Now I See You: A Memoir


Nicole C. Kear - 2014
    Kear's biggest concern is choosing a major--until she walks into a doctor's office in midtown Manhattan and gets a life-changing diagnosis. She is going blind, courtesy of an eye disease called retinitis pigmentosa, and has only a decade or so before Lights Out. Instead of making preparations as the doctor suggests, Kear decides to carpe diem and make the most of the vision she has left. She joins circus school, tears through boyfriends, travels the world, and through all these hi-jinks, she keeps her vision loss a secret.When Kear becomes a mother, just a few years shy of her vision's expiration date, she amends her carpe diem strategy, giving up recklessness in order to relish every moment with her kids. Her secret, though, is harder to surrender - and as her vision deteriorates, harder to keep hidden. As her world grows blurred, one thing becomes clear: no matter how hard she fights, she won't win the battle against blindness. But if she comes clean with her secret, and comes to terms with the loss, she can still win her happy ending.Told with humor and irreverence, Now I See You is an uplifting story about refusing to cower at life's curveballs, about the power of love to triumph over fear. But, at its core, it's a story about acceptance: facing the truths that just won't go away, and facing yourself, broken parts and all.

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Life, Animated: A Story of Sidekicks, Heroes, and Autism


Ron Suskind - 2014
    It is the saga of Owen Suskind, who happens to be the son of one of America's most noted writers, the Pulitzer Prize-winning journalist and author Ron Suskind. He's also autistic. The twisting, 20-year journey of this boy and his family will change that way you see autism, old Disney movies, and the power of imagination to heal a shattered, upside-down world.

The Undertaker's Daughter


Kate Mayfield - 2014
    It was thrilling, because it was an unthinkable act.After Kate Mayfield was born, she was taken directly to a funeral home. Her father was an undertaker, and for thirteen years the family resided in a place nearly synonymous with death. A place where the living and the dead entered their house like a vapor. The place where Kate would spend the entirety of her childhood. In a memoir that reads like a Harper Lee novel, Mayfield draws the reader into a world of Southern mystique and ghosts.Kate's father set up shop in a small town where he was one of two white morticians during the turbulent 1960s. Jubilee, Kentucky, was a segregated, god-fearing community where no one kept secrets, except the ones they were buried with. By opening a funeral home, Kate's father also opened the door to family feuds, fetishes, and victims of accidents, murder, and suicide. The family saw it all. They also saw the quiet ruin of Kate's father, who hid alcoholism and infidelity behind a cool, charismatic exterior. As Mayfield grows from trusting child to rebellious teen, she begins to find the enforced hush of the funeral home oppressive, and longs for the day she can escape the confines of her small town.In The Undertaker's Daughter, Kate has written a triumph of a memoir. This vivid and stranger-than-fiction true story ultimately teaches us how living in a house of death can prepare one for life.

Sitting Pretty: The View from My Ordinary Resilient Disabled Body


Rebekah Taussig - 2020
    None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling.Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life.Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

Beauty in the Broken Places: A Memoir of Love, Faith, and Resilience


Allison Pataki - 2018
    After an emergency landing, she discovered that Dave—a healthy thirty-year-old athlete and surgical resident—had suffered a rare and life-threatening stroke. Next thing Allison knew, she was sitting alone in the ER in Fargo, North Dakota, waiting to hear if her husband would survive the night. When Dave woke up, he could not carry memories from hour to hour, much less from one day to the next. Allison lost the Dave she knew and loved when he lost consciousness on the plane. Within a few months, she found herself caring for both a newborn and a sick husband, struggling with the fear of what was to come. As a way to make sense of the pain and chaos of their new reality, Allison started to write daily letters to Dave. Not only would she work to make sense of the unfathomable experiences unfolding around her, but her letters would provide Dave with the memories he could not make on his own. She was writing to preserve their past, protect their present, and fight for their future. Those letters became the foundation for this beautiful, intimate memoir. And in the process, she fell in love with her husband all over again. This is a manifesto for living, an ultimately uplifting story about the transformative power of faith and resilience. It’s a tale of a husband’s turbulent road to recovery, the shifting nature of marriage, and the struggle of loving through pain and finding joy in the broken places.

High Price: A Neuroscientist's Journey of Self-Discovery That Challenges Everything You Know About Drugs and Society


Carl L. Hart - 2013
    At the same time, he was immersed in street life. Today he is a cutting-edge neuroscientist—Columbia University's first tenured African American professor in the sciences—whose landmark, controversial research is redefining our understanding of addiction.In this provocative and eye-opening memoir, he recalls his journey of self-discovery and weaves his past and present. Hart goes beyond the hype of the antidrug movement as he examines the relationship among drugs, pleasure, choice, and motivation, both in the brain and in society. His findings shed new light on common ideas about race, poverty, and drugs, and explain why current policies are failing.Though Hart escaped neighborhoods that were dominated by entrenched poverty and the knot of problems associated with it, he has not turned his back on his roots. Determined to make a difference, he tirelessly applies his scientific research to help save real lives. But balancing his former street life with his achievements today has not been easy—a struggle he reflects on publicly for the first time.A powerful story of hope and change, of a scientist who has dedicated his life to helping others, High Price will alter the way we think about poverty, race, and addiction—and how we can effect change.

