Backbone: A Memoir


Karen Duffy - 2017
    Half of the United States population suffers from these invisible illnesses where their symptoms are not always obvious to the casual observer. Among them is Karen Duffy, New York Times-bestselling author, former MTV DJ, Revlon model, and actress: she suffers from sarcoidosis, a disorder that causes the growth of inflammatory cells on different organs of the body. In her case, her sarcoidosis is located in her brain, causing her unimaginable pain. For two decades, Duffy has managed to live a full life, despite living in a state of constant pain. In Backbone, a powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain. Backbone is for the massive population of sufferers who are eager to be understood and helped and sends the message that despite the pain, there is a way to seek a good life.

Committed: Dispatches from a Psychiatrist in Training


Adam Stern - 2021
    His new and initially intimidating classmates were high achievers from the Ivy League and other elite universities around the nation. Stern pulls back the curtain on the intense and emotionally challenging lessons he and his fellow doctors learned while studying the human condition, and ultimately, the value of connection. The narrative focuses on these residents, their growth as doctors, and the life choices they make as they try to survive their grueling four-year residency. Most importantly, as they study how to help distressed patients in search of a better life, they discover the meaning of failure and the preciousness of success.

He Wanted the Moon: The Madness and Medical Genius of Dr. Perry Baird, and His Daughter's Quest to Know Him


Mimi Baird - 2015
    Perry Baird was a rising medical star in the late 1920s and 1930s. Early in his career, ahead of his time, he grew fascinated with identifying the biochemical root of manic depression, just as he began to suffer from it himself. By the time the results of his groundbreaking experiments were published, Dr. Baird had been institutionalized multiple times, his medical license revoked, and his wife and daughters estranged. He later received a lobotomy and died from a consequent seizure, his research incomplete, his achievements unrecognized.Mimi Baird grew up never fully knowing this story, as her family went silent about the father who had been absent for most of her childhood. Decades later, a string of extraordinary coincidences led to the recovery of a manuscript which Dr. Baird had worked on throughout his brutal institutionalization, confinement, and escape. This remarkable document, reflecting periods of both manic exhilaration and clear-headed health, presents a startling portrait of a man who was a uniquely astute observer of his own condition, struggling with a disease for which there was no cure, racing against time to unlock the key to treatment before his illness became impossible to manage.Fifty years after being told her father would forever be “ill” and “away,” Mimi Baird set off on a quest to piece together the memoir and the man. In time her fingers became stained with the lead of the pencil he had used to write his manuscript, as she devoted herself to understanding who he was, why he disappeared, and what legacy she had inherited. The result of his extraordinary record and her journey to bring his name to light is He Wanted the Moon, an unforgettable testament to the reaches of the mind and the redeeming power of a determined heart.Soon to be a major motion picture, from Brad Pitt and Tony Kushner

It's Not about the Bike: My Journey Back to Life


Lance Armstrong - 1999
    A lanky kid from Plano, Texas, is raised by a feisty, single parent who sacrifices for her son, who becomes one of our country's greatest athletes. Given that background, it is understandable why Armstrong was able to channel his boundless energy toward athletic endeavors. By his senior year in high school, he was already a professional triathlete and was training with the U.S. Olympic cycling developmental team. In 1993, Armstrong secured a position in the ranks of world-class cyclists by winning the World Championship and a Tour de France stage, but in 1996, he was diagnosed with testicular cancer. Armstrong entered an unknown battlefield and challenged it as if climbing through the Alps: aggressive yet tactical. He beat the cancer and proceeded to stun all the pundits by winning the 1999 Tour de France. In this memoir, Armstrong covers his early years swiftly with a blunt matter-of-factness, but the main focus is on his battle with cancer. Readers will respond to the inspirational recovery story, and they will appreciate the behind-the-scenes cycling information. After he won the Tour, his mother was quoted as saying that her son's whole life has been a fight against the odds; we see here that she was not exaggerating. Brenda Barrera

Lucky Man


Michael J. Fox - 2002
    Fox stunned the world by announcing he had been diagnosed with Parkinson's disease -- a degenerative neurological condition. In fact, he had been secretly fighting it for seven years. The worldwide response was staggering. Fortunately, he had accepted the diagnosis, and by the time the public started grieving for him, he had stopped grieving for himself. Now, with the same passion, humor, and energy, that Fox has invested in his dozens of performances over the last 18 years, he tells the story of his life, his career, and his campaign, to find a cure for Parkinson's.Combining his trademark ironic sensibility, and keen sense of the absurd, he recounts his life -- from his childhood in a small town in western Canada, to his meteoric rise in film and television which made him a worldwide celebrity. Most importantly however, he writes of the last 10 years, during which -- with the unswerving support of his wife, family, and friends -- he has dealt with his illness. He talks about what Parkinson's has given him: the chance to appreciate a wonderful life and career, and the opportunity to help search for a cure, and spread public awareness of the disease. He is a very lucky man, indeed.

