A Slant of Sun: One Child's Courage


Beth Kephart - 1998
    Like Operating Instructions and The Liars' Club, A Slant of Sun is a contemporary classic.Nearly one in five children grow up facing a developmental or behavioral challenge, and like them, Beth Kephart's son, Jeremy, showed early signs of being different: language eluded him, he preferred playing alone to an afternoon on the jungle gym. Doctors diagnosed Jeremy with a mild form of autism called Pervasive Developmental Disorder Not Otherwise Specified. A Slant of Sun is a passionate memoir about how Kephart, guided by the twin tools of intuition and imagination, helped lead her son toward wholeness. Pulsing with the questions, "Is normal possible? Definable?" A Slant of Sun speaks to everyone not just parents of the redemptive power of love.

A Really Good Day: How Microdosing Made a Mega Difference in My Mood, My Marriage, and My Life


Ayelet Waldman - 2017
    When a small vial arrives in her mailbox from "Lewis Carroll," Ayelet Waldman is at a low point. Her mood storms have become intolerably severe; she has tried nearly every medication possible; her husband and children are suffering with her. So she opens the vial, places two drops on her tongue, and joins the ranks of an underground but increasingly vocal group of scientists and civilians successfully using therapeutic microdoses of LSD. As Waldman charts her experience over the course of a month--bursts of productivity, sleepless nights, a newfound sense of equanimity--she also explores the history and mythology of LSD, the cutting-edge research into the drug, and the byzantine policies that control it. Drawing on her experience as a federal public defender, and as the mother of teenagers, and her research into the therapeutic value of psychedelics, Waldman has produced a book that is eye-opening, often hilarious, and utterly enthralling.

Making Peace with Autism: One Family's Story of Struggle, Discovery, and Unexpected Gifts


Susan Senator - 2005
    In this insightful narrative, a courageous and inspiring mother explains why a diagnosis of autism doesn't have to shatter a family's dreams of happiness. Senator offers the hard-won, in-the-trenches wisdom of someone who's been there and is still there today and she demonstrates how families can find courage, contentment, and connection in the shadow of autism.In Making Peace with Autism, Susan Senator describes her own journey raising a child with a severe autism spectrum disorder, along with two other typically developing boys. Without offering a miracle treatment or cure, Senator offers valuable strategies for coping successfully with the daily struggles of life with an autistic child.Along the way she models the combination of stamina and courage, openness, and humor that has helped her family to survive and even to thrive. Topics include: the agony of diagnosis, grieving and acceptance, finding the right school program, helping siblings with their struggles and concerns, having fun together, and keeping the marriage strong.

Sick: A Memoir


Porochista Khakpour - 2018
    For most of that time, she didn't know why. All of her trips to the ER and her daily anguish, pain, and lethargy only ever resulted in one question: How could any one person be this sick? Several drug addictions, three major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's arduous, emotional journey—as a woman, a writer, and a lifelong sufferer of undiagnosed health problems—through the chronic illness that perpetually left her a victim of anxiety, living a life stymied by an unknown condition.Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, New Mexico, and Germany—as she meditates on both the physical and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. With candor and grace, she examines her subsequent struggles with mental illness, her addiction to the benzodiazepines prescribed by her psychiatrists, and her ever-deteriorating physical health. A story about survival, pain, and transformation, Sick is a candid, illuminating narrative of hope and uncertainty, boldly examining the deep impact of illness on one woman's life.

