The Lady's Handbook for Her Mysterious Illness


Sarah Ramey - 2020
    Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological.The Lady's Handbook for Her Mysterious Illness is a memoir with a mission, to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.Ramey's pursuit of a diagnosis and cure for her own mysterious illness is a medical mystery that she says reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connection to the state of our microbiomes.

The Unfit Heiress: The Tragic Life and Scandalous Sterilization of Ann Cooper Hewitt


Audrey Clare Farley - 2021
    This alarmed authorities, who feared certain "over-sexed" women could destroy civilization if allowed to reproduce and pass on their defects. Set against this backdrop, The Unfit Heiress chronicles the fight for inheritance, both genetic and monetary, between Ann Cooper Hewitt and her mother Maryon.In 1934, aided by a California eugenics law, the socialite Maryon Cooper Hewitt had her "promiscuous" daughter declared feebleminded and sterilized without her knowledge. She did this to deprive Ann of millions of dollars from her father's estate, which contained a child-bearing stipulation. When a sensational court case ensued, the American public was captivated. So were eugenicists, who saw an opportunity to restrict reproductive rights in America for decades to come.

What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Golem Girl: A Memoir


Riva Lehrer - 2020
    At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured.Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark — it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits — inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal.Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human.

The Undying


Anne Boyer - 2019
    For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

My Lovely Wife in the Psych Ward


Mark Lukach - 2017
    They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that her loved ones were not safe.Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. Pushed to the edge of the abyss, everything the couple had once taken for granted was upended.A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife in the Psych Ward is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach’s is an intensely personal odyssey through the harrowing years of his wife’s mental illness, anchored by an abiding devotion to family that will affirm readers’ faith in the power of love.

Smile: The Story of a Face


Sarah Ruhl - 2021
    She is assured that 90 percent of Bell’s palsy patients see spontaneous improvement and experience a full recovery. Like Ruhl’s own mother. But Sarah is in the unlucky ten percent. And for a woman, wife, mother, and artist working in theater, the paralysis and the disconnect between the interior and exterior brings significant and specific challenges. So Ruhl begins an intense decade-long search for a cure while simultaneously grappling with the reality of her new face—one that, while recognizably her own—is incapable of accurately communicating feelings or intentions. In a series of piercing, witty, and lucid meditations, Ruhl chronicles her journey as a patient, wife, mother, and artist. She explores the struggle of a body yearning to match its inner landscape, the pain of postpartum depression, the story of a marriage, being a playwright and working mom to three small children, and the desire for a resilient spiritual life in the face of illness. Brimming with insight, humility, and levity, Smile is a triumph by one of America’s leading playwrights. It is an intimate examination of loss and reconciliation, and above all else, the importance of perseverance and hope in the face of adversity.

Carry: A Memoir of Survival on Stolen Land


Toni Jensen - 2020
    As an adult, she’s had guns waved in her face near Standing Rock, and felt their silent threat on the concealed-carry campus where she teaches. And she has always known that in this she is not alone. As a Métis woman, she is no stranger to the violence enacted on the bodies of indigenous women, on indigenous land, and the ways it is hidden, ignored, forgotten.In Carry, Jensen maps her personal experience onto the historical, exploring how history is lived in the body and redefining the language we use to speak about violence in America. In the title chapter, Jensen connects the trauma of school shootings with her own experiences of racism and sexual assault on college campuses. "The Worry Line" explores the gun and gang violence in her neighborhood the year her daughter was born. "At the Workshop" focuses on her graduate school years, during which a workshop classmate repeatedly killed off thinly veiled versions of her in his stories. In "Women in the Fracklands", Jensen takes the listener inside Standing Rock during the Dakota Access Pipeline protests and bears witness to the peril faced by women in regions overcome by the fracking boom.In prose at once forensic and deeply emotional, Toni Jensen shows herself to be a brave new voice and a fearless witness to her own difficult history - as well as to the violent cultural landscape in which she finds her coordinates. With each chapter, Carry reminds us that surviving in one’s country is not the same as surviving one’s country.

