The Diving Bell and the Butterfly


Jean-Dominique Bauby - 1997
    In my case, blinking my left eyelid is my only means of communication.’In December 1995, Jean-Dominique Bauby, editor-in-chief of French ‘Elle’ and the father of two young children, suffered a massive stroke and found himself paralysed and speechless, but entirely conscious, trapped by what doctors call ‘locked-in syndrome’. Using his only functioning muscle – his left eyelid – he began dictating this remarkable story, painstakingly spelling it out letter by letter.His book offers a haunting, harrowing look inside the cruel prison of locked-in syndrome, but it is also a triumph of the human spirit.

The Nurses: A Year of Secrets, Drama, and Miracles with the Heroes of the Hospital


Alexandra Robbins - 2015
    Lara, a superstar nurse who tries to battle her way back from a near-ruinous prescription-drug addiction. The outspoken but compassionate Juliette, a fierce advocate for her patients. And Sam, a first-year nurse, struggling to find her way in a gossipy mean-girl climate she likens to “high school, except for the dying people.”The result is a riveting page-turner, insightful and thought-provoking, that will leave readers feeling smarter about their healthcare and undeniably appreciative of the incredible nurses who provide it.

The Blue Cotton Gown: A Midwife's Memoir


Patricia Harman - 2008
    Over the course of the next five seasons Patsy will see Heather through the loss of both babies and their father. She will also care for her longtime patient Nila, pregnant for the eighth time and trying to make a new life without her abusive husband. And Patsy will try to find some comfort to offer Holly, whose teenage daughter struggles with bulimia. She will help Rebba learn to find pleasure in her body and help Kaz transition into a new body. She will do noisy battle with the IRS in the very few moments she has to spare, and wage her own private battle with uterine cancer.Patricia Harman, a nurse-midwife, manages a women's health clinic with her husband, Tom, an ob-gyn, in West Virginia--a practice where patients open their hearts, where they find care and sometimes refuge. Patsy's memoir juxtaposes the tales of these women with her own story of keeping a small medical practice solvent and coping with personal challenges. Her patients range from Appalachian mothers who haven't had the opportunity to attend secondary school to Ph.D.'s on cell phones. They come to Patsy's small, windowless exam room and sit covered only by blue cotton gowns, and their infinitely varied stories are in equal parts heartbreaking and uplifting. The nurse-midwife tells of their lives over the course of a year and a quarter, a time when her outwardly successful practice is in deep financial trouble, when she is coping with malpractice threats, confronting her own serious medical problems, and fearing that her thirty-year marriage may be on the verge of collapse. In the words of Jacqueline Mitchard, this memoir, "utterly true and lyrical as any novel . . . should be a little classic."

The Empathy Exams


Leslie Jamison - 2014
    She draws from her own experiences of illness and bodily injury to engage in an exploration that extends far beyond her life, spanning wide-ranging territory—from poverty tourism to phantom diseases, street violence to reality television, illness to incarceration—in its search for a kind of sight shaped by humility and grace.

Amelia's Story: A Childhood Lost


D.G. Torrens - 2011
    This is a powerful true story of one young girls struggle to survive the state care system in the 70's and 80's. Amelia has just one wish, to make it to adulthood, to hold her destiny in her own hands. This is a harrowing true story, one of survival and human strength. Amelia has been separated from all her siblings never to see them again for many years, she is moved from one children's home to another, until finally it's just too much for her to bear. Amelia starts to wonder about the peace and finality of her own death.

Darkness Visible: A Memoir of Madness


William Styron - 1990
    Styron is perhaps the first writer to convey the full terror of depression's psychic landscape, as well as the illuminating path to recovery.

The Shapeless Unease: A Year of Not Sleeping


Samantha Harvey - 2020
    She tried everything to appease her wakefulness: from medication to therapy, changes in her diet to changes in her living arrangements. Nothing seemed to help.The Shapeless Unease is Harvey's darkly funny and deeply intelligent anatomy of her insomnia, an immersive interior monologue of a year without one of the most basic human needs. Original and profound, and narrated with a lucid breathlessness, this is a startlingly insightful exploration of memory, writing and influence, death and the will to survive, from "this generation's Virginia Woolf" (Telegraph).

