Invisible: How Young Women with Serious Health Issues Navigate Work, Relationships, and the Pressure to Seem Just Fine


Michele Lent Hirsch - 2018
    She did.Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.Author Michele Lent Hirsch knew she couldn't be the only woman who's faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population with important stories to tell.Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system--a system where young women, especially women of color and trans women, are invisible.And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.

Drifting into Darien: A Personal and Natural History of the Altamaha River


Janisse Ray - 2011
    Tucked in a life preserver, she washed onto a sandbar as the craft sank from view. That first baptism began a lifelong relationship with a stunning and powerful river that almost nobody knows.The Altamaha rises dark and mysterious in southeast Georgia. It is deep and wide bordered by swamps. Its corridor contains an extraordinary biodi­versity, including many rare and endangered species, which led the Nature Conservancy to designate it as one of the world’s last great places.The Altamaha is Ray’s river, and from childhood she dreamed of paddling its entire length to where it empties into the sea. Drifting into Darien begins with an account of finally making that journey, turning to medita­tions on the many ways we accept a world that contains both good and evil. With praise, biting satire, and hope, Ray contemplates transformation and attempts with every page to settle peacefully into the now.Though commemorating a history that includes logging, Ray celebrates “a culture that sprang from the flatwoods, which required a judicious use of nature.” She looks in vain for an ivorybill woodpecker but is equally eager to see any of the imperiled species found in the river basin: spiny mussel, American oystercatcher, Radford’s mint, Alabama milkvine. The book explores both the need and the possibilities for conservation of the river and the surrounding forests and wetlands. As in her groundbreaking Ecology of a Cracker Childhood, Ray writes an account of her beloved river that is both social history and natural history, understanding the two as inseparable, particularly in the rural corner of Georgia that she knows best. Ray goes looking for wisdom and finds a river.

Mom's Cancer


Brian Fies - 2006
    Honest, unflinching, and sometimes humorous, it is a look at the practical and emotional effect that serious illness can have on patients and their families. In the end, it is a story of hope--uniquely told in words and illustrations.

The Diving Bell and the Butterfly


Jean-Dominique Bauby - 1997
    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

Horizon


Barry Lopez - 2019
    As he takes us on these myriad travels, Lopez also probes the long history of humanity's quests and explorations, including the prehistoric peoples who trekked across Skraeling Island in northern Canada, the colonialists who plundered Central Africa, an enlightenment-era Englishman who sailed the Pacific, a Native American emissary who found his way into isolationist Japan, and today's ecotourists in the tropics. Throughout his journeys--to some of the hottest, coldest, and most desolate places on the globe--and via friendships he forges along the way with scientists, archaeologists, artists and local residents, Lopez searches for meaning and purpose in a broken world. Horizon is a revelatory, epic work that voices concern and frustration along with humanity and hope--a book that makes you see the world differently, and that is the crowning achievement by one of America's great thinkers and most humane voices.

My Age of Anxiety: Fear, Hope, Dread, and the Search for Peace of Mind


Scott Stossel - 2014
    Today, it is the most common form of officially classified mental illness. Scott Stossel gracefully guides us across the terrain of an affliction that is pervasive yet too often misunderstood. Drawing on his own long-standing battle with anxiety, Stossel presents an astonishing history, at once intimate and authoritative, of the efforts to understand the condition from medical, cultural, philosophical, and experiential perspectives. He ranges from the earliest medical reports of Galen and Hippocrates, through later observations by Robert Burton and Søren Kierkegaard, to the investigations by great nineteenth-century scientists, such as Charles Darwin, William James, and Sigmund Freud, as they began to explore its sources and causes, to the latest research by neuroscientists and geneticists. Stossel reports on famous individuals who struggled with anxiety, as well as on the afflicted generations of his own family. His portrait of anxiety reveals not only the emotion’s myriad manifestations and the anguish anxiety produces but also the countless psychotherapies, medications, and other (often outlandish) treatments that have been developed to counteract it. Stossel vividly depicts anxiety’s human toll—its crippling impact, its devastating power to paralyze—while at the same time exploring how those who suffer from it find ways to manage and control it. My Age of Anxiety is learned and empathetic, humorous and inspirational, offering the reader great insight into the biological, cultural, and environmental factors that contribute to the affliction.

Dumb: Living Without a Voice


Georgia Webber - 2018
    Webber adroitly uses the comics medium to convey the practical hurdles she faced as well as the fear and dread that accompanied her increasingly lonely journey to regain her life. Her raw cartooning style, occasionally devolving into chaotic scribbles, splotches of ink, and overlapping montages, perfectly captures her frustration and anxiety. But her ordeal ultimately becomes a hopeful story. Throughout, she learns to lean on the support of her close friends, finds self-expression in creating comics, and comes to understand and appreciate how deeply her voice and identity are intertwined.

The World I Live In


Helen Keller - 1904
    Here this preternaturally gifted deaf and blind young woman closely describes her sensations and the workings of her imagination, while making the provocative argument that the whole spectrum of the senses lies open to her through the medium of language. Standing in the line of the works of Emerson and Thoreau, The World I Live In is a profoundly suggestive exercise in self-invention, and a true, rediscovered classic of American literature.This new edition of The World I Live In also includes Helen Keller's early essay "Optimism," as well as her first published work, "My Story," written when she was twelve.

