My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

Being Heumann: An Unrepentant Memoir of a Disability Rights Activist


Judith Heumann - 2020
    From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that fundamentally improved rights for disabled people.As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act.Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

Crashing Through: A True Story of Risk, Adventure, and the Man Who Dared to See


Robert Kurson - 2006
    The bestselling author of Shadow Divers returns with a riveting story of exploration, mystery, and the discovery of an unknown world--this time about one man's incredible odyssey from blindness into sight.

Another Bullshit Night in Suck City


Nick Flynn - 2004
    As a teenager he'd received letters from this stranger father, a self-proclaimed poet and con man doing time in federal prison for bank robbery. Another Bullshit Night in Suck City tells the story of the trajectory that led Nick and his father onto the streets, into that shelter, and finally to each other. .

One Hundred Days: My Unexpected Journey from Doctor to Patient


David Biro - 2000
    But what if the person receiving the diagnosis--young, physically fit, poised for a bright future--is himself a doctor?At thirty-one David biro has just completed his residency and joined his father's successful dermatology practice. Struck with a rare blood disease that eventually necessitates a bone marrow transplant, Biro relates with honesty and courage the story of his most transforming journey. He is forthright about the advantages that his status as a physician may have afforded him; and yet no such advantage can protect him from the anxiety and doubt brought on by his debilitating therapies. The pressures that Biro's wild "one hundred days" brings to bear on his heretofore well-established identity as a caregiver are enormous--as is the power of this riveting story of survival.

Riding the Bus with My Sister: A True Life Journey


Rachel Simon - 2002
    Beth spends her days riding the buses in her Pennsylvania city. The drivers, a lively group, are her mentors; her fellow passengers are her community. One day, Beth asked Rachel to accompany her on the buses for an entire year; the book is the chronicle of that remarkable time. Rachel, a writer and college teacher whose hyperbusy life camouflaged her emotional isolation, had much to learn in her sister's extraordinary world. Here are life lessons from which every reader can profit: how to live in the moment, how to pay attention to what really matters, how to change, how to love, —and how to slow down and enjoy the ride. Simon elegantly braids together riveting memories of terrifying maternal abandonment, fierce sisterly loyalty, and astonishing forgiveness. She brings to light the almost invisible world of mental retardation, finds unlikely heroes in everyday life, and portrays her very special sister Beth as the endearing and indomitable person she is. This heartwarming book takes the reader on an inspirational journey, at once unique and universal.

Cockeyed: A Memoir of Blindness


Ryan Knighton - 2006
    In this penetrating, nervy memoir, which ricochets between meditation and black comedy, Knighton tells the story of his fifteen-year descent into blindness while incidentally revealing the world of the sighted in all its phenomenal peculiarity. Knighton learns to drive while unseeing; has his first significant relationship—with a deaf woman; navigates the punk rock scene and men's washrooms; learns to use a cane; and tries to pass for seeing while teaching English to children in Korea. Stumbling literally and emotionally into darkness, into love, into couch-shopping at Ikea, into adulthood, and into truce if not acceptance of his identity as a blind man, his writerly self uses his disability to provide a window onto the human condition. His experience of blindness offers unexpected insights into sight and the other senses, culture, identity, language, our fears and fantasies. Cockeyed is not a conventional confessional. Knighton is powerful and irreverent in words and thought and impatient with the preciousness we've come to expect from books on disability. Readers will find it hard to put down this wild ride around their everyday world with a wicked, smart, blind guide at the wheel.

Secrets on Saulter Road: Discovering Hope and Forgiveness in the Wake of My Toxic Upbringing


Joan Kendall - 2019
    With remarkable honesty and wit, author Joan Kendall nimbly explores her upbringing in the prim and proper segregated South during the 1950s with an outrageously unpredictable and destructive alcoholic mother.Joan and her two sisters--Linda, the perplexing spendthrift, and Susan, the practical optimist--never knew which mother would appear on the scene: the charming Mary Poppins or the spiteful Cruella de Vil. Their loving father did his best, but behind closed doors, his criticism of their mother's drinking fueled her bizarre and neglectful behaviors and further withdrawal into an ocean of whiskey.The sisters often had each other's backs, and the family maid and daytime buffer, Jadie Bell, provided a fortress in their domestic war. Although Jadie Bell loved them as her own, she could not rid their home of gloom and shame.In Joan's adulthood, a lamentable family secret is divulged, and the pain and trauma of the past becomes clear. In this beautifully written memoir, Joan reveals her own brokenness, and shares her path to redemption, healing, and joy.

Three Weeks With My Brother


Nicholas Sparks - 2004
    With a wife and five small children, a hectic schedule, and a new book due to his publishers, Nicholas Sparks was busy with his usual routine. The colorful mailer, however, described something very different: a tour to some of the most exotic places on Earth. Slowly, an idea took hold in Nicholas's mind and heart. In January 2003, Nicholas Sparks and his brother, Micah, set off on a three-week trip around the globe. It was to mark a milestone in their lives, for at thirty-seven and thirty-eight respectively, they were now the only surviving members of their family. And as they voyaged to the lost city of Machu Picchu high in the Andes. . . to mysterious Easter Island. . . to Ayers Rock in the Australian outback. . . and across the vast Indian subcontinent, the ultimate story of their lives would unfold. Against the backdrop of the wonders of the world and often overtaken by their feelings, daredevil Micah and the more serious, introspective Nicholas recalled their rambunctious childhood adventures and the tragedies that tested their faith. And in the process, they discovered startling truths about loss, love and hope. Narrated with irrepressible humor and rare candor, and including personal photographs, Three Weeks with my Brother reminds us to embrace life with all its uncertainties. . . and most of all, to cherish the joyful times, both small and momentous, and the wonderful people who make them possible.Did You Know?---Three Weeks With My Brother is Nicholas's second work of non-fiction? (The first was Wokini, written with Olympic Gold Medalist Billy Mills.)Nicholas and Micah Sparks wrote the book together from separate coasts by talking on the phone and faxing drafts back and forth?The trip around the world was part of a Notre Dame alumni package?

