My Lovely Wife in the Psych Ward


Mark Lukach - 2017
    They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that her loved ones were not safe.Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. Pushed to the edge of the abyss, everything the couple had once taken for granted was upended.A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife in the Psych Ward is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach’s is an intensely personal odyssey through the harrowing years of his wife’s mental illness, anchored by an abiding devotion to family that will affirm readers’ faith in the power of love.

Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain


Abby Norman - 2018
    She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands--securing a job in a hospital and educating herself over lunchtime reading in the medical library--that she found an accurate diagnosis of endometriosis.In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

The Neuroscientist Who Lost Her Mind: My Tale of Madness and Recovery


Barbara K. Lipska - 2018
    As the cancer progressed and was treated, the author experienced behavioral and cognitive symptoms connected to a range of mental disorders, including her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, recalled her experience and, through her knowledge of neuroscience, identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist McArdle, shows that strength and courage but also a encouraging support network are vital to recovery

Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body


Martin Pistorius - 2011
    But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents’ marriage and their family to the core. Their boy was gone. Or so they thought.Ghost Boy is the heart-wrenching story of one boy’s return to life through the power of love and faith. In these pages, readers see a parent’s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin’s mental alertness betrayed by his lifeless body.We also see a life reclaimed—a business created, a new love kindled—all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.

Prognosis: A Memoir of My Brain


Sarah Vallance - 2019
    The next morning, things take a sharp turn as she’s led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.Afraid of judgment and deemed no longer fit for work, Sarah isolates herself from the outside world. She spends months at home, with her dogs as her only source of companionship, battling a personality she no longer recognizes and her shock and rage over losing simple functions she’d taken for granted. Her life is consumed by fear and shame until a chance encounter gives Sarah hope that her brain can heal. That conversation lights a small flame of determination, and Sarah begins to push back, painstakingly reteaching herself to read and write, and eventually reentering the workforce and a new, if unpredictable, life.In this highly intimate account of devastation and renewal, Sarah pulls back the curtain on life with traumatic brain injury, an affliction where the wounds are invisible and the lasting effects are often misunderstood. Over years of frustrating setbacks and uncertain triumphs, Sarah comes to terms with her disability and finds love with a woman who helps her embrace a new, accepting sense of self.

Now I See You: A Memoir


Nicole C. Kear - 2014
    Kear's biggest concern is choosing a major--until she walks into a doctor's office in midtown Manhattan and gets a life-changing diagnosis. She is going blind, courtesy of an eye disease called retinitis pigmentosa, and has only a decade or so before Lights Out. Instead of making preparations as the doctor suggests, Kear decides to carpe diem and make the most of the vision she has left. She joins circus school, tears through boyfriends, travels the world, and through all these hi-jinks, she keeps her vision loss a secret.When Kear becomes a mother, just a few years shy of her vision's expiration date, she amends her carpe diem strategy, giving up recklessness in order to relish every moment with her kids. Her secret, though, is harder to surrender - and as her vision deteriorates, harder to keep hidden. As her world grows blurred, one thing becomes clear: no matter how hard she fights, she won't win the battle against blindness. But if she comes clean with her secret, and comes to terms with the loss, she can still win her happy ending.Told with humor and irreverence, Now I See You is an uplifting story about refusing to cower at life's curveballs, about the power of love to triumph over fear. But, at its core, it's a story about acceptance: facing the truths that just won't go away, and facing yourself, broken parts and all.

Wholly Unraveled: A Memoir


Keele Burgin - 2019
    Parties were punishable with violence. Fear was part of the daily norm. Growing up in a Catholic cult, under the unforgiving eye of her abusive father, Kathleen knew from an early age that if she were to survive, she’d have to do it on her own.But when the time came to escape, she found herself in a damaging spiral of self-destruction. At rock bottom, and with nowhere to go, Kathleen stepped off a bus in the last place she ever thought she’d find peace: a remote community in rural Canada. Spending a year in almost complete silence, Kathleen feared this experience would prove to be just another step in her unraveling. Instead, with her demons quieted, she emerged with a fresh understanding of self, an empowering new purpose, and a sense of worthiness that she would never let be challenged again.Wholly Unraveled is Keele Burgin’s gripping and inspiring journey of self-discovery and of finally finding her voice against nearly insurmountable odds.

