The Still Point of the Turning World


Emily Rapp - 2013
    But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder.  Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months.  Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting.  They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.The Still Point of the Turning World is the story of a mother’s journey through grief and beyond it.  Rapp’s response to her son’s diagnosis was a belief that she needed to “make my world big”—to make sense of her family’s situation through art, literature, philosophy, theology and myth.  Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley’s Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child.  In luminous, exquisitely moving prose she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.

The Two Kinds of Decay


Sarah Manguso - 2008
    In this captivating story, Manguso recalls her struggle: arduous blood cleansings, collapsed veins, multiple chest catheters, depression, the deaths of friends and strangers, addiction, and, worst of all for a writer, the trite metaphors that accompany prolonged illness. A book of tremendous grace, The Two Kinds of Decay transcends the very notion of what an illness story can and should be.

The Anthropocene Reviewed


John GreenJohn Green - 2021
    In this remarkable symphony of essays adapted and expanded from his ground-breaking, critically acclaimed podcast, John Green reviews different facets of the human-centered planet - from the QWERTY keyboard and Halley's Comet to Penguins of Madagascar - on a five-star scale.Complex and rich with detail, the Anthropocene's reviews have been praised as 'observations that double as exercises in memoiristic empathy', with over 10 million lifetime downloads. John Green's gift for storytelling shines throughout this artfully curated collection about the shared human experience; it includes beloved essays along with six all-new pieces exclusive to the book.

The World's Strongest Librarian: A Memoir of Tourette's, Faith, Strength, and the Power of Family


Josh Hanagarne - 2013
    Although he wouldn't officially be diagnosed with Tourette Syndrome until his freshman year of high school, Josh was six years old and onstage in a school Thanksgiving play when he first began exhibiting symptoms. By the time he was twenty, the young Mormon had reached his towering adult height of 6'7" when — while serving on a mission for the Church of Latter Day Saints — his Tourette's tics escalated to nightmarish levels.Determined to conquer his affliction, Josh underwent everything from quack remedies to lethargy-inducing drug regimes to Botox injections that paralyzed his vocal cords and left him voiceless for three years. Undeterred, Josh persevered to marry and earn a degree in Library Science. At last, an eccentric, autistic strongman — and former Air Force Tech Sergeant and guard at an Iraqi prison — taught Josh how to "throttle" his tics into submission through strength-training.Today, Josh is a librarian in the main branch of Salt Lake City's public library and founder of a popular blog about books and weight lifting—and the proud father of four-year-old Max, who has already started to show his own symptoms of Tourette's.The World's Strongest Librarian illuminates the mysteries of this little-understood disorder, as well as the very different worlds of strongman training and modern libraries. With humor and candor, this unlikely hero traces his journey to overcome his disability — and navigate his wavering Mormon faith — to find love and create a life worth living.

The Sound of a Wild Snail Eating


Elisabeth Tova Bailey - 2010
    While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal.  Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.

Unnatural Causes: The Life and Many Deaths of Britain's Top Forensic Pathologist


Richard Shepherd - 2018
    When death is sudden or unexplained, it falls to Shepherd to establish the cause. Each post-mortem is a detective story in its own right - and Shepherd has performed over 23,000 of them. Through his skill, dedication and insight, Dr Shepherd solves the puzzle to answer our most pressing question: how did this person die?From serial killer to natural disaster, 'perfect murder' to freak accident, Shepherd takes nothing for granted in pursuit of truth. And while he's been involved in some of the most high-profile cases of recent times, it's often the less well known encounters that prove the most perplexing, intriguing and even bizarre. In or out of the public eye, his evidence has put killers behind bars, freed the innocent and turned open-and-shut cases on their heads.But a life in death, bearing witness to some of humanity's darkest corners, exacts a price and Shepherd doesn't flinch from counting the cost to him and his family.

January First: A Child's Descent into Madness and Her Father's Struggle to Save Her


Michael Schofield - 2012
    In January's case, she is hallucinating 95 percent of the time that she is awake. Potent psychiatric drugs that would level most adults barely faze her. January, "Jani" to her family, has literally hundreds of imaginary friends. They go by names like 400-the-Cat, 100 Degrees, and 24 Hours and live on an island called "Calalini," which she describes as existing "on the border of my world and your world." Some of these friends are good, and some of them, such as 400, are very bad. They tell her to jump off buildings, attack her brother, and scream at strangers.In the middle of these never-ending delusions, hallucinations, and paroxysms of rage are Jani's parents, who have gone to the ends of the earth to keep both of their children alive and unharmed. They live in separate one-bedroom apartments in order to keep her little brother, Bohdi, safe from his big sister—and wage a daily war against a social system that has all but completely failed them. January First is the story of the daily struggles and challenges they face as they do everything they can to help their daughter while trying to keep their family together. It is the inspiring tale of their resolute determination and faith.

