Book picks similar to
When Force Meets Fate: A Mission to Solve an Invisible Illness by Jamison Hill
memoir
non-fiction
nonfiction
disability
The Fixed Stars
Molly Wizenberg - 2020
Married to a man for nearly a decade and mother to a toddler, Wizenberg tried to return to her life as she knew it, but something inside her had changed irredeemably. Instead, she would discover that the trajectory of our lives is rarely as smooth or as logical as we’d like to believe. Like many of us, Wizenberg had long understood sexual orientation as a stable part of ourselves: we’re “born this way.” Suddenly she realized that her story was more complicated. Who was she, she wondered, if something at her very core could change so radically? The Fixed Stars is a taut, electrifying memoir exploring timely and timeless questions about desire, identity, and the limits and possibilities of family. In honest and searing prose, Wizenberg forges a new path: through the murk of separation and divorce, coming out to family and friends, learning to co-parent a young child, and realizing a new vision of love. The result is a frank and moving story about letting go of rigid definitions and ideals that no longer fit, and learning instead who we really are.
Blind Man's Bluff: A Memoir
James Tate Hill - 2021
When high-school friends stopped calling and a disability counselor advised him to aim for C’s in his classes, he tried to escape the stigma by pretending he could still see.In this unfailingly candid yet humorous memoir, Hill discloses the tricks he employed to pass for sighted, from displaying shelves of paperbacks he read on tape to arriving early on first dates so women would have to find him. He risked his life every time he crossed a street, doing his best to listen for approaching cars. A good memory and pop culture obsessions like Tom Cruise, Prince, and all things 1980s allowed him to steer conversations toward common experiences.For fifteen years, Hill hid his blindness from friends, colleagues, and lovers, even convincing himself that if he stared long enough, his blurry peripheral vision would bring the world into focus. At thirty, faced with a stalled writing career, a crumbling marriage, and a growing fear of leaving his apartment, he began to wonder if there was a better way.
Between Two Kingdoms: A Memoir of a Life Interrupted
Suleika Jaouad - 2021
She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone.It started with an itch—first on her feet, then up her legs, like a thousand invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her twenty-third birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times.When Jaouad finally walked out of the cancer ward—after three and a half years of chemo, a clinical trial, and a bone marrow transplant—she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal—to survive. And now that she’d done so, she realized that she had no idea how to live.How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked—with her new best friend, Oscar, a scruffy terrier mutt—on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.
What We Carry: A Memoir
Maya Shanbhag Lang - 2020
She had always been a source of support--until Maya became a mother herself. Then, the parent who had once been so capable and attentive turned unavailable and distant. Struggling to understand this abrupt change while raising her own young child, Maya searches for answers and soon learns that her mother is living with Alzheimer'sWhen Maya steps in to care for her, she comes to realize that despite their closeness, she never really knew her mother. Were her cherished stories--about life in India, about what it means to be an immigrant, about motherhood itself--even true? Affecting, raw, and poetic, What We Carry is the story of a daughter and her mother, of lies and truths, of receiving and giving care--and how we cannot grow up until we fully understand the people who raised us.Advance praise for What We Carry"A dazzling, courageous memoir about the weight we carry as women, daughters, and mothers--and what happens when we let go. Lang takes us deep into the heart of her relationship with her mother, a brilliant psychiatrist and Indian immigrant with long-buried secrets. After a health crisis brings mother and daughter under the same roof for the first time since childhood, Lang grapples with new information about the parent she'd idolized, and realizes it's time to tell the story of her own life. What We Carry is a love letter to everyone who has swum through turbulent water before reaching the shores of selfhood."--Chloe Benjamin, New York Times bestselling author of The Immortalists
The Lives They Left Behind: Suitcases from a State Hospital Attic
Darby Penney - 2008
It is a remarkable portrait, too, of the life of a psychiatric asylum--the sort of community in which, for better and for worse, hundreds of thousands of people lived out their lives.More than four hundred abandoned suitcases filled with patients’ belongings were found when Willard Psychiatric Center closed in 1995 after 125 years of operation. They are skillfully examined here and compared to the written record to create a moving—and devastating—group portrait of twentieth-century American psychiatric care.
A Face for Picasso: Coming of Age with Crouzon Syndrome
Ariel Henley - 2021
There's a mathematical equation to prove it.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease.Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.
