Best of
Illness

1995

The Jester Has Lost His Jingle


David Saltzman - 1995
    They ultimately discover that not only can laughter redeem a weary world, it also can provide the best tonic for anyone facing seemingly insurmountable obstacles.

The Dark Light


Mette Newth - 1995
    In early-nineteenth-century Norway, lepers are quarantined in this hospital and no longer considered among the living. But even as her body gradually fails her, Tora's new life blossoms. She finds strength through helping her fellow patients, both young and old, and she decides to see for herself what the Bible says about leprosy. To do so, she must make friends with the young and angry Mistress Dybendal, the only person at the hospital who can teach her to read. As she did in "The Abduction" (an ALA Best Book for Young Adults and a "School Library Journal" Best Book of the Year), Mette Newth brings another era vividly to life and demonstrates the timeless nature of the search for identity and tolerance.

The Wounded Storyteller: Body, Illness, and Ethics


Arthur W. Frank - 1995
    That book ended by describing the existence of a "remission society," whose members all live with some form of illness or disability. The Wounded Storyteller is their collective portrait.Ill people are more than victims of disease or patients of medicine; they are wounded storytellers. People tell stories to make sense of their suffering; when they turn their diseases into stories, they find healing.Drawing on the work of authors such as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner's battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilties. Their stories are more than accounts of personal suffering: they abound with moral choices and point to a social ethic.Frank identifies three basic narratives of illness in restitution, chaos, and quest. Restitution narratives anticipate getting well again and give prominence to the technology of cure. In chaos narratives, illness seems to stretch on forever, with no respite or redeeming insights. Quest narratives are about finding that insight as illness is transformed into a means for the ill person to become someone new.

Powerless: Selected Poems, 1973-1990


Tim Dlugos - 1995
    Powerless, which includes those final poems, also goes back to Dlugos' earlier books to create a stunning retrospective.

In the Shadow of the Epidemic: Being HIV-Negative in the Age of AIDS


Walt Odets - 1995
    In the Shadow of the Epidemic is a passionate and intimate look at the emotional and psychological impact of AIDS on the lives of the survivors of the epidemic, those who must face on a regular basis the death of friends and, in some cases, the decimation of their communities. Drawing upon his own experience as a clinical psychologist and a decade-long involvement with AIDS/HIV issues, Walt Odets explores the largely unrecognized matters of denial, depression, and identity that mark the experience of uninfected gay men. Odets calls attention to the dire need to address issues that are affecting HIV-negative individuals—from concerns about sexuality and relations with those who are HIV-positive to universal questions about the nature and meaning of survival in the midst of disease. He argues that such action, while explicitly not directing attention away from the needs of those with AIDS, is essential to the human and biological well-being of gay communities. In the immensely powerful firsthand words of gay men living in a semiprivate holocaust, the need for a broader, compassionate approach to all of the AIDS epidemic’s victims becomes clear. In the Shadow of the Epidemic is a pathbreaking first step toward meeting that need.