Book picks similar to
Cancer in Two Voices by Sandra Butler


lgbt
non-fiction
cancer-research
tbr-wishlist

ALS Saved My Life ... until it didn't


Jenni Kleinman Berebitsky - 2018
    But what do we do when nothing goes as we had ever hoped? Jenni Berebitsky, diagnosed in 2009 with ALS has been answering these questions every day. With the hope of helping others move forward after life altering events, Jenni shares her story of life wiht ALS, outlining practical and existential changes needed to adapt and thrive.

Odes to Lithium


Shira Erlichman - 2019
    With inventiveness, compassion, and humor, she thrusts us into a world of unconventional praise. From an unexpected encounter with her grandmother's ghost, to a bubble bath with Bjӧrk, to her plumber's confession that he, too, has Bipolar, Erlichman buoyantly topples stigma against the mentally ill. These are necessary odes to self-acceptance, resilience, and the jagged path toward healing. With startling language, and accompanied by her bold drawings and collages, she gives us a sparkling, original view into what makes us human.

As I Live and Breathe


Jamie Weisman - 2002
    . . The book soars." --"The San Diego Union-Tribune" Jamie Weisman was a patient long before she was a doctor. She was born with a rare defect in her immune system that leaves her prey to a range of ailments and crises and that, because it is treatable but not curable, will keep her a patient for life. In this probing and inspiring book, she brings her sojourns on both sides of the doctor-patient divide to bear on the issues of the flesh that preoccupy us all. It is a worthy addition to the best that has been written about our physical selves, a meditation on our extraordinary powers of healing and the limitations that leave intact the miracle and tragedy of being.

The Prison Doctor


Amanda Brown - 2019
    From miraculous pregnancies to dirty protests, and from violent attacks on prisoners to heartbreaking acts of self-harm, she has witnessed it all. In this memoir, Amanda reveals the stories, the patients and the cases that have shaped a career helping those most of us would rather forget.

Paramedico: Around the World by Ambulance


Benjamin Gilmour - 2011
    From England to Mexico, and Iceland to Pakistan, Gilmour takes us on an extraordinary thrill-ride with his wild coworkers. Along the way he learns a few things, too, and shows us not only how precious life truly is, but how to passionately embrace it.

After You: Letters of Love, and Loss, to a Husband and Father


Natascha McElhone - 2010
    Presents a story of a magical love affair and all-consuming grief, of being a mother alone and trying to live for the future.

Silent Partner: A Memoir of My Marriage


Dina Matos McGreevey - 2007
    It was an unforgettable scene. Dina Matos McGreevey, an attractive woman in her mid-thirties, wife, mother, and First Lady of the state of New Jersey, watched silently as her husband, then New Jersey Governor Jim McGreevey, resigned his office with the revelation that he was a "gay American." The picture of grace and loyalty, perfectly composed in her pale blue suit, Dina Matos McGreevey gave no sign of the tangled mixture of fear, sorrow, and anger she felt that day, no hint of the devastation that was to come. Since then she has been asked repeatedly about the nature of her marriage, about what she knew and when she knew it. Since then, she has remained silent. Until now. Speaking up at last, Dina Matos McGreevey here recounts the details of her marriage to Jim McGreevey. What emerges is a tale of love and betrayal, of heartbreak and scandal . . . and, ultimately, hope. It all began with so much promise. Dina Matos was a responsible and civic-minded young woman who fell in love with the passion of political action. When Jim McGreevey walked into her life, he appeared to be a kind and loving man, someone with whom she could build a life based on shared ideals, a strong spiritual commitment, and a desire to make a difference in the world. Beyond their initial chemistry, Dina Matos was attracted by Jim McGreevey's principles and his unwavering devotion to his work. She didn't know that his life, and thus their marriage, were built on a foundation of lies; that his past was littered with casual sexual encounters in seedy bookstores and public parks; or that, by his own admission, he began an adulterous affair with another man while she was in the hospital awaiting the birth of their child. "Could I have known," she asks. "How could I have known?" With scalding honesty, she tells of her life with the former governor, of the politics and public service that brought them together, and the lies that tore them apart. Here is a story of a marriage that was anything but happily-ever-after, told by a strong and resilient woman who can, and finally will, speak for herself.

Sick: A Memoir


Porochista Khakpour - 2018
    For most of that time, she didn't know why. All of her trips to the ER and her daily anguish, pain, and lethargy only ever resulted in one question: How could any one person be this sick? Several drug addictions, three major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's arduous, emotional journey—as a woman, a writer, and a lifelong sufferer of undiagnosed health problems—through the chronic illness that perpetually left her a victim of anxiety, living a life stymied by an unknown condition.Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, New Mexico, and Germany—as she meditates on both the physical and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. With candor and grace, she examines her subsequent struggles with mental illness, her addiction to the benzodiazepines prescribed by her psychiatrists, and her ever-deteriorating physical health. A story about survival, pain, and transformation, Sick is a candid, illuminating narrative of hope and uncertainty, boldly examining the deep impact of illness on one woman's life.

Prognosis: A Memoir of My Brain


Sarah Vallance - 2019
    The next morning, things take a sharp turn as she’s led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.Afraid of judgment and deemed no longer fit for work, Sarah isolates herself from the outside world. She spends months at home, with her dogs as her only source of companionship, battling a personality she no longer recognizes and her shock and rage over losing simple functions she’d taken for granted. Her life is consumed by fear and shame until a chance encounter gives Sarah hope that her brain can heal. That conversation lights a small flame of determination, and Sarah begins to push back, painstakingly reteaching herself to read and write, and eventually reentering the workforce and a new, if unpredictable, life.In this highly intimate account of devastation and renewal, Sarah pulls back the curtain on life with traumatic brain injury, an affliction where the wounds are invisible and the lasting effects are often misunderstood. Over years of frustrating setbacks and uncertain triumphs, Sarah comes to terms with her disability and finds love with a woman who helps her embrace a new, accepting sense of self.

