Autobiography of a Schizophrenic Girl


Marguerite Sechehaye - 1947
    Written with a diamond-sharp precision that lends it an eerie power, it tells the story of Renee's long sojourn in what she calls the "Land of Enlightenment" or "The Country of Tibet," and of her gradual and painstaking return to "wonderful reality." Renee moves in and out of hospitals, sometimes able to eat only tea and spinach, or apples and spinach, because "'The System' forbade anything else." She regresses to a state resembling infancy, and she experiences intense despair, although she always describes her experiences with a pitiless and remarkable calm, as though she has observed herself from a great distance. And all the while she is sustained by the attention and understanding of her analyst, Maguerite Sechehaye, who has contributed an illuminating Afterward to her story. This harrowing and unforgettable work is a classic in the literature of mental illness.

Survival Lessons


Alice Hoffman - 2013
    Most significant, aside from the grueling physical ordeal she underwent, was the way it changed how she felt inside and what she thought she ought to be doing with her days. Now she has written the book that she needed to read then. In this honest, wise, and upbeat guide, Alice Hoffman provides a road map for the making of one's life into the very best it can be. As she says, "In many ways I wrote this book to remind myself of the beauty of life, something that's all too easy to overlook during the crisis of illness or loss. There were many times when I forgot about roses and starry nights. I forgot that our lives are made up of equal parts sorrow and joy, and that it's impossible to have one without the other. . . . I wrote to remind myself that in the darkest hour the roses still bloom, the stars still come out at night. And to remind myself that, despite everything that was happening to me, there were still some choices I could make.

Skin Game


Caroline Kettlewell - 1999
    Skin Game employs clear language and candid reflection to grant general readers as well as students an uncensored profile of a complex and unsettling disorder. "[This] mesmeric memoir examines the obsession with cutting that is believed to afflict somewhere around two million Americans, nearly all of them female," Francine Prose noted in Elle. "[Kettlewell's] language soars and its intensity deepens whenever she is recalling the lost joys and the thrilling sensation of sharp steel against her tender skin."

The Body in Pain: The Making and Unmaking of the World


Elaine Scarry - 1985
    The book is an analysis of physical suffering and its relation to the numerous vocabularies and cultural forces--literary, political, philosophical, medical, religious--that confront it. Elaine Scarry bases her study on a wide range of sources: literature and art, medical case histories, documents on torture compiled by Amnesty International, legal transcripts of personal injury trials, and military and strategic writings by such figures as Clausewitz, Churchill, Liddell Hart, and Kissinger, She weaves these into her discussion with an eloquence, humanity, and insight that recall the writings of Hannah Arendt and Jean-Paul Sartre. Scarry begins with the fact of pain's inexpressibility. Not only is physical pain enormously difficult to describe in words--confronted with it, Virginia Woolf once noted, "language runs dry"--it also actively destroys language, reducing sufferers in the most extreme instances to an inarticulate state of cries and moans. Scarry analyzes the political ramifications of deliberately inflicted pain, specifically in the cases of torture and warfare, and shows how to be fictive. From these actions of "unmaking" Scarry turns finally to the actions of "making"--the examples of artistic and cultural creation that work against pain and the debased uses that are made of it. Challenging and inventive, The Body in Pain is landmark work that promises to spark widespread debate.

Over My Head: A Doctor's Own Story of Head Injury from the Inside Looking Out


Claudia L. Osborn - 1997
    Over My Head is an inspiring story of how one woman comes to terms with the loss of her identity and the courageous steps (and hilarious missteps) she takes while learning to rebuild her life. The author, a 45-year-old doctor and clinical professor of medicine, describes the aftermath of a brain injury eleven years ago which stripped her of her beloved profession. For years she was deprived of her intellectual companionship and the ability to handle the simplest undertakings like shopping for groceries or sorting the mail. Her progression from confusion, dysfunction, and alienation to a full, happy life is told with restraint, great style, and considerable humor.

Flash Count Diary: Menopause and the Vindication of Natural Life


Darcey Steinke - 2019
    First came hot flashes. Then insomnia. Then depression. As she struggled to express what was happening to her, she came up against a culture of silence. Throughout history, the natural physical transition of menopause has been viewed as something to deny, fear, and eradicate. Menstruation signals fertility and life, and childbirth is revered as the ultimate expression of womanhood. Menopause is seen as a harbinger of death. Some books Steinke found promoted hormone replacement therapy. Others encouraged acceptance. But Steinke longed to understand menopause in a more complex, spiritual, and intellectually engaged way.In Flash Count Diary, Steinke writes frankly about aspects of Menopause that have rarely been written about before. She explores the changing gender landscape that comes with reduced hormone levels, and lays bare the transformation of female desire and the realities of prejudice against older women. Weaving together her personal story with philosophy, science, art, and literature, Steinke reveals that in the seventeenth century, women who had hot flashes in front of others could be accused of being witches; that the model for Duchamp's famous �tant donn�s was a post-reproductive woman; and that killer whales--one of the only other species on earth to undergo menopause--live long post-reproductive lives.Flash Count Diary, with its deep research, open play of ideas, and reverence for the female body, will change the way you think about menopause. It's a deeply feminist book--honest about the intimations of mortality that menopause brings while also arguing for the ascendancy, beauty, and power of the post-reproductive years.