The Complete Guide to Asperger's Syndrome


Tony Attwood - 2006
    Now including a new introduction explaining the impact of DSM-5 on the diagnosis and approach to AS, it brings together a wealth of information on all aspects of the syndrome for children through to adults.Drawing on case studies and personal accounts from Attwood's extensive clinical experience, and from his correspondence with individuals with AS, this book is both authoritative and extremely accessible. Chapters examine:* causes and indications of the syndrome* the diagnosis and its effect on the individual* theory of mind * the perception of emotions in self and others* social interaction, including friendships* long-term relationships* teasing, bullying and mental health issues* the effect of AS on language and cognitive abilities, sensory sensitivity, movement and co-ordination skills* career development.There is also an invaluable frequently asked questions chapter and a section listing useful resources for anyone wishing to find further information on a particular aspect of AS, as well as literature and educational tools.Essential reading for families and individuals affected by AS as well as teachers, professionals and employers coming in contact with people with AS, this book should be on the bookshelf of anyone who needs to know or is interested in this complex condition.'I usually say to the child, "Congratulations, you have Asperger's syndrome", and explain that this means he or she is not mad, bad or defective, but has a different way of thinking.' - from The Complete Guide to Asperger's Syndrome.

The Horse Boy: A Father's Quest to Heal His Son


Rupert Isaacson - 2009
    But when Isaacson, a lifelong horseman, rode their neighbor's horse with Rowan, Rowan improved immeasurably. He was struck with a crazy idea: why not take Rowan to Mongolia, the one place in the world where horses and shamanic healing intersected? THE HORSE BOY is the dramatic and heartwarming story of that impossible adventure. In Mongolia, the family found undreamed of landscapes and people, unbearable setbacks, and advances beyond their wildest dreams. This is a deeply moving, truly one-of-a-kind story--of a family willing to go to the ends of the earth to help their son, and of a boy learning to connect with the world for the first time.

Finding Kansas: Decoding the Enigma of Asperger's Syndrome


Aaron Likens - 2008
    Her personal account of the experience of autism was a revelation. It shattered many myths and previously accepted facts about autism. Her book permanently changed the previously limited understanding of autistic disorders. I believe Aarons writings have the same potential regarding Aspergers Disorder. He reveals depths of emotion, social comprehension, nuances of cognition and perception, and especially the potential for something close to recovery. I believe its potential benefits are invaluable and capable of changing lives. In the course of this personal odyssey, however, he becomes much more than a clinical study of Aspergers, for his personal queries eventually pose the same strenuous questions about the human experience that have challenged philosophers since antiquity: What is the meaning of our lives and actions? How do we reconcile our experience with that of others? Where does the Truth lie? What is Love? Does freedom equal love? Dr. Mark Cameron, PhD St. Louis, MO What Aaron has written provides a unique and unusual look into the cognitive processes involved in someone with Asperger's Syndrome. Understanding these ideas and emotions are essential to provide a better understanding to Autism Spectrum Disorders, including Asperger's Syndrome. This will provide a unique contribution to scientific research as well as better awareness and understanding of people with this disorder. Dr. Alycia Halladay Princeton, NJ

Twitch And Shout: A Touretter’s Tale


Lowell Handler - 1998
    Although he is a successful and acclaimed photojournalist, Handler has often seen himself as an outsider—a social outcast.  With courage and candor, he recalls the difficulties he suffered growing up, the confusion he experienced when doctors misdiagnosed his bizarre behavior as a psychological aberration, and finally how, restless and despairing, he embarked on a quest for answers.   In Twitch and Shout, Handler sets out, camera in hand, on a journey through less than savory parts of America.  From a transvestite bar in Tampa to a flophouse in New Orleans to a community health center in New York, he meets a variety of people who, like himself, don’t conform to the standards of conventional society. With a keen eye for detail and an acute sense of humor, this memoir perfectly captures the unique and unforgettable life of a Touretter.

The Electricity of Every Living Thing


Katherine May - 2018
    In August 2015, Katherine May set out to walk the 630-mile South West Coast Path. She wanted to understand why she had stopped coping with everyday life; why motherhood had been so overwhelming and isolating, and why the world felt full of inundation and expectations she can't meet. Setting her feet down on the rugged and difficult path by the sea, the answer begins to unfold. It's a chance encounter with a voice on the radio that sparks a realisation that she has Asperger's Syndrome. The Electricity of Every Living Thing tells the story of the year in which Katherine comes to terms with her diagnosis. It leads to a re-evaluation of her life so far - a kinder one, which finally allows her to be different rather than simply awkward, arrogant or unfeeling. The physical and psychological journeys become inextricably entwined, and as Katherine finds her way across the untameable coast, she also finds the way to herself.This book is a life-affirming exploration of wild landscapes, what it means to be different and, above all, how we can all learn to make peace within our own unquiet minds.

