Best of
Disability-Studies

2021

Demystifying Disability: What to Know, What to Say, and How to Be an Ally


Emily Ladau - 2021
    But many of us–disabled and non-disabled alike–don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on important disability issues you need to know about, including: • How to appreciate disability history and identity • How to recognize and avoid ableism (discrimination toward disabled people) • How to be mindful of good disability etiquette • How to appropriately think, talk, and ask about disability • How to ensure accessibility becomes your standard practice, from everyday communication to planning special events • How to identify and speak up about disability stereotypes in mediaAuthored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience.

Sincerely, Your Autistic Child: What People on the Autism Spectrum Wish Their Parents Knew About Growing Up, Acceptance, and Identity


Sharon daVanportMallory Cruz - 2021
    Furthermore, it is widely believed that many autistic girls and women are underdiagnosed, which has further limited the information available regarding the unique needs of girls and nonbinary people with autism.Sincerely, Your Autistic Child represents an authentic resource for parents and others who care about autism written by people who understand this experience most, autistic people themselves. From childhood and education to culture, gender identity, and sexuality, this anthology of autistic contributors tackles the everyday challenges of growing up while honestly addressing the emotional needs, sensitivity, and vibrancy of the autistic community with a special focus on autistic girls and nonbinary people. Written like letters to parents, the contributors reflect on what they have learned while growing up with autism and how parents can avoid common mistakes and overcome challenges while raising their child.Sincerely, Your Autistic Child calls parents to action by raising awareness and redefining "normal" in order to help parents make their child feel truly accepted, valued, and celebrated for who they are.Contributors: B. Martin Allen, B. Rankowski, K. Asasumasu, M. Baggs, L. Wiley-Mydske, H. Moss, L. XZ Brown, K. Rodriguez, A. Schaber, J. St. Jude, M. Sparrow, M. Cruz, A. Sequenzia, K. Lean, L. Soraya, K. Smith, A. Forshaw, H. Wangelin/HW, V.M. Rodríguez-Roldán, J. Strauss, O.M. Robinson, K. Levin, J. Winegardner, D. Lyubovskaya, E.P. Ballou, S. daVanport, and M. Giwa Onaiwu. Foreword and Afterword by J. Wilson and B. Ryan.

Being Seen: One Deafblind Woman's Fight to End Ableism


Elsa Sjunneson - 2021
    While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they’re whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be. As a media studies professor, she’s also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the Deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Just Like Me


Louise Gooding - 2021
    Our uniqueness is what makes us stand out and makes us who we are. You can not judge someone on something you can see or even on the things you can not see.We are all special. We are all unique. We are all 'different; not less'.A collection of true stories about inspiring people and famous figures from around the world, all who are physically or neurologically diverse. Reflective of our diverse society, this anthology features figures including Simone Biles, Naoki Higashida, Temple Grandin, Warwick Davis, Sudha Chandran, Stephen Hawking and Frida Kahlo.

Neuroqueer Heresies


Nick Walker - 2021
    Walker's most influential writings, along with new commentary by the author and new material on her radical conceptualization of Neuroqueer Theory.This book is essential reading for anyone seeking to understand the foundations, terminology, implications, and leading edges of the emerging neurodiversity paradigm.

Viruses, Pandemics, and Immunity


Arup Chakraborty - 2021
    History is replete with references to plagues, pestilence, and contagion, but the devastation wrought by pandemics had been largely forgotten by the twenty-first century. Now, the enormous human and economic toll of the rapidly spreading COVID-19 disease offers a vivid reminder that infectious disease pandemics are one of the greatest existential threats to humanity. This book provides an accessible explanation of how viruses emerge to cause pandemics, how our immune system combats them, and how diagnostic tests, vaccines, and antiviral therapies work-- concepts that are a foundation for our public health policies.

Crip Kinship: The Disability Justice & Art Activism of Sins Invalid


Shayda Kafai - 2021
    From their focus on crip beauty and sexuality to manifesting digital kinship networks and crip-centric liberated zones, Sins Invalid empowers and moves us toward generating our collective liberation from our bodyminds outward.

