Book picks similar to
Sound: A Story of Hearing Lost and Found (Wellcome) by Bella Bathurst
non-fiction
memoir
memoirs
biography
Hands of My Father: A Hearing Boy, His Deaf Parents, and the Language of Love
Myron Uhlberg - 2009
Translating from sign language to spoken language and back again, he enables his father to communicate with local shopkeepers, awakens his parents when his baby brother cries, and even interprets at a less-than-glowing parent-teacher conference. At times, he's embarrassed by his parents, and hurt that his father is called "dummy." But in the end, his overwhelming love and compassion leaves a lasting effect.
Galileo's Middle Finger: Heretics, Activists, and the Search for Justice in Science
Alice Domurat Dreger - 2015
For two decades, historian Alice Dreger has led a life of extraordinary engagement, combining activist service to victims of unethical medical research with defense of scientists whose work has outraged identity politics activists. With spirit and wit, Dreger offers in Galileo’s Middle Finger an unforgettable vision of the importance of rigorous truth seeking in today’s America, where both the free press and free scholarly inquiry struggle under dire economic and political threats.This illuminating chronicle begins with Dreger’s own research into the treatment of people born intersex (once called hermaphrodites). Realization of the shocking surgical and ethical abuses conducted in the name of “normalizing” intersex children’s gender identities moved Dreger to become an internationally recognized patient rights’ activist. But even as the intersex rights movement succeeded, Dreger began to realize how some fellow progressive activists were employing lies and personal attacks to silence scientists whose data revealed uncomfortable truths about humans. In researching one such case, Dreger suddenly became the target of just these kinds of attacks.Troubled, she decided to try to understand more—to travel the country to ferret out the truth behind various controversies, to obtain a global view of the nature and costs of these battles. Galileo’s Middle Finger describes Dreger’s long and harrowing journeys between the two camps for which she felt equal empathy: social justice activists determined to win and researchers determined to put hard truths before comfort. Ultimately what emerges is a lesson about the intertwining of justice and of truth—and a lesson of the importance of responsible scholars and journalists to our fragile democracy.
Every Patient Tells a Story: Medical Mysteries and the Art of Diagnosis
Lisa Sanders - 2009
Lisa Sanders, author of the monthly New York Times Magazine column "Diagnosis," the inspiration for the hit Fox TV series House, M.D.The experience of being ill can be like waking up in a foreign country. Life, as you formerly knew it, is on hold while you travel through this other world as unknown as it is unexpected. When I see patients in the hospital or in my office who are suddenly, surprisingly ill, what they really want to know is, ‘What is wrong with me?’ They want a road map that will help them manage their new surroundings. The ability to give this unnerving and unfamiliar place a name, to know it–on some level–restores a measure of control, independent of whether or not that diagnosis comes attached to a cure. Because, even today, a diagnosis is frequently all a good doctor has to offer.A healthy young man suddenly loses his memory–making him unable to remember the events of each passing hour. Two patients diagnosed with Lyme disease improve after antibiotic treatment–only to have their symptoms mysteriously return. A young woman lies dying in the ICU–bleeding, jaundiced, incoherent–and none of her doctors know what is killing her. In Every Patient Tells a Story, Dr. Lisa Sanders takes us bedside to witness the process of solving these and other diagnostic dilemmas, providing a firsthand account of the expertise and intuition that lead a doctor to make the right diagnosis.Never in human history have doctors had the knowledge, the tools, and the skills that they have today to diagnose illness and disease. And yet mistakes are made, diagnoses missed, symptoms or tests misunderstood. In this high-tech world of modern medicine, Sanders shows us that knowledge, while essential, is not sufficient to unravel the complexities of illness. She presents an unflinching look inside the detective story that marks nearly every illness–the diagnosis–revealing the combination of uncertainty and intrigue that doctors face when confronting patients who are sick or dying. Through dramatic stories of patients with baffling symptoms, Sanders portrays the absolute necessity and surprising difficulties of getting the patient’s story, the challenges of the physical exam, the pitfalls of doctor-to-doctor communication, the vagaries of tests, and the near calamity of diagnostic errors. In Every Patient Tells a Story, Dr. Sanders chronicles the real-life drama of doctors solving these difficult medical mysteries that not only illustrate the art and science of diagnosis, but often save the patients’ lives.
The Lady's Handbook for Her Mysterious Illness
Sarah Ramey - 2020
Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological.The Lady's Handbook for Her Mysterious Illness is a memoir with a mission, to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.Ramey's pursuit of a diagnosis and cure for her own mysterious illness is a medical mystery that she says reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connection to the state of our microbiomes.
