Sometimes Amazing Things Happen: Heartbreak and Hope on the Bellevue Hospital Psychiatric Prison Ward


Elizabeth Ford - 2017
    Elizabeth Ford went through medical school unsure of where she belonged. It wasn’t until she did her psychiatry rotation that she found her calling—to care for one of the most vulnerable populations of mentally ill people, the inmates of New York's jails, including Rikers Island, who are so sick that they are sent to the Bellevue Hospital Prison Ward for care.These men were broken, unloved, without resources or support, and very ill. They could be violent, unpredictable, but they could also be funny and tender and needy. Mostly, they were human and they awakened in Ford a boundless compassion. Her patients made her a great doctor and a better person and, as she treated these men, she learned about doctoring, about nurturing, about parenting, and about love. While Ford was a psychiatrist at Bellevue she becomes a wife and a mother. In her book she shares her struggles to balance her life and her work, to care for her children and her patients, and to maintain the empathy that is essential to her practice—all in the face of a jaded institution, an exhausting workload, and the deeply emotionally taxing nature of her work. Ford brings humor, grace, and humanity to the lives of the patients in her care and in beautifully rendered prose illuminates the inner workings (and failings) of our mental health system, our justice system, and the prison system.

Parallel Play


Tim Page - 2009
    In 1997, Tim Page won the Pulitzer Prize for Criticism for his work as the chief classical music critic of The Washington Post, work that the Pulitzer board called “lucid and illuminating.” Three years later, at the age of 45, he was diagnosed with Asperger's syndrome–an autistic disorder characterized by often superior intellectual abilities but also by obsessive behavior, ineffective communication, and social awkwardness. In a personal chronicle that is by turns hilarious and heartbreaking, Page revisits his early days through the prism of newfound clarity. Here is the tale of a boy who could blithely recite the names and dates of all the United States’ presidents and their wives in order (backward upon request), yet lacked the coordination to participate in the simplest childhood games. It is the story of a child who memorized vast portions of the World Book Encyclopedia simply by skimming through its volumes, but was unable to pass elementary school math and science. And it is the triumphant account of a disadvantaged boy who grew into a high-functioning, highly successful adult–perhaps not despite his Asperger’s but because of it, as Page believes. For in the end, it was his all-consuming love of music that emerged as something around which to construct a life and a prodigious career. In graceful prose, Page recounts the eccentric behavior that withstood glucose-tolerance tests, anti-seizure medications, and sessions with the school psychiatrist, but which above all, eluded his own understanding. A poignant portrait of a lifelong search for answers, Parallel Play provides a unique perspective on Asperger's and the well of creativity that can spring forth as a result of the condition.

I Overcame My Autism and All I Got Was This Lousy Anxiety Disorder: A Memoir


Sarah Kurchak - 2020
    She hasn’t let that get in the way of pursuing her dream to become a writer, or to find love, but she has let it get in the way of being in the same room with someone chewing food loudly, and of cleaning her bathroom sink. In I Overcame My Autism and All I Got Was This Lousy Anxiety Disorder, Kurchak examines the Byzantine steps she took to become “an autistic success story,” how the process almost ruined her life and how she is now trying to recover.Growing up undiagnosed in small-town Ontario in the eighties and nineties, Kurchak realized early that she was somehow different from her peers. She discovered an effective strategy to fend off bullying: she consciously altered nearly everything about herself—from her personality to her body language. She forced herself to wear the denim jeans that felt like being enclosed in a sandpaper iron maiden. Every day, she dragged herself through the door with an elevated pulse and a churning stomach, nearly crumbling under the effort of the performance. By the time she was finally diagnosed with autism at twenty-seven, she struggled with depression and anxiety largely caused by the same strategy she had mastered precisely. She came to wonder, were all those years of intensely pretending to be someone else really worth it?Tackling everything from autism parenting culture to love, sex, alcohol, obsessions and professional pillow fighting, Kurchak’s enlightening memoir challenges stereotypes and preconceptions about autism and considers what might really make the lives of autistic people healthier, happier and more fulfilling.

In a Different Key: The Story of Autism


John Donvan - 2016
    Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.  It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.<

Autistic blessings and Bipolar me.: A Frank and Brutally Honest Diary of a Mother with Bipolar and Her Two Autistic Boys


E.J. Plows - 2015
    Throughout the period between 2004 to 2009 myself Noah and Moses were all given a diagnosis of something life changing, but as a mother I refused to be labelled and judged by a medical condition. I am Emma Plows; I am not Emma Plows with Bipolar. It’s my understanding that when you discover your child is on the autistic spectrum you really need to accept the diagnosis. Accept it, let it grow and don’t hinder its development. Autistic people cannot understand how the world works like we can and have difficulty understanding how people think, but we can. We have that capacity to understand them, if we choose too we should take advantage of that capacity. If we don’t accept that our children are autistic, then we are only condemning ourselves and our children to a life of frustrating misery. Work with it, not against it, it doesn’t matter why they behave the way they do as we cannot change it, but we must find the beauty in the condition and all the positives it has to offer, if we try, it gets easier and can become very rewarding.

