For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness.A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others.A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious.

    Brenda Maddox tells a powerful story of a remarkably single-minded, forthright, and tempestuous young woman who, at the age of fifteen, decided she was going to be a scientist, but who was airbrushed out of the greatest scientific discovery of the twentieth century.

    He instantly worried what his daughters' lives would be like without him. "Would they wonder who I was? Would they wonder what I thought? Would they yearn for my approval, my love, my voice?" Three days later he came up with a stirring idea of how he might give them that voice. He would reach out to six men from all the passages in his life, and ask them to be present in the passages in his daughters' lives. And he would call this group "The Council of Dads." "I believe my daughters will have plenty of opportunities in their lives," he wrote to these men. "They'll have loving families. They'll have each other. But they may not have me. They may not have their dad. Will you help be their dad?" The Council of Dads is the inspiring story of what happened next. Feiler introduces the men in his Council and captures the life lesson he wants each to convey to his daughters--how to see, how to travel, how to question, how to dream. He mixes these with an intimate, highly personal chronicle of his experience battling cancer while raising young children, along with vivid portraits of his father, his two grandfathers, and various father figures in his life that explore the changing role of fathers in America. This is the work of a master storyteller confronting the most difficult experience of his life and emerging with wisdom and hope. The Council of Dads is a touching, funny, and ultimately deeply moving book on how to live life, how the human spirit can respond to adversity, and how to deepen and cherish the friendships that enrich our lives.

    While an illness keeps her bedridden, Bailey watches a wild snail that has taken up residence on her nightstand. As a result, she discovers the solace and sense of wonder that this mysterious creature brings and comes to a greater understanding of her own confined place in the world. Intrigued by the snail’s molluscan anatomy, cryptic defenses, clear decision making, hydraulic locomotion, and mysterious courtship activities, Bailey becomes an astute and amused observer, providing a candid and engaging look into the curious life of this underappreciated small animal.  Told with wit and grace, The Sound of a Wild Snail Eating is a remarkable journey of survival and resilience, showing us how a small part of the natural world illuminates our own human existence and provides an appreciation of what it means to be fully alive.

    As a neuro-diverse kid diagnosed with dyslexia and ADHD who didn't learn to read until he was twelve, the realization that that he wasn't the problem--the system and the concept of normal were--saved Mooney's life and fundamentally changed his outlook. Here he explores the toll that being not normal takes on kids and adults when they're trapped in environments that label them, shame them, and tell them, even in subtle ways, that they are the problem. But, he argues, if we can reorient the ways in which we think about diversity, abilities, and disabilities, we can start a revolution.A highly sought after public speaker, Mooney has been inspiring audiences with his story and his message for nearly two decades. Now he's ready to share what he's learned from parents, educators, researchers, and kids in a book that is as much a survival guide as it is a call to action. Whip-smart, insightful, and utterly inspiring--and movingly framed as a letter to his own young sons, as they work to find their ways in the world--this book will upend what we call normal and empower us all.

    A beach body by summer. A trip to Disneyland around the corner. A promotion on the horizon. Everyone wants to believe that they are headed toward good, better, best. But what happens when the life you hoped for is put on hold indefinitely?Kate Bowler believed that life was a series of unlimited choices, until she discovered, at age 35, that her body was wracked with cancer. In No Cure for Being Human, she searches for a way forward as she mines the wisdom (and absurdity) of today's "best life now" advice industry, which insists on exhausting positivity and on trying to convince us that we can out-eat, out-learn, and out-perform our humanness. We are, she finds, as fragile as the day we were born.With dry wit and unflinching honesty, Kate Bowler grapples with her diagnosis, her ambition, and her faith as she tries to come to terms with her limitations in a culture that says anything is possible. She finds that we need one another if we're going to tell the truth: Life is beautiful and terrible, full of hope and despair and everything in between--and there's no cure for being human.

    Brought up in Washington, DC, in an abusive family, she went to Harvard, where she met her husband. They stayed together through medical school until two months before she was scheduled to join the staff of a hospital in central Philadelphia, when he told her he couldn't move with her. Her marriage at an end, Harper began her new life in a new city, in a new job, as a newly single woman.In the ensuing years, as Harper learned to become an effective ER physician, bringing insight and empathy to every patient encounter, she came to understand that each of us is broken—physically, emotionally, psychically. How we recognize those breaks, how we try to mend them, and where we go from there are all crucial parts of the healing process.The Beauty in Breaking is the poignant true story of Harper's journey toward self-healing. Each of the patients Harper writes about taught her something important about recuperation and recovery. How to let go of fear even when the future is murky. How to tell the truth when it's simpler to overlook it. How to understand that compassion isn't the same as justice. As she shines a light on the systemic disenfranchisement of the patients she treats as they struggle to maintain their health and dignity, Harper comes to understand the importance of allowing ourselves to make peace with the past as we draw support from the present. In this hopeful, moving, and beautiful book, she passes along the precious, necessary lessons that she has learned as a daughter, a woman, and a physician.

    Too much stuff and too easily acquired, it confronts her in every corner and on every surface in her house. When she pledges to tackle the worst offender, her horror of a "Hell Room," she anticipates finally being able to throw away all of the unnecessary things she can't bring herself to part with: her fifth-grade report card, dried-up art supplies, an old vinyl raincoat.But what Eve discovers isn't just old CDs and outdated clothing, but a fierce desire within herself to hold on to her identity. Our things represent our memories, our history, a million tiny reference points in our lives. If we throw our stuff in the trash, where does that leave us? And if we don't...how do we know what's really important?Everyone has their own Hell Room, and Eve's battle with her clutter, along with her eventual self-clarity, encourages everyone to dig into their past to declutter their future. Year of No Clutter is a deeply inspiring--and frequently hilarious -- examination of why we keep stuff in the first place, and how to let it all go.