Smile: The Story of a Face


Sarah Ruhl - 2021
    She is assured that 90 percent of Bell’s palsy patients see spontaneous improvement and experience a full recovery. Like Ruhl’s own mother. But Sarah is in the unlucky ten percent. And for a woman, wife, mother, and artist working in theater, the paralysis and the disconnect between the interior and exterior brings significant and specific challenges. So Ruhl begins an intense decade-long search for a cure while simultaneously grappling with the reality of her new face—one that, while recognizably her own—is incapable of accurately communicating feelings or intentions. In a series of piercing, witty, and lucid meditations, Ruhl chronicles her journey as a patient, wife, mother, and artist. She explores the struggle of a body yearning to match its inner landscape, the pain of postpartum depression, the story of a marriage, being a playwright and working mom to three small children, and the desire for a resilient spiritual life in the face of illness. Brimming with insight, humility, and levity, Smile is a triumph by one of America’s leading playwrights. It is an intimate examination of loss and reconciliation, and above all else, the importance of perseverance and hope in the face of adversity.

Dispatches From The Edge: A Memoir of War, Disasters, and Survival


Anderson Cooper - 2006
    Dispatches from the Edge, Cooper's memoir of "war, disasters and survival," is a brief but powerful chronicle of Cooper's ascent to stardom and his struggle with his own tragedies and demons. Cooper was 10 years old when his father, Wyatt Cooper, died during heart bypass surgery. He was 20 when his beloved older brother, Carter, committed suicide by jumping off his mother's penthouse balcony (his mother, by the way, being Gloria Vanderbilt). The losses profoundly affected Cooper, who fled home after college to work as a freelance journalist for Channel One, the classroom news service. Covering tragedies in far-flung places like Burma, Vietnam, and Somalia, Cooper quickly learned that "as a journalist, no matter ... how respectful you are, part of your brain remains focused on how to capture the horror you see, how to package it, present it to others." Cooper's description of these horrors, from war-ravaged Baghdad to famine-wracked Niger, is poignant but surprisingly unsentimental. In Niger, Cooper writes, he is chagrined, then resigned, when he catches himself looking for the "worst cases" to commit to film. "They die, I live. It's the way of the world," he writes. In the final section of Dispatches, Cooper describes covering Hurricane Katrina, the story that made him famous. The transcript of his showdown with Louisiana Sen. Mary Landrieu (in which Cooper tells Landrieu people in New Orleans are "ashamed of what is happening in this country right now") is worth the price of admission on its own. Cooper's memoir leaves some questions unanswered--there's frustratingly little about his personal life, for example--but remains a vivid, modest self-portrait by a man who is proving himself to be an admirable, courageous leader in a medium that could use more like him. --Erica C. Barnett

The Naked Truth: Young, Beautiful, and (HIV) Positive


Marvelyn Brown - 2008
    A former top track and basketball athlete, she was in the best shape of her life, but she was battling a sudden illness in the intensive care unit. Doctors had no idea what was going on. It never occurred to Brown that she might be HIV positive.Having unprotected sex with her Prince Charming had set into swift motion a set of circumstances that not only landed her in the fight of her life, but also alienated her from her community. Rather than give up, however, Brown found a reason to fight and a reason to live.The Naked Truth is an inspirational memoir that shares how an everyday teen refused to give up on herself, even as others would forsake her. More, it's a cautionary tale that every parent, guidance counselor, and young adult should read.

The True History of the Elephant Man


Michael Howell - 1980
    Through horrible physical deformities which were almost impossible to describe, he spent much of his life exhibited as a fairground freak until even nineteenth-century sensibilities could take no more. Hounded, persecuted and starving, he ended up at London's Liverpool Street Station where he was rescued, housed and fed by the distinguished surgeon Frederick Treves. To Treves' surprise, he discovered during the course of their friendship that lurking beneath the mass of Merrick's corrupting flesh lived a spirit that was as courageous as it had been tortured, and a nature as gentle and dignified as it had been deprived and tormented. The subject of several books, a Broadway hit, and a film, Joseph Merrick has become part of popular mythology. Here, in this fully revised edition containing new details, are the true and unromantic facts of his life. This is an extraordinary and moving story, set among the brutal realities of the Victorian world, telling of a tragic individual and his survival against overwhelming odds."

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

Hands of My Father: A Hearing Boy, His Deaf Parents, and the Language of Love


Myron Uhlberg - 2009
    Translating from sign language to spoken language and back again, he enables his father to communicate with local shopkeepers, awakens his parents when his baby brother cries, and even interprets at a less-than-glowing parent-teacher conference. At times, he's embarrassed by his parents, and hurt that his father is called "dummy." But in the end, his overwhelming love and compassion leaves a lasting effect.