Inside the Dementia Epidemic: A Daughter's Memoir


Martha Stettinius - 2012
    Silver medal winner in the Health/Medical category of the 2013 Readers' Favorite Book Award. Finalist, 2013 Eric Hoffer Book Awards. Finalist, 2013 Indie Excellence Book Awards. Winner of an honorable mention in the category of Life Stories from the 20th Annual Writers Digest Book Awards.The unflinching and hopeful story of one woman's journey into family caregiving, and a vivid overview of the challenges of Alzheimer's care. Winner of an Honorable Mention in the category of Life Stories from the 20th Annual Writer's Digest Book Awards.With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves this compelling story of caregiving for her demented mother with a broad exploration of the causes of Alzheimer's disease, means of treating it, and hopes for preventing it. She shares the lessons she's learned over seven years of caregiving at home, in assisted living, a rehabilitation center, a "memory care" facility for people living with dementia, and a nursing home--lessons not just about how to navigate the system, but how caregiving helped the author to overcome her challenging relationship with her mother, and how she's learned to nurture her mother's spirit through the most advanced stages of dementia.One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. As baby boomers age, and we all live longer, most of us will know someone with Alzheimer's disease or another dementia, or care for someone with dementia. Alzheimer's disease is the fifth-leading cause of death in the United States for those age 65 and older, but the only one in the top 10 without a means of prevention, a way to slow its progression, or a cure. In the United States, over 15 million family caregivers provide 17.4 billion hours of unpaid care to family members and friends with Alzheimer's disease and other dementias. Sixty percent of family caregivers report feeling extreme stress.This memoir is not a lament, however; it is guide, and, the author hopes, a means to soften the blow upon all of us. In the course of the author's experience, she discovered what could have been done earlier to help her mother, and what can be done now to help us all. Ms. Stettinius's greatest gift to readers is that of optimism--that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring.Through its intimate scenes and skillful storytelling, Inside the Dementia Epidemic is a call to action for better dementia care, more funding for dementia research, and more support for family caregivers. In the appendices, the author shares facts she wishes she had known years ago, including how to get a diagnosis of Alzheimer's disease; what medications are approved to treat the symptoms of Alzheimer's disease; risk factors for dementia, and possible preventive measures; promising explorations in dementia research; the link between insulin resistance, diabetes, and Alzheimer's disease; the benefits of "memory consultations" and early diagnosis; and national and international movements for more dementia research and better care.Inside the Dementia Epidemic: A Daughter's Memoir includes source notes, resources for caregivers, and an index.

The Living End: A Memoir of Forgetting and Forgiving


Robert Leleux - 2012
    When JoAnn began exhibiting signs of Alzheimer’s, she’d been estranged from her daughter, Robert’s mother Jessica, for decades. As her disease progressed, JoAnn lost most of her memories, but she also forgot her old wounds and anger. She became a happy, gentler person who was finally able to reach out to her daughter in what became a strangely life-affirming experience, an unexpected blessing that gave a divided family a second chance.

Alzheimer's Daughter


Jean Lee - 2015
    word with me," while Ibby wags her finger at the doctor scolding, "Shame on you."They protect each other, Ibby by asserting, "We're not leaving our home," and Ed reassuring, "We're just fine."About his driving Ed defends, "I'm an excellent driver, I've never had an accident." When their daughter, Rosie, finds dings in Ed's car, he dismisses, "Someone must have bumped into me."After Rosie moves them to assisted living, convinced they are on a second honeymoon, they break the news, "We've decided not to have more children."In the late stages, they politely shake Rosie's hand, inquiring, "Now, who are you?"In ALZHEIMER'S DAUGHTER readers journey with Rosie Church from her first suspicions that something is awry to nearly a decade later as she is honored to hold Ed and Ibby's hands when they draw their final breaths.

Loving Tiara: Memoir


Tiffani Goff - 2019
    At forty-five years old, my life’s mission was complete. If I died tomorrow, I would be proud of the life I lived.” - Loving Tiara Loving Tiara is a compelling memoir that will encompass your every thought, break your heart, fill you with hope, and leave you with a sense of awe. When Tiffani married the love of her life, Lou, after graduating from college, she assumed she would continue to live the affluent life she had always known, having grown up in Newport Beach, California. She never imagined she would soon be stalked by creditors, driving a car on the repossession list and forced to worry about providing basic necessities for her family, such as buying diapers and groceries. This increasingly desperate situation forced her to decide to return home to her parents with her baby and husband. After getting their life back on track, and with Tiffani in her final year of law school, they decided to have another baby. At eight months old, however, they discovered that their new daughter Tiara had Tuberous Sclerosis, a rare genetic disorder resulting in intractable epilepsy, developmental delay, chronic hospital admissions, and uncontrollable violent behaviors. So how did Tiffani cope with her new reality? She chose to fight. She challenged the doctors, battled the insurance companies, and refused to give up caring for Tiara even when her own life was at risk. The author’s story of unconditional love, unimaginable challenges, and, ultimately, triumph, is a compelling one, which will take hold of your heart and not let go. This memoir will, hopefully, inspire you to tackle fear, encourage you never to give up, and remind you always to trust your gut instincts.