The Panic Years: Dates, Doubts, and the Mother of All Decisions
Nell Frizzell - 2021
During this time, every decision a woman makes - from postcode to partner, friends to family, work to weekends - will be impacted by the urgency of the one decision with a deadline, the one decision that is impossible to take back: whether or not to have a baby.But how to stay sane in such a maddening time?How to understand who you are and what you might want from life?How to know if you're making the right decisions?Raw, hilarious and beguilingly honest, Nell Frizzell's account of her panic years is both an arm around the shoulder and a campaign to start a conversation. This affects us all - women, men, mothers, children, partners, friends, colleagues - so it's time we started talking about it with a little more candour.
Not My Father's Son
Alan Cumming - 2014
Until one day they all flood back in horrible detail.When television producers approached Alan Cumming to appear on a popular celebrity genealogy show, he hoped to solve the mystery of his maternal grandfather's disappearance that had long cast a shadow over his family. But this was not the only mystery laid before Alan.Alan grew up in the grip of a man who held his family hostage, someone who meted out violence with a frightening ease, who waged a silent war with himself that sometimes spilled over onto everyone around him. That man was Alex Cumming, Alan's father, whom Alan had not seen or spoken to for more than a decade when he reconnected just before filming for Who Do You Think You Are? began. He had a secret he had to share, one that would shock his son to his very core and set into motion a journey that would change Alan's life forever.With ribald humor, wit, and incredible insight, Alan seamlessly moves back and forth in time, integrating stories from his childhood in Scotland and his experiences today as the celebrated actor of film, television, and stage. At times suspenseful, at times deeply moving, but always incredibly brave and honest, Not My Father's Son is a powerful story of embracing the best aspects of the past and triumphantly pushing the darkness aside.
Silver Screen Fiend: Learning About Life from an Addiction to Film
Patton Oswalt - 2015
It wasn’t drugs, alcohol, or sex: it was film. After moving to Los Angeles, Oswalt became a huge film buff (or as he calls it, a sprocket fiend), absorbing classics, cult hits, and new releases at the famous New Beverly Cinema. Silver screen celluloid became Patton’s life schoolbook, informing his notion of acting, writing, comedy, and relationships.Set in the nascent days of LA’s alternative comedy scene, Silver Screen Fiend chronicles Oswalt’s journey from fledgling stand-up comedian to self-assured sitcom actor, with the colorful New Beverly collective and a cast of now-notable young comedians supporting him all along the way.
How Did You Get This Number: Essays
Sloane Crosley - 2010
From the author of the sensational bestseller I Was Told There'd Be Cake comes a new book of personal essays brimming with all the charm and wit that have earned Sloane Crosley widespread acclaim, award nominations, and an ever-growing cadre of loyal fans. In Cake readers were introduced to the foibles of Crosley's life in New York City-always teetering between the glamour of Manhattan parties, the indignity of entry-level work, and the special joy of suburban nostalgia-and to a literary voice that mixed Dorothy Parker with David Sedaris and became something all its own.Crosley still lives and works in New York City, but she's no longer the newcomer for whom a trip beyond the Upper West Side is a big adventure. She can pack up her sensibility and take us with her to Paris, to Portugal (having picked it by spinning a globe and putting down her finger, and finally falling in with a group of Portuguese clowns), and even to Alaska, where the "bear bells" on her fellow bridesmaids' ponytails seemed silly until a grizzly cub dramatically intrudes. Meanwhile, back in New York, where new apartments beckon and taxi rides go awry, her sense of the city has become more layered, her relationships with friends and family more complicated.As always, Crosley's voice is fueled by the perfect witticism, buoyant optimism, flair for drama, and easy charm in the face of minor suffering or potential drudgery. But in How Did You Get This Number it has also become increasingly sophisticated, quicker and sharper to the point, more complex and lasting in the emotions it explores. And yet, Crosley remains the unfailingly hilarious young Every woman, healthily equipped with intelligence and poise to fend off any potential mundanity in maturity.Show me the doll --Lost in space --Take a stab at it --It's always home you'll miss --Light pollution --If you sprinkle --An abbreviated catalog of tongues --Le Paris! --Off the back of a truck
Pain and Prejudice: A Call to Arms for Women and Their Bodies
Gabrielle Jackson - 2019
And many are so, so tired … But women's pain is all too often dismissed, their illnesses misdiagnosed or ignored. In medicine, man is the default human being. Any deviation is atypical, abnormal, deficient.'Fourteen years after being diagnosed with endometriosis, Gabrielle Jackson couldn't believe how little had changed in the treatment and knowledge of the disease. In 2015, her personal story kick-started a worldwide investigation into the disease by The Guardian; thousands of women got in touch to tell their own stories and many more read and shared the material. What began as one issue led Jackson to explore how women - historically and through to the present day - are under-served by the systems that should keep them happy, healthy and informed about their bodies.Pain and Prejudice is a vital testament to how social taboos and medical ignorance keep women sick and in anguish. The stark reality is that women's pain is not taken as seriously as men's. Women are more likely to be disbelieved and denied treatment than men, even though women are far more likely to be suffering from chronic pain.In a potent blend of personal memoir and polemic, Jackson confronts the private concerns and questions women face regarding their health and medical treatment. Pain and Prejudice, finally, explains how we got here, and where we need to go next.