One Hundred Names for Love: A Memoir


Diane Ackerman - 2011
    In this extraordinary memoir, she opens a window into the experience of wordlessness—the language paralysis called aphasia. In narrating the recovery of her husband, Paul West, from a stroke that reduced his vast vocabulary to a single syllable, she evokes the joy and mystery of the brain’s ability to find and connect words. Deeply rewarding to readers of all kinds, Ackerman has given us a literary love story, accessible insight into the science and medicine of brain injury,and invaluable spiritual sustenance in the face of life’s myriad physical sufferings.

Feminist, Queer, Crip


Alison Kafer - 2013
    Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a pre-determined limit. She juxtaposes theories, movements, and identities such as environmental justice, reproductive justice, cyborg theory, transgender politics, and disability that are typically discussed in isolation and envisions new possibilities for crip futures and feminist/queer/crip alliances. This bold book goes against the grain of normalization and promotes a political framework for a more just world.

The Red Parts


Maggie Nelson - 2007
    She had arranged for a ride through the campus bulletin board at the University of Michigan in Ann Arbor, where she was one of a handful of pioneering women students at the law school. Her body was found the following morning just inside the gates of a small cemetery fourteen miles away, shot twice in the head and strangled. Six other young women were murdered around the same time, and it was assumed they had all been victims of alleged serial killer John Collins, who was convicted of one of these crimes not long after. Jane Mixer's death was long considered to be one of the infamous Michigan Murders, as they had come to be known. But officially, Jane's murder remained unsolved, and Maggie Nelson grew up haunted by the possibility that the killer of her mother's sister was still at large.In an instance of remarkable serendipity, more than three decades later, a 2004 DNA match led to the arrest of a new suspect for Jane's murder at precisely the same time that Nelson was set to publish a book of poetry about her aunt's life and death - a book she had been working on for years, and which assumed her aunt's case to be closed forever.The Red Parts chronicles the uncanny series of events that led to Nelson's interest in her aunt's death, the reopening of the case, the bizarre and brutal trial that ensued, and the effects these events had on the disparate group of people they brought together. But The Red Parts is much more than a "true crime" record of a murder, investigation, and trial. For into this story Nelson has woven an account of a girlhood and early adulthood haunted by loss, mortality, mystery, and betrayal, as well as a look at the personal and political consequences of our cultural fixation on dead (white) women.

A Journey Round My Skull


Frigyes Karinthy - 1936
    Soon it was gone, only to be succeeded by another. And another. Strange, Karinthy thought, it had been years since Budapest had streetcars. Only then did he realize he was suffering from an auditory hallucination of extraordinary intensity. What in fact Karinthy was suffering from was a brain tumor, not cancerous but hardly benign, though it was only much later—after spells of giddiness, fainting fits, friends remarking that his handwriting had altered, and books going blank before his eyes—that he consulted a doctor and embarked on a series of examinations that would lead to brain surgery. Karinthy’s description of his descent into illness and his observations of his symptoms, thoughts, and feelings, as well as of his friends’ and doctors’ varied responses to his predicament, are exact and engrossing and entirely free of self-pity. A Journey Round My Skull is not only an extraordinary piece of medical testimony, but a powerful work of literature—one that dances brilliantly on the edge of extinction.

Inconsolable: How I Threw My Mental Health Out With the Diapers


Marrit Ingman - 2005
    She went crazy—also on February 27, 2002. Her journey began with a plate of carne guisada and led to an emergency cesarian, ankyloglossia, colic, gastroesphageal reflux, eczema, Zoloft, Paxil, peanut allergy, suicidal ideation, hepatitis, and a whole lot of pie. Ingman documents the agony of elimination diets and tearful, sleepless nights with the same candor and humor she does the ecstasy of mama’s night out and her own invention, the Playgroup Drinking Game. Ingman addresses her own postpartum depression, her feelings of inadequacy, and her self-admittedly ridiculous perception that her infant son truly hates her. With irony, sarcasm, and wit, Ingman paints a portrait of parenthood far unlike the popular image of glowing bliss. She recounts the painful and difficult moments of babyhood with her colicky, difficult child with a mix of humor and anguish that reflects the transformative process of becoming a parent—the compromises, struggles, useless advice, and failed expectations.

