What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Working Stiff: Two Years, 262 Bodies, and the Making of a Medical Examiner


Judy Melinek - 2014
    Judy Melinek began her training as a New York City forensic pathologist. With her husband T.J. and their toddler Daniel holding down the home front, Judy threw herself into the fascinating world of death investigation, performing autopsies, investigating death scenes, counseling grieving relatives. Working Stiff chronicles Judy's two years of training, taking readers behind the police tape of some of the most harrowing deaths in the Big Apple, including a firsthand account of the events of September 11, the subsequent anthrax bio-terrorism attack, and the disastrous crash of American Airlines flight 587.Lively, action-packed, and loaded with mordant wit, Working Stiff offers a firsthand account of daily life in one of America's most arduous professions, and the unexpected challenges of shuttling between the domains of the living and the dead. The body never lies, and through the murders, accidents, and suicides that land on her table, Dr. Melinek lays bare the truth behind the glamorized depictions of autopsy work on shows like CSI and Law and Order to reveal the secret story of the real morgue.

Life As We Know It: A Father, a Family, and an Exceptional Child


Michael Bérubé - 1996
    When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the medical procedures, insurance guidelines, policies, and representations that surround every child our society designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person rather than as a medical, genetic, or social problem.

Harry, a History: The True Story of a Boy Wizard, His Fans, and Life Inside the Harry Potter Phenomenon


Melissa Anelli - 2008
    During the brief span of just one decade, hundreds of millions of perfectly ordinary people made history: they became the only ones who would remember what it was like when the Harry Potter saga was still unfinished. What is was like to seek out friends, families, online forums, fan fiction, and podcasts to get a fix between novels. When the potential death of a character was a hotter bet than the World Series. When the unfolding story of a boy wizard changed the way books are read for all time. And a webmistress of the Leaky Cauldron, one of the most popular Harry Potter sites on the Internet, Melissa Anelli had a front row seat to it all. Whether it was helping Scholastic stop leaks and track down counterfeiters, hosting live PotterCasts at bookstores across the country, touring with the wizard rock band Harry and the Potters, or traveling to Edinburgh to interview J.K. Rowling personally, Melissa was at the center of the Harry Potter tornado, and nothing about her life would ever be the same. The Harry Potter books are a triumph of the imagination that did far more than break sales records for all time. They restored the world's sense of wonder and took on a magical life of their own. Now the series has ended, but the story is not over. With remembrances from J.K. Rowling's editors, agents, publicists, fans and Rowling herself, Melissa Anelli takes us on a personal journey through every aspect of the Harry Potter phenomenon--from his very first spell to his lasting impact on the way we live the dream.

Somebody to Love: The Life, Death and Legacy of Freddie Mercury


Matt Richards - 2016
    Including interviews from Freddie Mercury's closest friends in the last years of his life, along with personal photographs, Somebody to Love is an authoritative biography of the great man.Here are previously unknown and startling facts about the singer and his life, moving detail on his lifelong search for love and personal fulfilment, and of course his tragic contraction of a then killer disease in the mid-1980s. Woven throughout Freddie's life is the shocking story of how the HIV virus came to hold the world in its grip, was cruelly labelled 'The Gay Plague' and the unwitting few who indirectly infected thousands of men, women and children - Freddie Mercury himself being one of the most famous. The death of this vibrant and spectacularly talented rock star, shook the world of medicine as well as the world of music. Somebody to Love finally puts the record straight and pays detailed tribute to the man himself.

It's Not Yet Dark


Simon Fitzmaurice - 2014
    He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive.Here, the young filmmaker, a husband and father of five small children draws us deeply into his inner world. Told in simply expressed and beautifully stark prose - in the vein of such memoirs as Jean-Dominique Bauby's The Diving Bell and the Butterfly - the result is an astonishing journey into a life which, though brutally compromised, is lived more fully and in the moment than most, revealing at its core the power of love its most potent.Written using an eye-gaze computer, It's Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people and, ultimately, about what it means to be alive.

The Prison Doctor


Amanda Brown - 2019
    From miraculous pregnancies to dirty protests, and from violent attacks on prisoners to heartbreaking acts of self-harm, she has witnessed it all. In this memoir, Amanda reveals the stories, the patients and the cases that have shaped a career helping those most of us would rather forget.

