Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

    From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

    A problem those around me wanted to fix.’‘We have all felt that uncanny sensation that someone is watching us.’‘The diagnosis helped but it didn’t fix everything.’‘Don’t fear the labels.’One in five Australians have a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature.Growing Up Disabled in Australia is the fifth book in the highly acclaimed, bestselling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt, poetry and graphic art, as well as more than 40 original pieces by writers with a disability or chronic illness.Contributors include Dion Beasley, Astrid Edwards, Jessica Walton, Carly-Jay Metcalfe, Gayle Kennedy and El Gibbs.

    At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured.Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark — it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits — inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal.Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human.

    Yet unless, or until, a misfit between our own body and the world is acute enough to be understood as disability, we may never stop to consider--or reconsider--the hidden assumptions on which our everyday environment is built.In a series of vivid stories drawn from the lived experience of disability and the ideas and innovations that have emerged from it--from cyborg arms to customizable cardboard chairs to deaf architecture--Sara Hendren invites us to rethink the things and settings we live with. What might assistance based on the body's stunning capacity for adaptation--rather than a rigid insistence on "normalcy"--look like? Can we foster interdependent, not just independent, living? How do we creatively engineer public spaces that allow us all to navigate our common terrain? By rendering familiar objects and environments newly strange and wondrous, What Can a Body Do? helps us imagine a future that will better meet the extraordinary range of our collective needs and desires.

    'This book made me feel proud to be different' - Rosie Jones. Break the Mould with Sinéad Burke - teacher, activist, author and little person. Sometimes we can feel like we are not good enough. That we don't belong. Or that we want to be more like our friends. In this empowering guide, Sinéad Burke draws on her own experiences and encourages young readers to believe in themselves, have pride in who they are and use their voice to make the world a fairer, more inclusive place.From the power of being different, to celebrating the things you love about yourself and helping others do the same, this is a brilliantly inspirational handbook for breaking the mould and finding your place in the world. 'A very important book encouraging us all to celebrate the uniqueness and gift of our own and others' differences, while recognising all of that which we share in common.' - Michael D. Higgins, President of Ireland

    Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.What’s most extraordinary about Jacinta’s story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen.With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality, and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It’s a story of trying to fix an unfixable illness, getting beaten down then clawing back up, and how that experience can shape a life.

    Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system.Liat Ben-Moshe provides groundbreaking case studies that show how abolition is not an unattainable goal but rather a reality, and how it plays out in different arenas of incarceration—antipsychiatry, the field of intellectual disabilities, and the fight against the prison-industrial complex. Ben-Moshe discusses a range of topics, including why deinstitutionalization is often wrongly blamed for the rise in incarceration; who resists decarceration and deinstitutionalization, and the coalitions opposing such resistance; and how understanding deinstitutionalization as a form of residential integration makes visible intersections with racial desegregation. By connecting deinstitutionalization with prison abolition, Decarcerating Disability also illuminates some of the limitations of disability rights and inclusion discourses, as well as tactics such as litigation, in securing freedom. Decarcerating Disability’s rich analysis of lived experience, history, and culture helps to chart a way out of a failing system of incarceration.

    Solely written by trans people on the spectrum, this collection of personal stories foregrounds their own voices and experiences on a range of issues, such as coming out, access to healthcare, employment, relationships, parenting, violence and later life self-discovery among other.

