Sitting Pretty: The View from My Ordinary Resilient Disabled Body


Rebekah Taussig - 2020
    None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

Circles Around The Sun: In Search Of A Lost Brother


Molly McCloskey - 2011
    By the time Molly was old enough to begin to know him, he was frequently delusional, heavily medicated, living in hospitals or care homes or on the road. This title tells her story.

Disability Visibility: First-Person Stories from the Twenty-first Century


Alice WongChristie Thompson - 2020
    Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

Planet of the Blind


Stephen Kuusisto - 1997
    Yet he grew up pretending he could see. Planet of the Blind tells his story - the years of a lonely childhood spent behind bottle-lens glasses, the consuming fear of ridicule and derision, the struggle through college that brings him from obesity to anorexia. With his nose pressed into the spine of a book in furious attempts to read, riding a bicycle at insane speeds, never truly knowing the face of his first lover, he stumbles through half a lifetime enraged and mortified.This is the record of a handicapped life; but it is also an extraordinary literary achievement. Kuusisto has managed to translate his opaque, kaleidoscopic world of shape and colour into poetic and luminous prose. Planet of the Blind conveys life as it is lived by one whose visual impressions are 'at once beautiful and largely useless', and for whom normality is continuously transformed by his blindness into an intense aesthetic experience.

Special Education: Contemporary Perspectives for School Professionals


Marilyn Friend - 2004
    Contemporary concepts and evidence-based practices prepare new teachers for their roles in the education and well-being of students with disabilities and other special needs. Marilyn Friend combines research-informed concepts and skills with practical information for educators working in this challenging age of high standards and accountability, curriculum access, inclusive practices, professional collaboration, and student diversity. The third edition integrates the requirements of the NCLB and IDEA legislation with evidence-based practices so that readers understand the expectations for educators and students, and learn how critical concepts translate into educational practices. Real People, Real Classrooms:"Chapter Opening Vignettes "describe the experiences of three different students of varying ages as they relate to the topics discussed in each chapter and are referenced at key points in the chapter."Firsthand Account"features real life stories from teachers, students, parents, and school professionals sharing their own experiences and perspectives relating to life and learning with special needs."""Speaking from Experience "features capture the insights and advice of experienced teachers on topics ranging from working effectively with colleagues to finding ways to juggle all the responsibilities of being a special educator to addressing a variety of professional challenges, including those related to student behavior and family concerns.Real Research:Instruction in Action highlight teaching application for intensive instruction delivered by special education teachers in various educational settings.Positive Behavioral Supports illustrates the many positive, proactive ways to address students' behavior/social issues as part of overall classroom teaching and learning.Cutting Edge InformationTechnology Notes features showcase fascinating instructional and assistive technology applications for teaching students with exceptional needs in special educational settings as well as links to information that can help beginning teachers plan their lessons, motivate their students, and keep abreast of their rapidly changing field.Professional Edge features describe conceptual materials and cutting edge information that connect theory to practice.

Seeing Ezra: A Mother's Story of Autism, Unconditional Love, and the Meaning of Normal


Kerry Cohen - 2011
    As he becomes a toddler and they navigate the often rigid and prescriptive world of therapy, Cohen is unsettled by the evaluations they undergo: At home, Ezra is playfully expressive, sharing profound, touching moments of connection and intimacy with his mother and other family members, but in therapy he is pathologized, prodded to behave in ways that undermine his unique expression of autism.It soon becomes clear that more is at stake than just Ezra’s well-being; Cohen and her marriage are suffering as well. Ezra’s differentness, and the strain of pursuing varied therapies, takes a toll on the family—Cohen’s husband grows depressed and she pursues an affair—all as she tries to help others recognize and embrace Ezra’s uniqueness rather than force him to behave outside his comfort level. It isn’t until they abandon the expected, prescriptive notions about love, marriage, and individuality that they are able to come back together as two parents who fiercely love their little boy.Powerful and eye-opening, Seeing Ezra is an inspirational chronicle of a mother’s struggle to protect her son from a system that seeks to compartmentalize and “fix” him, and of her journey toward accepting and valuing him for who he is—just as he is.

The Book of Moods: How I Turned My Worst Emotions Into My Best Life


Lauren Martin - 2020
    She had a good job in New York, an apartment in Brooklyn, a boyfriend, yet every day she wrestled with feelings of inferiority, anxiety and irritability. It wasn't until a chance encounter with a (charming, successful) stranger who revealed that she also felt these things, that Lauren set out to better understand the hold that these moods had on her, how she could change them, and began to blog about the wisdom she uncovered. It quickly exploded into an international online community of women who felt like she did: lost, depressed, moody, and desirous of change.Inspired by her audience to press even deeper, The Book of Moods shares Lauren's journey to infuse her life with a sense of peace and stability. With observations that will resonate and inspire, she dives into the universal triggers every woman faces -- whether it's a comment from your mother, the relentless grind at your job, days when you wish the mirror had a Valencia filter, or all of the above. Blending cutting-edge science, timeless philosophy, witty anecdotes and effective forms of self-care, Martin has written a powerful, intimate, and incredibly relatable chronicle of transformation, proving that you really can turn your worst moods into your best life.

