Book picks similar to
Growing Up with Joey by Sandy Papazian


developmental-disorders
special-education
speech-language-pathology
disability

Ruby Chadwick


Anna King - 1995
    She spends hours playing happily with her two brothers outside their father’s pub. But Ruby’s world is turned upside down when a moment of disobedience results in a tragic accident, and she must learn to come to terms with the consequences.When the Chadwick family’s circumstances unexpectedly change they relocate to salubrious surroundings in respectable Brixton. As Ruby comes of age, she dreams of a future that allows her independence and a chance to find love, though her stern father has other ideas.Her fortunes change when she accepts a job as companion to a cantankerous old lady and crosses paths with a charming Irishman named Michael. Yet before long Ruby must once more choose whether to defy her family and make her own choices – whatever the cost…An absorbing and atmospheric London saga, Ruby Chadwick is a must-read for fans of Jean Fullerton, Lindsey Hutchinson and Rosie Goodwin.

Road Map to Holland: How I Found My Way Through My Son's First Two Years with Down Syndrome


Jennifer Graf Groneberg - 2008
    You need a new road map, and fast...When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted.

Look up for Yes


Julia Tavalaro - 1997
    Suddenly, just thirty-two years old, she was a prisoner in her own body and a victim of the ignorant and cruel treatment of hospital workers who neither noticed nor cared that the "vegetable" they changed and fed every day was actually a bright and emotional woman. In this powerful memoir, painstakingly written with the help of poet Richard Tayson, Tavalaro details the hellish life she endured as a defenseless patient, angry and desperate to die, and the liberating actions of two therapists who took the time to realize that she was not incognitive but rather brimming with intelligence and life.At last, Tavalaro managed to break through the isolation that imprisoned her. Slowly, methodically, she regained her ability to communicate -- aided by technological and therapeutic developments -- and began to compose poems that drew on the memories of her life before her stroke. Beautifully written and achingly heartrending, Look Up for Yes is a testament to a passionate and articulate woman who is ready and able to let the world know she is, indisputably, alive."A story of utter tragedy and the triumph of a woman with uncommon courage". -- Los Angeles Times

Six Months to Live: The Dawn Rochelle Series, Book One (Lurlene McDaniel Books: 1)


Lurlene N. McDaniel - 2010
    Dawn Rochelle is about to face the toughest fight of her life—a fight she has to win. Otherwise, she has only six months to live.

I'll Carry the Fork!: Recovering a Life After Brain Injury


Kara L. Swanson - 1999
    Kara Swanson's journey is one to learn from, to cheer and, even, to laugh with along the way. Her honesty and willingness to share her struggles and triumphs have been changing the lives of survivors and their loved ones for more than 20 years. This book has been named a suggested and must-read resource for survivors and professionals in every rehab and neurological field, and even in college TBI-related studies. It has been translated into Japanese and Kara has made her book available on Kindle and in an audio format. Her accompanying speeches and award-winning blog have circled the globe. This book enlightens with vital information from TBI professionals in medical, rehab and legal arenas. Kara's book is a wonderful inspiration and, with each edition, she has continued to mold it to help those in the TBI community. This new edition is brighter and cleaner. Kara has inserted more blank pages for notes and she has reduced the price so that more survivors can obtain all of the wonderful input from professionals throughout the book. The audio version of this book was completed by the author in order to offer a pace and cadence for those survivors struggling with audio processing speed and/or challenged by the written word.

Beautiful Eyes: A Father Transformed


Paul Austin - 2014
    He was a medical student and she was a nurse. Everything changed the moment the doctor rushed their infant daughter from the room just after her birth, knowing instantly that something was wrong. Sarah had almond-shaped eyes, a single crease across her palm instead of three, and low-set ears all of which suggested that the baby had Down syndrome.Beginning on the day Sarah is born and ending when she is a young adult living in a group home, Beautiful Eyes is the story of a father's journey toward acceptance of a child who is different. In a voice that is unflinchingly honest and unerringly compassionate, Austin chronicles his life with his daughter: watching her learn to walk and talk and form her own opinions, making decisions about her future, and navigating cultural assumptions and prejudices all the while confronting, with poignancy and moving candor, his own limitations as her father.It is Sarah herself, who, in her own coming of age and her own reconciling with her difference, teaches her father to understand her. Time and again, she surprises him: performing Lady Gaga s "Poker Face" at a talent show; explaining how the word "retarded" is hurtful; reacting to the events of her life with a mixture of love, pain, and humor; and insisting on her own humanity in a world that questions it. As Sarah begins to blossom into herself, her father learns to look past his daughter's disability and see her as the spirited, warmhearted, and uniquely wise person she is.

A Real Boy: A True Story of Autism, Early Intervention, and Recovery


Christina Adams - 2005
    Just a few years later, a doctor refused to believe such a diagnosis could ever have been given to this healthy, happy boy. This is the true story of how Jonah's mother, Christina, seized his limited window of opportunity for recovery. Detailing how she utilized a combination of a special diet and one-on-one tutoring with speech therapists and behavioral psychologists, Christina shares the entire journey she undertook to give her child a second chance at a full life.

Satan's Devils MC Boxset Books 1-5


Manda Mellett - 2020
    Oh, the normal elements are there, hot alpha males who certainly aren’t shy in the bedroom, but as well as the usual adversaries, the bikers end up facing some of the social issues in today’s world.Disability, sex trafficking, grooming of young girls, racism, and overcoming the grief of losing a partner form the various backgrounds that these bikers have to face in order to win the woman they want to ride with through life.Each book has been written as a standalone, but the best experience is gained by reading the books in order.Turning Wheels:Turning Wheels is the introduction to the club, seen through the eyes of Sophie, a disabled Englishwoman who comes under their protection. Scared and nervous, still coming to terms with being wheelchair bound, she is forced into the world of an American MC, meeting the men and learning to trust them.Wraith, the VP, is determined to show Sophie her disability doesn’t define her. To do so, he has to protect her from enemies both from outside the club and within, as well as help her overcome the demons in her past.Drummer’s BeatThe president of the Satan’s Devils hasn’t yet found a woman strong enough to be his partner in life, until he meets Sam broken down by the side of the road. Drummer helps a fellow biker, though when he learns she’s claiming to be the daughter of one of his members, he doesn’t believe her. It’s well known Viper can’t have kids, so she must be lying.He fights his attraction, only admitting he wants her after she’s taken by a sex trafficking ring. It’s a race against time for him to find her, and claim her.Slick RunningElla had performed a service for the club, but no one knew how much it had cost her. Slick had claimed her a few months back, only for her to inexplicably leave him. When she needs help, he refuses. You only fool Slick once.But the club owes her, and as Slick learns what made her run from him, he becomes determined to fight to get her back. The Satan’s Devils are faced with breaking up a child grooming ring in order to rescue Ella’s young sister.Targeting DartA confirmed bachelor, Dart fights his attraction to Alex, a curvy black girl. All he can offer is friendship to the woman who’s fighting for the life of her sick child.But when her violent ex catches up with her. Dart has to face up to his feelings, and take on responsibilities he hadn’t expected, both in his personal life, and his role in the club.Heart BrokenDestroyed by the death of his wife, Heart goes on a journey from which he has no intention of returning. But the voice on the phone keeps him going. The voice of a cop who, strangely, seems to understand the emotional journey he’s going through.Months pass. When he gets the chance to join his wife, to his surprise, Heart wants to live. He owes that to the cop. But cops and outlaw bikers can’t possibly have a relationship.

Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives


Kathryn Lynard Soper - 2006
    Yet many who travel this path discover rich, unexpected rewards along the way. In this candid and poignant collection of personal stories, sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love, which their child with Down syndrome has brought into their lives. perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatised. Some write about their pregnancy and the months after giving birth; some reflect on years of experience with their child. Their diverse experiences point to a common truth: the life of a child with Down syndrome is something to celebrate. These women have something to say - not just to other mothers but to all of us.