Hungry: A Young Model's Story of Appetite, Ambition, and the Ultimate Embrace of Curves


Crystal Renn - 2009
    An inspiring and cautionary tale for women of all ages, Hungry is an uplifting memoir with a universal message about body image, beauty and self-confidence.

The Recovering: Intoxication and Its Aftermath


Leslie Jamison - 2018
    Leslie Jamison deftly excavates the stories we tell about addiction--both her own and others'--and examines what we want these stories to do, and what happens when they fail us.All the while, she offers a fascinating look at the larger history of the recovery movement, and at the literary and artistic geniuses whose lives and works were shaped by alcoholism and substance dependence, including John Berryman, Jean Rhys, Raymond Carver, Billie Holiday, David Foster Wallace, and Denis Johnson, as well as brilliant figures lost to obscurity but newly illuminated here.For the power of her striking language and the sharpness of her piercing observations, Jamison has been compared to such iconic writers as Joan Didion and Susan Sontag. Yet her utterly singular voice also offers something new. With enormous empathy and wisdom, Jamison has given us nothing less than the story of addiction and recovery in America writ large, a definitive and revelatory account that will resonate for years to come.

The Spark: A Mother's Story of Nurturing Genius


Kristine Barnett - 2013
    At nine he started working on an original theory in astrophysics that experts believe may someday put him in line for a Nobel Prize, and at age twelve he became a paid researcher in quantum physics. But the story of Kristine’s journey with Jake is all the more remarkable because his extraordinary mind was almost lost to autism. At age two, when Jake was diagnosed, Kristine was told he might never be able to tie his own shoes. The Spark is a remarkable memoir of mother and son. Surrounded by “experts” at home and in special ed who tried to focus on Jake’s most basic skills and curtail his distracting interests—moving shadows on the wall, stars, plaid patterns on sofa fabric—Jake made no progress, withdrew more and more into his own world, and eventually stopped talking completely. Kristine knew in her heart that she had to make a change. Against the advice of her husband, Michael, and the developmental specialists, Kristine followed her instincts, pulled Jake out of special ed, and began preparing him for mainstream kindergarten on her own. Relying on the insights she developed at the daycare center she runs out of the garage in her home, Kristine resolved to follow Jacob’s “spark”—his passionate interests. Why concentrate on what he couldn’t do? Why not focus on what he could? This basic philosophy, along with her belief in the power of ordinary childhood experiences (softball, picnics, s’mores around the campfire) and the importance of play, helped Kristine overcome huge odds. The Barnetts were not wealthy people, and in addition to financial hardship, Kristine herself faced serious health issues. But through hard work and determination on behalf of Jake and his two younger brothers, as well as an undying faith in their community, friends, and family, Kristine and Michael prevailed. The results were beyond anything anyone could have imagined. Dramatic, inspiring, and transformative, The Spark is about the power of love and courage in the face of overwhelming obstacles, and the dazzling possibilities that can occur when we learn how to tap the true potential that lies within every child, and in all of us.

Being Heumann: An Unrepentant Memoir of a Disability Rights Activist


Judith Heumann - 2020
    From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

Mill Town: Reckoning with What Remains


Kerri Arsenault - 2020
    For over 100 years the community orbited around a paper mill that employs most townspeople, including three generations of Arsenault’s own family. Years after she moved away, Arsenault realized the price she paid for her seemingly secure childhood. The mill, while providing livelihoods for nearly everyone, also contributed to the destruction of the environment and the decline of the town’s economic, physical, and emotional health in a slow-moving catastrophe, earning the area the nickname “Cancer Valley.” Mill Town is an personal investigation, where Arsenault sifts through historical archives and scientific reports, talks to family and neighbors, and examines her own childhood to illuminate the rise and collapse of the working-class, the hazards of loving and leaving home, and the ambiguous nature of toxics and disease. Mill Town is a moral wake-up call that asks, Whose lives are we willing to sacrifice for our own survival?