The Sound of a Wild Snail Eating


Elisabeth Tova Bailey - 2010
    While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal.  Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.

Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain


Abby Norman - 2018
    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

Elena Vanishing


Elena Dunkle - 2015
    Every day means renewed determination, so every day means fewer calories. This is the story of a girl whose armor against anxiety becomes artillery against herself as she battles on both sides of a lose-lose war in a struggle with anorexia. Told entirely from Elena's perspective over a five-year period and co-written with her mother, award-winning author Clare B. Dunkle, Elena's memoir is a fascinating and intimate look at a deadly disease, and a must read for anyone who knows someone suffering from an eating disorder.

Prozac Nation


Elizabeth Wurtzel - 1994
    A collective cry for help from a generation who have come of age entrenched in the culture of divorce, economic instability, and AIDS, here is the intensely personal story of a young girl full of promise, whose mood swings have risen and fallen like the lines of a sad ballad.

January First: A Child's Descent into Madness and Her Father's Struggle to Save Her


Michael Schofield - 2012
    In January's case, she is hallucinating 95 percent of the time that she is awake. Potent psychiatric drugs that would level most adults barely faze her. January, "Jani" to her family, has literally hundreds of imaginary friends. They go by names like 400-the-Cat, 100 Degrees, and 24 Hours and live on an island called "Calalini," which she describes as existing "on the border of my world and your world." Some of these friends are good, and some of them, such as 400, are very bad. They tell her to jump off buildings, attack her brother, and scream at strangers.In the middle of these never-ending delusions, hallucinations, and paroxysms of rage are Jani's parents, who have gone to the ends of the earth to keep both of their children alive and unharmed. They live in separate one-bedroom apartments in order to keep her little brother, Bohdi, safe from his big sister—and wage a daily war against a social system that has all but completely failed them. January First is the story of the daily struggles and challenges they face as they do everything they can to help their daughter while trying to keep their family together. It is the inspiring tale of their resolute determination and faith.

Empty


Susan Burton - 2020
    She just knew she felt her best when she was empty, "like a straw", as she says "something you could blow through."For almost thirty years, Susan Burton has hidden her obsession with food and the secret life of compulsive eating and starving that dominated her adolescence. This is the relentlessly honest, fiercely intelligent story of living with both anorexia and binge-eating disorder, moving past her shame, and learning to tell her secret.When Burton was thirteen, her stable life in suburban Michigan was turned upside down by her parents' abrupt divorce, and she moved to Colorado with her mother and sister. She seized on this move west as an adventure and an opportunity to reinvent herself from middle-school nerd to popular teenage girl. But she hadn't escaped unscathed, and in the fallout from her parents' breakup, an inherited fixation on thinness went from "peculiarity to pathology." She entered into a painful cycle of anorexia and binge eating that formed a subterranean layer to her sunny life. She went from success to success--she went to Yale, scored a dream job at a magazine right out of college, and married her college boyfriend. But in college the compulsive eating got worse--she'd binge, swear it would be the last time, and then, hours later, do it again--and after she graduated she descended into anorexia, her attempt to "quit food."Binge eating is more prevalent than anorexia or bulimia, but there is less research and little storytelling to help us understand it. In tart, soulful prose Susan Burton strikes a blow for the importance of this kind of story; brings to life an indelible cast of characters; and tells an exhilarating story of longing, compulsion and hard-earned self-revelation.

Ugly


Robert Hoge - 2013
    His mother refused to look at her son, let alone bring him home. But home he went, to a life that, against the odds, was filled with joy, optimism and boyhood naughtiness.Home for the Hoges was a bayside suburb of Brisbane. Robert's parents, Mary and Vince, knew that his life would be difficult, but they were determined to give him a typical Australian childhood. So along with the regular, gruelling and often dangerous operations that made medical history and gradually improved Robert's life, there were bad haircuts, visits to the local pool, school camps and dreams of summer sports.Ugly is Robert's account of his life, from the time of his birth to the arrival of his own daughter. It is a story of how the love and support of his family helped him to overcome incredible hardships. It is also the story of an extraordinary person living an ordinary life, which is perhaps his greatest achievement of all.(Featured on the ABC's Australian Story program, 16 September 2013. http://www.abc.net.au/austory/content...)

Neurodiversity: Discovering the Extraordinary Gifts of Autism, ADHD, Dyslexia, and Other Brain Differences


Thomas Armstrong - 2010
    ADHD. Dyslexia. Autism. The number of categories of illnesses listed by the American Psychiatric Association has tripled in the past fifty years. With so many people affected by our growing “culture of disabilities,” it no longer makes sense to hold on to the deficit-ridden idea of neuropsychological illness.With the sensibility of Oliver Sacks and Kay Redfield Jamison, psychologist Thomas Armstrong offers a revolutionary perspective that reframes many neuropsychological disorders as part of the natural diversity of the human brain rather than as definitive illnesses. Neurodiversity emphasizes their positive dimensions, showing how people with ADHD, bipolar disorder, and other conditions have inherent evolutionary advantages that, matched with the appropriate environment or ecological niche, can help them achieve dignity and wholeness in their lives.