Book picks similar to
Life As We Know It: A Father, a Family, and an Exceptional Child by Michael Bérubé
memoir
disability
non-fiction
nonfiction
The Middle Place
Kelly Corrigan - 2005
A self-assured adman and former all-American lacrosse player (now part-time coach), he shines brightly, and his daughter appears content to live in his reflected glory.Kelly considers herself lucky for this great touchstone in her life, and her dad's can-do spirit becomes her greatest asset when she's diagnosed with breast cancer as a young mother. It is her dad's pluck and resolve that will see her through the oncoming battles -- including the realization that her "cure" will mean the end of her ability to bear children and her dream of having a large family of her own.Though Kelly writes of her husband and daughters, her mother and her brothers, it is her father's love that sustains her. And so, readers fear for her when she reveals that George has been diagnosed with cancer, too. It is at this nadir, facing not only her own mortality but her father's as well, that Kelly finally begins to emerge as a survivor -- a wife, a mother, and more herself. Yet, she will always be her father's daughter.(Spring 2008 Selection)
Season to Taste: How I Lost My Sense of Smell and Found My Way
Molly Birnbaum - 2011
If this beautifully written book were a smell, it would be a crisp green apple.”—Claire Dederer, bestselling author of PoserSeason to Taste is an aspiring chef’s moving account of finding her way—in the kitchen and beyond—after a tragic accident destroys her sense of smell. Molly Birnbaum’s remarkable story—written with the good cheer and great charm of popular food writers Laurie Colwin and Ruth Reichl—is destined to stand alongside Julie Powell’s Julie and Julia as a classic tale of a cooking life. Season to Taste is sad, funny, joyous, and inspiring.
What the Eyes Don't See: A Story of Crisis, Resistance, and Hope in an American City
Mona Hanna-Attisha - 2018
Mona Hanna-Attisha, alongside a team of researchers, parents, friends, and community leaders, discovered that the children of Flint, Michigan, were being exposed to lead in their tap water--and then battled her own government and a brutal backlash to expose that truth to the world. At the center of the story is Dr. Mona herself--an immigrant, doctor, scientist, and mother whose family's activist roots inspired her pursuit of justice.What the Eyes Don't See is a riveting account of a shameful disaster that became a tale of hope, the story of a city on the ropes that came together to fight for justice, self-determination, and the right to build a better world for their--and all of our--children.
Small Animals: Parenthood in the Age of Fear
Kim Brooks - 2018
What happened would consume the next several years of her life and spur her to investigate the broader role America's culture of fear plays in parenthood. In Small Animals, Brooks asks, Of all the emotions inherent in parenting, is there any more universal or profound than fear? Why have our notions of what it means to be a good parent changed so radically? In what ways do these changes impact the lives of parents, children, and the structure of society at large? And what, in the end, does the rise of fearful parenting tell us about ourselves?Fueled by urgency and the emotional intensity of Brooks's own story, Small Animals is a riveting examination of the ways our culture of competitive, anxious, and judgmental parenting has profoundly altered the experiences of parents and children. In her signature style--by turns funny, penetrating, and always illuminating--which has dazzled millions of fans and been called "striking" by New York Times Book Review and "beautiful" by the National Book Critics Circle, Brooks offers a provocative, compelling portrait of parenthood in America and calls us to examine what we most value in our relationships with our children and one another.
In Pain: A Bioethicist's Personal Struggle with Opioids
Travis Rieder - 2019
Enduring half a dozen surgeries, the drugs he received were both miraculous and essential to his recovery. But his most profound suffering came several months later when he went into acute opioid withdrawal while following his physician’s orders. Over the course of four excruciating weeks, Rieder learned what it means to be “dope sick”—the physical and mental agony caused by opioid dependence. Clueless how to manage his opioid taper, Travis’s doctors suggested he go back on the drugs and try again later. Yet returning to pills out of fear of withdrawal is one route to full-blown addiction. Instead, Rieder continued the painful process of weaning himself.Rieder’s experience exposes a dark secret of American pain management: a healthcare system so conflicted about opioids, and so inept at managing them, that the crisis currently facing us is both unsurprising and inevitable. As he recounts his story, Rieder provides a fascinating look at the history of these drugs first invented in the 1800s, changing attitudes about pain management over the following decades, and the implementation of the pain scale at the beginning of the twenty-first century. He explores both the science of addiction and the systemic and cultural barriers we must overcome if we are to address the problem effectively in the contemporary American healthcare system.In Pain in America is not only a gripping personal account of dependence, but a groundbreaking exploration of the intractable causes of America’s opioid problem and their implications for resolving the crisis. Rieder makes clear that the opioid crisis exists against a backdrop of real, debilitating pain—and that anyone can fall victim to this epidemic.