    You're sick and your village doctor has little more to offer than letting blood and purging your intestines. Or think of being the doctor, repeatedly staring at death and seeking cures while holding the hand of a feverish child. On his way to America's frontier in 1834 the newly graduated doctor, Jabez Allen MD, stops for one night in an upstate New York village. He meets a sick child, a teacher, and a young socialite abolitionist and stays a lifetime.Millicent, the abolitionist, and a conductor in the Underground Railroad, becomes Dr. Allen's wife. When they later employ Civia, a runaway slave, as a wet nurse they discover a woman of ever hopeful outlook and unexplored talents. Civia becomes indispensable to Dr. Allen's medical practice. Anti-slavery passions join Millicent and Civia and force Dr. Allen to confront the nineteenth century medical theories attempting to label Negros as physiologically inferior. Then the 1850 Fugitive Slave Act results the arrest of Civia and her family. Through it all, patients and practice force Dr. Allen to deal with the contagions of his day, including the cholera that drains life from the daughter of the very man who signed the Fugitive Slave Act, President Millard Fillmore. She dies under Dr. Allen's care. Dr. Allen is drawn to investigate a typhoid outbreak in a nearby village. Joined by Dr. Austin Flint, their discoveries result in three scientific papers used as an investigative model by John Snow and referenced in Snow's 1855 treatise on London Cholera.Dr. Allen is elected President of his county's Medical Society, makes the acquaintance of nationally known medical scientists, and participates in the 1878 AMA meeting where organized medicine argues the scientific foundation for the germ theory.Bloodletting and Germs is a historical novel written as Dr. Allen's memoir. Citing over four hundred sources, it is true to the events of Dr. Allen's life and to the forces changing medical care in the nineteenth century. Dr. Allen teaches us about managing the unknown as a small-town hero. His doctoring, and his life, put humanity's face on a period of profound scientific and social transformation.

    Also features original artwork from artists who identity as disabled.A first of its kind, Disabled Voices Anthology captures life as a disabled person: from the bad and ugly, to the good and victorious, and anything in between. Some pieces deconstruct and/or challenge ableism, or embody a spirit of disability and community and activism rather than inspiration for abled people.

    Kaufman and Paul B. Sturtevant examine the many ways in which the medieval past has been manipulated to promote discrimination, oppression, and murder. Tracing the fetish for "medieval times" behind toxic ideologies like nationalism, antisemitism, Islamophobia, misogyny, and white supremacy, Kaufman and Sturtevant show us how the Middle Ages have been twisted for political purposes in every century that followed. The Devil's Historians casts aside the myth of an oppressive, patriarchal medieval monoculture and reveals a medieval world not often shown in popular culture: one that is diverse, thriving, courageous, compelling, and complex.

    For the most part the images they produced were censored or confiscated, but many were preserved in secret. Some were published widely in Japan during the 1950s, though not in the United States. Later, prints and negatives were gathered by groups such as the Anti-Nuclear Photographers' Movement of Japan, whose collection is now housed at the Briscoe Center for American History. The center's Hiroshima and Nagasaki Atomic Bomb Photographs Archive consists of more than eight hundred photographs, over one hundred of which are seen here for the first time in an English-language publication.To mark the seventy-fifth anniversary of the bombings, Flash of Light, Wall of Fire features the work of twenty-three Japanese photographers who risked their lives to capture the devastation. Together these images serve as a visual record of nuclear destruction, the horrific effects of radiation exposure, and the mass suffering that ensued. A preface by Briscoe Center Executive Director Don Carleton, an essay by Michael B. Stoff, and an afterword by Japanese journalist Michiko Tanaka explore how the images were collected and preserved as well as how they helped provoke calls for peace and the abolishment of nuclear weapons.

    Pediatric emergency physician Samir Shaheen-Hussain's captivating narrative of this successful campaign, which garnered unprecedented public attention and media coverage, seeks to answer lingering questions about why such a cruel practice remained in place for so long. In doing so it serves as an indispensable case study of contemporary medical colonialism in Quebec. Fighting for a Hand to Hold exposes the medical establishment's role in the displacement, colonization, and genocide of Indigenous peoples in Canada. Through meticulously gathered government documentation, historical scholarship, media reports, public inquiries, and personal testimonies, Shaheen-Hussain connects the draconian medevac practice with often-disregarded crimes and medical violence inflicted specifically on Indigenous children. This devastating history and ongoing medical colonialism prevent Indigenous communities from attaining internationally recognized measures of health and social well-being because of the pervasive, systemic anti-Indigenous racism that persists in the Canadian public health care system - and in settler society at large. Shaheen-Hussain's unique perspective combines his experience as a frontline pediatrician with his long-standing involvement in anti-authoritarian social justice movements. Sparked by the indifference and callousness of those in power, this book draws on the innovative work of Indigenous scholars and activists to conclude that a broader decolonization struggle calling for reparations, land reclamation, and self-determination for Indigenous peoples is critical to achieve reconciliation in Canada.