An Exclusive Love


Johanna Adorján - 2009
    Johanna Adorján's grandparents were unconventionally elegant and endlessly exotic; they survived the Holocaust, fled Budapest during the uprising of 1956, and lived a glamorous and mysterious life in Denmark—their pasts never discussed, even within the family. An Exclusive Love is Adorján's poignant and loving reconstruction of what may have happened on the day of their deaths, when Adorján was just twenty. Investigating the rich and surprising story of their lives, Adorján reveals the compromises they made and risks they took, and what it meant for her own family. This memoir tells of a couple's extravagant devotion to each other, and their granddaughter's later discovery of complex personalities, long-buried family secrets, and why they ultimately decided, together, to take their own lives. W. G. Sebald's translator Anthea Bell renders Adorján's brilliantly constructed, powerfully concise memoir with stunning clarity. Beautifully written, tender but never sentimental, An Exclusive Love is a vivid portrait of a true twentieth-century couple. .

Run, Don't Walk: The Curious and Chaotic Life of a Physical Therapist Inside Walter Reed Army Medical Center


Adele Levine - 2014
    As body armor and advanced trauma care helped save the lives—if not the limbs—of American soldiers fighting in Afghanistan and Iraq, Walter Reed quickly became the world leader in amputee rehabilitation. But no matter the injury, physical therapy began the moment the soldiers emerged from surgery. Days at Walter Reed were intense, chaotic, consuming, and heartbreaking, but they were also filled with camaraderie and humor. Working in a glassed-in fishbowl gymnasium, Levine, her colleagues, and their combat-injured patients were on display at every moment to tour groups, politicians, and celebrities. Some would shudder openly at the sight—but inside the glass and out of earshot, the PTs and the patients cracked jokes, played pranks, and compared stumps. With dazzling storytelling, Run, Don’t Walk introduces a motley array of oddball characters including:  Jim, a retired lieutenant-colonel who stays up late at night baking cake after cake, and the militant dietitian who is always after him; a surgeon who only speaks in farm analogies; a therapy dog gone rogue; —and Levine’s toughest patient, the wild, defiant Cosmo, who comes in with one leg amputated and his other leg shattered. Entertaining, engrossing, and ultimately inspiring, Run, Don’t Walk is a fascinating look into a hidden world.

All In: An Autobiography


Billie Jean King - 2021
    But the world she wanted did not exist yet, so she set out to create it. In this spirited account, King details her life's journey to find her true self. She recounts her groundbreaking tennis successes that came at a breathtaking pace--six years as the top-ranked woman in the world, twenty Wimbledon championships, thirty-nine grand-slam titles, and her watershed defeat of Bobby Riggs in the famous Battle of the Sexes. King poignantly recalls the cultural backdrop of her career and the profound impact on her worldview from the women's movement, the assassinations and anti-war protests of the 1960s, the civil rights movement, and, eventually, the LGBTQ+ rights movement.King describes the myriad challenges she hurdled, including entrenched sexism, an eating disorder, near financial ruin after being outed, and accepting her sexual identity. It was not until the age of 51 that she began to publicly and unequivocally acknowledge, I am gay. Today, King's life remains one of indefatigable service. She offers insights and advice on leadership, business, activism, sports, politics, marriage equality, parenting, sexuality and love. She shows how living honestly and openly has had a transformative effect on her relationships and happiness. Hers is the story of a pathbreaking feminist, world-class athlete, and an indomitable spirit whose impact has transcended her achievements in sports.

Stronger


Jeff Bauman - 2014
    When he realized he couldn't, he asked for a pad and paper and wrote down seven words: Saw the guy. Looked right at me, setting off one of the biggest manhunts in the country's history.Just thirty hours before, Jeff had been at the finish line of the 2013 Boston Marathon cheering on his girlfriend, Erin, when the first bomb went off at his feet. As he was rushed to the hospital, he realized he was severely injured and that he might die, but he didn't know that a photograph of him in a wheelchair was circulating throughout the world, making him the human face of the Boston Marathon bombing victims, or that what he'd seen would give the Boston police their most important breakthrough.In Stronger, Jeff describes the chaos and terror of the bombing itself and the ongoing FBI investigation in which he was a key witness. He takes us inside his grueling rehabilitation, and discusses his attempt to reconcile the world's admiration with his own guilt and frustration. . Brave, compassionate, and emotionally compelling, Jeff Bauman's story is not just his, but ours as well.