There Is No Me Without You: One Woman's Odyssey to Rescue Africa's Children
Melissa Fay Greene - 2006
When Haregwoin Teferra’s husband and daughter died within a few years of each other, her life is shattered and she becomes a recluse. But then a priest delivers an orphan to her door. The another, and another... and together they thrive.The distinguished author of Praying for Sheetrock and two-time National Book award finalist puts a human face on the AIDS crisis in Africa. When Haregwoin Teferra’s husband and 23-year-old daughter died within a few years of each other, her middle-class life in Addis Ababa, Ethiopia, was shattered. Bereft and with little to live for, Haregwoin became a recluse. Her self-imposed exile to a hut near her daughter’s grave was interrupted when a priest delivered first one, then another, orphaned teenager into her care. To everyone’s surprise, the children thrived, and so did Haregwoin. As word spread, children of all ages began to appear at her modest home: an infant brought by a dying mother, an orphaned brother and sister whose grandfather was too poor to feed them, a baby left on her doorstep. Haregwoin’s small compound became known as the rare place where ailing parents and impoverished families could safely leave their children. Soon Haregwoin was caring for sixty children, running an unofficial orphanage and day school, and learning first-hand about her country’s and her continent’s greatest challenge: the AIDS pandemic that is leaving millions of children without parents to care for them. With the flair and grace of a novelist and the reportorial instincts of a seasoned journalist, Melissa Fay Greene gets to the heart of the AIDS crisis, in a story that is nevertheless one of hope. There Is No Me Without You is the story of Haregwoin and her children: a story of struggle and despair, but also of the triumph of saved lives, and the renewed happiness of children welcomed by adoptive parents in Ethiopia, America, and around the world. Haregewoin’s remarkable story convinces us that the crisis in Africa touches every one of us in some fundamental way. At heart, this book is about children and the parents they need to care for them.
As Nature Made Him: The Boy Who Was Raised as a Girl
John Colapinto - 2000
The case would become one of the most famous in modern medicine—and a total failure. As Nature Made Him tells the extraordinary story of David Reimer, who, when finally informed of his medical history, made the decision to live as a male. A macabre tale of medical arrogance, it is first and foremost a human drama of one man's—and one family's—amazing survival in the face of terrible odds.
Hillbilly Elegy: A Memoir of a Family and Culture in Crisis
J.D. Vance - 2016
The disintegration of this group, a process that has been slowly occurring now for more than forty years, has been reported with growing frequency and alarm, but has never before been written about as searingly from the inside. J. D. Vance tells the true story of what a social, regional, and class decline feels like when you were born with it hung around your neck.The Vance family story begins hopefully in postwar America. J. D.’s grandparents were “dirt poor and in love,” and moved north from Kentucky’s Appalachia region to Ohio in the hopes of escaping the dreadful poverty around them. They raised a middle-class family, and eventually one of their grandchildren would graduate from Yale Law School, a conventional marker of success in achieving generational upward mobility. But as the family saga of Hillbilly Elegy plays out, we learn that J.D.'s grandparents, aunt, uncle, sister, and, most of all, his mother struggled profoundly with the demands of their new middle-class life, never fully escaping the legacy of abuse, alcoholism, poverty, and trauma so characteristic of their part of America. With piercing honesty, Vance shows how he himself still carries around the demons of his chaotic family history.A deeply moving memoir, with its share of humor and vividly colorful figures, Hillbilly Elegy is the story of how upward mobility really feels. And it is an urgent and troubling meditation on the loss of the American dream for a large segment of this country.
