All of that changed when her fiftieth birthday drew near, and she was diagnosed with ALS, also known as Lou Gehrig’s disease. In the face of this incurable, degenerative disease, Ulla kept a journal chronicling the last years of her life, not only for her children’s sake but also to help her cope with her impending death. As powerful and moving as books such as The Diving Bell and the Butterfly and Tuesdays with Morrie, Ulla’s unflinching account is an unforgettable reminder of how precious life really is.