Girl in the Dark
Anna Lyndsey - 2015
She was ambitious and worked hard; she had just bought an apartment; she was falling in love. But then she started to develop worrying symptoms: her face felt like it was burning whenever she was in front of the computer. Soon this progressed to an intolerance of fluorescent light, then of sunlight itself. The reaction soon spread to her entire body. Now, when her symptoms are at their worst, she must spend months on end in a blacked-out room, losing herself in audio books and elaborate word games in an attempt to ward off despair. It was during this period she began to write this book.
The Woman They Could Not Silence: One Woman, Her Incredible Fight for Freedom, and the Men Who Tried to Make Her Disappear
Kate Moore - 2021
The enemy sits across the table and sleeps in the next room. Her husband of twenty-one years is plotting against her because he feels increasingly threatened - by Elizabeth's intellect, independence, and unwillingness to stifle her own thoughts. So Theophilus makes a plan to put his wife back in her place. One summer morning, he has her committed to an insane asylum.The horrific conditions inside the Illinois State Hospital in Jacksonville, Illinois, are overseen by Dr. Andrew McFarland, a man who will prove to be even more dangerous to Elizabeth than her traitorous husband. But most disturbing is that Elizabeth is not the only sane woman confined to the institution. There are many rational women on her ward who tell the same story: they've been committed not because they need medical treatment, but to keep them in line - conveniently labeled "crazy" so their voices are ignored.No one is willing to fight for their freedom and, disenfranchised both by gender and the stigma of their supposed madness, they cannot possibly fight for themselves. But Elizabeth is about to discover that the merit of losing everything is that you then have nothing to lose...
Why We Swim
Bonnie Tsui - 2020
We swim in freezing Arctic waters and piranha-infested rivers to test our limits. We swim for pleasure, for exercise, for healing. But humans, unlike other animals that are drawn to water, are not natural-born swimmers. We must be taught. Our evolutionary ancestors learned for survival; now, in the twenty-first century, swimming is one of the most popular activities in the world.Why We Swim is propelled by stories of Olympic champions, a Baghdad swim club that meets in Saddam Hussein’s palace pool, modern-day Japanese samurai swimmers, and even an Icelandic fisherman who improbably survives a wintry six-hour swim after a shipwreck. New York Times contributor Bonnie Tsui, a swimmer herself, dives into the deep, from the San Francisco Bay to the South China Sea, investigating what about water—despite its dangers—seduces us and why we come back to it again and again.
The Deep Places: A Memoir of Illness and Discovery
Ross Douthat - 2021
It left him sleepless, crippled, wracked with pain--a shell of himself. After months of seeing doctors and descending deeper into a physical inferno, he discovered that he had a disease which according to CDC definitions does not actually exist: the chronic form of Lyme disease, a hotly contested condition that devastates the lives of tens of thousands of people but has no official recognition--and no medically approved cure.From a rural dream house that now felt like a prison, Douthat's search for help takes him off the map of official medicine, into territory where cranks and conspiracies abound and patients are forced to take control of their own treatment and experiment on themselves. Slowly, against his instincts and assumptions, he realizes that many of the cranks and weirdos are right, that many supposed hypochondriacs are victims of an indifferent medical establishment, and that all kinds of unexpected experiences and revelations lurk beneath the surface of normal existence, in the places underneath.The Deep Places is a story about what happens when you are terribly sick and realize that even the doctors who are willing to treat you can only do so much. Along the way, Douthat describes his struggle back toward health with wit and candor, portraying sickness as the most terrible of gifts. It teaches you to appreciate the grace of ordinary life by taking that life away from you. It reveals the deep strangeness of the world, the possibility that the reasonable people might be wrong, and the necessity of figuring out things for yourself. And it proves, day by dreadful day, that you are stronger than you ever imagined, and that even in the depths there is always hope.