Somebody Stole My Iron: A Family Memoir of Dementia


Vicki Tapia - 2014
    It is a story written from the perspective of the caregiver. It documents the learning process of the caregiver as she struggles to cope with the difficulties of caring for her parents and watching them change into people who are not the ones she remembers and who slowly drift away in mind and then body.

The Geography of Memory: A Pilgrimage Through Alzheimer's


Jeanne Murray Walker - 2013
    This powerful story explores parental love, profound grief, and the unexpected consolation of memory. While Walker does not flinch from the horrors of "the ugly twins, aging and death," her eye for the apt image provides a window into unexpected joy and humor even during the darkest days.This is a multi-layered narrative of generations, faith, and friendship. As Walker leans in to the task of caring for her mother, their relationship unexpectedly deepens and becomes life-giving. Her mother's memory, which more and more dwells in the distant past, illuminates Walker's own childhood. She rediscovers and begins to understand her own past, as well as to enter more fully into her mother's final years.The Geography of Memory is not only a personal journey made public in the most engaging, funny, and revealing way possible, here is a story of redemption for anyone who is caring for or expecting to care for ill and aging parents-and for all the rest of us as well.

Beyond Forgetting


Christine Zimmerman - 2014
    She chose to drop college temporarily, and take the lead in caring for her beloved grandfather after he was unable to live alone due to Alzheimer's disease. In "Beyond Forgetting" you will read a harrowing tale-first of a kind and brilliant man's love for his granddaughter, and of her selfless return of that love. You will laugh and cry along with the Nelson family as that once-formidable man experiences many surprising, upsetting, and sometimes fascinating changes. You will be astounded by the admirable strength of Zimmerman in the face of shock, frustration, sadness, and guilt. Finally, you will watch her grandfather undergo the downward turn that makes Alzheimer's a singularly devastating illness.Alzheimer's is a cruel disease that can rob the sufferer of his dignity, memory, strength, and even basic functions. "Beyond Forgetting" is an important book with something to teach everyone. Never macabre, maudlin, or miserable, the book maintains a positive, loving tone. It is a rare insight into an often-closed moment in the hardest part of many people's lives. If you have a loved one with Alzheimer's disease, or know someone who does, it should be required reading."

My Mom My Hero: Alzheimer's - A Mother and Daughter's Bittersweet Journey


Lisa R. Hirsch - 2013
    To Lisa’s surprise, it has brought her and Ruth closer together than they’ve ever been. My Mom My Hero tells the story of this mother-daughter relationship through a series of entries from Lisa’s internationally popular blog. Ultimately, this is an uplifting and inspirational book for anyone who’s going through the difficult, and often lonely, ordeal of caring for a loved one who suffers from this devastating illness.

The Reluctant Farmer of Whimsey Hill


Bradford M. Smith - 2016
    That is what troubles animal-phobic, robotics engineer Smith who just got married. He learns that his bride’s dream is to have a farm where there are lots of animals and she can rescue ex-race horses to retrain and find them new homes. But according to a Meyers-Briggs Personality Test that they took for fun, their marriage is doomed. There is only one problem: the newlyweds took the test after the wedding. Whether Smith is chasing a cow named Pork Chop through the woods with a rope, getting locked in a tack room by the family pony, being snubbed by his wife’s dog, or unsuccessfully trying to modernize their barn using the latest technology, the odds are stacked against him. It seems like everything with four legs is out to get him. Will the animals win, forcing Smith to admit defeat, or will he fight to keep his family and the farm together? Enjoy the true, warm, and frequently hilarious stories of Smith’s journey along the bumpy road from his urban robotics lab to a new life on a rural Virginia farm.

Remembering the Music, Forgetting the Words: Travels with Mom in the Land of Dementia