Crashing Through: A True Story of Risk, Adventure, and the Man Who Dared to See


Robert Kurson - 2006
    The bestselling author of Shadow Divers returns with a riveting story of exploration, mystery, and the discovery of an unknown world--this time about one man's incredible odyssey from blindness into sight.

NeuroTribes: The Legacy of Autism and the Future of Neurodiversity


Steve Silberman - 2015
      Along the way, he reveals the untold story of Hans Asperger, the father of Asperger’s syndrome, whose “little professors” were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.

Asperger's From the Inside Out: A Supportive and Practical Guide for Anyone with Asperger's Syndrome


Michael John Carley - 2008
    This fascinating book reveals his personal experience with the confusion and trauma associated with this condition-and offers insights into living an independent and productive life.Now the Executive Director of the world's largest Asperger's oranization, Carley helps readers in such areas as:- Social interactions - Nurturing interests - Whom to confide in-and how - Dealing with family and loved ones - Finding work that suits your strengths and talents

Building a Life Worth Living: A Memoir


Marsha M. Linehan - 2020
    "Because if you were, it would give all of us so much hope."Over the years, DBT had saved the lives of countless people fighting depression and suicidal thoughts, but Linehan had never revealed that her pioneering work was inspired by her own desperate struggles as a young woman. Only when she received this question did she finally decide to tell her story.In this remarkable and inspiring memoir, Linehan describes how, when she was eighteen years old, she began an abrupt downward spiral from popular teenager to suicidal young woman. After several miserable years in a psychiatric institute, Linehan made a vow that if she could get out of emotional hell, she would try to find a way to help others get out of hell too, and to build a life worth living. She went on to put herself through night school and college, living at a YWCA and often scraping together spare change to buy food. She went on to get her PhD in psychology, specializing in behavior therapy. In the 1980s, she achieved a breakthrough when she developed Dialectical Behavioral Therapy, a therapeutic approach that combines acceptance of the self and ways to change. Linehan included mindfulness as a key component in therapy treatment, along with original and specific life-skill techniques. She says, You can't think yourself into new ways of acting; you can only act yourself into new ways of thinking.Throughout her extraordinary scientific career, Marsha Linehan remained a woman of deep spirituality. Her powerful and moving story is one of faith and perseverance. Linehan shows, in Building a Life Worth Living, how the principles of DBT really work--and how, using her life skills and techniques, people can build lives worth living.

Everyday Aspergers


Samantha Craft - 2016
    A former schoolteacher and mother of three boys, Craft doesn't experience ordinary everyday happenings like most. In her vivid world, nothing is simple and everything appears pertinent. Even an average trip to the grocery store is a feat and cause for reflection. From being a dyslexic cheerleader with dysgraphia going the wrong direction, to bathroom stalking, to figuring out if she can wear that panty-free dress, Craft explores the profoundness of daily living through hilarious anecdotes and heartwarming childhood memories. When she's not laughing at the bizarreness of her days or reflecting back, then she's sharing the serious and relevant challenges of everyday living on the autism spectrum. Ten years in the making, Craft's revealing memoir brings Asperger's Syndrome into a spectrum of brilliant light-exposing the day-to-day interactions and complex inner workings of an autistic female from childhood to midlife.

Everything Is Fine


Vince Granata - 2021
    Perfect for fans of An Unquiet Mind and The Bright Hour. Vince Granata remembers standing in front of his suburban home in Connecticut the day his mother and father returned from the hospital with his three new siblings in tow. He had just finished scrawling their names in red chalk on the driveway: Christopher, Timothy, and Elizabeth. Twenty-three years later, Vince was a thousand miles away when he received the news that would change his life—Tim, propelled by unchecked schizophrenia, had killed their mother in their childhood home. Devastated by the grief of losing his mother, Vince is also consumed by an act so incomprehensible that it overshadows every happy memory of life growing up in his seemingly idyllic middle-class family. “In candid, smoothly unspooling prose, Granata reconstructs life and memory from grief, writing a moving testament to the therapy of art, the power of record, and his immutable love for his family” (Booklist).