All That Remains: A Life in Death


Sue Black - 2018
    As Professor of Anatomy and Forensic Anthropology, she focuses on mortal remains in her lab, at burial sites, at scenes of violence, murder and criminal dismemberment, and when investigating mass fatalities due to war, accident or natural disaster. In All that Remains she reveals the many faces of death she has come to know, using key cases to explore how forensic science has developed, and what her work has taught her. Do we expect a book about death to be sad? Macabre? Sue’s book is neither. There is tragedy, but there is also humour in stories as gripping as the best crime novel. Our own death will remain a great unknown. But as an expert witness from the final frontier, Sue Black is the wisest, most reassuring, most compelling of guides.

Final Exam: A Surgeon's Reflections on Mortality


Pauline W. Chen - 2006
    What she did not count on was how much death would be a part of her work. Almost immediately, Chen found herself wrestling with medicine’s most profound paradox, that a profession premised on caring for the ill also systematically depersonalizes dying. Final Exam follows Chen over the course of her education, training, and practice as she grapples at strikingly close range with the problem of mortality, and struggles to reconcile the lessons of her training with her innate knowledge of shared humanity, and to separate her ideas about healing from her fierce desire to cure.From her first dissection of a cadaver in gross anatomy to the moment she first puts a scalpel to a living person; from the first time she witnesses someone flatlining in the emergency room to the first time she pronounces a patient dead, Chen is struck by her own mortal fears: there was a dying friend she could not call; a young patient’s tortured death she could not forget; even the sense of shared kinship with a corpse she could not cast aside when asked to saw its pelvis in two. Gradually, as she confronts the ways in which her fears have incapacitated her, she begins to reject what she has been taught about suppressing her feelings for her patients, and she begins to carve out a new role for herself as a physician and as human being. Chen’s transfixing and beautiful rumination on how doctors negotiate the ineluctable fact of death becomes, in the end, a brilliant questioning of how we should live.Moving and provocative, motored equally by clinical expertise and extraordinary personal grace, this is a piercing and compassionate journey into the heart of a world that is hidden and yet touches all of our lives. A superb addition to the best medical literature of our time.

There Is No Me Without You: One Woman's Odyssey to Rescue Africa's Children


Melissa Fay Greene - 2006
    When Haregwoin Teferra’s husband and daughter died within a few years of each other, her life is shattered and she becomes a recluse. But then a priest delivers an orphan to her door. The another, and another... and together they thrive.The distinguished author of Praying for Sheetrock and two-time National Book award finalist puts a human face on the AIDS crisis in Africa. When Haregwoin Teferra’s husband and 23-year-old daughter died within a few years of each other, her middle-class life in Addis Ababa, Ethiopia, was shattered. Bereft and with little to live for, Haregwoin became a recluse. Her self-imposed exile to a hut near her daughter’s grave was interrupted when a priest delivered first one, then another, orphaned teenager into her care. To everyone’s surprise, the children thrived, and so did Haregwoin. As word spread, children of all ages began to appear at her modest home: an infant brought by a dying mother, an orphaned brother and sister whose grandfather was too poor to feed them, a baby left on her doorstep. Haregwoin’s small compound became known as the rare place where ailing parents and impoverished families could safely leave their children. Soon Haregwoin was caring for sixty children, running an unofficial orphanage and day school, and learning first-hand about her country’s and her continent’s greatest challenge: the AIDS pandemic that is leaving millions of children without parents to care for them. With the flair and grace of a novelist and the reportorial instincts of a seasoned journalist, Melissa Fay Greene gets to the heart of the AIDS crisis, in a story that is nevertheless one of hope. There Is No Me Without You is the story of Haregwoin and her children: a story of struggle and despair, but also of the triumph of saved lives, and the renewed happiness of children welcomed by adoptive parents in Ethiopia, America, and around the world. Haregewoin’s remarkable story convinces us that the crisis in Africa touches every one of us in some fundamental way. At heart, this book is about children and the parents they need to care for them.

Lifelines: A Doctor's Journey in the Fight for Public Health


Leana Wen - 2021
    Leana Wen likes to use. You don’t know it because good public health is invisible. It becomes visible only in its absence, when it is underfunded and ignored, a bitter truth laid bare as never before by the devastation of COVID-19.Leana Wen—emergency physician, former Baltimore health commissioner, CNN medical analyst, and Washington Post contributing columnist—has lived on the front lines of public health, leading the fight against the opioid epidemic, outbreaks of infectious disease, maternal and infant mortality, and COVID-19 disinformation. Here, in gripping detail, Wen lays bare the lifesaving work of public health and its innovative approach to social ills, treating gun violence as a contagious disease, for example, and racism as a threat to health.Wen also tells her own uniquely American story: an immigrant from China, she and her family received food stamps and were at times homeless despite her parents working multiple jobs. That child went on to attend college at thirteen, become a Rhodes scholar, and turn to public health as the way to make a difference in the country that had offered her such possibilities.Ultimately, she insists, it is public health that ensures citizens are not robbed of decades of life, and that where children live does not determine whether they live.

Thinking in Pictures: My Life with Autism


Temple Grandin - 1995
    She also lectures widely on autism—because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us. In this unprecedented book, Grandin delivers a report from the country of autism. Writing from the dual perspectives of a scientist and an autistic person, she tells us how that country is experienced by its inhabitants and how she managed to breach its boundaries to function in the outside world. What emerges in Thinking in Pictures is the document of an extraordinary human being, one who, in gracefully and lucidly bridging the gulf between her condition and our own, sheds light on the riddle of our common identity.

Second Suns: Two Doctors and Their Amazing Quest to Restore Sight and Save Lives


David Oliver Relin - 2013
      In this transporting book, David Oliver Relin shines a light on the work of Geoffrey Tabin and Sanduk Ruit, gifted ophthalmologists who have dedicated their lives to restoring sight to some of the world’s most isolated, impoverished people through the Himalayan Cataract Project, an organization they founded in 1995. Tabin was the high-achieving bad boy of Harvard Medical School, an accomplished mountain climber and adrenaline junkie as brilliant as he was unconventional. Ruit grew up in a remote Nepalese village, where he became intimately acquainted with the human costs of inadequate access to health care. Together they found their life’s calling: tending to the afflicted people of the Himalayas, a vast mountainous region with an alarmingly high incidence of cataract blindness.  Second Suns takes us from improvised plywood operating tables in villages without electricity or plumbing to state-of-the-art surgical centers at major American universities where these two driven men are restoring sight—and hope—to patients from around the world. With their revolutionary, inexpensive style of surgery, Tabin and Ruit have been able to cure tens of thousands—all for about twenty dollars per operation. David Oliver Relin brings the doctors’ work to vivid life through poignant portraits of patients helped by the surgery, from old men who cannot walk treacherous mountain trails unaided to cataract-stricken children who have not seen their mothers’ faces for years. With the dexterity of a master storyteller, Relin shows the profound emotional and practical impact that these operations have had on patients’ lives.  Second Suns is the moving, unforgettable story of how two men with a shared dream are changing the world, one pair of eyes at a time.Praise for Second Suns   “As miracles go, it’s hard to beat making the blind see. Yet that’s exactly what the eye surgeon Dr. Geoffrey Tabin can do. He services poor people in the developing world who have developed cataracts—a clouding of the lens of the eye that is the world’s leading cause of blindness. . . . Second Suns is a hopeful work, a profile of two doctors who have dedicated their lives to bringing light to those in darkness.”—Time   “A compelling and inspiring book . . . Second Suns portrays heroic health care delivered under harrowing conditions: Ruit and his teams carry their equipment on multi-day treks up steep mountain trails, sometimes hiking at night with flashlights or head lamps, to reach settlements where they typically spend several days operating on hundreds of villagers in makeshift surgical theaters.”—The Washington Post   “Second Suns should be required reading for anybody with an interest in humanitarian philanthropy—or, for that matter, a desire to feel a little better about the world.”—Outside   “A detailed, heartfelt account of the work of [two] dedicated pioneers.”—Kirkus Reviews

Until Tuesday: A Wounded Warrior and the Golden Retriever Who Saved Him


Luis Carlos Montalván - 2011
    Army, Luis Montalván never backed down from a challenge during his two tours of duty in Iraq. After returning home from combat, however, his physical wounds and crippling post-traumatic stress disorder began to take their toll. He wondered if he would ever recover.Then Luis met Tuesday, a sensitive golden retriever trained to assist the disabled. Tuesday had lived among prisoners and at a home for troubled boys, and he found it difficult to trust in or connect with a human being--until Luis.Until Tuesday is the story of how two wounded warriors, who had given so much and suffered the consequences, found salvation in each other. It is a story about war and peace, injury and recovery, psychological wounds and spiritual restoration. But more than that, it is a story about the love between a man and dog, and how, together, they healed each other's souls.