    We’re told that human activity is currently producing a sixth mass extinction, perhaps of even greater magnitude than the five previous geological catastrophes that drastically altered life on Earth. Indeed, there is a very real concern that the human species may itself be poised to go the way of the dinosaurs, victims of the most recent mass extinction some 65 million years ago.   How we interpret the causes and consequences of extinction and their ensuing moral imperatives is deeply embedded in the cultural values of any given historical moment. And, as David Sepkoski reveals, the history of scientific ideas about extinction over the past two hundred years—as both a past and a current process—is implicated in major changes in the way Western society has approached biological and cultural diversity. It seems self-evident to most of us that diverse ecosystems and societies are intrinsically valuable, but the current fascination with diversity is a relatively recent phenomenon. In fact, the way we value diversity depends crucially on our sense that it is precarious—that it is something actively threatened, and that its loss could have profound consequences. In Catastrophic Thinking, Sepkoski uncovers how and why we learned to value diversity as a precious resource at the same time as we learned to think catastrophically about extinction.

    

    

    By analyzing the experience of psychosis in philosophical terms, Kusters not only emancipates the experience of the psychotic from medical classification, he also emancipates the philosopher from the narrowness of textbooks and academia, allowing philosophers to engage in real-life praxis, philosophy in vivo. Philosophy and madness--Kusters's preferred, non-medicalized term--coexist, one mirroring the other.Kusters draws on his own experience of madness--two episodes of psychosis, twenty years apart--as well as other first-person narratives of psychosis. Speculating about the maddening effect of certain words and thought, he argues, and demonstrates, that the steady flow of philosophical deliberation may sweep one into a full-blown acute psychotic episode. Indeed, a certain kind of philosophizing may result in confusion, paradoxes, unworldly insights, and circular frozenness reminiscent of madness. Psychosis presents itself to the psychotic as an inescapable truth and reality.Kusters evokes the mad person's philosophical or existential amazement at reality, thinking, time, and space, drawing on classic autobiographical accounts of psychoses by Antonin Artaud, Daniel Schreber, and others, as well as the work of phenomenological psychiatrists and psychologists and such phenomenologists as Edmund Husserl and Maurice Merleau-Ponty. He considers the philosophical mystic and the mystical philosopher, tracing the mad undercurrent in the Husserlian philosophy of time; visits the cloud castles of mystical madness, encountering LSD devotees, philosophers, theologians, and nihilists; and, falling to earth, finds anxiety, emptiness, delusions, and hallucinations. Madness and philosophy proceed and converge toward a single vanishing point.

    With a family undaunted by his diagnosis of Down syndrome, Egan learned early to speak up for himself. He has since become a powerful advocate for all people with disabilities.His optimistic perspective rejected the limits of stereotypes and the expectations of others. He shares how the support of loving family and friends led him to overcome challenges and blaze new trails. It started with swimming and baseball, when he earned places on his neighborhood teams, competing fiercely and as a fully accepted teammate. He writes firsthand of the empowering feeling of being fully included in elementary school and at work as an adult.Egan has earned positions at prestigious companies and a distinguished fellowship on Capitol Hill. He sits on the boards of influential advocacy organizations. He has addressed audiences worldwide and has played a powerful global advocacy role with Special Olympics.He allowed himself to dream big, and he encourages everyone to do the same. His lesson to all of us is to focus on our shared humanity despite our differences--and our diagnoses. This hopeful memoir will encourage everyone to make the most of their lives.

