Book picks similar to
Raising Henry: A Memoir of Motherhood, Disability, and Discovery by Rachel Adams
memoir
non-fiction
memoirs
disability
The Horse Boy: A Father's Quest to Heal His Son
Rupert Isaacson - 2009
But when Isaacson, a lifelong horseman, rode their neighbor's horse with Rowan, Rowan improved immeasurably. He was struck with a crazy idea: why not take Rowan to Mongolia, the one place in the world where horses and shamanic healing intersected? THE HORSE BOY is the dramatic and heartwarming story of that impossible adventure. In Mongolia, the family found undreamed of landscapes and people, unbearable setbacks, and advances beyond their wildest dreams. This is a deeply moving, truly one-of-a-kind story--of a family willing to go to the ends of the earth to help their son, and of a boy learning to connect with the world for the first time.
Patient H.M.: A Story of Memory, Madness, and Family Secrets
Luke Dittrich - 2016
These “psychosurgeons,” as they called themselves, occupied a gray zone between medical research and medical practice, and ended up subjecting untold numbers of people to the types of surgical experiments once limited to chimpanzees.The most important test subject to emerge from this largely untold chapter in American history was a twenty-seven-year-old factory worker named Henry Molaison. In 1953, Henry—who suffered from severe epilepsy—received a radical new version of the lobotomy, one that targeted the most mysterious structures in the brain. The operation failed to eliminate Henry’s seizures, but it did have an unintended effect: Henry left the operating room profoundly amnesic, unable to create new long-term memories. Over the next sixty years, Patient H.M., as Henry was known, became the most studied individual in the history of neuroscience, a human guinea pig who would teach us much of what we know about memory today.Luke Dittrich uses the case of Patient H.M. as a starting point for a kaleidoscopic journey, one that moves from the first recorded brain surgeries in ancient Egypt to the cutting-edge laboratories of MIT. He takes readers inside the old asylums and operating theaters where psychosurgeons conducted their human experiments, and behind the scenes of a bitter custody battle over the ownership of the most important brain in the world. Throughout, Dittrich delves into the enduring mysteries of the mind while exposing troubling stories of just how far we’ve gone in our pursuit of knowledge. It is also, at times, a deeply personal journey. Dittrich’s grandfather was the brilliant, morally complex surgeon who operated on Molaison—and thousands of other patients. The author’s investigation into the dark roots of modern memory science ultimately forces him to confront unsettling secrets in his own family history, and to reveal the tragedy that fueled his grandfather’s relentless experimentation—experimentation that would revolutionize our understanding of ourselves.Patient H.M. combines the best of biography, memoir, and science journalism to create a haunting, endlessly fascinating story, one that reveals the wondrous and devastating things that can happen when hubris, ambition, and human imperfection collide.
No One Cares About Crazy People: The Chaos and Heartbreak of Mental Health in America
Ron Powers - 2017
Braided with that history is the moving story of Powers's beloved son Kevin--spirited, endearing, and gifted--who triumphed even while suffering from schizophrenia until finally he did not, and the story of his courageous surviving son Dean, who is also schizophrenic.A blend of history, biography, memoir, and current affairs ending with a consideration of where we might go from here, this is a thought-provoking look at a dreaded illness that has long been misunderstood.
Inferno: A Memoir of Motherhood and Madness
Catherine Cho - 2020
Before the trip’s end, she develops psychosis. In desperation, her husband admits her to a nearby psychiatric hospital, where she begins the hard work of rebuilding her identity.In this memoir Catherine reconstructs her sense of self, starting with her childhood as the daughter of Korean immigrants, moving through a traumatic past relationship, and on to the early years of her courtship with and marriage to her husband, James. She interweaves these parts of her past with an immediate recounting of the days she spent in the ward.
A Mind Unraveled
Kurt Eichenwald - 2018
In the aftermath of that critical moment, his once-carefree life would be consumed by confrontations with medical incompetence, discrimination that almost cost him his education and employment, physical abuse, and dark moments when he contemplated suicide.This is the story of one man's battle to pursue his dreams despite an often incapacitating brain disorder. From his early experiences of fear and denial to his exasperating search for treatment, Eichenwald provides a deeply candid account of his years facing this misunderstood and often stigmatized condition. He details his encounters with the doctors whose negligence could have killed him, but for the heroic actions of a brilliant neurologist and the family and friends who fought for him.Many of Eichenwald's recollections are drawn from his diaries, vivid and painstakingly kept records that helped sharpen his skills as a journalist. He raises important questions about the nature of memory, the revelations of brain science, and the profound mysteries of human perception.Ultimately, A Mind Unraveled is an inspirational story, one that chronicles how Eichenwald, faced often with his own mortality, transformed trauma into a guide for reaching the future he desired. Defying relentless threats to his emotional and physical well-being, he affirmed his decision to never give up, and in the process learned how to rise from the depths of despair to the heights of unimagined success.