How Can I Talk If My Lips Don't Move: Inside My Autistic Mind


Tito Rajarshi Mukhopadhyay - 2008
    When he was three years old, Tito was diagnosed as severely autistic, but his remarkable mother, Soma, determined that he would overcome the problem by teaching him to read and write. The result was that between the ages of eight and eleven he wrote stories and poems of exquisite beauty, which Dr. Oliver Sacks called amazing and shocking. Their eloquence gave lie to all our assumptions about autism.Here Tito goes even further and writes of how the autistic mind works, how it views the outside world and the normal people he deals with daily, how he tells his stories to the mirror and hears stories back, how sounds become colors, how beauty fills his mind and heart. With this work, Tito whom Portia Iversen, co-founder of Cure Autism Now, has described as a window into autism such as the world has never seen gives the world a beacon of hope. For if he can do it, why can't others?Brave, bold, and deeply felt, this book shows that much we might have believed about autism can be wrong. Boston Globe

Sanity and Grace: A Journey of Suicide, Survival, and Strength


Judy Collins - 2003
    Sanity and Grace: A Journey of Suicide, Survival, and Strength

Here's to Not Catching Our Hair on Fire: An Absent-Minded Tale of Life with Giftedness and Attention Deficit - Oh Look! A Chicken!


Stacey Turis - 2011
    A hysterical romp through a life so convoluted and chaotic you know it has to be true, Stacey Turis's debut gives a voice to the genius yet tormented souls suffering from giftedness, ADHD, or a combination of both (a condition known as twice-exceptional). Chronicling her life journey from a state of self-loathing to one of self-acceptance, the stories flow timelessly, incorporating the resulting lessons and reflections gleaned from each adventure. Including both the tragic details of a horrifically abusive time in her childhood to comic adventures such as deciding to dye her hair plum the day before an important presentation only to have it turn out purple, her life has never suffered from a dull moment. And though she often thought Karma was the reason she found herself in so many "pickles," a friend explained that when you put yourself out in the world more than anyone else, it's really just a matter of statistics. Lucky for Turis and the rest of us, she's put herself out there again to allow us all to look at life through her pair of less-struggle-more-sass glasses. With over three hundred million people suffering from ADHD worldwide and experiencing many of the same debilitating symptoms, Turis's goal is to share her experiences so others can rid themselves of the shame of hiding their behavior. A rip-roaring and bracingly honest look at a twice-exceptional life, Here's to Not Catching Our Hair on Fire: An Absent-Minded Tale of Life with Giftedness and Attention Deficit-Oh Look! A Chicken! is a rollicking depiction of a life that seems to be constantly going off the rails. Kirkus Reviews - The World's Toughest Book Critics SM Turis' memoir is a bright-side report from the dark side of attention deficit (hyperactivity) disorder-also known as AD(H)D. Although none of us really knows what "normal" is, we can usually spot "different" a mile away. Folks with AD(H)D are definitely different, with brains and bodies that operate according to their own rules. But what is AD(H)D, and why does it matter? Turis answers these questions frankly in this insightful, amusing glimpse into atypical intelligence. The work starts by presenting the harsh bottom line: "Families, marriages, jobs, relationships...they all display the scars from the battle that is AD(H)D. Nothing comes out unscathed-absolutely nothing." Turis' examples of this are so honest that the book is sometimes painful to read, but that serves its purpose. Folks afflicted with the syndrome will recognize themselves in Turis' story and find comfort in her upbeat attitude, while "normal" people will gain knowledge toward understanding and accepting the "billion gifts and...gazillion heartaches" that go with AD(H)D. Readers unfamiliar with the condition will learn what all those letters mean. The title captures their essence, and from both title and subject one might expect the narrative to be jumpy. But, in fact, it flows smoothly through Turis' ups and downs, with lucid descriptions of psychic states that most anyone can to relate to. Turis' voice is vivid and engaging and her content informative. Turis speaks to anyone associated with AD(H)D and offers her life as illustration of how to succeed despite its burden. For Turis and her fellow sufferers, getting through daily rituals and social or career obligations is like climbing Mt. Everest during a tornado. She offers a model for how it can be done, loaded with laughter and sobered by tears. A forthright, energetic memoir about AD(H)D.