Hooked: How Crafting Saved My Life


Sutton Foster - 2021
    How? Crafting. From the moment she picked up a cross stitch needle to escape the bullying chorus girls in her early performing days, she was hooked. Cross stitching led to crocheting, crocheting led to collages, which led to drawing, and so much more. Channeling her emotions into her creations centered Sutton as she navigated the significant moments in her life and gave her tangible reminders of her experiences. Now, in this charming and poignant collection, Sutton shares those moments, including her fraught relationship with her agoraphobic mother;  a painful divorce splashed on the pages of the tabloids; her struggles with fertility; the thrills she found on the stage during hit plays like Thoroughly Modern Millie, Anything Goes, and Violet; her breakout TV role in Younger; and the joy of adopting her daughter, Emily. Accompanying the stories, Sutton has included crochet patterns, recipes, and so much more! Witty and poignant, Hooked will leave readers entertained as well as inspire them to pick up their own cross stitch needles and paintbrushes.

ALS Saved My Life ... until it didn't


Jenni Kleinman Berebitsky - 2018
    But what do we do when nothing goes as we had ever hoped? Jenni Berebitsky, diagnosed in 2009 with ALS has been answering these questions every day. With the hope of helping others move forward after life altering events, Jenni shares her story of life wiht ALS, outlining practical and existential changes needed to adapt and thrive.

Body Talk: 37 Voices Explore Our Radical Anatomy


Kelly Jensen - 2020
    Just as every person has a unique personality, every person has a unique body, and every body tells its own story.   In Body Talk, thirty-seven writers, models, actors, musicians, and artists share essays, lists, comics, and illustrations—about everything from size and shape to scoliosis, from eating disorders to cancer, from sexuality and gender identity to the use of makeup as armor. Together, they contribute a broad variety of perspectives on what it’s like to live in their particular bodies—and how their bodies have helped to inform who they are and how they move through the world.   Come on in, turn the pages, and join the celebration of our diverse, miraculous, beautiful bodies!

Prognosis: A Memoir of My Brain


Sarah Vallance - 2019
    The next morning, things take a sharp turn as she’s led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.Afraid of judgment and deemed no longer fit for work, Sarah isolates herself from the outside world. She spends months at home, with her dogs as her only source of companionship, battling a personality she no longer recognizes and her shock and rage over losing simple functions she’d taken for granted. Her life is consumed by fear and shame until a chance encounter gives Sarah hope that her brain can heal. That conversation lights a small flame of determination, and Sarah begins to push back, painstakingly reteaching herself to read and write, and eventually reentering the workforce and a new, if unpredictable, life.In this highly intimate account of devastation and renewal, Sarah pulls back the curtain on life with traumatic brain injury, an affliction where the wounds are invisible and the lasting effects are often misunderstood. Over years of frustrating setbacks and uncertain triumphs, Sarah comes to terms with her disability and finds love with a woman who helps her embrace a new, accepting sense of self.

The Fixed Stars


Molly Wizenberg - 2020
    Married to a man for nearly a decade and mother to a toddler, Wizenberg tried to return to her life as she knew it, but something inside her had changed irredeemably. Instead, she would discover that the trajectory of our lives is rarely as smooth or as logical as we’d like to believe.   Like many of us, Wizenberg had long understood sexual orientation as a stable part of ourselves: we’re “born this way.” Suddenly she realized that her story was more complicated. Who was she, she wondered, if something at her very core could change so radically? The Fixed Stars is a taut, electrifying memoir exploring timely and timeless questions about desire, identity, and the limits and possibilities of family. In honest and searing prose, Wizenberg forges a new path: through the murk of separation and divorce, coming out to family and friends, learning to co-parent a young child, and realizing a new vision of love. The result is a frank and moving story about letting go of rigid definitions and ideals that no longer fit, and learning instead who we really are.

Stepmother


Marianne Lile - 2016
    It was a role she initially embraced--but she quickly discovered she was alone in a difficult situation, with no handbook and no mentor. Here, Lile describes the complexities of the stepmom position, in a family and in the community, and shares her experience wearing a tag that is often misunderstood and weighed down by the numerous myths in society. Candid and poignant, Stepmother is a story of love and like, resentments and exasperation, resignation and hope--and a story, ultimately, of family.

Between Two Kingdoms: A Memoir of a Life Interrupted


Suleika Jaouad - 2021
    She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone.It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times.When Jaouad finally walked out of the cancer ward—after three and a half years of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live.How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.