Identical Strangers: A Memoir of Twins Separated and Reunited


Elyse Schein - 2007
    You discover that she has the same birthday, the same allergies, the same tics, and the same way of laughing. Looking at this person, you are able to gaze into your own eyes and see yourself from the outside. This identical individual has the exact same DNA as you and is essentially your clone.We don’t have to imagine.Elyse Schein had always known she was adopted, but it wasn’t until her mid-thirties while living in Paris that she searched for her biological mother. When Elyse contacted her adoption agency, she was not prepared for the shocking, life-changing news she received: She had an identical twin sister. Elyse was then hit with another bombshell: she and her sister had been separated as infants, and for a time, had been part of a secret study on separated twins.Paula Bernstein, a married writer and mother living in New York, also knew she was adopted, but had no inclination to find her birth mother. When she answered a call from the adoption agency one spring afternoon, Paula’s life suddenly divided into two starkly different periods: the time before and the time after she learned the truth. As they reunite and take their tentative first steps from strangers to sisters, Paula and Elyse are also left with haunting questions surrounding their origins and their separation. They learn that the study was conducted by a pair of influential psychiatrists associated with a prestigious adoption agency. As they investigate their birth mother’s past, Paula and Elyse move closer toward solving the puzzle of their lives.In alternating voices, Paula and Elyse write with emotional honesty about the immediate intimacy they share as twins and the wide chasm that divides them as two complete strangers. Interweaving eye-opening studies and statistics on twin science into their narrative, they offer an intelligent and heartfelt glimpse into human nature. Identical Strangers is the amazing story of two women coming to terms with the strange and unbelievable hand fate has dealt them, an account that broadens the definition of family and provides insight into our own DNA and the singularly exceptional imprint it leaves on our lives.

The Theft of Memory: Losing My father, One Day at a Time


Jonathan Kozol - 2015
    Departing from the South Bronx and turning his sensitive eye to his own life and legacy, The Theft of Memory is Kozol's most personal book to date, as it explores the life of his father, Harry. Dr. Harry L. Kozol was a nationally-renowned neurologist whose work helped establish the emerging fields of forensic psychiatry and neuropsychiatry. He was a remarkable clinician with unusual capacity to diagnose and identify neurological and psychotic illnesses in highly complicated and sophisticated people, including well-known artists, writers, and intellectuals. Notably, in Eugene O'Neill's last years, the playwright moved to Boston so that he could live close to Kozol's father's office.In addition to his successful private practice in Boston, Kozol operated in a grim arena marked by extreme violence. But while his role as a forensic expert placed him in the public eye for high-profile criminal defendants such as Albert DeSalvo (the Boston Strangler) and Patty Hearst, he was--as his son articulates--"a healer of tormented people, not their judge, not their interrogator."With the same lyricism and clarity that have defined Kozol's acclaimed work on education for decades,The Theft of Memory intimately describes Harry's vibrant life, the challenges following his self-diagnosis of Alzheimer's, and the evolution of their relationship throughout.This unique biography will have a long shelf life as a moving portrait of an extraordinary man, a window into the heart of one of our nation's foremost education activists, and a frank examination of how we come to terms with caregiving.

The Boy Who Was Raised as a Dog: And Other Stories from a Child Psychiatrist's Notebook


Bruce D. Perry - 2007
    In The Boy Who Was Raised as a Dog, he tells their stories of trauma and transformation through the lens of science, revealing the brain's astonishing capacity for healing. Deftly combining unforgettable case histories with his own compassionate, insightful strategies for rehabilitation, Perry explains what exactly happens to the brain when a child is exposed to extreme stress-and reveals the unexpected measures that can be taken to ease a child's pain and help him grow into a healthy adult. Through the stories of children who recover-physically, mentally, and emotionally-from the most devastating circumstances, Perry shows how simple things like surroundings, affection, language, and touch can deeply impact the developing brain, for better or for worse. In this deeply informed and moving book, Bruce Perry dramatically demonstrates that only when we understand the science of the mind can we hope to heal the spirit of even the most wounded child.

Madness: A Bipolar Life


Marya Hornbacher - 2008
    At age twenty-four, Hornbacher was diagnosed with Type I rapid-cycle bipolar, the most severe form of bipolar disorder.In Madness, in her trademark wry and utterly self-revealing voice, Hornbacher tells her new story. Through scenes of astonishing visceral and emotional power, she takes us inside her own desperate attempts to counteract violently careening mood swings by self-starvation, substance abuse, numbing sex, and self-mutilation. How Hornbacher fights her way up from a madness that all but destroys her, and what it is like to live in a difficult and sometimes beautiful life and marriage -- where bipolar always beckons -- is at the center of this brave and heart-stopping memoir.Madness delivers the revelation that Hornbacher is not alone: millions of people in America today are struggling with a variety of disorders that may disguise their bipolar disease. And Hornbacher's fiercely self-aware portrait of her own bipolar as early as age four will powerfully change, too, the current debate on whether bipolar in children actually exists.Ten years after Kay Redfield Jamison's An Unquiet Mind, this storm of a memoir will revolutionize our understanding of bipolar disorder.