Chronic: The Hidden Cause of the Autoimmune Pandemic--and How to Get Healthy Again


Steven Phillips - 2021
    What is fueling this twenty-first century pandemic?  In this eye-opening tour de force, Steven Phillips, MD, and his former patient, singer-songwriter Dana Parish, take on the medical establishment. Backed by a trove of published data, Chronic reveals striking evidence that a broad range of microbes, including the Lyme bacteria, cause a variety of recurrent conditions and autoimmune diseases. Chronic delves into the history and science behind common infections that are difficult to diagnose and treat, debunks widely held beliefs by doctors and patients alike, shows how medicine got the facts patently wrong, and provides solutions that empower readers to get their lives back. Dr. Phillips was already an internationally renowned physician specializing in complex chronic diseases when he became a patient himself. After nearly dying from his own mystery illness, he experienced firsthand the medical community’s ignorance about the pathogens that underlie a deep spectrum of chronic conditions—from fibromyalgia, lupus, multiple sclerosis, chronic fatigue syndrome, and rheumatoid arthritis to depression, anxiety, and neurodegenerative disorders. Parish, too, watched her health spiral after twelve top doctors missed an underlying infection that caused heart failure and other sudden debilitating physical and psychiatric symptoms. Now, they’ve come together with a mission: to change the current model of simply treating symptoms, often with dangerous, lifelong drugs, and shift the focus to finding and curing root causes of chronic diseases that affect millions around the world.

How to Go Mad without Losing Your Mind: Madness and Black Radical Creativity


LaMarr Jurelle Bruce - 2021
    The way to go mad without losing your mind is sometimes unruly.” So begins La Marr Jurelle Bruce's urgent provocation and poignant meditation on madness in black radical art. Bruce theorizes four overlapping meanings of madness: the lived experience of an unruly mind, the psychiatric category of serious mental illness, the emotional state also known as “rage,” and any drastic deviation from psychosocial norms. With care and verve, he explores the mad in the literature of Amiri Baraka, Gayl Jones, and Ntozake Shange; in the jazz repertoires of Buddy Bolden, Sun Ra, and Charles Mingus; in the comedic performances of Richard Pryor and Dave Chappelle; in the protest music of Nina Simone, Lauryn Hill, and Kendrick Lamar, and beyond. These artists activate madness as content, form, aesthetic, strategy, philosophy, and energy in an enduring black radical tradition. Joining this tradition, Bruce mobilizes a set of interpretive practices, affective dispositions, political principles, and existential orientations that he calls “mad methodology.” Ultimately, How to Go Mad without Losing Your Mind is both a study and an act of critical, ethical, radical madness.

Making Monsters: The Uncanny Power of Dehumanization


David Livingstone Smith - 2021
    You would see an infant who's just learning to smile, and it smiles at you, but you still kill it." So a Hutu man explained to an incredulous researcher, when asked to recall how he felt slaughtering Tutsis in Rwanda in 1994. Such statements are shocking, yet we recognize them; we hear their echoes in accounts of genocides, massacres, and pogroms throughout history. How do some people come to believe that their enemies are monsters, and therefore easy to kill?In Making Monsters David Livingstone Smith offers a poignant meditation on the philosophical and psychological roots of dehumanization. Drawing on harrowing accounts of lynchings, Smith establishes what dehumanization is and what it isn't. When we dehumanize our enemy, we hold two incongruous beliefs at the same time: we believe our enemy is at once subhuman and fully human. To call someone a monster, then, is not merely a resort to metaphor--dehumanization really does happen in our minds. Turning to an abundance of historical examples, Smith explores the relationship between dehumanization and racism, the psychology of hierarchy, what it means to regard others as human beings, and why dehumanizing others transforms them into something so terrifying that they must be destroyed.Meticulous but highly readable, Making Monsters suggests that the process of dehumanization is deeply seated in our psychology. It is precisely because we are all human that we are vulnerable to the manipulations of those trading in the politics of demonization and violence.