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

Hidden Valley Road: Inside the Mind of an American Family


Robert Kolker - 2020
    After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins—aspiration, hard work, upward mobility, domestic harmony—and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family?What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations.With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.

Sleepwalker: The Mysterious Makings and Recovery of a Somnambulist


Kathleen Frazier - 2015
    Eyes wide open. I was standing at an open window, staring at the dizzying curve of Riverside Drive, five floors below. I’d stopped, somehow, poised, about to jump.Growing up the good girl in an Irish American family full of drinkers and terrible sleepers, Kathleen Frazier was twelve when her seemingly innocent sleepwalking turned dangerous. Over the next few years, she was a popular A+ student by day, the star of her high school musical. At night, she both longed for and dreaded sleep.Frazier moved to Manhattan in the 1980s, hoping for a life in the theater but getting a run of sleepwalking performances instead. Efforts to abate her malady with drinking failed miserably. She became promiscuous, looking for nighttime companionship. Could a bed partner save her from flinging herself down a flight of stairs or out an open window? Exhaustion stalked her, and rest and love were seemingly out of reach.This is the journey Frazier illuminates in her intimate memoir. While highlighting her quest to beat her sleep terrors and insomnia, this is ultimately a story of health, hope, and redemption.

On Living


Kerry Egan - 2016
    Instead, she discovered she’d been granted an invaluable chance to witness firsthand what she calls the “spiritual work of dying”—the work of finding or making meaning of one’s life, the experiences it’s contained and the people who have touched it, the betrayals, wounds, unfinished business, and unrealized dreams. Instead of talking, she mainly listened: to stories of hope and regret, shame and pride, mystery and revelation and secrets held too long. Most of all, though, she listened as her patients talked about love—love for their children and partners and friends; love they didn’t know how to offer; love they gave unconditionally; love they, sometimes belatedly, learned to grant themselves. This isn’t a book about dying—it’s a book about living. And Egan isn’t just passively bearing witness to these stories. An emergency procedure during the birth of her first child left her physically whole but emotionally and spiritually adrift. Her work as a hospice chaplain healed her, from a brokenness she came to see we all share. Each of her patients taught her something—how to find courage in the face of fear or the strength to make amends; how to be profoundly compassionate and fiercely empathetic; how to see the world in grays instead of black and white. In this poignant, moving, and beautiful book, she passes along all their precious and necessary gifts.

Find the Good: Unexpected Life Lessons from a Small-Town Obituary Writer


Heather Lende - 2015
    Now she’s distilled what she’s learned about how to live a more exhilarating and meaningful life into three words: find the good. It’s that simple--and that hard. Quirky and profound, individual and universal, Find the Good offers up short chapters that help us unlearn the habit--and it is a habit--of seeing only the negatives. Lende reminds us that we can choose to see any event--starting a new job or being laid off from an old one, getting married or getting divorced--as an opportunity to find the good. As she says, “We are all writing our own obituary every day by how we live. The best news is that there’s still time for additions and revisions before it goes to press.” Ever since Algonquin published her first book, the New York Times bestseller If You Lived Here, I’d Know Your Name, Heather Lende has been praised for her storytelling talent and her plainspoken wisdom. The Los Angeles Times called her “part Annie Dillard, part Anne Lamott,” and that comparison has never been more apt as she gives us a fresh, positive perspective from which to view our relationships, our obligations, our priorities, our community, and our world. An antidote to the cynicism and self-centeredness that we are bombarded with every day in the news, in our politics, and even at times in ourselves, Find the Good helps us rediscover what’s right with the world. “Heather Lende’s small town is populated with big hearts--she finds them  on the beach, walking her granddaughters, in the stories of ordinary peoples’ lives, and knits them into unforgettable tales. Find the Good is a treasure.” —Jo-Ann Mapson, author of Owen’s Daughter “Find the Good is excellent company in unsteady times . . . Heather Lende is the kind of person you want to sit across the kitchen table from on a rainy afternoon with a bottomless cup of tea. When things go wrong, when things go right, her quiet, commonsense wisdom, self-examining frankness, and good-natured humor offer a chance to reset, renew, rebalance.”  —Pam Houston, author of Contents May Have Shifted “With gentle humor and empathy [Lende] introduces a number of people who provide examples of how to live well . . . [Find the Good] is simple yet profound.”  —Booklist “In this cynical world, Find the Good is a tonic, a literary wellspring, which will continue to run, and nurture, even in times of drought. What a brave and beautiful thing Heather Lende has made with this book.” —John Straley, Shamus Award winner and former writer laureate of Alaska “Heather Lende is a terrific writer and terrific company: intimate, authentic, and as quirky as any of her subjects.” —Marilyn Johnson, author of The Dead Beat