The Fact of a Body: A Murder and a Memoir


Alexandria Marzano-Lesnevich - 2017
    The child of two lawyers, they are staunchly anti-death penalty. But the moment convicted murderer Ricky Langley’s face flashes on the screen as they review old tapes—the moment they hear him speak of his crimes -- they are overcome with the feeling of wanting him to die. Shocked by their reaction, they dig deeper and deeper into the case. Despite their vastly different circumstances, something in his story is unsettlingly, uncannily familiar.Crime, even the darkest and most unsayable acts, can happen to any one of us. As Alex pores over the facts of the murder, they find themself thrust into the complicated narrative of Ricky’s childhood. And by examining the details of Ricky’s case, they are forced to face their own story, to unearth long-buried family secrets, and reckon with a past that colors their view of Ricky's crime.But another surprise awaits: They weren’t the only one who saw their life in Ricky’s.An intellectual and emotional thriller that is also a different kind of murder mystery, THE FACT OF A BODY is a book not only about how the story of one crime was constructed -- but about how we grapple with our own personal histories. Along the way it tackles questions about the nature of forgiveness, and if a single narrative can ever really contain something as definitive as the truth. This groundbreaking, heart-stopping work, ten years in the making, shows how the law is more personal than we would like to believe -- and the truth more complicated, and powerful, than we could ever imagine.

My Secret Sister


Helen Edwards - 2013
    But they could not protect her from her neglectful mother and violent father. Jenny was adopted and grew up in Newcastle. Neither woman knew of the other's existence until, in her 50s, Jenny went looking for her birth family and found she had a sister.

The Education of a Coroner: Lessons in Investigating Death


John Bateson - 2017
    Judy Melinek’s Working Stiff, an account of the hair-raising and heartbreaking cases handled by the coroner of Marin County, California throughout his four decades on the job—from high-profile deaths to serial killers, to Golden Gate Bridge suicides.Marin County, California is a study in contradictions. Its natural beauty attracts thousands of visitors every year, yet the county also is home to San Quentin Prison, one of the oldest and largest penitentiaries in the country. Marin ranks in the top one percent of counties nationwide in terms of affluence and overall health, yet it is far above the norm in drug overdoses and alcoholism, and comprises a large percentage of suicides from the Golden Gate Bridge. Ken Holmes worked in the Marin County Coroner’s Office for thirty-six years, starting as a death investigator and ending as the three-term, elected coroner. As he grew into the job—which is different from what is depicted on television—Holmes learned a variety of skills, from finding hidden clues at death scenes, interviewing witnesses effectively, managing bystanders and reporters, preparing testimony for court to notifying families of a death with sensitivity and compassion. He also learned about different kinds of firearms, all types of drugs—prescription and illegal—and about certain unexpected and potentially fatal phenomena such as autoeroticism. Complete with poignant anecdotes, The Education of a Coroner provides a firsthand and fascinating glimpse into the daily life of a public servant whose work is dark and mysterious yet necessary for society to function.

Ballerina: Sex, Scandal, and Suffering Behind the Symbol of Perfection


Deirdre Kelly - 2012
    But the reality is another story. From the earliest ballerinas in the 17th century, who often led double lives as concubines, through the poverty of the corps de ballet dancers in the 1800's and the anorexic and bulimic ballerinas of George Balanchine, starvation and exploitation have plagued ballerinas throughout history.Using the stories of great dancers such as Anna Pavlova, Isadora Duncan, Suzanne Farrell, Gelsey Kirkland, and Evelyn Hart, Deirdre Kelly exposes the true rigors for women in ballet. She rounds her critique with examples of how the world of ballet is slowly evolving for the better. But to ensure that this most graceful of dance forms survives into the future, she says that the time has come to rethink ballet, to position the ballerina at its center and accord her the respect she deserves.