    It is a rare congenital condition that affects ONE in 5000 births which is very rarely talked about or known in the wider community. It reveals the many difficulties both emotionally and physically that babies, children and adults living with IA/ARM endure. It is a book filled with love, courage, resilience and hope. It shows the importance of having access to good information and medical staff who are compassionate and knowledgeable and the unnecessary suffering that occurs when that is unavailable.Above all it recognises that the IA/ARM community looks after each other and is playing an increasingly important role in providing sound information and support. The response of the IA/ARM community from all around the world to Greg’s requests for stories for this book, is a powerful example of how the community is working together. This book is a must read for health professionals and teachers who play such a significant role in the lives of each IA/ARM child, adolescent and adult. It will also enlighten extended families, friends and the wider community about this relatively unknown condition. Reading the stories is inspiring and heart wrenching. It is about babies, children and adults who have strong spirits and big hearts. It is also about the power of love as parents battle their way through the often confusing health systems and the relief when unanswered questions are finally resolved. All proceeds of sale of this book after publishing costs go directly to the work of the ONE in 5000 Foundation. It was established in 2017 s a not-for-profit charity organisation to provide assistance and support to anyone affected by the IA/ARM which has an incidence rate of about 1:5000 births in Western communities. (Higher rates in other communities). ONE in 5000 Foundation is a fully registered with the Australian Charities and Not-for-profits Commission. ABN: 18393396753

    These images can be used in art and graphic design projects, or printed and framed to make stunning decorative artworks. We promise you will be impressed with this impressive pictorial archive.  About the author: This book was curated and authored by the creative director of Vault Editions, Kale James. Kale has published over 12 acclaimed books within the art design space and has worked with brands including Nike, Samsung, Adidas and Rolling Stone. Kale's artwork is published in numerous titles including No Cure, Semi-Permanent, Vogue and more.This collection of vintage illustrations is an essential resource for all artist, collage artists and graphic designers looking to take their artwork to the next level. Only a limited number of copies of this publication have been made, so download your files now and start creating today before they are gone forever.

    Through new readings of his work, the book makes so patently clear the importance of Baudrillard’s tendency to poeticize, his core indebtedness to Georges Bataille, Alfred Jarry, and others, and his reliance on paradox. Ultimately, Stratagem of the Corpse is less a making sense of death and more a transcript of what occurred when death made sense of us, a reverse thanatology in which death delineates the variant forms of our encroachment, not so much death as seen by Baudrillard but Baudrillard as seen by death.

    But the realities of twenty-first-century medicine will allow most of us to have a say in how, when, and where we die, so we need to make decisions surrounding death, too. Or those decisions may be made for us. Threading compelling real-life stories and practical guidance throughout, this book helps readers navigate end-of-life care for themselves and their loved ones.In this practical guidebook, Dr. Dan Morhaim and Shelley Morhaim offer readers hope, empowerment, and inspiration. What we choose for our end-of-life care, they assert, depends on accurate information and on our personal values. We need these not only to understand new medical advances but also to appreciate the wisdom of humanity's past and present.Dan Morhaim, an emergency medicine physician and former Maryland state legislator, guides readers through the medical, legal, and financial maze of end-of-life care. He details the care choices available to patients and explains why living wills and advance directives are a necessity for every American. He tells readers where to find free and readily available living wills and advance directives and why it is so important for everyone--young and old--to complete them. Meanwhile, Shelley Morhaim draws on her experience as a therapeutic music practitioner for hospice and hospital patients to offer compassion to readers facing hard decisions.The authors reflect on a number of timely topics, including- what doctors--including Dr. Morhaim specifically--want for themselves in terms of end-of-life care- how legislative initiatives on assisted dying vary by state- how to obtain medical orders for life-sustaining treatment (MOLST/POLST)- how to deal with dementia- what to expect from palliative and hospice care- how to cope with pain at the end of life, including with medical cannabis and narcotics- how organ donation and body disposition work- how to communicate individual needs to lawyers, physicians, and family members- how to make decisions when selecting the best care for yourself and othersand more.Organized as a roadmap that people should follow when they plan end-of-life care and contingencies, this book helps readers keep decisions in their own hands and spare their families the uncertainty and trauma of guessing about their end-of-life wishes. Breaking down the barriers to a difficult but essential topic, Preparing for a Better End helps readers open this often-avoided discussion with their loved ones while providing the information and guidance needed to ensure that deeply held values are reflected and honored.Praise for the Author "In The Better End, Dr. Morhaim helps the reader to see that while death does have its sting, it need not be bitter, and each of us can prepare for the end in better ways."--Maya Angelou"Dan Morhaim's message is a must read for anyone who is facing end-of-life crisis issues and concerns, whether it be for themselves or for a family member or loved one. When so many others shun away from the topic, Dan Morhaim addresses the situation with clarity, insight, and sensitivity."--Montel Williams