Once I Was You: A Memoir of Love and Hate in a Torn America
María Hinojosa - 2020
Years ago, when In the Heights was just starting off-Broadway, Maria got the word out to our community to support this new musical about our neighborhoods. She has been a champion of our triumphs, a critic of our detractors, and a driving force to right the wrongs our society faces. When Maria speaks, I’m ready to listen and learn.” —Lin-Manuel Miranda Emmy Award–winning journalist and anchor of NPR’s Latino USA, Maria Hinojosa, tells the story of immigration in America through her family’s experiences and decades of reporting, painting an unflinching portrait of a country in crisis.Maria Hinojosa is an award-winning journalist who has collaborated with the most respected networks and is known for bringing humanity to her reporting. In this beautifully-rendered memoir, she relates the history of US immigration policy that has brought us to where we are today, as she shares her deeply personal story. For thirty years, Maria Hinojosa has reported on stories and communities in America that often go ignored by the mainstream media. Bestselling author Julia Alvarez has called her “one of the most important, respected, and beloved cultural leaders in the Latinx community.” In Once I Was You, Maria shares her intimate experience growing up Mexican American on the south side of Chicago and documenting the existential wasteland of immigration detention camps for news outlets that often challenged her work. In these pages, she offers a personal and eye-opening account of how the rhetoric around immigration has not only long informed American attitudes toward outsiders, but also enabled willful negligence and profiteering at the expense of our country’s most vulnerable populations—charging us with the broken system we have today. This honest and heartrending memoir paints a vivid portrait of how we got here and what it means to be a survivor, a feminist, a citizen, and a journalist who owns her voice while striving for the truth. Once I Was You is an urgent call to fellow Americans to open their eyes to the immigration crisis and understand that it affects us all. Also available in Spanish as Una vez fui tú.
Hill Women: Finding Family and a Way Forward in the Appalachian Mountains
Cassie Chambers - 2020
Nestled in the Appalachian mountains, Owsley County is one of the poorest counties in both Kentucky and the country. Buildings are crumbling and fields sit vacant, as tobacco farming and coal mining decline. But strong women are finding creative ways to subsist in their hollers in the hills. Cassie Chambers grew up in these hollers and, through the women who raised her, she traces her own path out of and back into the Kentucky mountains. Chambers’s Granny was a child bride who rose before dawn every morning to raise seven children. Despite her poverty, she wouldn’t hesitate to give the last bite of pie or vegetables from her garden to a struggling neighbor. Her two daughters took very different paths: strong-willed Ruth—the hardest-working tobacco farmer in the county—stayed on the family farm, while spirited Wilma—the sixth child—became the first in the family to graduate from high school, then moved an hour away for college. Married at nineteen and pregnant with Cassie a few months later, Wilma beat the odds to finish school. She raised her daughter to think she could move mountains, like the ones that kept her safe but also isolated her from the larger world. Cassie would spend much of her childhood with Granny and Ruth in the hills of Owsley County, both while Wilma was in college and after. With her “hill women” values guiding her, Cassie went on to graduate from Harvard Law. But while the Ivy League gave her knowledge and opportunities, its privileged world felt far from her reality, and she moved back home to help her fellow rural Kentucky women by providing free legal services. Appalachian women face issues that are all too common: domestic violence, the opioid crisis, a world that seems more divided by the day. But they are also community leaders, keeping their towns together in the face of a system that continually fails them. With nuance and heart, Chambers uses these women’s stories paired with her own journey to break down the myth of the hillbilly and illuminate a region whose poor communities, especially women, can lead it into the future.
My Stroke of Insight: A Brain Scientist's Personal Journey
Jill Bolte Taylor - 2006
Through the eyes of a curious scientist, she watched her mind deteriorate whereby she could not walk, talk, read, write, or recall any of her life. Because of her understanding of the brain, her respect for the cells in her body, and an amazing mother, Jill completely recovered. In My Stroke of Insight, she shares her recommendations for recovery and the insight she gained into the unique functions of the two halves of her brain. When she lost the skills of her left brain, her consciousness shifted away from normal reality where she felt "at one with the universe." Taylor helps others not only rebuild their brains from trauma, but helps those of us with normal brains better understand how we can consciously influence the neural circuitry underlying what we think, how we feel and how we react to life's circumstances.
Ghostbelly
Elizabeth D. Heineman - 2014
It’s also Heineman’s unexpected tale of the loss of a newborn: before burial, she brings the baby home for overnight stays.Does this sound unsettling? Of course. We’re not supposed to hold and caress dead bodies. But then again, babies aren’t supposed to die.In this courageous and deeply intimate memoir, Heineman examines the home-birth and maternal health-care industry, the isolation of midwives, and the scripting of her own grief. With no resolution to sadness, Heineman and her partner learn to live in a new world: a world in which they face each day with the understanding of the fragility of the present.
