That Good Night: Life and Medicine in the Eleventh Hour


Sunita Puri - 2019
    Sunita Puri knew from a young age that the gulf between her parents' experiences and her own was impossible to bridge, save for two elements: medicine and spirituality. Between days spent waiting for her mother, an anesthesiologist, to exit the OR, and evenings spent in conversation with her parents about their faith, Puri witnessed the tension between medicine's impulse to preserve life at all costs and a spiritual embrace of life's temporality. And it was that tension that eventually drew Puri, a passionate but unsatisfied medical student, to palliative medicine--a new specialty attempting to translate the border between medical intervention and quality-of-life care.Interweaving evocative stories of Puri's family and the patients she cares for, That Good Night is a stunning meditation on impermanence and the role of medicine in helping us to live and die well, arming readers with information that will transform how we communicate with our doctors about what matters most to us.

Impure Science: AIDS, Activism, and the Politics of Knowledge


Steven Epstein - 1996
    Steven Epstein's astute and readable investigation focuses on the critical question of "how certainty is constructed or deconstructed," leading us through the views of medical researchers, activists, policy makers, and others to discover how knowledge about AIDS emerges out of what he calls "credibility struggles."Epstein shows the extent to which AIDS research has been a social and political phenomenon and how the AIDS movement has transformed biomedical research practices through its capacity to garner credibility by novel strategies. Epstein finds that nonscientist AIDS activists have gained enough of a voice in the scientific world to shape NIH–sponsored research to a remarkable extent. Because of the blurring of roles and responsibilities, the production of biomedical knowledge about AIDS does not, he says, follow the pathways common to science; indeed, AIDS research can only be understood as a field that is unusually broad, public, and contested. He concludes by analyzing recent moves to democratize biomedicine, arguing that although AIDS activists have set the stage for new challenges to scientific authority, all social movements that seek to democratize expertise face unusual difficulties.Avoiding polemics and accusations, Epstein provides a benchmark account of the AIDS epidemic to date, one that will be as useful to activists, policy makers, and general readers as to sociologists, physicians, and scientists.

The Brink of Being: Talking about Miscarriage


Julia Bueno - 2019
    . . a profound game-changer of a book. --Caroline Leavitt, author of Pictures of You Though approximately one in four pregnancies ends in miscarriage, it remains a rarely talked about, under-researched, and largely misunderstood area of women's health. This profoundly necessary book--the first comprehensive portrait of the psychological, emotional, medical, and cultural aspects of miscarriage--aims to help break that silence.With candor, warmth, and empathy, psychotherapist Julia Bueno blends women's stories (including her own) with research and analysis, exploring the effect of pregnancy loss on women and highlighting the ways in which our society fails to effectively respond to it. The result is a galvanizing, urgent, and moving exploration of a too-often-hidden human experience, and a crucial resource for anyone struggling with--or seeking to better understand--miscarriage.

Holding the Man


Timothy Conigrave - 1995
    Winner of the United Nations Human Rights Award for Nonfiction, HOLDING THE MAN has been adapted into a play opening in America in September 2007. The playwright who adapted the book for stage refers to this a a memoir of striking and unapologetic honesty.

Our Malady: Lessons in Liberty from a Hospital Diary


Timothy Snyder - 2020
    Unable to stand, barely able to think, he waited for hours in an emergency room before being correctly diagnosed and rushed into surgery. Over the next few days, as he clung to life and the first light of a new year came through his window, he found himself reflecting on the fragility of health, not recognized in America as a human right but without which all rights and freedoms have no meaning.And that was before the pandemic. We have since watched American hospitals, long understaffed and undersupplied, buckling under waves of coronavirus patients. The federal government made matters worse through willful ignorance, misinformation, and profiteering. Our system of commercial medicine failed the ultimate test, and thousands of Americans died.In this eye-opening cri de coeur, Snyder traces the societal forces that led us here and outlines the lessons we must learn to survive. In examining some of the darkest moments of recent history and of his own life, Snyder finds glimmers of hope and principles that could lead us out of our current malaise. Only by enshrining healthcare as a human right, elevating the authority of doctors and medical knowledge, and planning for our children's future can we create an America where everyone is truly free.