The Heart and the Fist: The Education of a Humanitarian, the Making of a Navy SEAL
Eric Greitens - 2011
His life and this book remind us that America remains the land of the brave and generous.” — Tom Brokaw Like many young idealists, Eric Greitens wanted to make a difference, so he traveled to the world’s trouble spots to work in refugee camps and serve the sick and the poor. Yet when innocent civilians were threatened with harm, there was nothing he could do but step in afterward and try to ease the suffering. In studying humanitarianism, he realized a fundamental truth: when an army invades, the weak need protection. So he joined the Navy SEALs and became one of the world’s elite warriors. Greitens led his men through the unforgettable soul-testing of SEAL training and went on to deployments in Kenya, Afghanistan, and Iraq, where he faced harrowing encounters and brutal attacks. Yet even in the deadliest combat situations, the lessons of his humanitarian work bore fruit. At the heart of this powerful story lies a paradox: sometimes you have to be strong to do good, but you also have to do good to be strong. The heart and the fist together are more powerful than either one alone. “If you're restless or itching for some calling you can't name, read this book. Give it to your son and daughter. The Heart and the Fist epitomizes — as does Mr. Greitens's life, present and future — all that is best in this country, and what we need desperately right now.” — Steven Pressfield, author of Gates of Fire “Vivid and compelling . . . a great read.” — Washington Times A Hudson Booksellers Top Ten Nonfiction Book of the Year A USA Today and Publishers Weekly Bestseller WITH A NEW AFTERWORD
Ask Me Why I Hurt: The Kids Nobody Wants and the Doctor Who Heals Them
Randy Christensen - 2011
Randy Christensen. Trained as a pediatrician, he works not in a typical hospital setting but, rather, in a 38-foot Winnebago that has been refitted as a doctor’s office on wheels. His patients are the city’s homeless adolescents and children. In the shadow of one affluent American city, Dr. Christensen has dedicated his life to caring for society's throwaway kids—the often-abused, unloved children who live on the streets without access to proper health care, all the while fending off constant threats from thugs, gangs, pimps, and other predators. With the Winnebago as his moveable medical center, Christensen and his team travel around the outskirts of Phoenix, attending to the children and teens who need him most. With tenderness and humor, Dr. Christensen chronicles everything from the struggles of the van’s early beginnings, to the support system it became for the kids, and the ultimate recognition it has achieved over the years. Along with his immense professional challenges, he also describes the trials and joys he faces while raising a growing family with his wife Amy. By turns poignant, heartbreaking, and charming, Dr. Christensen's story is a gripping and rich memoir of his work and family, one of those rare books that stays with you long after you’ve turned the last page.
Why Religion?: A Personal Story
Elaine Pagels - 2018
Here she interweaves a personal story with the work that she loves, illuminating how, for better and worse, religious traditions have shaped how we understand ourselves; how we relate to one another; and, most importantly, how to get through the most difficult challenges we face.Drawing upon the perspectives of neurologists, anthropologists, and historians, as well as her own research, Pagels opens unexpected ways of understanding persistent religious aspects of our culture.A provocative and deeply moving account from one of the most compelling religious thinkers at work today, Why Religion? explores the spiritual dimension of human experience.
Sickened: The Memoir of a Munchausen by Proxy Childhood
Julie Gregory - 2003
Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.
Hidden Valley Road: Inside the Mind of an American Family
Robert Kolker - 2020
After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins—aspiration, hard work, upward mobility, domestic harmony—and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family?What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations.With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.
Gifted Hands: The Ben Carson Story
Ben Carson - 1992
Gifted Hands will transplace you into the operating room to witness surgeries that made headlines around the world, and into the private mind of a compassionate, God-fearing physician who lives to help others. In 1987, Dr. Carson gained worldwide recognition for his part in the first successful separation of Siamese twins joined at the back of the head -- an extremely complex and delicate operation that was five months of planning and twenty-two hours of actual surgery, involving a surgical plan that Carson helped initiate. Gifted Hands reveals a man with humility, decency, compassion, courage, and sensitivity who serves as a role model for young people (and everyone else) in need of encouragement to attempt the seemingly impossible and to excel in whatever they attempt. Dr. Carson also describes the key role that his highly intelligent though relatively uneducated mother played in his metamorphosis from an unmotivated ghetto youngster into one of the most respected neurosurgeons in the world.
The Nurses: A Year of Secrets, Drama, and Miracles with the Heroes of the Hospital
Alexandra Robbins - 2015
Lara, a superstar nurse who tries to battle her way back from a near-ruinous prescription-drug addiction. The outspoken but compassionate Juliette, a fierce advocate for her patients. And Sam, a first-year nurse, struggling to find her way in a gossipy mean-girl climate she likens to “high school, except for the dying people.”The result is a riveting page-turner, insightful and thought-provoking, that will leave readers feeling smarter about their healthcare and undeniably appreciative of the incredible nurses who provide it.