    The contributors reveal the social role of objects - particularly those designed for use by people with disabilities, such as walking sticks, wheelchairs, and prosthetic limbs - and consider the active role that makers, users and designers take to reshape the material environment into a usable world. But it also aims to make clear that definitions of disability-and ability-are often shaped by design.

    Crying out for democratic school-level reform, the system is now a centralized, bureaucratic fortress that, every year, becomes softer on standards for students, less accessible to parents, further out of touch with communities, and surprisingly unresponsive to classroom teachers. Exploring the nature of the Canadian education order in all its dimensions, The State of the System explains how public schools came to be so bureaucratic, confronts the critical issues facing kindergarten to grade 12 public schools in all ten provinces, and addresses the need for systemic reform. Going beyond a diagnosis of the stresses, strains, and ills present in the system, Paul Bennett proposes a bold plan to re-engineer schools on a more human scale as the first step in truly reforming public education. In place of school consolidation and managerialism, one-size-fits-all uniformity, limited school choice, and the "success-for-all" curriculum, Bennett advocates for a new set of priorities: decentralize school governance, deprogram education ministries and school districts, listen to parents and teachers, and revitalize local education democracy. Tackling the thorny issues besetting contemporary school systems in Canada, The State of the System issues a clarion call for more responsive, engaged, and accountable public schools.

    This is the basic premise of fat activism, a social movement that has existed in Canada since the 1970s. Being Fat focuses on the earliest strands of the movement, covering the last decades of the twentieth century. The book explores how fat activists wrestled with feminist issues of the era, including femininity, sexuality, and health.Showcasing the earliest efforts of fat activists in Canada, such as the growth of social initiatives "for fat women only," Being Fat helps us recognize the long reach of second-wave feminism and how it shaped activists' approaches to everyday experiences like shopping, exercise, and going to the doctor.

    Without sensationalizing, she takes the reader inside the experience of a rapid-cycling variant of the disorder, providing a lens through which to understand it and a road map for navigating the illness. The structure of her story—impressionistic, fragmented—is an embodiment of the bipolar experience and a way of perceiving the world.Out of the Crazywoods takes the reader into the euphoria of mania as well as its ugly, agitated rage and into “the lying down of desire” that is depression. Savageau articulates the joy of being consort to a god and the terror of being chased by witchcraft, the sound of voices that are always chattering in your head, the smell of wet ashes that invades your home, the perception that people are moving in slow motion and death lurks at every turnpike, and the feeling of being loved by the universe and despised by everyone you’ve ever known. Central to the journey out of the Crazywoods is the sensitive child who becomes a poet and writer who finds clarity in her art and a reason to heal in her grandchildren. Her journey reveals the stigma and the social, personal, and economic consequences of the illness but reminds us that the disease is not the person. Grounded in Abenaki culture, Savageau questions cultural definitions of madness and charts a path to recovery through a combination of medications, psychotherapy, and ceremony.