Hollywood Park


Mikel Jollett - 2020
    Mikel Jollett was born into one of the country’s most infamous cults, and subjected to a childhood filled with poverty, addiction, and emotional abuse. Yet, ultimately, his is a story of fierce love and family loyalty told in a raw, poetic voice that signals the emergence of a uniquely gifted writer.We were never young. We were just too afraid of ourselves. No one told us who we were or what we were or where all our parents went. They would arrive like ghosts, visiting us for a morning, an afternoon. They would sit with us or walk around the grounds, to laugh or cry or toss us in the air while we screamed. Then they’d disappear again, for weeks, for months, for years, leaving us alone with our memories and dreams, our questions and confusion. …So begins Hollywood Park, Mikel Jollett’s remarkable memoir. His story opens in an experimental commune in California, which later morphed into the Church of Synanon, one of the country’s most infamous and dangerous cults. Per the leader’s mandate, all children, including Jollett and his older brother, were separated from their parents when they were six months old, and handed over to the cult’s “School.” After spending years in what was essentially an orphanage, Mikel escaped the cult one morning with his mother and older brother. But in many ways, life outside Synanon was even harder and more erratic.In his raw, poetic and powerful voice, Jollett portrays a childhood filled with abject poverty, trauma, emotional abuse, delinquency and the lure of drugs and alcohol. Raised by a clinically depressed mother, tormented by his angry older brother, subjected to the unpredictability of troubled step-fathers and longing for contact with his father, a former heroin addict and ex-con, Jollett slowly, often painfully, builds a life that leads him to Stanford University and, eventually, to finding his voice as a writer and musician.Hollywood Park is told at first through the limited perspective of a child, and then broadens as Jollett begins to understand the world around him. Although Mikel Jollett’s story is filled with heartbreak, it is ultimately an unforgettable portrayal of love at its fiercest and most loyal.

Dear Life: A Doctor's Story of Love and Loss


Rachel Clarke - 2020
    Every day she tries to bring care and comfort to those reaching the end of their lives and to help make dying more bearable. Rachel's training was put to the test in 2017 when her beloved GP father was diagnosed with terminal cancer. She learned that nothing - even the best palliative care - can sugar-coat the pain of losing someone you love. And yet, she argues, in a hospice there is more of what matters in life - more love, more strength, more kindness, more joy, more tenderness, more grace, more compassion - than you could ever imagine. For if there is a difference between people who know they are dying and the rest of us, it is simply this: that the terminally ill know their time is running out, while we live as though we have all the time in the world. Dear Life is a book about the vital importance of human connection, by the doctor we would all want by our sides at a time of crisis. It is a love letter - to a father, to a profession, to life itself.

Home is Burning


Dan Marshall - 2015
    First diagnosed when he was only ten years old, she was the model of resilience throughout his childhood, fighting her disease with tenacity and a mouth foul enough to make a sailor blush. But just as she faces a relapse, her husband —a successful businessman and devoted father—is diagnosed with ALS. He is told that in a few months' time, he be unable to walk, eat, or breathe on his own. Dan, a recent college graduate living the good life in Los Angeles, has no choice but to return home to help. Reinstalled in his parents' basement (in one of the only non-Mormon homes in a Salt Lake City subdivision) Dan is reunited with his siblings. His older sister Tiffany is resentful, having stayed closer to home to bear the brunt of their mother's illness. Younger brother Greg comes to lend a hand, giving up a journalism career and evenings cruising Chicago gay bars. Younger sister Michelle is a sullen teenager experimenting with drinking and flirting with her 35-year-old soccer coach. And baby sister Chelsea—the oddest duck in a family of misfits—can only think about dance. Together they form Team Terminal, going to battle against their parents' illnesses and cracking plenty of jokes along the way. As Dan steps into his role as caregiver, wheelchair wrangler, and sibling referee, he watches pieces of his previous life slip away, and comes to realize that you don't get to choose when it's time to grow up.

