Dying: A Memoir


Cory Taylor - 2016
    Her illness is no longer treatable. As she tells us in her remarkable last book, Dying: A Memoir, she now weighs less than her neighbour’s retriever.Written in the space of a few weeks, in a tremendous creative surge, this powerful and beautifully written book is a clear-eyed account of what dying has taught Cory: she describes the tangle of her feelings, she reflects on her life, and she remembers the lives and deaths of her parents. She tells us why she would like to be able to choose the circumstances of her own death.Dying: A Memoir is a breathtaking book about vulnerability and strength, courage and humility, anger and acceptance. It is a deeply affecting meditation on dying, but it is also a funny and wise tribute to life.

The Oak Papers


James Canton - 2021
    While considering the direction of his own life, he began to contemplate the existence of this colossal tree. Standing in England for centuries, the oak would have been a sapling when the Magna Carta was signed in 1215.Canton examines our long-standing dependency on the oak, and how that has developed and morphed into myth and legend. We no longer need these sturdy trees to build our houses and boats, to fuel our fires, or to grind their acorns into flour in times of famine. What purpose, then, do they serve in our world today? Are these miracles of nature no longer necessary to our lives? What can they offer us? Canton tells the story of this tree in its ecological, spiritual, literary, and historical contexts, using it as a prism to see his own life and human history. The Oak Papers is a reflection on change and transformation, and the role nature has played in sustaining and redeeming us.

Why They Marched: Untold Stories of the Women Who Fought for the Right to Vote


Susan Ware - 2019
    But Susan Ware uncovered a much broader and more diverse story waiting to be told. Why They Marched is a tribute to the many women who worked tirelessly in communities across the nation, out of the spotlight, protesting, petitioning, and insisting on their right to full citizenship.Ware tells her story through the lives of nineteen activists, most of whom have long been overlooked. We meet Mary Church Terrell, a multilingual African American woman; Rose Schneiderman, a labor activist building coalitions on New York’s Lower East Side; Claiborne Catlin, who toured the Massachusetts countryside on horseback to drum up support for the cause; Mary Johnston, an aristocratic novelist bucking the Southern ruling elite; Emmeline W. Wells, a Mormon woman in a polygamous marriage determined to make her voice heard; and others who helped harness a groundswell of popular support. We also see the many places where the suffrage movement unfolded—in church parlors, meeting rooms, and the halls of Congress, but also on college campuses and even at the top of Mount Rainier. Few corners of the United States were untouched by suffrage activism.Ware’s deeply moving stories provide a fresh account of one of the most significant moments of political mobilization in American history. The dramatic, often joyous experiences of these women resonate powerfully today, as a new generation of young women demands to be heard.

Inferno: A Doctor's Ebola Story


Steven Hatch - 2017
    Steven Hatch first came to Liberia in November 2013, to work at a hospital in Monrovia. Six months later, several of the physicians Dr. Hatch had mentored and served with were dead or barely clinging to life, and Ebola had become a world health emergency. Hundreds of victims perished each week; whole families were destroyed in a matter of days; so many died so quickly that the culturally taboo practice of cremation had to be instituted to dispose of the bodies. With little help from the international community and a population ravaged by disease and fear, the war-torn African nation was simply unprepared to deal with the catastrophe.A physician’s memoir about the ravages of a terrible disease and the small hospital that fought to contain it, Inferno is also an explanation of the science and biology of Ebola: how it is transmitted and spreads with such ferocity. And as Dr. Hatch notes, while Ebola is temporarily under control, it will inevitably re-emerge—as will other plagues, notably the Zika virus, which the World Health Organization has declared a public health emergency. Inferno is a glimpse into the white-hot center of a crisis that will come again.

The Great Pretender: The Undercover Mission That Changed Our Understanding of Madness


Susannah Cahalan - 2019
    Forced to remain inside until they'd "proven" themselves sane, all eight emerged with alarming diagnoses and even more troubling stories of their treatment. Rosenhan's study broke open the field of psychiatry, closing down institutions and changing mental health diagnosis forever. But, as Cahalan's new research shows, very little in this saga is exactly as it seems. What really happened behind those closed asylum doors, and what does it mean for our understanding of mental illness today?