The Iceberg


Marion Coutts - 2014
    The tumour was located in the area of the brain that controls speech and language, and would eventually rob him of the ability to speak. Tom was 53 when he died, leaving Marion and their son Eugene, just two years old, alone. In short bursts of beautiful, textured prose, Coutts describes the eighteen months leading up to Tom's death. The Iceberg is an unflinching, honest exploration of staring death in the face, finding solace in strange places, finding beauty and even joy in the experience of dying. Written with extraordinary narrative force and power, it is almost shocking in its rawness. Nothing is kept from the reader: the fury, the occasional spells of selfishness, the indignity of being trapped in a hopeless situation. It is a story of pain and sadness, but also an uplifting and life-affirming tale of great fortitude, courage, determination – and above all, love.

Sleep Demons: An Insomniac's Memoir


Bill Hayes - 2001
    If there's such a thing as an insomnia gene, he tells us at the outset of this beautifully written memoir, my father passed it on to me, along with his green eyes and Irish melancholy. Bill Hayes' life as an insomniac is rooted in the wry trappings of irony: his father ran a Coca-Cola factory, of all things. I've often wondered if all that sugar and caffeine altered my neurochemical makeup. Moving seamlessly to and from his present vantage point in San Francisco, Hayes' narrative affords an intimate look at one man's singular journey through contemporary life -- from his sleep-disturbed childhood through his sleepwalking in adolescence to the height of his insomnia, when his partner struggles with AIDS and Hayes must face an increasingly troubling and debilitating sleep disorder.Along the way, armed with an infectious curiosity and an obsession with the mysteries of his personal demons, Hayes leads us on a fascinating exploration of disorders such as sleep-talking, narcolepsy, and sleep apnea and contends with all manner of theories and experimentation, from the conceptions of sleep in ancient mythology to today's state-of-the-art sleeping aids and clinics.As with desire, sleep resists pursuit. It must come find you. Nevertheless, I look for it. This powerful book is the result of Bill Hayes' lifelong search for sleep.

The Elephant in the Room: One Fat Man's Quest to Get Smaller in a Growing America


Tommy Tomlinson - 2019
    My BMI is 60.7. My shirts are size XXXXXXL, which the big-and-tall stores shorten to 6X. I’m 6-foot-1, or 73 inches tall. My waist is 60 inches around. I’m nearly a sphere. Those are the numbers. This is how it feels… So begins The Elephant in the Room, Tommy Tomlinson’s remarkably intimate and insightful memoir of his life as a fat man. When he was almost fifty years old, Tomlinson weighed an astonishing—and dangerous—460 pounds, at risk for heart disease, diabetes, and stroke, unable to climb a flight of stairs without having to catch his breath, or travel on an airplane without buying two seats. Raised in a family that loved food, he had been aware of the problem for years, seeing doctors and trying diets from the time he was a preteen. But nothing worked, and every time he tried to make a change, it didn’t go the way he planned—in fact, he wasn’t sure that he really wanted to change.In The Elephant in the Room, Tomlinson chronicles his lifelong battle with weight in a voice that combines the urgency of Roxane Gay’s Hunger with the intimacy of Rick Bragg’s All Over but the Shoutin’. He also hits the road to meet other members of the plus-sized tribe in an attempt to understand how, as a nation, we got to this point. From buying a FitBit and setting exercise goals to contemplating the Heart Attack Grill in Las Vegas, America’s “capital of food porn,” and modifying his own diet, Tomlinson brings us along on a candid and sometimes brutal look at the everyday experience of being constantly aware of your size. Over the course of the book, he confronts these issues head-on and chronicles the practical steps he has to take—big and small—to lose weight by the end.Affecting and searingly honest, The Elephant in the Room is a powerful memoir that will resonate with anyone who has grappled with addiction, shame, or self-consciousness. It is also a literary triumph that will stay with readers long after the last page.

Song Without Words: Discovering My Deafness Halfway through Life


Gerald Shea - 2013
    Song without Words tells the astonishing story of a man who, at the age of thirty-four, discovered that he had been deaf since childhood, yet somehow managed to navigate his way through Andover, Yale, and Columbia Law School, and to establish a prestigious international legal career. Gerald Shea's witty and candid memoir of how he compensated for his deafness -- through sheer determination and an amazing ability to translate the melody of vowels. His experience gives fascinating new insight into the nature and significance of language, the meaning of deafness, the fierce controversy between advocates of signing and of oral education, and the longing for full communication that unites us all.

Prozac Nation


Elizabeth Wurtzel - 1994
    A collective cry for help from a generation who have come of age entrenched in the culture of divorce, economic instability, and AIDS, here is the intensely personal story of a young girl full of promise, whose mood swings have risen and fallen like the lines of a sad ballad.