Smoke Gets in Your Eyes & Other Lessons from the Crematory


Caitlin Doughty - 2014
    Thrown into a profession of gallows humor and vivid characters (both living and very dead), Caitlin learned to navigate the secretive culture of those who care for the deceased.Smoke Gets in Your Eyes tells an unusual coming-of-age story full of bizarre encounters and unforgettable scenes. Caring for dead bodies of every color, shape, and affliction, Caitlin soon becomes an intrepid explorer in the world of the dead. She describes how she swept ashes from the machines (and sometimes onto her clothes) and reveals the strange history of cremation and undertaking, marveling at bizarre and wonderful funeral practices from different cultures.Her eye-opening, candid, and often hilarious story is like going on a journey with your bravest friend to the cemetery at midnight. She demystifies death, leading us behind the black curtain of her unique profession. And she answers questions you didn’t know you had: Can you catch a disease from a corpse? How many dead bodies can you fit in a Dodge van? What exactly does a flaming skull look like?Honest and heartfelt, self-deprecating and ironic, Caitlin's engaging style makes this otherwise taboo topic both approachable and engrossing. Now a licensed mortician with an alternative funeral practice, Caitlin argues that our fear of dying warps our culture and society, and she calls for better ways of dealing with death (and our dead).

Constellations


Sinéad Gleeson - 2019
    A map, a tracing of connections and a guide to looking at things from different angles. How do you tell the story of life that is no one thing? How do you tell the story of a life in a body, as it goes through sickness, health, motherhood? And how do you tell that story when you are not just a woman but a woman in Ireland? In these powerful and daring essays, Sinead Gleeson does that very thing. In doing so she delves into a range of subjects: art, illness, ghosts, grief, and our very ways of seeing. In writing that is in tradition of some of our finest writers such as Olivia Laing, Maggie O'Farrell, and Maggie Nelson, and yet still in her own spirited, warm voice, Gleeson takes us on a journey that is both personal and yet universal in its resonance.

I Want to Be Where the Normal People Are


Rachel Bloom - 2020
     Rachel Bloom has felt abnormal and out of place her whole life. In this exploration of what she thinks makes her "different," she's come to realize that a lot of people also feel this way; even people who she otherwise thought were "normal."In a collection of laugh-out-loud funny essays, all told in the unique voice (sometimes singing voice) that made her a star; Rachel writes about everything from her love of Disney, OCD and depression, weirdness, and female friendships to the story of how she didn't poop in the toilet until she was four years old; Rachel's pieces are hilarious, smart, and infinitely relatable (except for the pooping thing).

Before and After: The Incredible Real-Life Stories of Orphans Who Survived the Tennessee Children's Home Society


Judy Christie - 2019
    She offered up more than 5,000 orphans tailored to the wish lists of eager parents--hiding the fact that many weren't orphans at all, but stolen sons and daughters of poor families, desperate single mothers, and women told in maternity wards that their babies had died.The publication of Lisa Wingate's novel Before We Were Yours brought new awareness of Tann's lucrative career in child trafficking. Adoptees who knew little about their pasts gained insight into the startling facts behind their family histories. Encouraged by their contact with Wingate and award-winning journalist Judy Christie, who documented the stories of fifteen adoptees in this book, many determined Tann survivors set out to trace their roots and find their birth families.Before and After includes moving and sometimes shocking accounts of the ways in which adoptees were separated from their first families. Often raised as only children, many have joyfully reunited with siblings in the final decades of their lives. In Before and After, Wingate and Christie tell of first meetings that are all the sweeter and more intense for time missed and of families from very different social backgrounds reaching out to embrace better-late-than-never brothers, sisters, and cousins. In a poignant culmination of art meeting life, long-silent victims of the tragically corrupt system return to Memphis with Wingate and Christie to reclaim their stories at a Tennessee Children's Home Society reunion . . . with extraordinary results.

The Sound of a Wild Snail Eating


Elisabeth Tova Bailey - 2010
    While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal.  Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.