Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body


Martin Pistorius - 2011
    But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.

Your Life in My Hands: A Junior Doctor's Story


Rachel Clarke - 2017
    It is 4 a.m. I have run arrest calls, treated life-threatening bleeding, held the hand of a young woman dying of cancer, scuttled down miles of dim corridors wanting to sob with sheer exhaustion, forgotten to eat, forgotten to drink, drawn on every fibre of strength that I possess to keep my patients safe from harm.'How does it feel to be spat out of medical school into a world of pain, loss and trauma that you feel wholly ill-equipped to handle? To be a medical novice who makes decisions which - if you get them wrong - might forever alter, or end, a person's life?In 'Your Life in My Hands', television journalist turned junior doctor Rachel Clarke captures the extraordinary realities of life on the NHS frontline. During last year's historic junior doctor strikes, Rachel was at the forefront of the campaign against the government's imposed contract upon young doctors. Her heartfelt, deeply personal account of life as a junior doctor in today's NHS is both a powerful polemic on the degradation of Britain's most vital public institution and a love letter of optimism and hope to that same health service.

Something for the Pain: Compassion and Burnout in the ER


Paul Austin - 2009
    Gritty, powerful, and ultimately redemptive, Something for the Pain is a revealing glimpse into the fragility of compassion and sanity in the industrial setting of today’s hospitals.

Night


Elie Wiesel - 1956
    Night is the terrifying record of Elie Wiesel's memories of the death of his family, the death of his own innocence, and his despair as a deeply observant Jew confronting the absolute evil of man. This new translation by his wife and most frequent translator, Marion Wiesel, corrects important details and presents the most accurate rendering in English of Elie Wiesel's testimony to what happened in the camps and of his unforgettable message that this horror must simply never be allowed to happen again.

Night Flying Woman: An Ojibway Narrative


Ignatia Broker - 1983
    But this story also tells of her people's great strength and continuity. This popular book is also available on audiotape read by Debra Smith. An enrolled member of the Red Lake Band of Chippewa, she has performed her own poetry on a syndicated radio series on Native writers. Ignatia Broker, who died in 1987, was a story-teller and teacher in the Ojibway tradition. In 1984 she received a Wonder Woman Foundation award honoring her as a woman striving for peace and equality.

Prognosis: A Memoir of My Brain


Sarah Vallance - 2019
    The next morning, things take a sharp turn as she’s led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.Afraid of judgment and deemed no longer fit for work, Sarah isolates herself from the outside world. She spends months at home, with her dogs as her only source of companionship, battling a personality she no longer recognizes and her shock and rage over losing simple functions she’d taken for granted. Her life is consumed by fear and shame until a chance encounter gives Sarah hope that her brain can heal. That conversation lights a small flame of determination, and Sarah begins to push back, painstakingly reteaching herself to read and write, and eventually reentering the workforce and a new, if unpredictable, life.In this highly intimate account of devastation and renewal, Sarah pulls back the curtain on life with traumatic brain injury, an affliction where the wounds are invisible and the lasting effects are often misunderstood. Over years of frustrating setbacks and uncertain triumphs, Sarah comes to terms with her disability and finds love with a woman who helps her embrace a new, accepting sense of self.

That Good Night: Life and Medicine in the Eleventh Hour


Sunita Puri - 2019
    Sunita Puri knew from a young age that the gulf between her parents' experiences and her own was impossible to bridge, save for two elements: medicine and spirituality. Between days spent waiting for her mother, an anesthesiologist, to exit the OR, and evenings spent in conversation with her parents about their faith, Puri witnessed the tension between medicine's impulse to preserve life at all costs and a spiritual embrace of life's temporality. And it was that tension that eventually drew Puri, a passionate but unsatisfied medical student, to palliative medicine--a new specialty attempting to translate the border between medical intervention and quality-of-life care.Interweaving evocative stories of Puri's family and the patients she cares for, That Good Night is a stunning meditation on impermanence and the role of medicine in helping us to live and die well, arming readers with information that will transform how we communicate with our doctors about what matters most to us.

The Woman Warrior


Maxine Hong Kingston - 1976
    A Chinese American woman tells of the Chinese myths, family stories and events of her California childhood that have shaped her identity.

Don't Sleep, There Are Snakes: Life and Language in the Amazonian Jungle


Daniel L. Everett - 2008
    Everett, then a Christian missionary, arrived among the Pirahã in 1977–with his wife and three young children–intending to convert them. What he found was a language that defies all existing linguistic theories and reflects a way of life that evades contemporary understanding: The Pirahã have no counting system and no fixed terms for color. They have no concept of war or of personal property. They live entirely in the present. Everett became obsessed with their language and its cultural and linguistic implications, and with the remarkable contentment with which they live–so much so that he eventually lost his faith in the God he’d hoped to introduce to them. Over three decades, Everett spent a total of seven years among the Pirahã, and his account of this lasting sojourn is an engrossing exploration of language that questions modern linguistic theory. It is also an anthropological investigation, an adventure story, and a riveting memoir of a life profoundly affected by exposure to a different culture. Written with extraordinary acuity, sensitivity, and openness, it is fascinating from first to last, rich with unparalleled insight into the nature of language, thought, and life itself.

Klee Wyck


Emily Carr - 1941
    Her first book, published in 1941, was titled Klee Wyck ("Laughing One"), in honour of the name that the Native people fo the west coast gave her as an intrepid young woman. The book was a hit with both critics and the public, won the prestigious Governor Generals' Award and has been in print ever since.Emily Carr wrote these twenty-one word sketches after visiting and living with Native people, painting their totem poles and villages, many of them in wild and remote areas. She tells her stories with beauty, pathos and a vivid awareness of the comedy of people and situations.A few years after Carr's death, signifcant deletions were made to her book for an educational edition. This new, beautifully designed keepsake volume restores Klee Wyck to its original published verison, making the complete work available for th e first tim in more than fifty years. In her intriguing introduction, archivist and writer Kathryn Bridge puts Klee Wyck into the context of Emily Carr's life and reveals the story behind the expurgations.