Thinking About You Thinking About Me: Philosophy and strategies to further develop perspective taking and communicative abilities for persons with Asperger ... Autism, Hyperlexia, ADHD, PDD-NOS, NVLD


Michelle Garcia Winner - 2002
    The intervention ideas as "innovative and practical for home and school use."

Schuyler's Monster: A Father's Journey with His Wordless Daughter


Robert Rummel-Hudson - 2008
    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

A Child Called Noah: A Family Journey


Josh Greenfeld - 1972
    

Another Season


Gene Stallings - 1997
    When beloved Alabama football coach Gene Stallings's son was born with Down syndrome and a serious heart defect, doctors predicted he wouldn't live to see his first birthday and urged Coach Stallings and his wife to institutionalize him.But for Gene and Ruth Ann that was not an option.  Johnny quickly won the hearts and adoration of the Stallings family and everyone who took the time to know him, and, proving the doctors wrong by living a full life, he has become a vital and important part of his father's life and career.With intimate glimpses of family life and thrilling football anecdotes, Another Season is brimming with poignant lessons about defying the odds and finding joy in every moment.

Patience


Victoria Scott - 2021
    I could barely put the book down until its equally heart-wrenching and heart-warming ending. A wonderful, smart and funny book - I know readers will absolutely love it' Louise Fein, bestselling author of People Like UsThe Willows have been through a lot. Louise has devoted her life to caring for her disabled youngest daughter. Pete works abroad, almost never seeing his loved ones. And their eldest, Eliza, is burdened by all the secrets she's trying to keep from her overloaded family.Meanwhile, Patience observes the world while trapped in her own body. She laughs, she cries, she has opinions and knows what she wants. But those who love her most - and make every decision about her life - will never know.Or will they? When the Willows are offered the opportunity for Patience to take part in a new gene therapy trial to cure her Rett syndrome, they face an impossible dilemma. Are the very real risks worth the chance of the reward, no matter how small?'An extraordinary novel about love and hope and family and what happens in the space between the words. I adored it' Kirsten Hesketh, author of Another Us

Devoted: The Story of a Father's Love for His Son


Dick Hoyt - 2010
    Born a spastic quadraplegic, Rick Hoyt was written off by numerous doctors. They advised his parents, Dick and Judy, to put their firstborn son in an institution. But Rick’s parents refused. Determined to give their son every opportunity that “normal” kids had, they made sure to include Rick in everything they did, especially with their other two sons, Rob and Russ. But home was one thing, the world at large, another. Repeatedly rebuffed by school administrators who resisted their attempts to enroll Rick in school, Rick’s mother worked tirelessly to help pass a landmark bill, Chapter 766, the first special-education reform law in the country. As a result, Rick and other physically disabled kids were able to attend public school in Massachusetts. But how would Rick communicate when he couldn’t talk? To overcome this daunting obstacle, Dick and Judy worked with Dr. William Crochetiere, then chairman of the engineering department at Tufts University, and several enterprising graduate students, including Rick Foulds, to create the Tufts Interactive Communication device (TCI). In the Hoyt household, it became known as the “Hope machine,” as it enabled Rick to create sentences by pressing his head against a metal bar. For the first time ever, Rick was able to communicate. Then one day Rick asked his dad to enter a charity race, but there was a twist. Rick wanted to run too. Dick had never run a race before, but more challenging still, he would have to push his son’s wheelchair at the same time. But once again, the Hoyts were determined to overcome whatever obstacle was put in their way. Now, over one thousand races later, including numerous marathons and triathlons, Dick Hoyt continues to push Rick’s wheelchair. Affectionately known worldwide as Team Hoyt, they are as devoted as ever, continuing to inspire millions and embodying their trademark motto of “Yes, you can.”