Book picks similar to
Growing Up with Joey by Sandy Papazian


developmental-disorders
disability
special-education
speech-language-pathology

The Boy Who Loved Tornadoes


Randi Davenport - 2010
    And at fifteen, her son Chase entered an unremitting psychosis—pursued by terrifying images, unable to recognize his own mother, unwilling to eat or even talk—becoming ever more tortured and unreachable.Beautifully written and profoundly moving, this is the heartbreaking yet triumphant story of how Randi Davenport navigated the byzantine and broken health care system and managed not just to save her son from the brink of suicide but to bring him back to her again, and make her family whole.In The Boy Who Loved Tornadoes, she gives voice to the experiences of countless families whose struggles with mental illness are likewise invisible to the larger world.

The Shape of the Eye: A Memoir


George Estreich - 2011
    Estreich writes with a poet's eye and gift of language, weaving this personal journey into the larger history of his family, exploring the deep and often hidden connections between the past and the present. Engaging and unsentimental, The Shape of the Eye taught me a great deal. It is a story I found myself thinking about long after I'd finished the final pages." --Kim Edwards, author of The Memory Keeper's Daughter "The Shape of the Eye personalizes Down syndrome, bringing a condition abstracted in the medical literature into the full dimensionality of one family's life. It's brave of George Estreich to make what has befallen his family so public, trusting of him to let an unknown audience second-guess the family's choices. Because he's opened his home and heart in this memoir, we are privileged to witness in chaotic, heart-wrenching, joyous detail what it means to have and to love a child with Down syndrome." --Marcia Childress, Associate Professor of Medical Education (Medical Humanities), University of Virginia School of Medicine, from her Afterword for the book When Laura Estreich is born, her appearance presents a puzzle: does the shape of her eyes indicate Down syndrome, or the fact that she has a Japanese grandmother? In this powerful memoir, George Estreich, a poet and stay-at-home dad, tells his daughter's story, reflecting on her inheritance --- from the literal legacy of her genes, to the family history that precedes her, to the Victorian physician John Langdon Down's diagnostic error of "Mongolian idiocy." Against this backdrop, Laura takes her place in the Estreich family as a unique child, quirky and real, loved for everything ordinary and extraordinary about her.

A Good and Perfect Gift: Faith, Expectations, and a Little Girl Named Penny


Amy Julia Becker - 2011
    Amy Julia opens eyes and softens hearts as she brings readers into her own story of disappointment turned to blessing. This is a journey of discovering strength through weakness, and the author learns to embrace the face that we are all dependent on God and one another. This books will inspire readers who appreciate beautiful writing coupled with deep insights about life and faith.

Count Us In: Growing Up with Down Syndrome


Jason Kingsley - 1994
    Their frank discussion of what mattered most in their lives—careers, friendships, school, sex, marriage, finances, politics, and independence—earned Count Us In numerous national awards, including the EDI Award from the National Easter Seal Society. More important, their wit, intelligence, candor, and charm made a powerful and inspirational statement about the full potential of people with developmental disabilities, challenging prevailing stereotypes. Now, thirteen years later, the authors discuss their lives since then—milestones and challenges, developments expected and unexpected—in a new afterword.

Uniquely Human: A Different Way of Seeing Autism


Barry M. Prizant - 2015
    This perspective leads to therapies focused on ridding individuals of autistic symptoms. In Uniquely Human, Dr. Barry M. Prizant suggests a major shift in understanding autism: Instead of classifying "autistic" behaviors as signs of pathology, he sees them as strategies to cope with a world that feels chaotic and overwhelming. Rather than curb these behaviors, it's better to enhance abilities, build on strengths, and offer supports that will naturally lead to more desirable behavior and a better quality of life. In fact, argues Dr. Prizant, attempts to eliminate autistic behaviors may actually interfere with important developmental processes.Including inspiring stories and practical advice drawn from Dr. Prizant's four-decade career working in universities, schools, hospitals, and in private practice, Uniquely Human offers a compassionate and insightful perspective that parents, professionals, and family members will find uplifting and hopeful.

My Life In His Paws: The Incredible Story of Ted and How He Saved Me


Wendy Hilling - 2016
    Wendy Hilling has a rare skin condition which means her skin is very delicate. Every moment is difficult and causes pain. It affects the body inside and out: her throat is very narrow and she can stop breathing at any time. But eight years ago Wendy's life changed forever. She met Ted, the Golden Retriever, and he became her full-time carer. He has saved her life more times than she can remember, always watching and listening, and Wendy is now entirely reliant on him. This is the story of Wendy and her incredible bravery living with a disability and battling against the odds. It's also the story of Ted, the extraordinary assistance dog, and the unique relationship between a human and animal and the extraordinary things animals are capable of.

Ten Things Every Child with Autism Wishes You Knew


Ellen Notbohm - 2005
    Framed with both humor and compassion, the book defines the top ten characteristics that illuminate the minds and hearts of children with autism. Ellen's personal experiences as a parent, an autism columnist, and a contributor to numerous parenting magazines coalesce to create a guide for all who come in contact with a child on the autism spectrum. Don't buy just one of this book- buy one for everyone who interacts with your child! Give the gift of understanding. Helpful chapters include:My sensory perceptions are disordered Distinguish between won’t and can’t I am a concrete thinker. I interpret language literally Be patient with my limited vocabulary Because language is so difficult for me, I am very visually oriented Focus and build on what I can do rather than what I can’t do Help me with social interactions Identify what triggers my meltdowns

No Pity: People with Disabilities Forging a New Civil Rights Movement


Joseph P. Shapiro - 1993
    People with disabilities forging the newest and last human rights movement of the century.