Push Comes to Shove


Twyla Tharp - 1992
    Now, in her own words, Twyla Tharp offers a rare and provocative glimpse into the mind and heart behind her famously deadpan face.Much more than a dance book, Push Comes to Shove is the story of a woman coming to terms with herself as daughter, wife and lover, mother, artist. A child of Indiana Quaker country, Twyla Tharp was traumatically uprooted to California when her stage-ambitious mother built a drive-in movie theater. Soon Twyla was studying piano, violin, flamenco, drums, French, baton twirling, tap, classical ballet...But it was in adolescence - tangling with a rattlesnake in the California desert and observing overheated couples in the backs of cars - that she began to learn the powers of the body and the erotic mysteries of dance. In New York her raw talent came under the influence of such giants as Martha Graham, Paul Taylor, Merce Cunningham, and George Balanchine. But Tharp fought to find her own vision as an artist. In the process she created a new vocabulary of movement: quirky rebellious, sexy, comic - a daring and defiant marriage of Jelly Roll Morton, Bach, the modern dance, and classical ballet. Her collaborations with Mikhail Baryshnikov, Jerome Robbins, director Milos Forman, and David Byrne of Talking Heads built bridges between ballet audiences and fans of popular culture. Now with a stunning accompaniment of photographs by Richard Avedon and others, she reveals the development of the Tharp style - the rendering of order out of chaos, and chaos out of conventional order - that won critical acclaim in such works as Deuce Coupe, The Fugue, Push Comes to Shove, In the Upper Room, and the movies Hair and Amadeus. But her spectacular success did not come without personal anguish.

The Perfect Predator: A Scientist's Race to Save Her Husband from a Deadly Superbug: A Memoir


Steffanie Strathdee - 2019
    What at first seemed like a case of food poisoning quickly turned critical, and by the time Tom had been transferred via emergency medevac to the world-class medical center at UC San Diego, where both he and Steffanie worked, blood work revealed why modern medicine was failing: Tom was fighting one of the most dangerous, antibiotic-resistant bacteria in the world.Frantic, Steffanie combed through research old and new and came across phage therapy: the idea that the right virus, aka "the perfect predator," can kill even the most lethal bacteria. Phage treatment had fallen out of favor almost 100 years ago, after antibiotic use went mainstream. Now, with time running out, Steffanie appealed to phage researchers all over the world for help. She found allies at the FDA, researchers from Texas A&M, and a clandestine Navy biomedical center -- and together they resurrected a forgotten cure.

Get Me Out of Here: My Recovery from Borderline Personality Disorder


Rachel Reiland - 2002
    A mother, wife, and working professional, Reiland was diagnosed with borderline personality disorder at the age of 29—a diagnosis that finally explained her explosive anger, manipulative behaviors, and self-destructive episodes including bouts of anorexia, substance abuse, and promiscuity. A truly riveting read with a hopeful message.

No Days Off: My Life with Type 1 Diabetes and Journey to the NHL


Max Domi - 2019
    A portion of proceeds from the sale of this book will be donated to JDRF, the leading global organization funding type 1 diabetes research.“Max, you have type 1 diabetes,” the doctor said. My mom and I looked at each other. For her, time stood still for a second as our entire future as a family shifted. But I had no clue what the diagnosis meant. So I said the first thing that came to mind. “Can I still play hockey?” As a kid, when Max Domi was asked what he wanted to be when he grew up, he only ever had one answer: a hockey player. Growing up the son of a professional hockey player—Tie Domi—Max saw from an early age what it took to make the NHL: grit, talent, and the support of a team. Over countless hours in the garage, at the rink, and in the gym, Max chased his dream. It seemed that Max was born to be on the ice. But then, when he was twelve years old, Max started getting sick. And sicker. Eventually, he and his family learned the truth: Max had type 1 diabetes. Overnight, Max and his family found their lives upended. All Max wanted was to be a normal kid, but suddenly, the simplest things—a game of basketball with friends, a family meal, a school field trip—were complicated with a thousand different considerations. Would people notice or make fun of him if he carried his blood-testing kit everywhere? Would his teammates think he was weak if his blood sugar went low at hockey practice? How much insulin did he need after a meal? And all the while, the fear of what might happen if things went wrong hung over his head. Max had to grow up quickly. As he struggled to find his new normal, Max slowly began to realize that overcoming his disease demanded the same qualities that it took to be a hockey player—mental and physical toughness, maturity, and the love and care of family and friends. Bit by bit, he learned—sometimes the hard way—not just to control his diabetes, but to turn it into an advantage. If managing his disease was going to demand that Max be stronger, more prepared, and more disciplined than anyone else, then he wouldn’t just be good at those things: he’d be the best. He’d do whatever it took to move him closer to his dream of playing in the NHL. Inspiring, heartwarming, and exciting, No Days Off is a memoir about what it’s like to be a kid whose world is turned upside down, and what it takes to face adversity.