Palm Beach Babylon: The Sinful History of America's Super-Rich Paradise


Murray Weiss - 1992
    Starting with the island's founder Henry Flagler, and updated for Kindle, "Palm Beach Babylon" chronicles the Kennedys, the Trumps, the Dodges, Helmsleys, Pulitzers, Vanderbilts, Mizners and Madoffs, and many more "Titans of Industry" and "Royalty." "The history is solid, the writing stylish," wrote renowned author Pete Hamill. "Riveting," exclaimed Nicholas Pileggi, author of "Wiseguy" and "Casino." The New York Times declared "Palm Beach Babylon" the best book ever written on the storied tropical island, where the "Rich and Famous" flock every winter to indulge in a world that only money can pierce. "Murray Weiss and Bill Hoffmann have . . . produced an intriguing account of the wagers of too much wealth and too much leisure time," wrote Dominick Dunne, the best selling novelist and true-crime expert. And as one reader posted along with 5-Stars: A REAL PAGE TURNER: I loved this book because it had all the allure of great fiction, yet it was about real people who, although they live in a real place (Palm Beach, FL), seem more like Great Gatsby characters than anything else! It also provides a fascinating historical perspective of the glamorous Palm Beach, how it was built, the man who built it, and the wealthy who flocked to it.

Giles Corey


Dan Barrett - 2011
    Six months before that, I used a Voor’s Head Device for the first time." This line opens the 150-page book that accompanies Giles Corey, an intensely personal, intimate portrait of depression that took me almost 4 years to make. We've called this "acoustic music from the industrial revolution," and that's as good as anything. Dominated by the acoustic guitar, the music is a gloomy mixture of Americana influences, snippets of EVP recordings, ghostly choirs and deep, heavy organ. It ranges from very dark to triumphant, hushed quiet to crashingly loud. The album follows a story arc of emotions that are detailed in the accompanying book, as much a part of this record as the music. The text switches between personal tales of struggles with depression, suicide, and a feeling of being lost, and the story of cult-leader and afterlife theorist Robert Voor. Voor's writings on death and the afterlife feature prominently across HAVE A NICE LIFE's "Deathconsciousness," Nahvalr's self-titled debut, and Giles Corey, making him the unifying factor behind most of the music I've written in the last 10 years. This record is as personal and raw as anything I've ever done. Thank you for your interest.

Death and the Afterlife: A Chronological Journey, from Cremation to Quantum Resurrection


Clifford A. Pickover - 2015
    This eerie chronology ventures right to the borderlines of science and sheds light into the darkness. Here, topics as wide ranging as the Maya death gods, golems, and séances sit side by side with entries on zombies and quantum immortality. With the turn of every page, readers will encounter beautiful artwork, along with unexpected insights about death and what may lie beyond.

The Profiler Diaries: From the case files of a police psychologist


Gérard Labuschagne - 2020
    

The Best American Science and Nature Writing 2021


Ed YongKatie Engelhart - 2021
    “They are often full of tragedy, sometimes laced with wonder, but always deeply aware that science does not exist in a social vacuum. They are beautiful, whether in their clarity of ideas, the elegance of their prose, or often both.” The essays in this year’s Best American Science and Nature Writing brought clarity to the complexity and bewilderment of 2020 and delivered us necessary information during a global pandemic. From an in-depth look at the moment of the virus’s outbreak, to a harrowing personal account of lingering Covid symptoms, to a thoughtful analysis on how the pandemic will impact the environment, these essays, as Yong says, “synthesize, evaluate, dig, unveil, and challenge,” imbuing a pivotal moment in history with lucidity and elegance.

An Archive of Feelings: Trauma, Sexuality, and Lesbian Public Cultures


Ann Cvetkovich - 2003
    She argues for the importance of recognizing---and archiving---accounts of trauma that belong as much to the ordinary and everyday as to the domain of catastrophe. Cvetkovich contends that the field of trauma studies, limited by too strict a division between the public and the private, has overlooked the experiences of women and queers. Rejecting the pathologizing understandings of trauma that permeate medical and clinical discourses on the subject, she develops instead a sex-positive approach missing even from most feminist work on trauma. An Archive of Feelings challenges the field to engage more fully with sexual trauma and the wide range of feelings in its vicinity, including those associated with butch-femme sex and AIDS activism and caretaking.An Archive of Feelings brings together oral histories from lesbian activists involved in act/up New York; readings of literature by Dorothy Allison, Leslie Feinberg, Cherrie Moraga, and Shani Mootoo; videos by Jean Carlomusto and Pratibha Parmar; and performances by Lisa Kron, Carmelita Tropicana, and the bands Le Tigre and Tribe 8. Cvetkovich reveals how these cultural formations---activism, performance, and literature---give rise to public cultures that both work through trauma and transform the conditions producing it. By looking closely at connections between sexuality, trauma, and the creation of lesbian public cultures, Cvetkovich makes those experiences that have been pushed to the peripheries of trauma culture the defining principles of a new construction of sexual trauma-one in which trauma catalyzes the creation of cultural archives and political communities.About the Author: Ann Cvetkovich is Associate Professor of English at the University of Texas at Austin. She is the author of Mixed Feelings: Feminism, Mass Culture, and Victorian Sensationalism.