Kate Whouley - 2011
    Yet, this is not a dark or dour look at the demon of Alzheimer’s. Whouley shares the trying, the tender, and the sometimes hilarious moments in meeting the challenge also known as Mom.As her mother, Anne, falls into forgetting, Kate remembers for her. In Anne we meet a strong-minded, accidental feminist with a weakness for unreliable men. The first woman to apply for—and win—a department-head position in her school system, Anne was an innovative educator who poured her passion into her work. House-proud too, she made certain her Hummel figurines were dusted and arranged just so. But as her memory falters, so does her housekeeping. Surrounded by stacks of dirty dishes, piles of laundry, and months of unopened mail, Anne needs Kate’s help—but she doesn’t want to relinquish her hard-won independence any more than she wants to give up smoking.Time and time again, Kate must balance Anne’s often nonsensical demands with what she believes are the best decisions for her mother’s comfort and safety. This is familiar territory for anyone who has had to help a loved one in decline, but Kate finds new and different ways to approach her mother and her forgetting. Shuddering under the weight of accumulating bills and her mother’s frustrating, circular arguments, Kate realizes she must push past difficult family history to find compassion, empathy, and good humor.When the memories, the names, and then the words begin to fade, it is the music that matters most to Kate’s mother. Holding hands after a concert, a flute case slung over Kate’s shoulder, and a shared joke between them, their relationship is healed—even in the face of a dreaded and deadly diagnosis. “Memory,” Kate Whouley writes, “is overrated.”

Barnum's Own Story: The Autobiography of P. T. Barnum


P.T. Barnum - 2017
    T. Barnum's career of showmanship and charlatanry was marked by a surprising undercurrent of honesty and forthrightness. His exuberant autobiography forms a happy combination of all those traits, revealing the whole story of his world-famous hoaxes and publicity stunts. Here is a pageant of nineteenth-century America's gullibility and thirst for marvels, as told by the master of revels himself.A born storyteller, Barnum recalls his association with Tom Thumb, his audience with Queen Victoria, and his trouble keeping Jenny Lind's angelic image intact during a trying tour. He tells of Jumbo, the most famous elephant in history, from the creature's heroic arrival in America to its tragic death in a railroad accident; of his attempts to transfer Shakespeare's house and Madame Tussaud's Waxworks from England to New York; and of his triumphant reentry into public life after financial failure and five disastrous fires had all but wiped him out. The true-life tale of a man of boundless imagination and indomitable energy, Barnum's autobiography embodies the spirit of America's most exciting boom years.

The Long Hello


Cathie Borrie - 2010
    Between the two, a wondrously poetic dialogue develops, which Ms. Borrie further illuminates with childhood memories of her family, and her struggle to maintain a life outside her caregiving responsibilities. The Long Hello demonstrates how caregiving creates an opportunity to experience the change in a relationship that illness necessitates, one in which joy, innocence, and profound intimacy can flourish.Written in spare, beautiful prose, largely in the form of a dialogue, The Long Hello exquisitely captures the intricacies and nuances of a daughter’s relationship with her mother. - See more at: http://books.simonandschuster.ca/Long...Additional Info:In this shimmering jewel of a memoir, "The Long Hello The Other Side of Alzheimer's," author Cathie Borrie traverses rich terrain as she unearths the hidden and often painful treasures of a life well lived: the shadows and joys of childhood, the relationships that leave us both illuminated and bereft, the love, longing and loss that surge to the fore when a parent is ailing. Memory, and the losing of it, serves as a powerful guide, and Borrie follows her mother's eccentric and poetic lead into the past, transformed by the unexpected brilliance of the elder woman's shifting dementia mind. A paean of redemptive beauty, "The Long Hello" cherishes the bond between mothers and daughters, and creates a startling change in society's perception of those journeying through Alzheimer's.

This is Not for You


Venus Soileau - 2014
    This is Not for You is a memoir which vividly describes the memories of growing up in a dysfunctional environment and how these circumstances developed a spirit within the narrator. This is a story of resiliency and drive to overcome the extreme adversities that addiction and poverty can create in the life of a young child.

Measure of the Heart: A Father's Alzheimer's, A Daughter's Return


Mary Ellen Geist - 2008
    She chose to live her life by a different set of priorities: to be guided by her heart, not by outside accomplishment and recognition.The New York Times wrote a front page story on Mary Ellen on Thanksgiving 2005. It was one of the most e-mailed stories for the month. Through her own story and through interviews with doctors and other women who've followed the "Daughter Track"--leaving a job to care for an aging parent--Geist offers emotional insights on how to encourage interaction with the loved one you're caring for; how to determine daily tasks that are achievable and rewarding; how the personality of the patient affects the caregiving and the progression of the diseases; as well as invaluable advice about how caregivers can take care of themselves while accomplishing the Herculean task of constantly caring for others.Geist's years in journalism allow her to report on Boomers' caretaking dilemmas with professional objectivity, and her warm voice brings compassion and insight to one of the most difficult stituations a son or daughter may face during his or her life.

The Story of My Father


Sue Miller - 2003
    Beginning an intensely personal journey, she recalls the bitter irony of watching this church historian wrestle with his increasingly befuddled notion of time and meaning. She details the struggles with doctors, her own choices, and the attempt to find a caring response to a disease whose special cruelty is to diminish the humanity of those it strikes. In luminous prose, Sue Miller has fashioned a compassionate inventory of two lives, a memoir destined to offer comfort to all sons and daughters struggling to make peace with their fathers and with themselves.