Unbroken: An Olympian's Journey from Airman to Castaway to Captive


Laura Hillenbrand - 2014
    Beautifully illustrated throughout, this riveting biography includes more than 100 black-and-white photos, as well as exclusive content, "In Conversation," with Laura Hillenbrand and Louie Zamperini.On a May afternoon in 1943, an American military plane crashed into the Pacific Ocean and disappeared, leaving only a spray of debris and a slick of oil, gasoline, and blood. Then, on the ocean surface, a face appeared. It was that of a young lieutenant, the plane’s bombardier, who was struggling to a life raft and pulling himself aboard. So began one of the most extraordinary sagas of the Second World War. The lieutenant’s name was Louis Zamperini. As a boy, he had been a clever delinquent, breaking into houses, brawling, and stealing. As a teenager, he had channeled his defiance into running, discovering a supreme talent that carried him to the Berlin Olympics. But when war came, the athlete became an airman, embarking on a journey that led to his doomed flight, a tiny raft, and a drift into the unknown. Ahead of Zamperini lay thousands of miles of open ocean, leaping sharks, a sinking raft, thirst and starvation, enemy aircraft, and, beyond, a trial even greater. Driven to the limits of endurance, Zamperini would respond to desperation with ingenuity, suffering with hope and humor, brutality with rebellion. His fate, whether triumph or tragedy, would hang on the fraying wire of his will. In this captivating young adult edition of her award-winning #1 New York Times bestseller, Laura Hillenbrand tells the story of a man’s breathtaking odyssey and the courage, cunning, and fortitude he found to endure and overcome. Lavishly illustrated with more than one hundred photographs and featuring an exclusive interview with Zamperini, Unbroken will introduce a new generation to one of history’s most thrilling survival epics.

Train Go Sorry: Inside a Deaf World


Leah Hager Cohen - 1994
    It is also a memoir, since Leah Hager Cohen grew up on the school's campus and her father is its superintendent. As a hearing person raised among the deaf, Cohen appreciates both the intimate textures of that silent world and the gulf that separates it from our own.

The Beauty in Breaking


Michele Harper - 2020
    Brought up in Washington, DC, in an abusive family, she went to Harvard, where she met her husband. They stayed together through medical school until two months before she was scheduled to join the staff of a hospital in central Philadelphia, when he told her he couldn't move with her. Her marriage at an end, Harper began her new life in a new city, in a new job, as a newly single woman.In the ensuing years, as Harper learned to become an effective ER physician, bringing insight and empathy to every patient encounter, she came to understand that each of us is broken—physically, emotionally, psychically. How we recognize those breaks, how we try to mend them, and where we go from there are all crucial parts of the healing process.The Beauty in Breaking is the poignant true story of Harper's journey toward self-healing. Each of the patients Harper writes about taught her something important about recuperation and recovery. How to let go of fear even when the future is murky. How to tell the truth when it's simpler to overlook it. How to understand that compassion isn't the same as justice. As she shines a light on the systemic disenfranchisement of the patients she treats as they struggle to maintain their health and dignity, Harper comes to understand the importance of allowing ourselves to make peace with the past as we draw support from the present. In this hopeful, moving, and beautiful book, she passes along the precious, necessary lessons that she has learned as a daughter, a woman, and a physician.

I Am, I Am, I Am: Seventeen Brushes with Death


Maggie O'Farrell - 2017
    The childhood illness that left her bedridden for a year, which she was not expected to survive. A teenage yearning to escape that nearly ended in disaster. An encounter with a disturbed man on a remote path. And, most terrifying of all, an ongoing, daily struggle to protect her daughter--for whom this book was written--from a condition that leaves her unimaginably vulnerable to life's myriad dangers.Seventeen discrete encounters with Maggie at different ages, in different locations, reveal a whole life in a series of tense, visceral snapshots. In taut prose that vibrates with electricity and restrained emotion, O'Farrell captures the perils running just beneath the surface, and illuminates the preciousness, beauty, and mysteries of life itself.