Short Nights of the Shadow Catcher: The Epic Life and Immortal Photographs of Edward Curtis


Timothy Egan - 2011
    He moved in rarefied circles, a friend to presidents, vaudeville stars, leading thinkers. And he was thirty-two years old in 1900 when he gave it all up to pursue his Great Idea: to capture on film the continent’s original inhabitants before the old ways disappeared.An Indiana Jones with a camera, Curtis spent the next three decades traveling from the Havasupai at the bottom of the Grand Canyon to the Acoma on a high mesa in New Mexico to the Salish in the rugged Northwest rain forest, documenting the stories and rituals of more than eighty tribes. It took tremendous perseverance - ten years alone to persuade the Hopi to allow him into their Snake Dance ceremony. And the undertaking changed him profoundly, from detached observer to outraged advocate. Eventually Curtis took more than 40,000 photographs, preserved 10,000 audio recordings, and is credited with making the first narrative documentary film. In the process, the charming rogue with the grade school education created the most definitive archive of the American Indian. His most powerful backer was Theodore Roosevelt, and his patron was J. P. Morgan. Despite the friends in high places, he was always broke and often disparaged as an upstart in pursuit of an impossible dream. He completed his masterwork in 1930, when he published the last of the twenty volumes. A nation in the grips of the Depression ignored it. But today rare Curtis photogravures bring high prices at auction, and he is hailed as a visionary. In the end he fulfilled his promise: He made the Indians live forever.

In Stitches: The Highs and Lows of Life as an A&E Doctor


Nick Edwards - 2007
    He lifts the lid on government targets that led to poor patient care. He reveals the level of alcohol-related injuries that often bring the service to a near standstill. He shows just how bloody hard it is to look after the people who turn up at the hospital door.But he also shares the funny side - the unusual ‘accidents’ that result in with weird objects inserted in places they really should have ended up - and also the moving, tragic and heartbreaking.It really is an unforgettable read.

Home: A Memoir of My Early Years


Julie Andrews Edwards - 2008
    But she has never told the story of her life before fame. Until now.In Home: A Memoir of My Early Years, Julie takes her readers on a warm, moving, and often humorous journey from a difficult upbringing in war-torn Britain to the brink of international stardom in America. Her memoir begins in 1935, when Julie was born to an aspiring vaudevillian mother and a teacher father, and takes readers to 1962, when Walt Disney himself saw her on Broadway and cast her as the world's most famous nanny.Along the way, she weathered the London Blitz of World War II; her parents' painful divorce; her mother's turbulent second marriage to Canadian tenor Ted Andrews, and a childhood spent on radio, in music halls, and giving concert performances all over England. Julie's professional career began at the age of twelve, and in 1948 she became the youngest solo performer ever to participate in a Royal Command Performance before the Queen. When only eighteen, she left home for the United States to make her Broadway debut in The Boy Friend, and thus began her meteoric rise to stardom.Home is filled with numerous anecdotes, including stories of performing in My Fair Lady with Rex Harrison on Broadway and in the West End, and in Camelot with Richard Burton on Broadway; her first marriage to famed set and costume designer Tony Walton, culminating with the birth of their daughter, Emma; and the call from Hollywood and what lay beyond.Julie Andrews' career has flourished over seven decades. From her legendary Broadway performances, to her roles in such iconic films as The Sound of Music, Mary Poppins, Thoroughly Modern Millie, Hawaii, 10, and The Princess Diaries, to her award-winning television appearances, multiple album releases, concert tours, international humanitarian work, best-selling children's books, and championship of literacy, Julie's influence spans generations. Today, she lives with her husband of thirty-eight years, the acclaimed writer/director Blake Edwards; they have five children and seven grandchildren.

In Pain: A Bioethicist's Personal Struggle with Opioids


Travis Rieder - 2019
    Enduring half a dozen surgeries, the drugs he received were both miraculous and essential to his recovery. But his most profound suffering came several months later when he went into acute opioid withdrawal while following his physician’s orders. Over the course of four excruciating weeks, Rieder learned what it means to be “dope sick”—the physical and mental agony caused by opioid dependence. Clueless how to manage his opioid taper, Travis’s doctors suggested he go back on the drugs and try again later. Yet returning to pills out of fear of withdrawal is one route to full-blown addiction. Instead, Rieder continued the painful process of weaning himself.Rieder’s experience exposes a dark secret of American pain management: a healthcare system so conflicted about opioids, and so inept at managing them, that the crisis currently facing us is both unsurprising and inevitable. As he recounts his story, Rieder provides a fascinating look at the history of these drugs first invented in the 1800s, changing attitudes about pain management over the following decades, and the implementation of the pain scale at the beginning of the twenty-first century. He explores both the science of addiction and the systemic and cultural barriers we must overcome if we are to address the problem effectively in the contemporary American healthcare system.In Pain in America is not only a gripping personal account of dependence, but a groundbreaking exploration of the intractable causes of America’s opioid problem and their implications for resolving the crisis. Rieder makes clear that the opioid crisis exists against a backdrop of real, debilitating pain—and that anyone can fall victim to this epidemic.

Chasing My Cure: A Doctor's Race to Turn Hope into Action


David Fajgenbaum - 2019
    But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime.Miraculously, Fajgenbaum survived--only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself.More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide.