Saving Henry: A Mother's Journey


Laurie Strongin - 2010
    Saving Henry is a memoir of the author's struggle to save the life of her son Henry, who suffered from a rare childhood illness. Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia.  Laurie, Henry's mom, decided to do everything in her power to fight the course of the disease. She and her husband signed on for a brand new procedure called PGD that, through in vitro fertilization combined with genetic testing, was supposed to be able to produce a new baby who was a carrier of the gene, but who would not become ill with it. The stem cells from the umbilical cord could then be implanted into Henry's body and ultimately save him. As Laurie puts it, "I believe in love and science, nothing more and nothing less."Laurie and her husband had a second child who was healthy but not an FA carrier, and then went through nine failed courses of PGD before they had to give up. Meanwhile, the feisty little boy who loved Batman, Cal Ripken, and root beer-flavored anesthesia captivated everyone who came in contact with him, from New York City to Minneapolis, with his spunk and "never give up" attitude.   Henry was the little kid who, when the nurses came to take blood samples, brandished his Harry Potter sword and said, "Bring it on!" and when he lost his hair after a chemo treatment, he declared, "Hey, I look like Michael Jordan!" Laurie became a lobbyist for stem cell research, testifying before Congress, written up by Lisa Belkin in the New York Times and other media, and appearing on Nightline to discuss Henry's case and the importance of the research. Throughout it all, Henry's courage and bravery were a source of inspiration for the many nurses, doctors, friends and family who interacted with him-- and he has saved many lives through his participation in groundbreaking research. This is the moving and incredibly inspiring story of this family's search for a cure, and the impact their amazing son had on the lives of so many.

The Unwinding of the Miracle: A Memoir of Life, Death, and Everything That Comes After


Julie Yip-Williams - 2019
    What began as the chronicle of an imminent and early death became something much more--a powerful exhortation to the living.That Julie Yip-Williams survived infancy was a miracle. Born blind in Vietnam, she narrowly escaped euthanasia at the hands of her grandmother, only to flee with her family the political upheaval of her country in the late 1970s. Loaded into a rickety boat with three hundred other refugees, Julie made it to Hong Kong and, ultimately, America, where a surgeon at UCLA gave her partial sight. She would go on to become a Harvard-educated lawyer, with a husband, a family, and a life she had once assumed would be impossible. Then, at age thirty-seven, with two little girls at home, Julie was diagnosed with terminal metastatic colon cancer, and a different journey began.The Unwinding of the Miracle is the story of a vigorous life refracted through the prism of imminent death. When she was first diagnosed, Julie Yip-Williams sought clarity and guidance through the experience and, finding none, began to write her way through it--a chronicle that grew beyond her imagining. Motherhood, marriage, the immigrant experience, ambition, love, wanderlust, tennis, fortune-tellers, grief, reincarnation, jealousy, comfort, pain, the marvel of the body in full rebellion--this book is as sprawling and majestic as the life it records. It is inspiring and instructive, delightful and shattering. It is a book of indelible moments, seared deep--an incomparable guide to living vividly by facing hard truths consciously.With humor, bracing honesty, and the cleansing power of well-deployed anger, Julie Yip-Williams set the stage for her lasting legacy and one final miracle: the story of her life.

It's Okay to Laugh (Crying Is Cool Too)


Nora McInerny Purmort - 2016
    Then she met Aaron, a charismatic art director and her kindred spirit. They made mix tapes (and pancakes) into the wee hours of the morning. They finished each other’s sentences. They just knew. When Aaron was diagnosed with a rare brain cancer, they refused to let it limit their love. They got engaged on Aaron’s hospital bed and married after his first surgery. They had a baby when he was on chemo. They shared an amazing summer filled with happiness and laughter. A few months later, Aaron died in Nora’s arms in another hospital bed. His wildly creative obituary, which they wrote together, touched the world.Now, Nora shares hysterical, moving, and painfully honest stories about her journey with Aaron. It’s Okay to Laugh explores universal themes of love, marriage, work, (single) motherhood, and depression through her refreshingly frank viewpoint. A love letter to life, in all of its messy glory, and what it’s like to still be kickin', It’s Okay to Laugh is like a long chat with a close friend over a cup of coffee (or chardonnay).

Dancing at the Pity Party: A Dead Mom Graphic Memoir


Tyler Feder - 2020
    She shares the important post-death firsts, such as celebrating holidays without her mom, the utter despair of cleaning out her mom's closet, ending old traditions and starting new ones, and the sting of having the "I've got to tell Mom about this" instinct and not being able to act on it. This memoir, bracingly candid and sweetly humorous, is for anyone struggling with loss who just wants someone to get it.

