustion, and constant fear for the safety of their unpredictable but beloved boys.Now, after years of silence, the Warners share their inspiring journey from stardom and success to heartbreaking self-imposed isolation. Above all, it’s a story of the life-changing truth that love for family and each other—no matter how challenged—is the path to healing and peace.The Warner Boys is the true story of a family who fought for their children and how they grew stronger against all odds.

A Face for Picasso: Coming of Age with Crouzon Syndrome


Ariel Henley - 2021
    There's a mathematical equation to prove it.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease.Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.

I Am in Here: The Journey of a Child with Autism Who Cannot Speak But Finds Her Voice


Elizabeth M. Bonker - 2011
    I stroked her hair softly. 'I know you're in there, honey, ' I told her. 'We'll get you out.'" Despite the horror of seeing fifteen-month-old Elizabeth slip away into autism, her mother knew that her bright little girl was still in there. When Elizabeth eventually learned to communicate, first by using a letterboard and later by typing, the poetry she wrote became proof of a glorious, life-affirming victory for this young girl and her family. I Am in Here is the spiritual journey of a mother and daughter who refuse to give up hope, who celebrate their victories, and who keep trying to move forward despite the obstacles. Although she cannot speak, Elizabeth writes poetry that shines a light on the inner world of autism and the world around us. That poetry and her mother's stirring storytelling combine in this inspirational book to proclaim that there is always a reason to take the next step forward--with hope.

Because We Are Bad: OCD and a Girl Lost in Thought


Lily Bailey - 2016
    She had killed someone with a thought, spread untold disease, and ogled the bodies of other children. Only by performing an exhausting series of secret routines could she make up for what she’d done. But no matter how intricate or repetitive, no act of penance was ever enough.Beautifully written and astonishingly intimate, Because We Are Bad recounts a childhood consumed by obsessive compulsive disorder. As a child, Bailey created a second personality inside herself—"I" became "we"—to help manifest compulsions that drove every minute of every day of her young life. Now she writes about the forces beneath her skin, and how they ordered, organized, and urged her forward. Lily charts her journey, from checking on her younger sister dozens of times a night, to "normalizing" herself at school among new friends as she grew older, and finally to her young adult years, learning—indeed, breaking through—to make a way for herself in a big, wide world that refuses to stay in check.Charming and raw, harrowing and redemptive, Because We Are Bad is an illuminating and uplifting look into the mind and soul of an extraordinary young woman, and a startling portrait of OCD that allows us to see and understand this condition as never before.