    When he was three years old, Tito was diagnosed as severely autistic, but his remarkable mother, Soma, determined that he would overcome the problem by teaching him to read and write. The result was that between the ages of eight and eleven he wrote stories and poems of exquisite beauty, which Dr. Oliver Sacks called amazing and shocking. Their eloquence gave lie to all our assumptions about autism.Here Tito goes even further and writes of how the autistic mind works, how it views the outside world and the normal people he deals with daily, how he tells his stories to the mirror and hears stories back, how sounds become colors, how beauty fills his mind and heart. With this work, Tito whom Portia Iversen, co-founder of Cure Autism Now, has described as a window into autism such as the world has never seen gives the world a beacon of hope. For if he can do it, why can't others?Brave, bold, and deeply felt, this book shows that much we might have believed about autism can be wrong. Boston Globe

    But one day, he noticed a troubling weakness in his hand. At first, he brushed it off as carpal tunnel syndrome, but after a week of neurological exams and two MRIs, he learned the cause of the problem: amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease. At age thirty-two, Ady was given just three to four years to live. Yet despite the devastating diagnosis, he refused to let his remaining days go to waste. Eyes to the Wind is a rousing memoir featuring intertwining storylines about determination, perseverance, and how to live a life filled with purpose and intention. The first traces Ady’s battle with ALS: how he turned the initial shock and panic from his diagnosis into a renewed commitment to social justice—not despite his disability but because of it. The second, told in flashbacks, illustrates Ady’s journey from a goofy political nerd to a prominent figure in the enduring fight for equity and justice whose “selfless activism fighting to make health care a right should be an inspiration to us all” (Senator Bernie Sanders). From one of today’s most vocal advocates for social justice, Eyes to the Wind’s “primary question is existential: how to live when you are dying? Barkan’s answer is to share, open up, act, and capital-R Resist, and his memoir, clearly and candidly written, establishes a legacy” (Booklist).

     A riveting, powerful telling of the story of the grassroots movement of activists, many of them in a life-or-death struggle, who seized upon scientific research to help develop the drugs that turned HIV from a mostly fatal infection to a manageable disease. Ignored by public officials, religious leaders, and the nation at large, and confronted with shame and hatred, this small group of men and women chose to fight for their right to live by educating themselves and demanding to become full partners in the race for effective treatments. Around the globe, 16 million people are alive today thanks to their efforts. Not since the publication of Randy Shilts's classic And the Band Played On has a book measured the AIDS plague in such brutally human, intimate, and soaring terms. In dramatic fashion, we witness the founding of ACT UP and TAG (Treatment Action Group), and the rise of an underground drug market in opposition to the prohibitively expensive (and sometimes toxic) AZT. We watch as these activists learn to become their own researchers, lobbyists, drug smugglers, and clinicians, establishing their own newspapers, research journals, and laboratories, and as they go on to force reform in the nation s disease-fighting agencies. With his unparalleled access to this community David France illuminates the lives of extraordinary characters, including the closeted Wall Street trader-turned-activist, the high school dropout who found purpose battling pharmaceutical giants in New York, the South African physician who helped establish the first officially recognized buyers club at the height of the epidemic, and the public relations executive fighting to save his own life for the sake of his young daughter. Expansive yet richly detailed, this is an insider's account of a pivotal moment in the history of American civil rights. Powerful, heart-wrenching, and finally exhilarating, How to Survive a Plague is destined to become an essential part of the literature of AIDS.

    Elizabeth Ford went through medical school unsure of where she belonged. It wasn’t until she did her psychiatry rotation that she found her calling—to care for one of the most vulnerable populations of mentally ill people, the inmates of New York's jails, including Rikers Island, who are so sick that they are sent to the Bellevue Hospital Prison Ward for care.These men were broken, unloved, without resources or support, and very ill. They could be violent, unpredictable, but they could also be funny and tender and needy. Mostly, they were human and they awakened in Ford a boundless compassion. Her patients made her a great doctor and a better person and, as she treated these men, she learned about doctoring, about nurturing, about parenting, and about love. While Ford was a psychiatrist at Bellevue she becomes a wife and a mother. In her book she shares her struggles to balance her life and her work, to care for her children and her patients, and to maintain the empathy that is essential to her practice—all in the face of a jaded institution, an exhausting workload, and the deeply emotionally taxing nature of her work. Ford brings humor, grace, and humanity to the lives of the patients in her care and in beautifully rendered prose illuminates the inner workings (and failings) of our mental health system, our justice system, and the prison system.

    At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured.Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark — it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits — inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal.Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human.

    As the current CEO of Children's National in Washington, D.C., the author presents an argument to place children's medical requirements and their need to thrive well into adulthood at the forefront of American medicine, and he admits that 'these kids have been my real teachers

    She wrote a list: improv, a solo holiday and... talking to strangers on the tube. She regretted it instantly.Sorry I'm Late, I Didn't Want to Come follows Jess's hilarious and painful year of misadventures in extroverting, reporting back from the frontlines for all the introverts out there.But is life actually better or easier for the extroverts? Or is it the nightmare Jess always thought it would be?