Imbeciles: The Supreme Court, American Eugenics, and the Sterilization of Carrie Buck


Adam Cohen - 2016
    Bell ruling made government sterilization of "undesirable" citizens the law of the land. New York Times bestselling author Adam Cohen tells the story in Imbeciles of one of the darkest moments in the American legal tradition: the Supreme Court's decision to champion eugenic sterilization for the greater good of the country. In 1927, when the nation was caught up in eugenic fervor, the justices allowed Virginia to sterilize Carrie Buck, a perfectly normal young woman, for being an "imbecile." It is a story with many villains, from the superintendent of the Dickensian Virginia Colony for Epileptics and Feebleminded who chose Carrie for sterilization to the former Missouri agriculture professor and Nazi sympathizer who was the nation's leading advocate for eugenic sterilization. But the most troubling actors of all were the eight Supreme Court justices who were in the majority--including William Howard Taft, the former president; Louis Brandeis, the legendary progressive; and Oliver Wendell Holmes, Jr., America's most esteemed justice, who wrote the decision urging the nation to embark on a program of mass eugenic sterilization

The Unmapped Mind: A Memoir of Neurology, Multiple Sclerosis and Learning How to Live


Christian Donlan - 2018
    As his young daughter starts to investigate the world around her, he too finds himself exploring a new landscape - the shifting and bewildering territory of the brain.Determined to master his new environment, Christian takes us on a fascinating and illuminating journey: through the history of neurology, the joys and anxieties of parenthood, and the ultimate realisation of what, after everything you take for granted has been stripped away from you, is truly important in life.

Final Exam: A Surgeon's Reflections on Mortality


Pauline W. Chen - 2006
    What she did not count on was how much death would be a part of her work. Almost immediately, Chen found herself wrestling with medicine’s most profound paradox, that a profession premised on caring for the ill also systematically depersonalizes dying. Final Exam follows Chen over the course of her education, training, and practice as she grapples at strikingly close range with the problem of mortality, and struggles to reconcile the lessons of her training with her innate knowledge of shared humanity, and to separate her ideas about healing from her fierce desire to cure.From her first dissection of a cadaver in gross anatomy to the moment she first puts a scalpel to a living person; from the first time she witnesses someone flatlining in the emergency room to the first time she pronounces a patient dead, Chen is struck by her own mortal fears: there was a dying friend she could not call; a young patient’s tortured death she could not forget; even the sense of shared kinship with a corpse she could not cast aside when asked to saw its pelvis in two. Gradually, as she confronts the ways in which her fears have incapacitated her, she begins to reject what she has been taught about suppressing her feelings for her patients, and she begins to carve out a new role for herself as a physician and as human being. Chen’s transfixing and beautiful rumination on how doctors negotiate the ineluctable fact of death becomes, in the end, a brilliant questioning of how we should live.Moving and provocative, motored equally by clinical expertise and extraordinary personal grace, this is a piercing and compassionate journey into the heart of a world that is hidden and yet touches all of our lives. A superb addition to the best medical literature of our time.

The Poison Squad: One Chemist's Single-Minded Crusade for Food Safety at the Turn of the Twentieth Century


Deborah Blum - 2018
    Harvey Washington Wiley, who fought for change.By the end of nineteenth century, food was dangerous. Lethal, even. "Milk" might contain formaldehyde, most often used to embalm corpses. Decaying meat was preserved with both salicylic acid, a pharmaceutical chemical, and borax, a compound first identified as a cleaning product. This was not by accident; food manufacturers had rushed to embrace the rise of industrial chemistry, and were knowingly selling harmful products. Unchecked by government regulation, basic safety, or even labelling requirements, they put profit before the health of their customers. By some estimates, in New York City alone, thousands of children were killed by "embalmed milk" every year. Citizens--activists, journalists, scientists, and women's groups--began agitating for change. But even as protective measures were enacted in Europe, American corporations blocked even modest regulations. Then, in 1883, Dr. Harvey Washington Wiley, a chemistry professor from Purdue University, was named chief chemist of the agriculture department, and the agency began methodically investigating food and drink fraud, even conducting shocking human tests on groups of young men who came to be known as, "The Poison Squad."Over the next thirty years, a titanic struggle took place, with the courageous and fascinating Dr. Wiley campaigning indefatigably for food safety and consumer protection. Together with a gallant cast, including the muckraking reporter Upton Sinclair, whose fiction revealed the horrific truth about the Chicago stockyards; Fannie Farmer, then the most famous cookbook author in the country; and Henry J. Heinz, one of the few food producers who actively advocated for pure food, Dr. Wiley changed history. When the landmark 1906 Food and Drug Act was finally passed, it was known across the land, as "Dr. Wiley's Law."Blum brings to life this timeless and hugely satisfying "David and Goliath" tale with righteous verve and style, driving home the moral imperative of confronting corporate greed and government corruption with a bracing clarity, which speaks resoundingly to the enormous social and political challenges we face today.

