On Being Ill


Virginia Woolf - 1930
    We cannot quote Shakespeare to describe a headache. We must, Woolf says, invent language to describe pain. And though illness enhances our perceptions, she observes that it reduces self-consciousness; it is "the great confessional." Woolf discusses the cultural taboos associated with illness and explores how illness changes the way we read. Poems clarify and astonish, Shakespeare exudes new brilliance, and so does melodramatic fiction!On Being Ill was published as an individual volume by Hogarth Press in 1930. While other Woolf essays, such as A Room of One’s Own and Three Guineas, were first published by Hogarth as individual volumes and have since been widely available, On Being Ill has been overlooked. The Paris Press edition features original cover art by Woolf’s sister, the painter Vanessa Bell. Hermione Lee’s Introduction discusses this extraordinary work, and explores Woolf’s revelations about poetry, language, and illness.

Breathing for a Living: A Memoir


Laura Rothenberg - 2003
    Twenty-one-year-old Laura Rothenberg has always tried to live a normal life--even with lungs that betray her, and a sober awareness that she may not live to see her next birthday. Like most people born with cystic fibrosis, the chronic disease that affects lungs and other organs, Rothenberg struggles to come to grips with a life that has already been compromised in many ways. Sometimes healthy and able to go to school, other times hospitalized for months on end, Rothenberg finds solace in keeping a diary. In her writing, she can be open, honest, and irreverent, like the young person she is. Yet mixed in with this voice is an incredible maturity about her mortality. The memoir opens with Rothenberg's decision to accept a lung transplant. From the waiting--and all it implies to the surgery, recovery, and her new life, Rothenberg muses on mortality in journal entries and poetry. Through it all, she reveals a will and temperament that is strong and wise despite her years. Laura Rothenberg's story, recorded and shared on NPR's Radio Diaries, was awarded the prestigious Third Coast Audio Festival Award, it also received an unprecedented listener response and generated more e-mail than any other story the producers could recall. Rothenberg's story was also featured in the New York Times and U.S. News & World Report.

Thinking in Pictures: My Life with Autism


Temple Grandin - 1995
    She also lectures widely on autism—because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us. In this unprecedented book, Grandin delivers a report from the country of autism. Writing from the dual perspectives of a scientist and an autistic person, she tells us how that country is experienced by its inhabitants and how she managed to breach its boundaries to function in the outside world. What emerges in Thinking in Pictures is the document of an extraordinary human being, one who, in gracefully and lucidly bridging the gulf between her condition and our own, sheds light on the riddle of our common identity.

Working Stiff: Two Years, 262 Bodies, and the Making of a Medical Examiner


Judy Melinek - 2014
    Judy Melinek began her training as a New York City forensic pathologist. With her husband T.J. and their toddler Daniel holding down the home front, Judy threw herself into the fascinating world of death investigation, performing autopsies, investigating death scenes, counseling grieving relatives. Working Stiff chronicles Judy's two years of training, taking readers behind the police tape of some of the most harrowing deaths in the Big Apple, including a firsthand account of the events of September 11, the subsequent anthrax bio-terrorism attack, and the disastrous crash of American Airlines flight 587.Lively, action-packed, and loaded with mordant wit, Working Stiff offers a firsthand account of daily life in one of America's most arduous professions, and the unexpected challenges of shuttling between the domains of the living and the dead. The body never lies, and through the murders, accidents, and suicides that land on her table, Dr. Melinek lays bare the truth behind the glamorized depictions of autopsy work on shows like CSI and Law and Order to reveal the secret story of the real morgue.

A Really Good Day: How Microdosing Made a Mega Difference in My Mood, My Marriage, and My Life


Ayelet Waldman - 2017
    When a small vial arrives in her mailbox from "Lewis Carroll," Ayelet Waldman is at a low point. Her mood storms have become intolerably severe; she has tried nearly every medication possible; her husband and children are suffering with her. So she opens the vial, places two drops on her tongue, and joins the ranks of an underground but increasingly vocal group of scientists and civilians successfully using therapeutic microdoses of LSD. As Waldman charts her experience over the course of a month--bursts of productivity, sleepless nights, a newfound sense of equanimity--she also explores the history and mythology of LSD, the cutting-edge research into the drug, and the byzantine policies that control it. Drawing on her experience as a federal public defender, and as the mother of teenagers, and her research into the therapeutic value of psychedelics, Waldman has produced a book that is eye-opening, often hilarious, and utterly enthralling.

Pain and Prejudice: A Call to Arms for Women and Their Bodies


Gabrielle Jackson - 2019
    And many are so, so tired … But women's pain is all too often dismissed, their illnesses misdiagnosed or ignored. In medicine, man is the default human being. Any deviation is atypical, abnormal, deficient.'Fourteen years after being diagnosed with endometriosis, Gabrielle Jackson couldn't believe how little had changed in the treatment and knowledge of the disease. In 2015, her personal story kick-started a worldwide investigation into the disease by The Guardian; thousands of women got in touch to tell their own stories and many more read and shared the material. What began as one issue led Jackson to explore how women - historically and through to the present day - are under-served by the systems that should keep them happy, healthy and informed about their bodies.Pain and Prejudice is a vital testament to how social taboos and medical ignorance keep women sick and in anguish. The stark reality is that women's pain is not taken as seriously as men's. Women are more likely to be disbelieved and denied treatment than men, even though women are far more likely to be suffering from chronic pain.In a potent blend of personal memoir and polemic, Jackson confronts the private concerns and questions women face regarding their health and medical treatment. Pain and Prejudice, finally, explains how we got here, and where we need to go next.