Disability Visibility: First-Person Stories from the Twenty-first Century
Alice WongChristie Thompson - 2020
Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
American Baby: A Mother, a Child, and the Shadow History of Adoption
Gabrielle Glaser - 2021
In 1960s America, premarital sex was not uncommon, but birth control was hard to get and abortion was illegal. In 1961, sixteen-year-old Margaret Erle became pregnant. Her unsympathetic family sent her to a maternity home. In the hospital, nurses would not even allow her to hold her own newborn. After she was finally badgered into signing away her rights, her son vanished into an adoption agency's hold.Claiming to be acting in the best interests of all, the adoption business was founded on secrecy and lies. American Baby lays out how a lucrative and exploitative industry removed children from their birth mothers and place them with families, fabricating stories about infants' origins and destinations, then closing the door firmly between the parties forever. They struck shady deals with doctors and researchers for pseudoscientific "assessments," and shamed millions of young women into surrendering their children.Gabrielle Glaser dramatically demonstrates the expectations and institutions that Margaret was up against. Though Margaret went on to marry and raise a large family with David's father, she never stopped longing for and worrying about her firstborn. She didn't know he spent the first years of his life living just a few blocks away from her, wondering often about where he came from and why he was given up. Their tale--one they share with millions of Americans--is one of loss, love, and the search for identity.Adoption's closed records are being legally challenged in states nationwide. Open adoption is the rule today, but the identities of many who were adopted or who surrendered a child in the decades this book covers are locked in sealed files. American Baby both illuminates a dark time in our history and shows a path to justice, honesty and reunion that can help heal the wounds inflicted by years of shame and secrecy.
The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors, and the Collision of Two Cultures
Anne Fadiman - 1997
By 1988 she was living at home but was brain dead after a tragic cycle of misunderstanding, over-medication, and culture clash: "What the doctors viewed as clinical efficiency the Hmong viewed as frosty arrogance." The Spirit Catches You and You Fall Down is a tragedy of Shakespearean dimensions, written with the deepest of human feeling. Sherwin Nuland said of the account, "There are no villains in Fadiman's tale, just as there are no heroes. People are presented as she saw them, in their humility and their frailty—and their nobility.
Battle Hymn of the Tiger Mother
Amy Chua - 2011
This was supposed to be a story of how Chinese parents are better at raising kids than Western ones. But instead, it's about a bitter clash of cultures, a fleeting taste of glory, and how I was humbled by a thirteen-year-old." —Amy ChuaAll decent parents want to do what's best for their children. What Battle Hymn of the Tiger Mother reveals is that the Chinese just have a totally different idea of how to do that. Western parents try to respect their children's individuality, encouraging them to pursue their true passions and providing a nurturing environment. The Chinese believe that the best way to protect your children is by preparing them for the future and arming them with skills, strong work habits, and inner confidence. Battle Hymn of the Tiger Mother chronicles Chua's iron-willed decision to raise her daughters, Sophia and Lulu, her way—the Chinese way—and the remarkable results her choice inspires.Here are some things Amy Chua would never allow her daughters to do:- have a playdate- be in a school play- complain about not being in a school play- not be the #1 student in every subject except gym and drama- play any instrument other than the piano or violin- not play the piano or violinThe truth is Lulu and Sophia would never have had time for a playdate. They were too busy practicing their instruments (two to three hours a day and double sessions on the weekend) and perfecting their Mandarin.Of course no one is perfect, including Chua herself. Witness this scene:"According to Sophia, here are three things I actually said to her at the piano as I supervised her practicing:- Oh my God, you're just getting worse and worse.- I'm going to count to three, then I want musicality.- If the next time's not PERFECT, I'm going to take all your stuffed animals and burn them!"But Chua demands as much of herself as she does of her daughters. And in her sacrifices—the exacting attention spent studying her daughters' performances, the office hours lost shuttling the girls to lessons—the depth of her love for her children becomes clear. Battle Hymn of the Tiger Mother is an eye-opening exploration of the differences in Eastern and Western parenting—and the lessons parents and children everywhere teach one another.
From Here to Eternity: Traveling the World to Find the Good Death
Caitlin Doughty - 2017
From Zoroastrian sky burials to wish-granting Bolivian skulls, she investigates the world’s funerary customs and expands our sense of what it means to treat the dead with dignity. Her account questions the rituals of the American funeral industry—especially chemical embalming—and suggests that the most effective traditions are those that allow mourners to personally attend to the body of the deceased. Exquisitely illustrated by artist Landis Blair, From Here to Eternity is an adventure into the morbid unknown, a fascinating tour through the unique ways people everywhere confront mortality.
Where the Light Gets In: Losing My Mother Only to Find Her Again
Kimberly Williams-Paisley - 2016
But behind the scenes, Kim was dealing with a tragic secret: her mother, Linda, was suffering from a rare form of dementia that slowly crippled her ability to talk, write and eventually recognize people in her own family. Where the Light Gets In tells the full story of Linda’s illness—called primary progressive aphasia—from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humor and grace in the midst of suffering. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, Where the Light Gets In is a heartwarming tribute to the often fragile yet unbreakable relationships we have with our mothers.