Emergence: Labeled Autistic


Temple Grandin - 1986
    An inspiring firsthand account of a courageous and determined autistic woman who makes a remarkable discovery that eventually helps her control her condition and virtually cure her disorder captures the isolation and fears suffered by autistic children.

Louder Than Words: A Mother's Journey in Healing Autism


Jenny McCarthy - 2007
    She ran into her two-year-old son Evan's room and found him having a seizure. Doctor after doctor misdiagnosed Evan until after many harrowing, life-threatening episodes one good doctor discovered that Evan is autistic.With a foreword from Dr. David Feinberg, medical director of the Resnick Neuro-psychiatric Hospital at UCLA, and an introduction by Jerry J. Kartzinel, a top pediatric autism specialist, Louder Than Words follows Jenny as she discovered an intense combination of behavioral therapy, diet, and supplements that became the key to saving Evan from autism. Her story sheds much-needed light on autism through her own heartbreak, struggle, and ultimately hopeful example of how a parent can shape a child's life and happiness.

Reasonable People


Ralph James Savarese - 2007
    Part love story, part political manifesto about "living with conviction in a cynical time," the memoir traces the development of DJ, a boy written off as profoundly retarded and now, six years later, earning all "A's" at a regular school. Neither a typical saga of autism nor simply a challenge to expert opinion, Reasonable People illuminates the belated emergence of a self in language. And it does so using DJ's own words, expressed through the once discredited but now resurgent technique of facilitated communication. In this emotional page-turner, DJ reconnects with the sister from whom he was separated, begins to type independently, and explores his experience of disability, poverty, abandonment, and sexual abuse. "Try to remember my life," he says on his talking computer, and remember he does in the most extraordinarily perceptive and lyrical way.Asking difficult questions about the nature of family, the demise of social obligation, and the meaning of neurological difference, Savarese argues for a reasonable commitment to human possibility and caring.

The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

Let Me Hear Your Voice: A Family's Triumph over Autism


Catherine Maurice - 1993
    In her first year, she picked up words, smiled and laughed, and learned to walk. But then Anne-Marie began to turn inward. And when her little girl lost some of the words she had acquired, cried inconsolably, and showed no interest in anyone around her, Catherine Maurice took her to doctors who gave her a devastating diagnosis: autism.In their desperate struggle to save their daughter, the Maurices plunged into a medical nightmare of false hopes, "miracle cures," and infuriating suggestions that Anne-Marie's autism was somehow their fault. Finally, Anne-Marie was saved by an intensive behavioral therapy.Let Me Hear Your Voice is a mother's illuminating account of how one family triumphed over autism. It is an absolutely unforgettable book, as beautifully written as it is informative.

The Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man's Quest to Be a Better Husband


David Finch - 2012
    Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains David’s ever-growing list of quirks and compulsions, his lifelong propensity to quack and otherwise melt down in social exchanges, and his clinical-strength inflexibility. But it doesn’t make him any easier to live with.Determined to change, David sets out to understand Asperger syndrome and learn to be a better husband—no easy task for a guy whose inability to express himself rivals his two-year-old daughter's, who thinks his responsibility for laundry extends no further than throwing things in (or at) the hamper, and whose autism-spectrum condition makes seeing his wife's point of view a near impossibility.Nevertheless, David devotes himself to improving his marriage with an endearing yet hilarious zeal that involves excessive note-taking, performance reviews, and most of all, the Journal of Best Practices: a collection of hundreds of maxims and hard-won epiphanies that result from self-reflection both comic and painful. They include "Don’t change the radio station when she's singing along," "Apologies do not count when you shout them," and "Be her friend, first and always." Guided by the Journal of Best Practices, David transforms himself over the course of two years from the world’s most trying husband to the husband who tries the hardest, the husband he’d always meant to be.Filled with humor and surprising wisdom, The Journal of Best Practices is a candid story of ruthless self-improvement, a unique window into living with an autism-spectrum condition, and proof that a true heart can conquer all.

A Place for Everything


Anna Wilson - 2020
    They knew to keep things clean, to stay quiet, and to look the other way when things started to get ‘a bit much for your mum’.It’s only when her mother reaches her 70s, and Anna has a family of her own, that the cracks really start to appear. More manic. More irrational. More detached from the world. And when her father, the man who has calmed and cajoled her mother through her entire life is diagnosed with cancer, the whole world turns upside down.This is a story of a life lived with undiagnosed Aspergers, about the person behind the disorder, those big unspoken family truths, and what it means to care for our parents in their final years.

Somebody Somewhere: Breaking Free from the World of Autism


Donna Williams - 1994
    NPR sponsorship.

What Color is Monday? How Autism Changed One Family for the Better


Carrie Cariello - 2013
    “What?” I said distractedly, turning from the oven to slice some potatoes at the counter. It was late afternoon, and I was preparing dinner while also managing the demands of homework and tired toddlers. “Do you see days as colors?”Raising five children would be challenge enough for most parents, but when one of them has been diagnosed with Autism Spectrum Disorder, the adventures become even more fascinating. In this moving--and often funny--memoir, author Carrie Cariello invites us to take a peek into exactly what it takes to get through each day with four boys and one girl, and shows us the beauty and wonder of a child who views the world through a different lens.