I'm Just a Person


Tig Notaro - 2016
    Hit with this devastating barrage, Tig took her grief onstage. Days after receiving her cancer diagnosis, she broke new comedic ground, opening an unvarnished set with the words, “Good evening. Hello. I have cancer. How are you? Hi, how are you? Is everybody having a good time? I have cancer.” Word of the set went viral instantly. This set was ultimately released as Tig’s sophomore album, Live, which sold 100,000 units in just six weeks and was nominated for a Grammy. Now, the wildly popular star takes stock of that no good, very bad year—a difficult yet astonishing period in which tragedy turned into absurdity and despair into joy. An inspired combination of the deadpan silliness of her comedy and the open-hearted vulnerability that has emerged in the wake of that dire time, Untitled is a moving and often hilarious look at this very brave, very funny woman’s journey through the darkness and her thrilling return.

Ten Days in a Mad-House


Nellie Bly - 1887
    In 1887, 23-year-old reporter Nellie Bly had herself committed to a New York City asylum for 10 days to expose the horrific conditions for 19th-century century mental patients.

The Anthropology of Turquoise: Reflections on Desert, Sea, Stone, and Sky


Ellen Meloy - 2002
    From the Sierra Nevada, the Mojave Desert, the Yucatan Peninsula, and the Bahamas to her home ground on the high plateaus and deep canyons of the Southwest, we journey with Meloy through vistas of both great beauty and great desecration. Her keen vision makes us look anew at ancestral mountains, turquoise seas, and even motel swimming pools. She introduces us to Navajo “velvet grandmothers” whose attire and aesthetics absorb the vivid palette of their homeland, as well as to Persians who consider turquoise the life-saving equivalent of a bullet-proof vest. Throughout, Meloy invites us to appreciate along with her the endless surprises in all of life and celebrates the seduction to be found in our visual surroundings.

Insomnia


Marina Benjamin - 2018
    More than a third of all adults report experiencing it, with the figure climbing steeply among those over sixty-five. Marina Benjamin takes on her personal experience of the condition--her struggles with it, her insomniac highs, and her dawning awareness that states of sleeplessness grant us valuable insights into the workings of our unconscious minds. Although insomnia is rarely entirely welcome, Benjamin treats it less as an affliction than as an encounter that she engages with and plumbs. She adds new dimensions to both our understanding of sleep (and going without it) and of night, of how we perceive darkness.Along the way, Insomnia trips through illuminating material from literature, art, philosophy, psychology, pop culture, and more. Benjamin pays particular attention to the relationship between women and sleep--Penelope up all night, unraveling her day's weaving for Odysseus; the Pre-Raphaelite artists' depictions of deeply sleeping women; and the worries that keep contemporary females awake.Insomnia is an intense, lyrical, witty, and humane exploration of a state we too often consider only superficially. "This is the song of insomnia, and I shall sing it," Marina Benjamin declares.

The Perfect Predator: A Scientist's Race to Save Her Husband from a Deadly Superbug: A Memoir


Steffanie Strathdee - 2019
    What at first seemed like a case of food poisoning quickly turned critical, and by the time Tom had been transferred via emergency medevac to the world-class medical center at UC San Diego, where both he and Steffanie worked, blood work revealed why modern medicine was failing: Tom was fighting one of the most dangerous, antibiotic-resistant bacteria in the world.Frantic, Steffanie combed through research old and new and came across phage therapy: the idea that the right virus, aka "the perfect predator," can kill even the most lethal bacteria. Phage treatment had fallen out of favor almost 100 years ago, after antibiotic use went mainstream. Now, with time running out, Steffanie appealed to phage researchers all over the world for help. She found allies at the FDA, researchers from Texas A&M, and a clandestine Navy biomedical center -- and together they resurrected a forgotten cure.

Although of Course You End Up Becoming Yourself: A Road Trip with David Foster Wallace


David Lipsky - 2010
    Wallace’s pieces for Harper’s magazine in the ’90s were, according to Lipsky, “like hearing for the first time the brain voice of everybody I knew: Here was how we all talked, experienced, thought. It was like smelling the damp in the air, seeing the first flash from a storm a mile away. You knew something gigantic was coming.”Then Rolling Stone sent Lipsky to join Wallace on the last leg of his book tour for Infinite Jest, the novel that made him internationally famous. They lose to each other at chess. They get iced-in at an airport. They dash to Chicago to catch a make-up flight. They endure a terrible reader’s escort in Minneapolis. Wallace does a reading, a signing, an NPR appearance. Wallace gives in and imbibes titanic amounts of hotel television (what he calls an “orgy of spectation”). They fly back to Illinois, drive home, walk Wallace’s dogs. Amid these everyday events, Wallace tells Lipsky remarkable things—everything he can about his life, how he feels, what he thinks, what terrifies and fascinates and confounds him—in the writing voice Lipsky had come to love. Lipsky took notes, stopped envying him, and came to feel about him—that grateful, awake feeling—the same way he felt about Infinite Jest. Then Lipsky heads to the airport, and Wallace goes to a dance at a Baptist church.A biography in five days, Although Of Course You End Up Becoming Yourself is David Foster Wallace as few experienced this great American writer. Told in his own words, here is Wallace’s own story, and his astonishing, humane, alert way of looking at the world; here are stories of being a young writer—of being young generally—trying to knit together your ideas of who you should be and who other people expect you to be, and of being young in March of 1996. And of what it was like to be with and—as he tells it—what it was like to become David Foster Wallace.