Mother Warriors: A Nation of Parents Healing Autism Against All Odds


Jenny McCarthy - 2008
    When Jenny McCarthy published Louder Than Words, the story of her successful efforts to save her son, Evan, from autism, the response was tremendous. It hit #3 on the New York Times bestseller list; and Jenny and Evan were featured on the covers of several magazines, including People. But what she hadn’t anticipated was the overwhelming response from other parents of autistic children, who sought her out to share their stories. No two autistic children heal in exactly the same way. And in her new book, Jenny expands her message to share recovery stories from parents across the country. Mother Warriors, shows how each parent fought to find her own child’s perfect “remedy of interventions” and teaches parents how to navigate safely through the many autism therapies. Along the way, Jenny shares her own journey as an autism advocate and mother as well as the progress of her son, Evan. Emotional and genuinely practical, Mother Warriors will inspire a generation of parents with hope.

Out with It: How Stuttering Helped Me Find My Voice


Katherine Preston - 2013
    Imagine waking up one day to find your words trapped inside your head, leaving you unable to say what you feel, think, want, or need. At the age of seven that happened to Katherine Preston. From that moment, she began battling her stutter and hiding her shame by denying there was anything wrong. Seventeen years later, exhausted and humiliated, she made a life-changing decision: to leave her home in London and spend a year traveling around America meeting hundreds of stutterers, speech therapists, and researchers. What began as a vague search for a cure became a journey that debunked the misconceptions shrouding the condition, and a love story that transformed her conception of what it means to be normal. Shedding light on an ancient condition that affects approximately 4 million people in the United States and 60 million people worldwide, Preston has assembled an anthology of expertise and experience. In addition to specialists in the field, she interviews celebrities, writers, musicians, social workers, psychologists, and financiers—men and women from all walks of life battling their difficulties with speech. A heartwarming memoir and a journalistic feat, Out With It is more than a chronicle of one of the most prevalent speech problems in the world; it’s a story about understanding yourself, and learning to embrace the voice within.

Probably Still Nick Swansen


Virginia Euwer Wolff - 1988
    What he doesn't know is whether being Special Ed. means you shouldn't go to the prom. But since no rule says you can't, Nick decides to ask Shana. But the prom doesn't turn out at all the way Nick expects it to, and everything bad seems to get all mixed up together: the prom, what Shana does, and the terrible thing that happened to Nick's sister nine years ago. Nick doesn't want to think about any of it, but he begins to realize that unless he makes peace with all the memories that trouble him, they will haunt him forever....

The Out-of-Sync Child: Recognizing and Coping with Sensory Processing Disorder


Carol Stock Kranowitz - 1998
    This newly revised edition features additional information from recent research on vision and hearing deficits, motor skill problems, nutrition and picky eaters, ADHA, autism, and other related disorders.

One in a Hundred Thousand


Linni Ingemundsen - 2021
    But Sander has a rare medical condition that affects one in a hundred thousand people. It means his growth is stunted, and it seems the biggest, strongest and loudest guys get all the attention. But Sander notices the little things other people miss, and he’s about to make a big impact...

A Slant of Sun: One Child's Courage


Beth Kephart - 1998
    Like Operating Instructions and The Liars' Club, A Slant of Sun is a contemporary classic.Nearly one in five children grow up facing a developmental or behavioral challenge, and like them, Beth Kephart's son, Jeremy, showed early signs of being different: language eluded him, he preferred playing alone to an afternoon on the jungle gym. Doctors diagnosed Jeremy with a mild form of autism called Pervasive Developmental Disorder Not Otherwise Specified. A Slant of Sun is a passionate memoir about how Kephart, guided by the twin tools of intuition and imagination, helped lead her son toward wholeness. Pulsing with the questions, "Is normal possible? Definable?" A Slant of Sun speaks to everyone not just parents of the redemptive power of love.

Boy Alone: A Brother's Memoir


Karl Taro Greenfeld - 2009
    He couldn't crawl, and he had trouble making eye contact or interacting with his family. As Noah grew older, his differences became even more pronounced—he was unable to communicate verbally, use the toilet, or tie his shoes, and despite his angelic demeanor, he often had violent outbursts.No doctor, social worker, or specialist could pinpoint what was wrong with Noah beyond a general diagnosis: autism. The boys' parents, Josh and Foumi, dedicated their lives to caring for their younger son with myriad approaches—a challenging, often painful experience that the devoted father detailed in a bestselling trilogy of books.Now, for the first time, acclaimed journalist Karl Taro Greenfeld speaks out about growing up in the shadow of his autistic brother, revealing the complex mix of rage, confusion, and love that defined his childhood. Boy Alone is his brutally honest memoir of the hopes, dreams, and realities of life with a mentally disabled sibling.Seamlessly weaving together the social history of autism and autism research—as the Greenfelds lived through it in seeking treatment for Noah—with the deeply affecting story of two very different boys growing up side by side, this book raises crucial philosophical questions: Can relationships exist without language? How should aging parents care for a nonverbal, violent child, and then a grown man who is not self-sufficient? Is there anything that can be done to help an extremely autistic child or adult become a member of mainstream society?Haunting, tragic, and unforgettable, this chronicle of autism is a beautiful, wholly original exploration of what it means to be a family, a brother, and a person.