The Quiet Room: A Journey Out of the Torment of Madness


Lori Schiller - 1994
    Six years later she made her first suicide attempt, then wandered the streets of New York City dressed in ragged clothes, tormenting voices crying out in her mind. Lori Schiller had entered the horrifying world of full-blown schizophrenia. She began an ordeal of hospitalizations, halfway houses, relapses, more suicide attempts, and constant, withering despair. But against all odds, she survived. Now in this personal account, she tells how she did it, taking us not only into her own shattered world, but drawing on the words of the doctors who treated her and family members who suffered with her.In this new edition, Lori Schiller recounts the dramatic years following the original publication -- a period involving addiction, relapse, and ultimately, love and recovery.Moving, harrowing, and ultimately uplifting, THE QUIET ROOM is a classic testimony to the ravages of mental illness and the power of perseverance and courage.

Unwell Women: Misdiagnosis and Myth in a Man-Made World


Elinor Cleghorn - 2021
     Elinor Cleghorn became an unwell woman ten years ago. She was diagnosed with an autoimmune disease after a long period of being told her symptoms were anything from psychosomatic to a possible pregnancy. As Elinor learned to live with her unpredictable disease she turned to history for answers, and found an enraging legacy of suffering, mystification, and misdiagnosis.In Unwell Women, Elinor Cleghorn traces the almost unbelievable history of how medicine has failed women by treating their bodies as alien and other, often to perilous effect. The result is an authoritative and groundbreaking exploration of the relationship between women and medical practice, from the wandering womb of Ancient Greece to the rise of witch trials across Europe, and from the dawn of hysteria as a catchall for difficult-to-diagnose disorders to the first forays into autoimmunity and the shifting understanding of hormones, menstruation, menopause, and conditions like endometriosis.Packed with character studies and case histories of women who have suffered, challenged, and rewritten medical orthodoxy--and the men who controlled their fate--this is a revolutionary examination of the relationship between women, illness, and medicine. With these case histories, Elinor pays homage to the women who suffered so strides could be made, and shows how being unwell has become normalized in society and culture, where women have long been distrusted as reliable narrators of their own bodies and pain. But the time for real change is long overdue: answers reside in the body, in the testimonies of unwell women--and their lives depend on medicine learning to listen.

Manic: A Memoir


Terri Cheney - 2008
    But behind her seemingly flawless façade lay a dangerous secret—for the better part of her life Cheney had been battling debilitating bipolar disorder and concealing a pharmacy's worth of prescriptions meant to stabilize her moods and make her "normal."In bursts of prose that mirror the devastating highs and extreme lows of her illness, Cheney describes her roller-coaster life with shocking honesty—from glamorous parties to a night in jail; from flying fourteen kites off the edge of a cliff in a thunderstorm to crying beneath her office desk; from electroshock therapy to a suicide attempt fueled by tequila and prescription painkillers.With Manic, Cheney gives voice to the unarticulated madness she endured. The clinical terms used to describe her illness were so inadequate that she chose to focus instead on her own experience, in her words, "on what bipolar disorder felt like inside my own body." Here the events unfold episodically, from mood to mood, the way she lived and remembers life. In this way the reader is able to viscerally experience the incredible speeding highs of mania and the crushing blows of depression, just as Cheney did. Manic does not simply explain bipolar disorder—it takes us in its grasp and does not let go.In the tradition of Darkness Visible and An Unquiet Mind, Manic is Girl, Interrupted with the girl all grown up. This harrowing yet hopeful book is more than just a searing insider's account of what it's really like to live with bipolar disorder. It is a testament to the sharp beauty of a life lived in extremes.

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

Hurry Down Sunshine


Michael Greenberg - 2008
    It begins with Sally’s visionary crack-up on the streets of Greenwich Village, and continues, among other places, in the out-of-time world of a Manhattan psychiatric ward during the city’s most sweltering months. “I feel like I’m traveling and traveling with nowhere to go back to,” Sally says in a burst of lucidity while hurtling away toward some place her father could not dream of or imagine. Hurry Down Sunshine is the chronicle of that journey, and its effect on Sally and those closest to her–her brother and grandmother, her mother and stepmother, and, not least of all, the author himself. Among Greenberg’s unforgettable gallery of characters are an unconventional psychiatrist, an Orthodox Jewish patient, a manic Classics professor, a movie producer, and a landlord with literary dreams. Unsentimental, nuanced, and deeply humane, Hurry Down Sunshine holds the reader in a mesmerizing state of suspension between the mundane and the transcendent.

The Camera My Mother Gave Me


Susanna Kaysen - 2001
    It is an extraordinary investigation into the role sex plays in perception and our notions of ourselves--and into what happens when the erotic impulse meets the world of medicine.