Mama's Boy: A Story from Our Americas


Dustin Lance Black - 2019
    Raised in a military, Mormon household outside San Antonio, Texas, Black always found inspiration in his plucky, determined mother. Having contracted polio as a small girl, she endured leg braces and iron lungs, and was repeatedly told that she could never have children or live a normal life. Defying expectations, she raised Black and his two brothers, built a career, escaped two abusive husbands, and eventually moved the family to a new life in Northern California. While Black struggled to come to terms with his sexuality--something antithetical to his mother's religious views--she remained his source of strength and his guiding light. Later, she would stand by his side when he helped bring the historic gay marriage case to the U.S. Supreme Court.Mama's Boy is a stirring celebration of the connections between mother and son, Red states and Blue, and the spirit of optimism and perseverance that can create positive change in the world.

It's a Long Story: My Life


Willie Nelson - 2015
    Funny. Leaving no stone unturned." . . . So say the publishers about this book I've written. What I say is that this is the story of my life, told as clear as a Texas sky and in the same rhythm that I lived it. It's a story of restlessness and the purity of the moment and living right. Of my childhood in Abbott, Texas, to the Pacific Northwest, from Nashville to Hawaii and all the way back again. Of selling vacuum cleaners and encyclopedias while hosting radio shows and writing song after song, hoping to strike gold. It's a story of true love, wild times, best friends, and barrooms, with a musical sound track ripping right through it. My life gets lived on the road, at home, and on the road again, tried and true, and I've written it all down from my heart to yours. Signed,Willie Nelson

The Solace of Open Spaces


Gretel Ehrlich - 1984
    A stunning collection of personal observations that uses images of the American West to probe larger concerns in lyrical, evocative prose that is a true celebration of the region.

Ruined By Reading: A Life in Books


Lynne Sharon Schwartz - 1996
    An enchanting celebration of the printed word.

Disfigured: On Fairy Tales, Disability, and Making Space


Amanda Leduc - 2020
    After all, the ogre never gets the princess. And since fairy tales are the foundational myths of our culture, how can a girl with a disability ever think she'll have a happy ending?By examining the ways that fairy tales have shaped our expectations of disability, Disfigured will point the way toward a new world where disability is no longer a punishment or impediment but operates, instead, as a way of centering a protagonist and helping them to cement their own place in a story, and from there, the world. Through the book, Leduc ruminates on the connections we make between fairy tale archetypes—the beautiful princess, the glass slipper, the maiden with long hair lost in the tower—and tries to make sense of them through a twenty-first-century disablist lens. From examinations of disability in tales from the Brothers Grimm and Hans Christian Andersen through to modern interpretations ranging from Disney to Angela Carter, and the fight for disabled representation in today's media, Leduc connects the fight for disability justice to the growth of modern, magical stories, and argues for increased awareness and acceptance of that which is other—helping us to see and celebrate the magic inherent in different bodies.

Robin


Dave Itzkoff - 2018
    He often came across as a man possessed, holding forth on culture and politics while mixing in personal revelations – all with mercurial, tongue-twisting intensity as he inhabited and shed one character after another with lightning speed.But as Dave Itzkoff shows in this revelatory biography, Williams’s comic brilliance masked a deep well of conflicting emotions and self-doubt, which he drew upon in his comedy and in celebrated films like Dead Poets Society; Good Morning, Vietnam; The Fisher King; Aladdin; and Mrs. Doubtfire, where he showcased his limitless gift for improvisation to bring to life a wide range of characters. And in Good Will Hunting he gave an intense and controlled performance that revealed the true range of his talent.Itzkoff also shows how Williams struggled mightily with addiction and depression – topics he discussed openly while performing and during interviews – and with a debilitating condition at the end of his life that affected him in ways his fans never knew. Drawing on more than a hundred original interviews with family, friends, and colleagues, as well as extensive archival research, Robin is a fresh and original look at a man whose work touched so many lives.

Me


Elton John - 2019
    By the age of twenty-three, he was on his first tour of America, facing an astonished audience in his tight silver hotpants, bare legs and a T-shirt with ROCK AND ROLL emblazoned across it in sequins. Elton John had arrived and the music world would never be the same again.His life has been full of drama, from the early rejection of his work with song-writing partner Bernie Taupin to spinning out of control as a chart-topping superstar; from half-heartedly trying to drown himself in his LA swimming pool to disco-dancing with the Queen; from friendships with John Lennon, Freddie Mercury and George Michael to setting up his AIDS Foundation. All the while, Elton was hiding a drug addiction that would grip him for over a decade.In Me Elton also writes about getting clean and changing his life, about finding love with David Furnish and becoming a father.

Stolen: A Memoir


Elizabeth Gilpin - 2021
    Growing angrier by the day, she began skipping practices and drinking to excess. At a loss, her parents turned to an educational consultant who suggested Elizabeth be enrolled in a behavioral modification program. That recommendation would change her life forever.The nightmare began when she was abducted from her bed in the middle of the night by hired professionals and dropped off deep into a camp in the woods of AppalachiaAfter three brutal months, Elizabeth was transferred to a boarding school in Southern Virginia that in reality functioned more like a prison. Its curriculum revolved around a perverse form of group therapy where students were psychologically abused and humiliated. Finally, at seventeen, Elizabeth convinced them she was rehabilitated enough to “graduate” and was released. In this eye-opening and unflinching book, Elizabeth recalls the horrors she endured, the friends she lost to suicide and addiction, and—years later—how she was finally able to pick up the pieces of her life and reclaim her identity.

A Face for Picasso: Coming of Age with Crouzon Syndrome


Ariel Henley - 2021
    There's a mathematical equation to prove it.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease.Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.