The Bright Hour: A Memoir of Living and Dying


Nina Riggs - 2017
    They are promises. They are the only way to walk from one night to the other."Nina Riggs was just thirty-seven years old when initially diagnosed with breast cancer--one small spot. Within a year, the mother of two sons, ages seven and nine, and married sixteen years to her best friend, received the devastating news that her cancer was terminal.How does one live each day, "unattached to outcome"? How does one approach the moments, big and small, with both love and honesty?Exploring motherhood, marriage, friendship, and memory, even as she wrestles with the legacy of her great-great-great grandfather, Ralph Waldo Emerson, Nina Riggs's breathtaking memoir continues the urgent conversation that Paul Kalanithi began in his gorgeous When Breath Becomes Air. She asks, what makes a meaningful life when one has limited time?Brilliantly written, disarmingly funny, and deeply moving, The Bright Hour is about how to love all the days, even the bad ones, and it's about the way literature, especially Emerson, and Nina's other muse, Montaigne, can be a balm and a form of prayer. It's a book about looking death squarely in the face and saying "this is what will be."Especially poignant in these uncertain times, The Bright Hour urges us to live well and not lose sight of what makes us human: love, art, music, words.

Death Be Not Proud


John Gunther - 1949
    The book opens with his father's fond, vivid portrait of his son - a young man of extraordinary intellectual promise, who excelled at physics, math, and chess, but was also an active, good-hearted, and fun-loving kid. But the heart of the book is a description of the agonized months during which Gunther and his former wife Frances try everything in their power to halt the spread of Johnny's cancer and to make him as happy and comfortable as possible. In the last months of his life, Johnny strove hard to complete his high school studies. The scene of his graduation ceremony from Deerfield Academy is one of the most powerful - and heartbreaking - in the entire book. Johnny maintained his courage, wit and quiet friendliness up to the end of his life. He died on June 30, 1947, less than a month after graduating from Deerfield.

Once More We Saw Stars: A Memoir


Jayson Greene - 2019
    She is immediately rushed to the hospital. Once More We Saw Stars begins with this event, leading the reader into the unimaginable.But although it begins with the anguish Jayson and his wife Stacy confront in the wake of their daughter’s trauma and the hours leading up to her death, it quickly becomes a narrative that is as much about hope and healing as it is about grief and loss. Jayson recognizes, even in the very midst of his ordeal, that there will be a life for him beyond it—that if only he can continue moving forward, from one moment to the next, he will survive what seems un-survivable.With raw honesty, deep emotion, and exquisite tenderness, he captures both the fragility of life and absoluteness of death, and most important of all, the unconquerable power of love. This is an unforgettable memoir of courage and transformation—and a book that will change the way you look at the world.

Sickened: The Memoir of a Munchausen by Proxy Childhood


Julie Gregory - 2003
    Just twelve, she’s tall, skinny, and weak. It’s four o’clock, and she hasn’t been allowed to eat anything all day. Her mother, on the other hand, seems curiously excited. She's about to suggest open-heart surgery on her child to "get to the bottom of this." She checks her teeth for lipstick and, as the doctor enters, shoots the girl a warning glance. This child will not ruin her plans.SickenedFrom early childhood, Julie Gregory was continually X-rayed, medicated, and operated on—in the vain pursuit of an illness that was created in her mother’s mind. Munchausen by proxy (MBP) is the world’s most hidden and dangerous form of child abuse, in which the caretaker—almost always the mother—invents or induces symptoms in her child because she craves the attention of medical professionals. Many MBP children die, but Julie Gregory not only survived, she escaped the powerful orbit of her mother's madness and rebuilt her identity as a vibrant, healthy young woman.Sickened is a remarkable memoir that speaks in an original and distinctive Midwestern voice, rising to indelible scenes in prose of scathing beauty and fierce humor. Punctuated with Julie's actual medical records, it re-creates the bizarre cocoon of her family's isolated double-wide trailer, their wild shopping sprees and gun-waving confrontations, the astonishing naïveté of medical professionals and social workers. It also exposes the twisted bonds of terror and love that roped Julie's family together—including the love that made a child willing to sacrifice herself to win her mother's happiness. The realization that the sickness lay in her mother, not in herself, would not come to Julie until adulthood. But when it did, it would strike like lightning. Through her painful metamorphosis, she discovered the courage to save her own life—and, ultimately, the life of the girl her mother had found to replace her. Sickened takes us to new places in the human heart and spirit. It is an unforgettable story, unforgettably told.

About My Sisters


Debra Ginsberg - 2004
    As her hippie parents criss-crossed the globe, Debra, the oldest of five children, formed indelible bonds with her three sisters that last to this day. Separated by fifteen years among them, Debra and her sisters represent two different generations, each one of them having something to teach the other. Debra and Maya (the next oldest) became not only babysitters, but also playmates, problem solvers, teachers and surrogate mothers to the youngest two. And the shared experience of being the children of an unconventional, dope-smoking, non-career oriented, nomadic couple bonded them even more.Structured around the course of one year, About My Sisters examines these bonds through the prism of the events of that year, revealing not only a "different" family, but also a unique and amazing relationship that has weathered many storms but never foundered. The four sisters (as well as their parents and brother) still live within ten miles of one another and share meals, holidays, joys, pains, and babysitting duties with an astounding frequency. This is a heart-warming, funny, and poignant look at a family that's much like the one we all wish we had..

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

Driving Miss Norma: One Family's Journey Saying "Yes" to Living


Tim Bauerschmidt - 2017
    But instead of confining herself to a hospital bed for what could be her last stay, Miss Norma—newly widowed after nearly seven decades of marriage—rose to her full height of five feet and told the doctor, “I’m ninety years old. I’m hitting the road.” And so Miss Norma took off on an unforgettable around-the-country journey in a thirty-six-foot motor home with her retired son Tim, his wife Ramie, and their dog Ringo. As this once timid woman says “yes” to living in the face of death, she tries regional foods for the first time, reaches for the clouds in a hot air balloon, and mounts up for a horseback ride. With each passing mile (and one educational visit to a cannabis dispensary), Miss Norma’s health improves and conversations that had once been taboo begin to unfold. Norma, Tim, and Ramie bond in ways they had never done before, and their definitions of home, family, and friendship expand. Stop by stop, state by state, they meet countless people from all walks of life—strangers who become fast friends and welcome them with kindness and open hearts.Infused with this irrepressible nonagenarian’s wisdom, courage, and generous spirit, Driving Miss Norma is the charming, infectiously joyous chronicle of their experiences on the road. It portrays a transformative journey of living life on your own terms that shows us it is never too late to begin an adventure, inspire hope, or become a trailblazer.

This Star Won't Go Out: The Life and Words of Esther Grace Earl


Esther Earl - 2014
    Photographs and essays by family and friends will help to tell Esther’s story along with an introduction by award-winning author John Green who dedicated his #1 bestselling novel The Fault in Our Stars to her.

The Lessons of Love: Rediscovering Our Passion for Life When It All Seems Too Hard to Take


Melody Beattie - 1995
    The timeless, magical story of one woman's return to life and love when she thought she had lost it all.

It Was Me All Along


Andie Mitchell - 2015
    At 5' 9"--even knowing that she was big and hating herself for it--she was stunned. How had she gotten there? Without following wild diet trends, she lost 135 pounds over thirteen months and has kept it off for six years.It Was Me All Along shares the at times heartbreaking, yet ultimately uplifting and motivating, story of how Andie kicked her habit of binge eating, which she developed during a traumatic childhood, and developed a healthy relationship with food, which she still loves to cook and enjoy. Her story is at once familiar and inspiring to millions who have struggled with weight and self-image issues. Andie is a powerful motivator who bravely bares all to help others.

Cancer Is a Bitch: Or, I'd Rather Be Having a Midlife Crisis


Gail Konop Baker - 2008
    I want to be big. I want to be gracious and cool. I want to be the Audrey Hepburn of cancer…” Gail Konop Baker was a runner, yoga practitioner, and lifelong subscriber to Prevention magazine. As her forty-sixth birthday approached, she looked forward to a time when she could at last take a deep breath, with one child heading off to college and the other two busy with their lives. She finally felt as if she was getting her life back.Then, right before Valentine’s Day 2006, she heard the words that would forever change her: Just to be safe, I think we should biopsy.It was the beginning of her year-long struggle with breast cancer and its fallout—one that would upstage any midlife crisis she’d fretted was waiting in the wings. “I want to feel bad about my neck. I do,” she writes. “But I feel bad I may not ever get to feel bad about my neck.” Gail was suddenly faced with the truth that awaits us all—this was her life, and she would do anything to hold on to it. As a doctor’s wife, she knew more than she should about her diagnosis and treatment. As a mother, she found unbearable the idea of not being there for the next birthday, next graduation, next anything. And as a woman who’d put her dreams on hold for years, she was determined to make every minute count.But Cancer Is a Bitch is about much more than the “C” word; it's about the outrageous challenges of marriage, the joys and unpredictability of motherhood, about figuring out what it is you want to do with your life, about wanting to live now.Funny, raw, and moving, this story will resonate with every mother and wife, and with anyone who has been affected by cancer. It is one woman’s unforgettable, beautifully told account of juggling midlife and motherhood with a rogue boob—and, ultimately, triumphing.