A Mind Unraveled
Kurt Eichenwald - 2018
In the aftermath of that critical moment, his once-carefree life would be consumed by confrontations with medical incompetence, discrimination that almost cost him his education and employment, physical abuse, and dark moments when he contemplated suicide.This is the story of one man's battle to pursue his dreams despite an often incapacitating brain disorder. From his early experiences of fear and denial to his exasperating search for treatment, Eichenwald provides a deeply candid account of his years facing this misunderstood and often stigmatized condition. He details his encounters with the doctors whose negligence could have killed him, but for the heroic actions of a brilliant neurologist and the family and friends who fought for him.Many of Eichenwald's recollections are drawn from his diaries, vivid and painstakingly kept records that helped sharpen his skills as a journalist. He raises important questions about the nature of memory, the revelations of brain science, and the profound mysteries of human perception.Ultimately, A Mind Unraveled is an inspirational story, one that chronicles how Eichenwald, faced often with his own mortality, transformed trauma into a guide for reaching the future he desired. Defying relentless threats to his emotional and physical well-being, he affirmed his decision to never give up, and in the process learned how to rise from the depths of despair to the heights of unimagined success.
Why We Can't Sleep: Women's New Midlife Crisis
Ada Calhoun - 2020
She was married with children and a good career. So why did she feel miserable? And why did it seem that other Generation X women were miserable, too?Calhoun decided to find some answers. She looked into housing costs, HR trends, credit card debt averages, and divorce data. At every turn, she saw a pattern: sandwiched between the Boomers and the Millennials, Gen X women were facing new problems as they entered middle age, problems that were being largely overlooked.Speaking with women across America about their experiences as the generation raised to “have it all,” Calhoun found that most were exhausted, terrified about money, under-employed, and overwhelmed. Instead of being heard, they were told instead to lean in, take “me-time,” or make a chore chart to get their lives and homes in order.In Why We Can’t Sleep, Calhoun opens up the cultural and political contexts of Gen X’s predicament and offers solutions for how to pull oneself out of the abyss—and keep the next generation of women from falling in. The result is reassuring, empowering, and essential reading for all middle-aged women, and anyone who hopes to understand them.
Consent: A Memoir of Unwanted Attention
Donna Freitas - 2019
In one life, she is a well-published author and respected scholar who has traveled around the country speaking about Title IX, consent, religion, and sex on college campuses. In the other, she is a victim, a woman who suffered and suffers still because she was stalked by her graduate professor for more than two years. As a doctoral candidate, Freitas loved asking big questions, challenging established theories and sinking her teeth into sacred texts. She felt at home in the library, and safe in the book-lined offices of scholars whom she admired. But during her first year, one particular scholar became obsessed with Freitas' academic enthusiasm. He filled her student mailbox with letters and articles. He lurked on the sidewalk outside her apartment. He called daily and left nagging voicemails. He befriended her mother, and made himself comfortable in her family's home. He wouldn't go away. While his attraction was not overtly sexual, it was undeniably inappropriate, and most importantly--unwanted. In Consent: A Memoir of Unwanted Attention, Donna Freitas delivers a forensic examination of the years she spent stalked by her professor, and uses her nightmarish experience to examine the ways in which we stigmatize, debate, and attempt to understand consent today.
Bourdain: The Definitive Oral Biography
Laurie Woolever - 2021
His impact was outsized and his legacy has only grown since his death.Now, for the first time, we have been granted a look into Bourdain’s life through the stories and recollections of his closest friends and colleagues. Laurie Woolever, Bourdain’s longtime assistant and confidante, interviewed nearly a hundred of the people who shared Tony’s orbit—from members of his kitchen crews to his writing, publishing, and television partners, to his daughter and his closest friends—in order to piece together a remarkably full, vivid, and nuanced vision of Tony’s life and work. From his childhood and teenage days, to his early years in New York, through the genesis of his game-changing memoir Kitchen Confidential to his emergence as a writing and television personality, and in the words of friends and colleagues including Eric Ripert, José Andrés, Nigella Lawson, and W. Kamau Bell, as well as family members including his brother and his late mother, we see the many sides of Tony—his motivations, his ambivalence, his vulnerability, his blind spots, and his brilliance.Unparalleled in scope and deeply intimate in its execution, with a treasure trove of photos from Tony's life, Bourdain: The Definitive Oral Biography is a testament to the life of a remarkable man in the words of the people who shared his world.
Inferno: A Memoir of Motherhood and Madness
Catherine Cho - 2020
Before the trip’s end, she develops psychosis. In desperation, her husband admits her to a nearby psychiatric hospital, where she begins the hard work of rebuilding her identity.In this memoir Catherine reconstructs her sense of self, starting with her childhood as the daughter of Korean immigrants, moving through a traumatic past relationship, and on to the early years of her courtship with and marriage to her husband, James. She interweaves these parts of her past with an immediate recounting of the days she spent in the ward.