The Colony: The Harrowing True Story of the Exiles of Molokai


John Tayman - 2006
    Torn from their homes and families, these men, women, and children were loaded into shipboard cattle stalls and abandoned in a lawless place where brutality held sway. Many did not have leprosy, and many who did were not contagious, yet all were ensnared in a shared nightmare. Here, for the first time, John Tayman reveals the complete history of the Molokai settlement and its unforgettable inhabitants. It's an epic of ruthless manhunts, thrilling escapes, bizarre medical experiments, and tragic, irreversible error. Carefully researched and masterfully told, The Colony is a searing tale of individual bravery and extraordinary survival, and stands as a testament to the power of faith, compassion, and the human spirit.

The Sugarless Plum: A Ballerina's Triumph Over Diabetes


Zippora Karz - 2009
    Zippora Karz was a member of the famed New York City Ballet by the age of eighteen. By twenty she was starring as the Sugar Plum Fairy in The Nutcracker, dancing roles created by Jerome Robbins, and traveling the world.It was the stuff dreams are made of until, at age twenty-one, Karz became exhausted, dizzy and excessively thirsty. Heavy pancake makeup covered the sores under her arms that would not heal, but she neglected to go to the doctor. When she finally did, she was diagnosed with diabetes, and learned that if she continued to ignore her symptoms, she risked heart disease, stroke, kidney failure, blindness and amputation of her toes, feet and legs. She struggled to get the correct diagnosis and treatment, first thinking she had Type-2 diabetes, when in fact she had Type 1, juvenile diabetes. Once placed on an insulin regimen to regulate her blood sugar, she would inject herself with unsafe doses before going on stage in misguided attempts to obtain peak performance. The potentially fatal result of Karz's self-experimentation became all too real when she nearly lost consciousness. Her weight dropped and she became dangerously ill.Balancing ballet and her blood sugar would be a long and difficult struggle for Karz, but eventually she learned to value her body and work with it, rather than rage at its limitations. In The Sugarless Plum, Karz shares her journey from denial, shame and miseducation about her illness to how she led an active, balanced and satisfying life as an insulin-dependent diabetic and soloist with one of the world's most famous ballet companies. Through her fascinating story, those struggling with diabetes and other serious illnesses can find encouragement and inspiration as well as practical advice on achieving physical and emotional wellness.After sixteen years with the New York City Ballet, Karz retired and took her passion and skills into a whole new arena as a diabetes educator and advocate, where today she inspires people to not just manage their illness, but to thrive and fulfill their passions. The Sugarless Plum takes readers deep into the heart and soul of a young dancer, and is a remarkable testament to determination and perseverance.

Zeitoun


Dave Eggers - 2009
    Abdulrahman and Kathy Zeitoun run a house-painting business in New Orleans. In August of 2005, as Hurricane Katrina approaches, Kathy evacuates with their four young children, leaving Zeitoun to watch over the business. In the days following the storm he travels the city by canoe, feeding abandoned animals and helping elderly neighbors. Then, on September 6th, police officers armed with M-16s arrest Zeitoun in his home. Told with eloquence and compassion, Zeitoun is a riveting account of one family’s unthinkable struggle with forces beyond wind and water.

What Doesn't Kill You: A Life with Chronic Illness - Lessons from a Body in Revolt


Tessa Miller - 2021
    At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a yearslong nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better.Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications.Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Chasing My Cure: A Doctor's Race to Turn Hope into Action


David Fajgenbaum - 2019
    But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled by his condition, which they had yet to even diagnose. Floating in and out of consciousness, Fajgenbaum prayed for a second chance, the equivalent of a dramatic play to second the game into overtime.Miraculously, Fajgenbaum survived--only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease, an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed while on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: Between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends, and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world-class researchers to tackle them. Instead of waiting for the scientific stars to align, he would attempt to align them himself.More than five years later and now married to his college sweetheart, Fajgenbaum has seen his hard work pay off: A treatment he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when the forces of determination, love, family, faith, and serendipity collide.

Voices of a People's History of the United States


Howard Zinn - 2004
    For Voices, Zinn and Arnove have selected testimonies to living history—speeches, letters, poems, songs—left by the people who make history happen but who usually are left out of history books—women, workers, nonwhites. Zinn has written short introductions to the texts, which range in length from letters or poems of less than a page to entire speeches and essays that run several pages. Voices of a People’s History is a symphony of our nation’s original voices, rich in ideas and actions, the embodiment of the power of civil disobedience and dissent wherein lies our nation’s true spirit of defiance and resilience.