I'll Carry the Fork!: Recovering a Life After Brain Injury


Kara L. Swanson - 1999
    Kara Swanson's journey is one to learn from, to cheer and, even, to laugh with along the way. Her honesty and willingness to share her struggles and triumphs have been changing the lives of survivors and their loved ones for more than 20 years. This book has been named a suggested and must-read resource for survivors and professionals in every rehab and neurological field, and even in college TBI-related studies. It has been translated into Japanese and Kara has made her book available on Kindle and in an audio format. Her accompanying speeches and award-winning blog have circled the globe. This book enlightens with vital information from TBI professionals in medical, rehab and legal arenas. Kara's book is a wonderful inspiration and, with each edition, she has continued to mold it to help those in the TBI community. This new edition is brighter and cleaner. Kara has inserted more blank pages for notes and she has reduced the price so that more survivors can obtain all of the wonderful input from professionals throughout the book. The audio version of this book was completed by the author in order to offer a pace and cadence for those survivors struggling with audio processing speed and/or challenged by the written word.

I'm Dancing as Fast as I Can


Barbara Gordon - 1980
    But beneath the façade, Barbara's life is spinning out of control. In spite of the pills prescribed by her doctor, a nameless terror disrupting her daily life intensifies until she is besieged by crippling anxiety attacks. A formerly strong, independent, successful woman, Barbara's life becomes a nightmare of paralysis and fear. When Barbara finds herself unable to leave her apartment or walk the streets of New York alone, she decides to take charge of her life. She doesn't want pills, she wants answers. Instead of ending her fears, quitting the medicine leads to the unraveling of what she thought was her perfect life, and Barbara becomes a casualty of a flawed and inept mental health system. Barbara had often spoken for the voiceless in her films, but she suddenly finds herself powerless, without a voice of her own. Though she feels frightened and misunderstood, the tenderness and love of another young patient, Jim, helps Barbara rediscover her voice and her identity. In the years since her memoir was first published, thousands of readers all over the world have read her book, followed her descent into hell, traveled with her along the bumpy road to recovery, and celebrated as she creates a new life. I'm Dancing As Fast As I Can is a strikingly honest look at a life gone off the rails. Throughout her journey, Gordon's hope and strength make her an incredible heroine worth rooting for.

The Brass Notebook: A Memoir


Devaki Jain - 2020
    But there were restrictions too, that come with growing up in an orthodox Tamil Brahmin family, as well as the rarely spoken about dangers of predatory male relatives. Ruskin College, Oxford, gave her her first taste of freedom in 1955, at the age of 22. Oxford brought her a degree in philosophy and economics—as well as hardship, as she washed dishes in a cafe to pay her fees. It was here, too, that she had her early encounters with the sensual life. With rare candour, she writes of her romantic liaisons in Oxford and Harvard, and falling in love with her ‘unsuitable boy’—her husband, Lakshmi Jain, whom she married against her beloved father’s wishes.Devaki’s professional life saw her becoming deeply involved with the cause of ‘poor’ women—workers in the informal economy, for whom she strove to get a better deal. In the international arena, she joined cause with the concerns of the colonized nations of the south, as they fought to make their voices heard against the rich and powerful nations of the former colonizers. Her work brought her into contact with world leaders and thinkers, amongst them, Vinoba Bhave, Nelson Mandela, Desmond Tutu, Henry Kissinger, Amartya Sen, Doris Lessing and Iris Murdoch, her tutor at St Anne’s College, Oxford, who became a lifelong friend.In all these encounters and anecdotes, what shines through is Devaki Jain’s honesty in telling it like it was—with a message for women across generations, that one can experience the good, the bad and the ugly, and remain standing to tell the story.

The Red Devil : A Memoir About Beating The Odds


Katherine Russell Rich - 1999
    Hailed by critics nationwide and winner of two 1999 Books for a Better Life Awards, this book shares the author's bold tale of illness, joy, mortality, and the improbable triumph of love in the midst of despair.

The Shaking Woman, or A History of My Nerves


Siri Hustvedt - 2009
    Despite her flapping arms and shaking legs, she continued to speak clearly and was able to finish her speech. It was as if she had suddenly become two people: a calm orator and a shuddering wreck. Then the seizures happened again and again. The Shaking Woman tracks Hustvedt’s search for a diagnosis, one that takes her inside the thought processes of several scientific disciplines, each one of which offers a distinct perspective on her paroxysms but no ready solution. In the process, she finds herself entangled in fundamental questions: What is the relationship between brain and mind? How do we remember? What is the self?During her investigations, Hustvedt joins a discussion group in which neurologists, psychiatrists, psychoanalysts, and brain scientists trade ideas to develop a new field: neuropsychoanalysis. She volunteers as a writing teacher for psychiatric in-patients at the Payne Whitney clinic in New York City and unearths precedents in medical history that illuminate the origins of and shifts in our theories about the mind-body problem. In The Shaking Woman, Hustvedt synthesizes her experience and research into a compelling mystery: Who is the shaking woman? In the end, the story she tells becomes, in the words of George Makari, author of Revolution in Mind, “a brilliant illumination for us all.”

Found in Transition: A Mother’s Evolution During Her Child’s Gender Change


Paria Hassouri - 2020