How to Be a Sister: A Love Story with a Twist of Autism


Eileen Garvin - 2010
    Growing up alongside Margaret wasn't easy: Eileen often found herself in situations that were simultaneously awkward, hilarious, and heartbreaking. For example, losing a blue plastic hairbrush could leave Margaret inconsolable for hours, and a quiet Sunday Mass might provoke an outburst of laughter, swearing, or dancing.How to Be a Sister begins when Eileen, after several years in New Mexico, has just moved back to the Pacific Northwest, where she grew up. Being 1,600 miles away had allowed Eileen to avoid the question that has dogged her since birth: What is she going to do about Margaret? Now, Eileen must grapple with this question once again as she tentatively tries to reconnect with Margaret. How can she have a relationship with someone who can't drive, send email, or telephone? What role will Eileen play in Margaret's life as their parents age, and after they die? Will she remain in Margaret's life, or walk away?A deeply felt, impeccably written memoir, How to Be a Sister will speak to siblings, parents, friends, and teachers of people with autism and to anyone who sometimes struggles to connect with someone difficult or different.

The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism


Naoki Higashida - 2005
    Parents and family members who never thought they could get inside the head of their autistic loved one, at last, have a way to break through to the curious, subtle, and complex life within.Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.

A Friend Like Henry: The Touching True Story of an Autistic Boy and His Dog


Nuala Gardner - 2007
    Dale was still a baby when his parents realised that something wasn't right. Worried, his mother Nuala took him to see several doctors, before finally hearing the word 'autism' for the first time in a specialist's office. Scared but determined that Dale should live a fulfilling life, Nuala describes her despairat her son's condition, her struggle to prevent Dale being excluded from a 'normal' education and her sense of hopeless isolation. Dale's autism was severe and violent and family life was a daily battleground. But the Gardner's lives were transformed when they welcomed a gorgeous Golden Retriever into the family. The special bond between Dale and his dog Henry helped them to produce the breakthrough in Dale they had long sought. From taking a bath to saying 'I love you', Henry helped introduce Dale to all the normal activities most parents take for granted, and set him on the road to being the charming and well-adjusted young man he is today. This is a heartrending and fascinating account of how one devoted and talented dog helped a little boy conquer his autism.

Boy Alone: A Brother's Memoir


Karl Taro Greenfeld - 2009
    He couldn't crawl, and he had trouble making eye contact or interacting with his family. As Noah grew older, his differences became even more pronounced—he was unable to communicate verbally, use the toilet, or tie his shoes, and despite his angelic demeanor, he often had violent outbursts.No doctor, social worker, or specialist could pinpoint what was wrong with Noah beyond a general diagnosis: autism. The boys' parents, Josh and Foumi, dedicated their lives to caring for their younger son with myriad approaches—a challenging, often painful experience that the devoted father detailed in a bestselling trilogy of books.Now, for the first time, acclaimed journalist Karl Taro Greenfeld speaks out about growing up in the shadow of his autistic brother, revealing the complex mix of rage, confusion, and love that defined his childhood. Boy Alone is his brutally honest memoir of the hopes, dreams, and realities of life with a mentally disabled sibling.Seamlessly weaving together the social history of autism and autism research—as the Greenfelds lived through it in seeking treatment for Noah—with the deeply affecting story of two very different boys growing up side by side, this book raises crucial philosophical questions: Can relationships exist without language? How should aging parents care for a nonverbal, violent child, and then a grown man who is not self-sufficient? Is there anything that can be done to help an extremely autistic child or adult become a member of mainstream society?Haunting, tragic, and unforgettable, this chronicle of autism is a beautiful, wholly original exploration of what it means to be a family, a brother, and a person.

Father's Day: A Journey into the Mind and Heart of My Extraordinary Son


Buzz Bissinger - 2012
    Gerry, the older one, is a graduate student at Penn, preparing to become a teacher. His brother Zach has spent his life attending special schools. He’ll never drive a car, or kiss a girl, or live by himself. He is a savant, challenged by serious intellectual deficits but also blessed with rare talents: an astonishing memory, a dazzling knack for navigation, and a reflexive honesty that can make him both socially awkward and surprisingly wise.Buzz realized that while he had always been an attentive father, he didn’t really understand what it was like to be Zach. So one summer night Buzz and Zach hit the road to revisit all the places they have lived together during Zach’s twenty-four years. Zach revels in his memories, and Buzz hopes this journey into their shared past will bring them closer and reveal to him the mysterious workings of his son’s mind and heart. The trip also becomes Buzz's personal journey, yielding revelations about his own parents, the price of ambition, and its effect on his twins.As father and son journey from Philadelphia to Los Angeles, they see the best and worst of America and each other. Ultimately, Buzz gains a new and uplifting wisdom, realizing that Zach’s worldview has a sturdy logic of its own: a logic that deserves the greatest respect. And with the help of Zach’s twin, Gerry, Buzz learns an even more vital lesson about Zach: character transcends intellect. We come to see Zach as he truly is: patient, fearless, perceptive, kind—a man of excellent character.

Unstrange Minds: Remapping the World of Autism


Roy Richard Grinker - 2007
    His search took him to Africa, India, and East Asia, to the National Institutes of Mental Health, and to the mountains of Appalachia. What he discovered is both surprising and controversial: There is no true increase in autism. Grinker shows that the identification and treatment of autism depends on culture just as much as on science. As more and more cases of autism are documented, doctors are describing the disorder better, school systems are coding it better--and children are benefiting. Filled with moving stories and informed by the latest science, Unstrange Minds is unlike any other book on autism. It is a powerful testament to a father's quest for the truth, and is urgently relevant to anyone whose life is touched by one of history's most puzzling disorders.