Parents and family members who never thought they could get inside the head of their autistic loved one, at last, have a way to break through to the curious, subtle, and complex life within.Using an alphabet grid to painstakingly construct words, sentences, and thoughts that he is unable to speak out loud, Naoki answers even the most delicate questions that people want to know. Questions such as: “Why do people with autism talk so loudly and weirdly?” “Why do you line up your toy cars and blocks?” “Why don’t you make eye contact when you’re talking?” and “What’s the reason you jump?” (Naoki’s answer: “When I’m jumping, it’s as if my feelings are going upward to the sky.”) With disarming honesty and a generous heart, Naoki shares his unique point of view on not only autism but life itself. His insights—into the mystery of words, the wonders of laughter, and the elusiveness of memory—are so startling, so strange, and so powerful that you will never look at the world the same way again.

    Half of the United States population suffers from these invisible illnesses where their symptoms are not always obvious to the casual observer. Among them is Karen Duffy, New York Times-bestselling author, former MTV DJ, Revlon model, and actress: she suffers from sarcoidosis, a disorder that causes the growth of inflammatory cells on different organs of the body. In her case, her sarcoidosis is located in her brain, causing her unimaginable pain. For two decades, Duffy has managed to live a full life, despite living in a state of constant pain. In Backbone, a powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain. Backbone is for the massive population of sufferers who are eager to be understood and helped and sends the message that despite the pain, there is a way to seek a good life.

    What at first seemed like a case of food poisoning quickly turned critical, and by the time Tom had been transferred via emergency medevac to the world-class medical center at UC San Diego, where both he and Steffanie worked, blood work revealed why modern medicine was failing: Tom was fighting one of the most dangerous, antibiotic-resistant bacteria in the world.Frantic, Steffanie combed through research old and new and came across phage therapy: the idea that the right virus, aka "the perfect predator," can kill even the most lethal bacteria. Phage treatment had fallen out of favor almost 100 years ago, after antibiotic use went mainstream. Now, with time running out, Steffanie appealed to phage researchers all over the world for help. She found allies at the FDA, researchers from Texas A&M, and a clandestine Navy biomedical center -- and together they resurrected a forgotten cure.

    Since her early childhood, she has lived with the fluctuating and confusing challenge of disabling chronic illness. Her days are watchful and solitary, lived out in the same hundred or so metres around her home.But Josie's world is surprising, intricate, dynamic. She has learned what to look for: the complex patterns of ice on a frozen puddle; the routines of her friends at the community centre; the neighbourhood birds in flight; the slow changes in the morning light, in her small garden, in her growing son, in herself.In January 2018, Josie sets out to tell the story of her still life, over the course of a year. As the seasons shift, and the tides of her body draw in and out, Josie begins to unfurl her history: her childhood bright with promise but shadowed by confinement; her painful adolescence and her hopeful coming of age; the struggle of her marriage, and the triumph of motherhood. And then a most unexpected thing happens in Josie's quiet present: she falls in love.A Still Life is a story of illness and pain that rarely sees the light: illness and pain with no end or resolution; illness and pain that we must meet with courage, joy, ingenuity and hope. Against a world which values 'feel good' progress and productivity above all else, Josie sets out a quietly radical alternative: to value and treasure life for life itself, with all its defeats and victories, with all its great and small miracles.

    Because I believed it was all my fault.Lucia Osborne-Crowley didn't tell a soul when she was raped aged fifteen. Then, eighteen months after she was attacked, her body began to turn on her - and what followed were sudden bouts of searing, unbearable pain that saw her in and out of hospital for the next ten years.At twenty-five, Lucia for the first time told the truth about her rape. This disclosure triggered an endless series of appointments with doctors, trauma specialists and therapists. Meanwhile, Lucia threw herself into researching the shadowy intricacies of abuse, trauma and shame.In My Body Keeps Your Secrets, Lucia shares the voices of women and trans and non-binary people around the world, as well as her own deeply moving testimony. She writes of vulnerability, acceptance and the reclaiming of our selves, all in defiance of a world where atrocities are committed and survivors are repeatedly told to carry the weight of that shame.Widely researched and boldly argued, this book reveals the secrets our bodies bury deep within them, the way trauma can rewrite our biology, and how our complicated relationships with sex affect our connection with others. Crafted in a daring and immersive literary form, My Body Keeps Your Secrets is a necessary, elegant and empathetic work that further establishes Lucia's credentials as a key intersectional feminist thinker for a new generation.'Brave, unflinching and infuriating, the stories Lucia has collated are ones that desperately need to be heard' Osman Faruqi, award-winning journalist'Lucia Osborne-Crowley knows the natural range of the human body is so much greater than we have imagined. She has lived it. This book is a clever catalogue of the ways our bodies endure and the work they do in making sure we do, too. Osborne-Crowley writes with an elegant precision about this most urgent of subjects. Like the human body, this book contains a warning: if we do not attend to its revelations, there may well be pain. Bold, sharp and compassionate, this work announces Osborne-Crowley as a writer with great purpose.' Rick Morton, author of One Hundred Years of Dirt and My Year of Living Vulnerably'It is both thrilling and terrifying when a body refuses to remain silent anymore. My Body Keeps Your Secrets is a beautiful and deeply moving book, and one that is vitally important: we have so much still to learn about the somatic nature of assault and trauma. Lucia Osborne-Crowley has written an insightful and moving witness statement for women who live with the consequence of assault and abuse, and for the world that has refused to see. Our bodies hold our traumas, and Osborne-Crowley refuses to keep the silence anymore.' Virginia Trioli, journalist, author, radio and television presenter