Dirty Secret: A Daughter Comes Clean About Her Mother's Compulsive Hoarding


Jessie Sholl - 2010
    Because if my mother is one of those crazy junk-house people, then what does that make me?When her divorced mother was diagnosed with cancer, New York City writer Jessie Sholl returned to her hometown of Minneapolis to help her prepare for her upcoming surgery and get her affairs in order. While a daunting task for any adult dealing with an aging parent, it's compounded for Sholl by one lifelong, complex, and confounding truth: her mother is a compulsive hoarder. Dirty Secret is a daughter's powerful memoir of confronting her mother's disorder, of searching for the normalcy that was never hers as a child, and, finally, cleaning out the clutter of her mother's home in the hopes of salvaging the true heart of their relationship before it's too late.Growing up, young Jessie knew her mother wasn't like other mothers: chronically disorganized, she might forgo picking Jessie up from kindergarten to spend the afternoon thrift store shopping. Now, tracing the downward spiral in her mother's hoarding behavior to the death of a long-time boyfriend, she bravely wades into a pathological sea of stuff: broken appliances, moldy cowboy boots, twenty identical pairs of graying bargain-bin sneakers, abandoned arts and crafts, newspapers, magazines, a dresser drawer crammed with discarded eyeglasses, shovelfuls of junk mail . . . the things that become a hoarder's treasures. With candor, wit, and not a drop of sentimentality, Jessie Sholl explores the many personal and psychological ramifications of hoarding while telling an unforgettable mother-daughter tale.

Tell Me Everything You Don't Remember: The Stroke That Changed My Life


Christine Hyung-Oak Lee - 2017
    By that afternoon, she saw the world—quite literally—upside down. By New Year’s Day, she was unable to form a coherent sentence. And after hours in the ER, days in the hospital, and multiple questions and tests, her doctors informed her that she had had a stroke. For months afterward, Lee outsourced her memories to a journal, taking diligent notes to compensate for the thoughts she could no longer hold on to. It is from these notes that she has constructed this frank and compelling memoir.In a precise and captivating narrative, Lee navigates fearlessly between chronologies, weaving her childhood humiliations and joys together with the story of the early days of her marriage; and then later, in painstaking, painful, and unflinching detail, the account of her stroke and every upset—temporary or permanent—that it caused. Lee illuminates the connection between memory and identity in an honest, meditative, and truly funny manner, utterly devoid of self-pity. And as she recovers, she begins to realize that this unexpected and devastating event has provided a catalyst for coming to terms with her true self—and, in a way, has allowed her to become the person she’s always wanted to be.

Irritable Hearts: A PTSD Love Story


Mac McClelland - 2015
    I dissociated... Changes in self-perception and hallucinations-those are some of my other symptoms. You are poison, I chanted silently to myself. And your poison is contagious."So begins Mac McClelland's powerful, unforgettable memoir, Irritable Hearts.When thirty-year-old, award-winning human rights journalist Mac McClelland left Haiti after reporting on the devastating earthquake of 2010, she never imagined how the assignment would irrevocably affect her own life. Back home in California, McClelland cannot stop reliving vivid scenes of violence. She is plagued by waking terrors, violent fantasies, and crippling emotional breakdowns. She can't sleep or stop crying. Her life in shambles, it becomes clear that she is suffering from Post-Traumatic Stress Disorder. Her bewilderment about this sudden loss of control is magnified by the intensity of her feelings for Nico, a French soldier she met in Port-au-Prince and with whom she connected instantly and deeply.With inspiring fearlessness, McClelland tackles perhaps her most harrowing assignment to date: investigating the damage in her own mind and repairing her broken psyche. She begins to probe the depths of her illness, exploring our culture's history with PTSD, delving into the latest research by the country's top scientists and therapists, and spending time with veterans and their families. McClelland discovers she is far from alone: while we frequently associate PTSD with wartime combat, it is more often caused by other manner of trauma and can even be contagious-close proximity to those afflicted can trigger its symptoms. As she confronts the realities of her diagnosis, she opens up to the love that seems to have found her at an inopportune moment.Irritable Hearts is a searing, personal medical mystery that unfolds at a breakneck pace. But it is also a romance. McClelland fights desperately to repair her heart so that she can give it to the kind, patient, and compassionate man with whom she wants to share a life. Vivid, suspenseful, tender, and intimate, Irritable Hearts is a remarkable exploration of vulnerability and resilience, control and acceptance. It is a riveting and hopeful story of survival, strength, and love.

The Diving Bell and the Butterfly


Jean-Dominique Bauby - 1997
    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.