What's Your Pronoun?: Beyond He and She


Dennis Baron - 2020
    Colleges ask students to declare their pronouns along with their majors; corporate conferences print name tags with space to add pronouns; email signatures sport pronouns along with names and titles. Far more than a by-product of the culture wars, gender-neutral pronouns are, however, nothing new. Pioneering linguist Dennis Baron puts them in historical context, noting that Shakespeare used singular-they; women invoked the generic use of he to assert the right to vote (while those opposed to women’s rights invoked the same word to assert that he did not include she); and people have been coining new gender pronouns, not just hir and zie, for centuries. Based on Baron’s own empirical research, What’s Your Pronoun? chronicles the story of the role pronouns have played—and continue to play—in establishing both our rights and our identities. It is an essential work in understanding how twenty-first-century culture has evolved.

Inside Oregon State Hospital: A History of Tragedy and Triumph (Landmarks)


Diane Goeres-Gardner - 2013
    In desperate attempts to cure their patients, physicians injected them with deadly medications, cut holes in their heads, and sterilized them. Years of insufficient funding caused the hospital to decay into a crumbling facility with too few staff, as seen in the 1975 film "One Flew Over the Cuckoo's Nest." Today, after a $360 million makeover, Oregon State Hospital is a modern treatment hospital for the state's civil and forensic mentally ill. In this compelling account of the institution's tragedies and triumphs, author Diane Goeres-Gardner offers an unparalleled look at the very human story of Oregon's historic asylum.

Imbeciles: The Supreme Court, American Eugenics, and the Sterilization of Carrie Buck


Adam Cohen - 2016
    Bell ruling made government sterilization of "undesirable" citizens the law of the land. New York Times bestselling author Adam Cohen tells the story in Imbeciles of one of the darkest moments in the American legal tradition: the Supreme Court's decision to champion eugenic sterilization for the greater good of the country. In 1927, when the nation was caught up in eugenic fervor, the justices allowed Virginia to sterilize Carrie Buck, a perfectly normal young woman, for being an "imbecile." It is a story with many villains, from the superintendent of the Dickensian Virginia Colony for Epileptics and Feebleminded who chose Carrie for sterilization to the former Missouri agriculture professor and Nazi sympathizer who was the nation's leading advocate for eugenic sterilization. But the most troubling actors of all were the eight Supreme Court justices who were in the majority--including William Howard Taft, the former president; Louis Brandeis, the legendary progressive; and Oliver Wendell Holmes, Jr., America's most esteemed justice, who wrote the decision urging the nation to embark on a program of mass eugenic sterilization

American Pandemic: The Lost Worlds of the 1918 Influenza Epidemic


Nancy K. Bristow - 2012
    Yet despite the devastation, this catastrophic event seems but a forgotten moment in the United States.American Pandemic offers a much-needed corrective to the silence surrounding the influenza outbreak. It sheds light on the social and cultural history of Americans during the pandemic, uncovering both the causes of the nation's public amnesia and the depth of the quiet remembering that endured. Focused on the primary players in this drama--patients and their families, friends, and community, public health experts, and health care professionals--historian Nancy K. Bristow draws on multiple perspectives to highlight the complex interplay between social identity, cultural norms, memory, and the epidemic. Bristow has combed a wealth of primary sources, including letters, diaries, oral histories, memoirs, novels, newspapers, magazines, photographs, government documents, and health care literature. She shows that though the pandemic caused massive disruption in the most basic patterns of American life, influenza did not create long-term social or cultural change, serving instead to reinforce the status quo and the differences and disparities that defined American life.As the crisis waned the pandemic slipped from the nation's public memory. The helplessness and despair Americans had suffered during the pandemic, Bristow notes, was a story poorly suited to a nation focused on optimism and progress. For countless survivors, though, the trauma never ended, shadowing the remainder of their lives with memories of loss. This book lets us hear these long-silent voices, reclaiming an important chapter in the American past.