    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.

    The top specialists in the world were powerless to help, and scientific research on her disease was at a near standstill. She was running out of money. And she was all alone, with no one to care for her.Having exhausted the plausible ideas, Rehmeyer turned to an implausible one. She followed the advice of strangers she'd met on the Internet. They struck her as crazy but they had recovered from chronic fatigue syndrome as severe as hers. Leaving behind everything she owned, she drove into the desert, testing the theory that mold in her home and belongings was making her sick. Stripped of the life she'd known and the future she'd imagined, Rehmeyer felt as though she were going to the desert to die.But she didn't die. She used her scientific savvy and investigative journalism skills to find a path to wellness and uncovered how shocking scientific neglect and misconduct had forced her, and millions of others, to go it alone. In stunning prose, Rehmeyer describes how her illness transformed her understanding of science, medicine, and spirituality. Through the Shadowlands will bring scientific authority to a misunderstood disease while telling an incredible and compelling story of tenacity, resourcefulness, acceptance, and love.

    Despite her flapping arms and shaking legs, she continued to speak clearly and was able to finish her speech. It was as if she had suddenly become two people: a calm orator and a shuddering wreck. Then the seizures happened again and again. The Shaking Woman tracks Hustvedt’s search for a diagnosis, one that takes her inside the thought processes of several scientific disciplines, each one of which offers a distinct perspective on her paroxysms but no ready solution. In the process, she finds herself entangled in fundamental questions: What is the relationship between brain and mind? How do we remember? What is the self?During her investigations, Hustvedt joins a discussion group in which neurologists, psychiatrists, psychoanalysts, and brain scientists trade ideas to develop a new field: neuropsychoanalysis. She volunteers as a writing teacher for psychiatric in-patients at the Payne Whitney clinic in New York City and unearths precedents in medical history that illuminate the origins of and shifts in our theories about the mind-body problem. In The Shaking Woman, Hustvedt synthesizes her experience and research into a compelling mystery: Who is the shaking woman? In the end, the story she tells becomes, in the words of George Makari, author of Revolution in Mind, “a brilliant illumination for us all.”

    From struggling with sensory processing, managing socially demanding situations and learning social cues and feminine presentation, through to coming out as trans during an autistic meltdown, Laura draws on her personal experiences from life prior to transition and diagnosis, and moving on to the years of self-discovery, to give a unique insight into the nuances of sexuality, gender and autism, and how they intersect.Charting the ups and downs of being autistic and on the LGBT spectrum with searing honesty and humour, this is an empowering, life-affirming read for anyone who's felt they don't fit in.

    Braided with that history is the moving story of Powers's beloved son Kevin--spirited, endearing, and gifted--who triumphed even while suffering from schizophrenia until finally he did not, and the story of his courageous surviving son Dean, who is also schizophrenic.A blend of history, biography, memoir, and current affairs ending with a consideration of where we might go from here, this is a thought-provoking look at a dreaded illness that has long been misunderstood.

    Dale was still a baby when his parents realised that something wasn't right. Worried, his mother Nuala took him to see several doctors, before finally hearing the word 'autism' for the first time in a specialist's office. Scared but determined that Dale should live a fulfilling life, Nuala describes her despairat her son's condition, her struggle to prevent Dale being excluded from a 'normal' education and her sense of hopeless isolation. Dale's autism was severe and violent and family life was a daily battleground. But the Gardner's lives were transformed when they welcomed a gorgeous Golden Retriever into the family. The special bond between Dale and his dog Henry helped them to produce the breakthrough in Dale they had long sought. From taking a bath to saying 'I love you', Henry helped introduce Dale to all the normal activities most parents take for granted, and set him on the road to being the charming and well-adjusted young man he is today. This is a heartrending and fascinating account of how one devoted and talented dog helped a little boy conquer his autism.