Sickened: The Memoir of a Munchausen by Proxy Childhood
Julie Gregory - 2003
Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.
Into the Planet: My Life as a Cave Diver
Jill Heinerth - 2019
From one of the top cave divers working today—and one of the very few women in her field—Into the Planet blends science, adventure, and memoir to bring readers face-to-face with the terror and beauty of earth’s remaining unknowns and the extremes of human capability.Jill Heinerth—the first person in history to dive deep into an Antarctic iceberg and leader of a team that discovered the ancient watery remains of Mayan civilizations—has descended farther into the inner depths of our planet than any other woman. She takes us into the harrowing split-second decisions that determine whether a diver makes it back to safety, the prejudices that prevent women from pursuing careers underwater, and her endeavor to recover a fallen friend’s body from the confines of a cave. But there’s beauty beyond the danger of diving, and while Heinerth swims beneath our feet in the lifeblood of our planet, she works with biologists discovering new species, physicists tracking climate change, and hydrogeologists examining our finite freshwater reserves. Written with hair-raising intensity, Into the Planet is the first book to deliver an intimate account of cave diving, transporting readers deep into inner space, where fear must be reconciled and a mission’s success balances between knowing one’s limits and pushing the envelope of human endurance.
Sick: A Memoir
Porochista Khakpour - 2018
For most of that time, she didn't know why. All of her trips to the ER and her daily anguish, pain, and lethargy only ever resulted in one question: How could any one person be this sick? Several drug addictions, three major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's arduous, emotional journey—as a woman, a writer, and a lifelong sufferer of undiagnosed health problems—through the chronic illness that perpetually left her a victim of anxiety, living a life stymied by an unknown condition.Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, New Mexico, and Germany—as she meditates on both the physical and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. With candor and grace, she examines her subsequent struggles with mental illness, her addiction to the benzodiazepines prescribed by her psychiatrists, and her ever-deteriorating physical health. A story about survival, pain, and transformation, Sick is a candid, illuminating narrative of hope and uncertainty, boldly examining the deep impact of illness on one woman's life.
Vagina Problems: Endometriosis, Painful Sex, and Other Taboo Topics
Lara Parker - 2020
But I was getting there. I wanted the world to know that all of this pain I had been feeling…that it was related to my vagina. Thus, Vagina Problems was born. It was a cutesy name. It was my way of taking this pain and saying, “Whatever. I’m here. I have it. It sucks. Let’s talk about it.”In April 2014, Deputy Editorial Director at BuzzFeed Lara Parker opened up to the world in an article on the website: she suffers from endometriosis. And beyond that? She let the whole world know that she wasn’t having any sex, as sex was excruciatingly painful. Less than a year before, she received not only the diagnosis of endometriosis, but also a diagnosis of pelvic floor dysfunction, vulvodynia, vaginismus, and vulvar vestibulitis. Combined, these debilitating conditions have wreaked havoc on her life, causing excruciating pain throughout her body since she was fourteen years old. These are her Vagina Problems. It was five years before Lara learned what was happening to her body. Five years of doctors insisting she just had “bad period cramps,” or implying her pain was psychological. Shamed and stigmatized, Lara fought back against a medical community biased against women and discovered that the ignorance of many doctors about women’s anatomy was damaging more than just her own life. One in ten women have endometriosis and it takes an average of seven years before they receive an accurate diagnosis—or any relief from this incurable illness’ chronic pain. With candid revelations about her vaginal physical therapy, dating as a straight woman without penetrative sex, coping with painful seizures while at the office, diet and wardrobe malfunctions when your vagina hurts all the time, and the depression and anxiety of feeling unloved, Lara tackles it all in Vagina Problems: Endometriosis, Painful Sex, and Other Taboo Topics with courage, wit, love, and a determination to live her best life."
Darkness Visible: A Memoir of Madness
William Styron - 1990
Styron is perhaps the first writer to convey the full terror of depression's psychic landscape, as well as the illuminating path to recovery.
The Prison Doctor
Amanda Brown - 2019
From miraculous pregnancies to dirty protests, and from violent attacks on prisoners to heartbreaking acts of self-harm, she has witnessed it all. In this memoir, Amanda reveals the stories, the patients and the cases that have shaped a career helping those most of us would rather forget.