On Edge: A Journey Through Anxiety


Andrea Petersen - 2017
    Difficulty breathing. Overwhelming dread. Andrea Petersen was first diagnosed with an anxiety disorder at the age of twenty, but she later realized that she had been experiencing panic attacks since childhood. With time her symptoms multiplied. She agonized over every odd physical sensation. She developed fears of driving on highways, going to movie theaters, even licking envelopes. Although having a name for her condition was an enormous relief, it was only the beginning of a journey to understand and master it—one that took her from psychiatrists’ offices to yoga retreats to the Appalachian Trail. Woven into Petersen’s personal story is a fascinating look at the biology of anxiety and the groundbreaking research that might point the way to new treatments. She compares psychoactive drugs to non-drug treatments, including biofeedback and exposure therapy. And she explores the role that genetics and the environment play in mental illness, visiting top neuroscientists and tracing her family history—from her grandmother, who, plagued by paranoia, once tried to burn down her own house, to her young daughter, in whom Petersen sees shades of herself. Brave and empowering, this is essential reading for anyone who knows what it means to live on edge.

Invisible: How Young Women with Serious Health Issues Navigate Work, Relationships, and the Pressure to Seem Just Fine


Michele Lent Hirsch - 2018
    She did.Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.Author Michele Lent Hirsch knew she couldn't be the only woman who's faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population with important stories to tell.Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system--a system where young women, especially women of color and trans women, are invisible.And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.Lent Hirsch weaves her own harrowing experiences together with stories from other women, perspectives from sociologists on structural inequality, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.

Inferno: A Memoir of Motherhood and Madness


Catherine Cho - 2020
    Before the trip’s end, she develops psychosis. In desperation, her husband admits her to a nearby psychiatric hospital, where she begins the hard work of rebuilding her identity.In this memoir Catherine reconstructs her sense of self, starting with her childhood as the daughter of Korean immigrants, moving through a traumatic past relationship, and on to the early years of her courtship with and marriage to her husband, James. She interweaves these parts of her past with an immediate recounting of the days she spent in the ward.

Wasted: A Memoir of Anorexia and Bulimia


Marya Hornbacher - 1997
    A vivid, honest, and emotionally wrenching memoir, Wasted is the story of one woman's travels to reality's darker side—and her decision to find her way back on her own terms.

Broken Horses


Brandi Carlile - 2021
    Though imperfect in every way, her dysfunctional childhood was as beautiful as it was strange, and as nurturing as it was difficult. At the age of five, Brandi contracted bacterial meningitis, which almost took her life, leaving an indelible mark on her formative years and altering her journey into young adulthood.As an openly gay teenager, Brandi grappled with the tension between her sexuality and her faith when her pastor publicly refused to baptize her on the day of the ceremony. Shockingly, her small town rallied around Brandi in support and set her on a path to salvation where the rest of the misfits and rejects find it: through twisted, joyful, weird, and wonderful music.In Broken Horses, Brandi Carlile takes listeners through the events of her life that shaped her very raw art - from her start at a local singing competition where she performed Elton John’s “Honky Cat” in a bedazzled white polyester suit, to her first break opening for Dave Matthews Band, to many sleepless tours over 15 years and six studio albums, all while raising two children with her wife, Catherine Shepherd. This hard-won success led her to collaborations with personal heroes like Elton John, Dolly Parton, Mavis Staples, Pearl Jam, Tanya Tucker, and Joni Mitchell, as well as her peers in the supergroup The Highwomen, and ultimately to the Grammy stage, where she converted millions of viewers into instant fans.Evocative and piercingly honest, Broken Horses is at once an examination of faith through the eyes of a person rejected by the church’s basic tenets and a meditation on the moments and lyrics that have shaped the life of a creative mind, a brilliant artist, and a genuine empath on a mission to give back.

Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain


Abby Norman - 2018
    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

Elena Vanishing


Elena Dunkle - 2015
    Every day means renewed determination, so every day means fewer calories. This is the story of a girl whose armor against anxiety becomes artillery against herself as she battles on both sides of a lose-lose war in a struggle with anorexia. Told entirely from Elena's perspective over a five-year period and co-written with her mother, award-winning author Clare B. Dunkle, Elena's memoir is a fascinating and intimate look at a deadly disease, and a must read for anyone who knows someone suffering from an eating disorder.

Prozac Nation


Elizabeth Wurtzel - 1994
    A collective cry for help from a generation who have come of age entrenched in the culture of divorce, economic instability, and AIDS, here is the intensely personal story of a young girl full of promise, whose mood swings have risen and fallen like the lines of a sad ballad.

Cancer Vixen


Marisa Acocella Marchetto - 2006
    a lump in her breast?That/s the question that sets this powerful, funny, and poignant graphic memoir in motion. In vivid color and with a taboo-breaking sense of humor, Marisa Acocella Marchetto tells the story of her eleven-month, ultimately triumphant bout with breast cancer--from diagnosis to cure, and every challenging step in between.But Cancer Vixen is about more than surviving an illness. It is a portrait of one woman's supercharged life in Manhattan, and a wonderful love story. Marisa, self-described "terminal bachelorette", meets her Prince Charming in Silvano, owner of the chic downtown restaurant Da Silvano. Three weeks before their wedding, she receives her diagnosis. She wonders: How will he react to this news? How will my world change? Will I even survive? And... what about my hair?From raucous New Yorker staff lunches and the star-studded crowd at Silvano/s restaurant to the rainbow pumps Marisa wears to chemotherapy, Cancer Vixen is a total original. Marisa's wit and courage are an inspiration--she's a cancer vixen, not its victim.