    She witnesses nurses drawing straws to see who would tend to the patient inside, all of them reluctant to enter the room. Out of impulse, Ruth herself enters the quarantined space and immediately begins to care for the young man who cries for his mother in the last moments of his life. Before she can even process what she's done, word spreads in the community that Ruth is the only person willing to help these young men afflicted by AIDS, and is called upon to nurse them. As she forges deep friendships with the men she helps, she works tirelessly to find them housing and jobs, even searching for funeral homes willing to take their bodies - often in the middle of the night. She cooks meals for tens of people out of discarded food found in the dumpsters behind supermarkets, stores rare medications for her most urgent patients, teaches sex-ed to drag queens after hours at secret bars, and becomes a beacon of hope to an otherwise spurned group of ailing gay men on the fringes of a deeply conservative state.Throughout the years, Ruth defies local pastors and nurses to help the men she cares for: Paul and Billy, Angel, Chip, Todd and Luke. Emboldened by the weight of their collective pain, she fervently advocates for their safety and visibility, ultimately advising Governor Bill Clinton on the national HIV-AIDS crisis.This deeply moving and elegiac memoir honors the extraordinary life of Ruth Coker Burks and the beloved men who fought valiantly for their lives with AIDS during a most hostile and misinformed time in America.

    Meredith Norton chronicles every step of her experience, starting with her bizarre symptoms while living in Paris to moving back home to California and living with her compulsive parents and their five television sets. Irreverent and incredibly funny, Norton rails against self-pity and victimhood and rants about the innumerable copies of Lance Armstrong’s cancer survival book pressed on her by well-meaning family and friends. Alongside the harrowing portrait of her treatments, Norton offers equally amusing memories from her offbeat life. We see her childhood time during a somewhat racist ski trip, a family reunion at a Florida alligator farm, and her life in a tree house with a neighbor, who, despite being vegan, hates mice enough to taxidermy them into miniature versions of racecar drivers, Jesus, a UPS delivery man, and Sally Jesse Raphael. Like David Sedaris and Augusten Burroughs, Norton’s razor-sharp wit is at once riotous and excruciating. Lopsided is the remarkable debut of a masterful humorist.

    When her broken neck healed or so everyone thought her recovery was hailed as a medical miracle and she returned to normal life. Years later, she seemed to have it all: a loving husband, two wonderful children, a peaceful home, and a richly satisfying job as a tenured poetry professor. Then, one morning, this blissful fade shattered the pain in her neck returned in the most vicious way. A life with physical agony ensued.Greenberg realized that she had been living for years on borrowed time. As she and her family navigated an increasingly complicated web of doctors and specialists, Greenberg taught herself to fight her own battles against a medical system ill-equipped to handle patients with chronic pain, and against the emotional pitfalls of a newly restricted life. Drawing on her family's support, her own indomitable spirit, and an intense connection to the poetry she taught, Greenberg found the strength to return to a productive and satisfying if irrevocably changed life.

    But behind her seemingly flawless façade lay a dangerous secret—for the better part of her life Cheney had been battling debilitating bipolar disorder and concealing a pharmacy's worth of prescriptions meant to stabilize her moods and make her "normal."In bursts of prose that mirror the devastating highs and extreme lows of her illness, Cheney describes her roller-coaster life with shocking honesty—from glamorous parties to a night in jail; from flying fourteen kites off the edge of a cliff in a thunderstorm to crying beneath her office desk; from electroshock therapy to a suicide attempt fueled by tequila and prescription painkillers.With Manic, Cheney gives voice to the unarticulated madness she endured. The clinical terms used to describe her illness were so inadequate that she chose to focus instead on her own experience, in her words, "on what bipolar disorder felt like inside my own body." Here the events unfold episodically, from mood to mood, the way she lived and remembers life. In this way the reader is able to viscerally experience the incredible speeding highs of mania and the crushing blows of depression, just as Cheney did. Manic does not simply explain bipolar disorder—it takes us in its grasp and does not let go.In the tradition of Darkness Visible and An Unquiet Mind, Manic is Girl, Interrupted with the girl all grown up. This harrowing yet hopeful book is more than just a searing insider's account of what it's really like to live with bipolar disorder. It is a testament to the sharp beauty of a life lived in extremes.