Prognosis: A Memoir of My Brain


Sarah Vallance - 2019
    The next morning, things take a sharp turn as she’s led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.Afraid of judgment and deemed no longer fit for work, Sarah isolates herself from the outside world. She spends months at home, with her dogs as her only source of companionship, battling a personality she no longer recognizes and her shock and rage over losing simple functions she’d taken for granted. Her life is consumed by fear and shame until a chance encounter gives Sarah hope that her brain can heal. That conversation lights a small flame of determination, and Sarah begins to push back, painstakingly reteaching herself to read and write, and eventually reentering the workforce and a new, if unpredictable, life.In this highly intimate account of devastation and renewal, Sarah pulls back the curtain on life with traumatic brain injury, an affliction where the wounds are invisible and the lasting effects are often misunderstood. Over years of frustrating setbacks and uncertain triumphs, Sarah comes to terms with her disability and finds love with a woman who helps her embrace a new, accepting sense of self.

Strange Son: Two Mothers, Two Sons, and the Quest to Unlock the Hidden World of Autism


Portia Iversen - 2006
    Tito Mukhopadhyay, an autistic boy from India who spends most of his time flapping his fingers in front of his eyes, has an IQ of 185. He favors the writings of Wordsworth and Ibsen. He loves philosophy, reads "People," and worries about conflict in the Middle East. He also writes beautiful poetry. That Tito can communicate at all is due to his mother, Soma, who single-handedly developed a revolutionary method of teaching him in their one-room apartment in Bangalore, a "classroom" that lacked even running water. Portia Iversen, an Emmy-winning art director whose life was turned upside down when her own son Dov was diagnosed with autism, heard of Soma's miraculous story in the course of her own desperate search for a cure. Under the auspices of Cure Autism Now, the foundation she started with her husband that is now one of the largest funds for autism research in the world, Portia brought Soma and Tito to America to help researchers understand how Soma accomplished this amazing feat and to determine what can be learned from their success. Together, Soma and Portia have made remarkable progress in teaching their sons how to break through the walls of autism. And, in the process, they have assisted scientists in making astonishing discoveries about the nature of autism itself. "Strange Son" is the extraordinary account of two families who redefined how autism-and autistic people-should be treated, all the while helping to answer some of autism's most baffling questions and prompting new research. Iversen weaves the twin stories of Soma and Tito (and how Soma's methods mystified experts) together with her own story of how she and her family came to understand Dov. The result is a book suffused with uplifting human drama.

Special Diets for Special Kids: Understanding and Implementing Special Diets to Aid in the Treatment of Autism and Related Developmental Disorders


Lisa S. Lewis - 1998
    Her informative booklet An Experimental Intervention for Autism combined scientific principles with practical advice for parents in a very readable way. Its availability on the Internet has made it one of the most widely read and influential pieces ever written on autism. Her new book also concentrates on the practical applications of knowledge and understanding. It is well researched, well written and very much needed.'- Paul Shattock, Autism Research Unit, University of SunderlandLisa Lewis explains, in this easy-to-read and accessible book, how and why to implement a dietary intervention strategy for helping children and adults with autism. Drawing upon her own success with removing gluten and casein from her son's diet, she answers the many questions parents and professionals might have about choosing a dietary intervention. Why choose a special diet? Are there tests to help me decide? Is there research to support this type of intervention? Will my child starve? What do I cook?In addition, she provides over 150 good-tasting recipes to get started on the diet -everything from spaghetti and meatballs to holiday treats and sweets and edible clay!