Why Bushwick Bill Matters


Charles L. Hughes - 2021
    Born with dwarfism, Bill was one of the few visibly disabled musicians to achieve widespread fame and one of the even fewer to address disability in a direct, sustained manner. Initially hired as a dancer, Bill became central to the Geto Boys as the Houston crew became one of hip-hop’s most important groups.Why Bushwick Bill Matters chronicles this crucial artist and explores what he reveals about the relationships among race, sex, and disability in pop music. Charles L. Hughes examines Bill's recordings and videos (both with the Geto Boys and solo), from the horror-comic persona of “Chuckie” to vulnerable verses in songs such as “Mind Playing Tricks On Me,” to discuss his portrayals of dwarfism, addiction, and mental illness. Hughes also explores Bill’s importance to his era and to the longer history of disability in music. A complex figure, Bill exposed the truths of a racist and ableist society even as his violent and provocative lyrics put him in the middle of debates over censorship and misogyny. Confrontational and controversial, Bushwick Bill left a massive legacy as he rhymed and swaggered through an often-inaccessible world.

The Body Fantastic


Frank Gonzalez-Crussi - 2021
    He chronicles, among other curious cases, the man who ate everything (including boiled hedgehogs and mice on toast), the therapeutic powers of saliva, hair that burst into flames, and an amphibian man who lived under water. Drawing on clinical records, popular lore, and art, history, and literature, Gonzalez-Crussi considers the body in both real and imaginary dimensions.Myths and stories, Gonzalez-Crussi reminds us, are the symbolic expression of our aspirations and emotions. These fantastic tales of bodies come from the deepest regions of the human psyche. Ancient Greeks, for example, believed that the uterus wandered around inside a woman's body--an animal within an animal. If a woman sniffed an unpleasant odor, the uterus would retreat. Organized digestive excess began with the eating and drinking contests of antiquity and continue through the hot-dog eating competitions of today. And the libido-podalic association, connecting male sexuality and the foot, insinuated itself into mainstream medicine in the sixteenth century; meanwhile, the feet of women in some cultures were scrupulously kept from view. Gonzalez-Crussi shows that the many imaginary representations of the body are very much a part of our corporeality.

Eaters of the Dead: Myths and Realities of Cannibal Monsters


Kevin J. Wetmore Jr. - 2021
       Every culture has monsters that eat us, and every culture repels in horror when we eat ourselves. From Grendel to medieval Scottish cannibal Sawney Bean, and from the Ghuls of ancient Persia to The Texas Chainsaw Massacre, tales of being consumed are both universal and universally terrifying. In this book, Kevin J. Wetmore Jr. explores the full range of monsters that eat the dead: ghouls, cannibals, wendigos, and other beings that feast on human flesh. Moving from myth through history to contemporary popular culture, Wetmore considers everything from ancient Greek myths of feeding humans to the gods, through sky burial in Tibet and Zoroastrianism, to actual cases of cannibalism in modern societies. By examining these seemingly inhuman acts, Eaters of the Dead reveals that those who consume corpses can teach us a great deal about human nature—and our deepest human fears.

A Very Nervous Person's Guide to Horror Movies


Mathias Clasen - 2021
    But while horror fans are attracted to movies designed to scare us, others shudder already at the thought of the sweat-drenched nightmares that terrifying movies often trigger. The fear of sleepless nights and the widespread beliefs that horror movies can have negative psychological effects and display immorality make some of us very, very nervous about them. But should we be concerned?In this book, horror-expert Mathias Clasen delves into the psychological science of horror cinema to bust some of the worst myths and correct the biggest misunderstandings surrounding the genre. In short and highly readable chapters peppered with vivid anecdotes and examples, he addresses the nervous person's most pressing questions: What are the effects of horror films on our mental and physical health? Why do they often cause nightmares? Aren't horror movies immoral and a bad influence on children and adolescents? Shouldn't we be concerned about what the current popularity of horror movies says about society and its values? While media psychologists have demonstrated that horror films indeed have the potential to harm us, Clasen reveals that the scientific evidence also contains a second story that is often overlooked: horror movies can also help us confront and manage fear and often foster prosocial values.