Sick: A Memoir


Porochista Khakpour - 2018
    For most of that time, she didn't know why. All of her trips to the ER and her daily anguish, pain, and lethargy only ever resulted in one question: How could any one person be this sick? Several drug addictions, three major hospitalizations, and over $100,000 later, she finally had a diagnosis: late-stage Lyme disease. Sick is Khakpour's arduous, emotional journey—as a woman, a writer, and a lifelong sufferer of undiagnosed health problems—through the chronic illness that perpetually left her a victim of anxiety, living a life stymied by an unknown condition.Divided by settings, Khakpour guides the reader through her illness by way of the locations that changed her course—New York, LA, New Mexico, and Germany—as she meditates on both the physical and psychological impacts of uncertainty, and the eventual challenge of accepting the diagnosis she had searched for over the course of her adult life. With candor and grace, she examines her subsequent struggles with mental illness, her addiction to the benzodiazepines prescribed by her psychiatrists, and her ever-deteriorating physical health. A story about survival, pain, and transformation, Sick is a candid, illuminating narrative of hope and uncertainty, boldly examining the deep impact of illness on one woman's life.

The Red Devil : A Memoir About Beating The Odds


Katherine Russell Rich - 1999
    Hailed by critics nationwide and winner of two 1999 Books for a Better Life Awards, this book shares the author's bold tale of illness, joy, mortality, and the improbable triumph of love in the midst of despair.

The Dark Side of Innocence: Growing Up Bipolar


Terri Cheney - 2011
    But when I was seven, the odds felt insurmountable.As a young girl, Terri Cheney's life looked perfect. Her family lived in a lovely house in a tranquil Los Angeles suburb where the geraniums never once failed to bloom. She was pretty and smart, an academic superstar and popular cheerleader whose father doted on her. But starting with her first suicide attempt at age seven, it was clear that her inner world was anything but perfect. "There's something wrong with her," her mother would whisper, her voice quivering on the edge of despair. And indeed there was, although no one had a name for it yet. Hostage to her roller-coaster moods, Terri veered from easy A-pluses to total paralysis, from bouts of obsessive hypersexuality to episodes of alcoholic abandon that nearly cost her her life. Throughout Terri's chaotic early years, nothing was certain from day to day except this: whatever was so deeply wrong with her must be kept a secret. Thirty years later, Terri wrote Manic, a harrowing memoir that revealed her adult struggle with bipolar disorder. It became an instant "New York Times" bestseller and received passionate critical acclaim. But it didn't tell the whole story. The mystery of Terri's childhood remained untouched-- too troubling, too painful to fathom. The Dark Side of Innocence explores those tumultuous formative years, finally shattering Terri's well-guarded secret." With vivid intensity, it blends a pitch-perfect childlike voice with keen adult observation. The Dark Side of Innocence provides a heart-rending, groundbreaking insider's look into the fascinating and frightening world of childhood bipolar disorder, an illness that affects a staggering one million children. This poignant and compelling story of Terri's journey from disaster and despair to hope and survival will serve as an informative and eye-opening tale for those who would trust a flawless facade.