Best of
Disability-Studies

2005

Too Late to Die Young: Nearly True Tales from a Life


Harriet McBryde Johnson - 2005
    Born with a congenital neuromuscular disease, Johnson has never been able to walk, dress, or bathe without assistance. With assistance, she passionately celebrates her life's richness and pleasures and pursues a formidable career as an attorney and activist. Whether rolling on the streets of Havana, on the floor of the Democratic National Convention in Chicago, or in an auditorium at Princeton debating philosopher Peter Singer, Harriet McBryde Johnson defies every preconception about people with disabilities, and shows how a life, be it long or short, is a treasure of infinite value.

Autism and the Myth of the Person Alone


Douglas Biklen - 2005
    It is said to occur in as many as 2 to 6 in 1,000 individuals. This book challenges the prevailing, tragic narrative of impairment that so often characterizes discussions about autism.Autism and the Myth of the Person Alone seriously engages the perspectives of people with autism, including those who have been considered as the most severely disabled within the autism spectrum. The heart of the book consists of chapters by people with autism themselves, either in an interview format with the author or written by themselves. Each author communicates either by typing or by a combination of speech and typing. These chapters are framed by a substantive introduction and conclusion that contextualize the book, the methodology, and the analysis, and situate it within a critical disability studies framework. The volume allows a look into the rich and insightful perspectives of people who have heretofore been thought of as uninterested in the world.

Constructing Autism: Unravelling the 'Truth' and Understanding the Social


Majia Holmer Nadesan - 2005
    This book examines the historical and social events that enabled autism to be identified as a distinct disorder in the early twentieth century.The author, herself the mother of an autistic child, argues that although there is without doubt a biogenetic component to the condition, it is the social factors involved in its identification, interpretation and remediation that determine what it means to be autistic. Constructing Autism explores the social practices and institutions that reflect and shape the way we think about autism and what effects this has on autistic people and their families. Unravelling what appears to be the truth about autism, this informative book steps behind the history of its emergence as a modern disorder to see how it has become a crisis of twenty-first century child development."

Foucault and the Government of Disability


Shelley Lynn Tremain - 2005
    Over the last thirty years, politicized conceptions of disability have precipitated significant social change, including the landmark Americans with Disabilities Act in 1990, the redesign of urban landscapes, the appearance of closed-captioning on televisions, and the growing recognition that disabled people constitute a marginalized and disenfranchised constituency. The provocative essays in this volume respond to Foucault's call to question what is regarded as natural, inevitable, ethical, and liberating, while they challenge established understandings of Foucault's analyses and offer fresh approaches to his work. The book's roster of distinguished international contributors represents a broad range of disciplines and perspectives, making this a timely and necessary addition to the burgeoning field of disability studies.

A Surgical Temptation: The Demonization of the Foreskin and the Rise of Circumcision in Britain


Robert Darby - 2005
    A century later, British doctors urged parents to circumcise their sons as a routine precaution against every imaginable sexual dysfunction, from syphilis and phimosis to masturbation and bed-wetting. Thirty years later the procedure again came under hostile scrutiny, culminating in its disappearance during the 1960s.Why Britain adopted a practice it had traditionally abhorred and then abandoned it after only two generations is the subject of A Surgical Temptation. Robert Darby reveals that circumcision has always been related to the question of how to control male sexuality. This study explores the process by which the male genitals, and the foreskin especially, were pathologized, while offering glimpses into the lives of such figures as James Boswell, John Maynard Keynes, and W. H. Auden. Examining the development of knowledge about genital anatomy, concepts of health, sexual morality, the rise of the medical profession, and the nature of disease, Darby shows how these factors transformed attitudes toward the male body and its management and played a vital role in the emergence of modern medicine.

Critical Disability Theory: Essays in Philosophy, Politics, Policy, and Law


Dianne Pothier - 2005
    In this book, twenty-four scholars from a variety of disciplines contend that achieving equality for the disabled is not fundamentally a question of medicine or health, nor is it an issue of sensitivity or compassion. Rather, it is a question of politics, and of power and powerlessness. This book argues that we need a new understanding of participatory citizenship that encompasses the disabled, new policies to respond to their needs, and a new vision of their entitlements.