Don't Kill the Birthday Girl: Tales from an Allergic Life


Sandra Beasley - 2011
    Like twelve million other Americans, Sandra Beasley suffers from food allergies. Her allergies—severe and lifelong—include dairy, egg, soy, beef, shrimp, pine nuts, cucumbers, cantaloupe, honeydew, mango, macadamias, pistachios, cashews, swordfish, and mustard. Add to that mold, dust, grass and tree pollen, cigarette smoke, dogs, rabbits, horses, and wool, and it’s no wonder Sandra felt she had to live her life as “Allergy Girl.” When butter is deadly and eggs can make your throat swell shut, cupcakes and other treats of childhood are out of the question—and so Sandra’s mother used to warn guests against a toxic, frosting-tinged kiss with “Don’t kill the birthday girl!” It may seem that such a person is “not really designed to survive,” as one blunt nutritionist declared while visiting Sandra’s fourth-grade class. But Sandra has not only survived, she’s thrived—now an essayist, editor, and award-winning poet, she has learned to navigate a world in which danger can lurk in an unassuming corn chip. Don’t Kill the Birthday Girl is her story. With candor, wit, and a journalist’s curiosity, Sandra draws on her own experiences while covering the scientific, cultural, and sociological terrain of allergies. She explains exactly what an allergy is, describes surviving a family reunion in heart-of-Texas beef country with her vegetarian sister, delves into how being allergic has affected her romantic relationships, exposes the dark side of Benadryl, explains how parents can work with schools to protect their allergic children, and details how people with allergies should advocate for themselves in a restaurant. A compelling mix of memoir, cultural history, and science, Don’t Kill the Birthday Girl is mandatory reading for the millions of families navigating the world of allergies—and a not-to-be-missed literary treat for the rest of us.

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

I Remember Running: The Year I Got Everything I Ever Wanted - and ALS


Darcy Wakefield - 2005
    Then she was diagnosed with ALS, and her world turned upside down. I Remember Running is Darcy's story of change and loss and challenges during her first year with ALS, as she struggles to make sense of her diagnosis and redefine herself in the face of this terminal illness. With unflagging courage, wit, and eloquence, Darcy shares what she calls her "fast-forward" life, a life in which she applies for disability, leaves her job, and plans her own funeral as well as meets and moves in with her true love, buys a house, and gives birth to her first child in less time than it takes most of us to accomplish even one of these things. Beautifully written and wholly inspiring, I Remember Running proves that it is possible to live a rich, meaningful life after being diagnosed with a terminal illness, and will move readers to see the world in a different light.

Once More We Saw Stars: A Memoir


Jayson Greene - 2019
    She is immediately rushed to the hospital. Once More We Saw Stars begins with this event, leading the reader into the unimaginable.But although it begins with the anguish Jayson and his wife Stacy confront in the wake of their daughter’s trauma and the hours leading up to her death, it quickly becomes a narrative that is as much about hope and healing as it is about grief and loss. Jayson recognizes, even in the very midst of his ordeal, that there will be a life for him beyond it—that if only he can continue moving forward, from one moment to the next, he will survive what seems un-survivable.With raw honesty, deep emotion, and exquisite tenderness, he captures both the fragility of life and absoluteness of death, and most important of all, the unconquerable power of love. This is an unforgettable memoir of courage and transformation—and a book that will change the way you look at the world.

Now I See You: A Memoir


Nicole C. Kear - 2014
    Kear's biggest concern is choosing a major--until she walks into a doctor's office in midtown Manhattan and gets a life-changing diagnosis. She is going blind, courtesy of an eye disease called retinitis pigmentosa, and has only a decade or so before Lights Out. Instead of making preparations as the doctor suggests, Kear decides to carpe diem and make the most of the vision she has left. She joins circus school, tears through boyfriends, travels the world, and through all these hi-jinks, she keeps her vision loss a secret.When Kear becomes a mother, just a few years shy of her vision's expiration date, she amends her carpe diem strategy, giving up recklessness in order to relish every moment with her kids. Her secret, though, is harder to surrender - and as her vision deteriorates, harder to keep hidden. As her world grows blurred, one thing becomes clear: no matter how hard she fights, she won't win the battle against blindness. But if she comes clean with her secret, and comes to terms with the loss, she can still win her happy ending.Told with humor and irreverence, Now I See You is an uplifting story about refusing to cower at life's curveballs, about the power of love to triumph over fear. But, at its core, it's a story about acceptance: facing the truths that just won't go away, and facing yourself, broken parts and all.

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

My Own Medicine: A Doctor's Life as a Patient


Geoffrey Kurland - 2002
    Geoffrey Kurland was a busy man. His work as a Pediatric Pulmonologist, caring for children with lung diseases such as cystic fibrosis and asthma, led to long hours on the wards at the University of California, Davis Medical Center. At the same time, he was in the midst of training for the Western States Endurance Run, a grueling 100-mile long footrace across the wilderness of the Sierra Nevada Mountains. His long training runs, the responsibilities of patient care and teaching, and relationships attempting to replace his departed girlfriend occupied most of his life. Dr. Kurland’s ordered world is suddenly turned upside-down when he is diagnosed with Hairy Cell Leukemia, a rare blood cancer with a low survival rate. His work, his running, and his friendships are altered by his struggle to survive. He finds he must undergo many of the procedures he performed on his patients, must endure surgery and chemotherapy, and must relinquish control of his life to his physicians, surgeons, and his disease. He learns first-hand what cannot be taught in medical school about the consuming power of a chronic illness and its treatment.Confronting his own mortality, Dr. Kurland is now the patient while remaining a physician and runner. With the support of his physicians at the Mayo Clinic, the University of California, and the University of Pittsburgh, he resolves to continue to live his life despite his potentially fatal disease. He discovers his personal inner strengths as well as weaknesses as he struggles to confront his illness and regain some of the control he lost to it. Along his nearly two and a half year journey, we follow Dr. Kurland as he endures surgical procedures, chemotherapy, and life-threatening complications of his illness. He emerges into remission with new inner strength and understanding of what it means to be a doctor. He also finds that he is still a runner, with the same goal, to run the 100 miles across the Sierra Mountains.REVIEWS: “Taut, dramatic, and intensely real…Very well written.” --Oliver Sacks, the best selling author of SEEING VOICES and HALLUCINATIONS"[MY OWN MEDICINE] should be required reading for every medical professional. Kurland never asks for sympathy or pity. [...] What comes through powerfully is his humanity, which his own bout with illnesses has clearly enhanced, and from which both his patients and his readers will benefit." --THE NEW YORK TIMES"While training as a pediatric pulmonologist, Kurland told a patient, 'I know how you feel'; years later, when he was diagnosed with a rare form of leukemia, he discovered just how untrue this was. [...] The way in which serious illness alters one's sense of self and of life is compellingly expressed in this energetic, nervy narrative, as Kurland's illness and eventual recovery collide with a host of profound shifts—a big career move, the death of a colleague, an unravelling relationship with his girlfriend, and a deepening one with his parents." --THE NEW YORKER"MY OWN MEDICINE is rich in detail, enhanced by the author's skillful handling of the narrative...The book depicts a man who, faced with the painful reality of his own mortality, acknowledges his condition and gears himself to face the challenge." --PITTSBURGH POST-GAZETTE
“The story of Kurland’s battle with a disease that almost took his life is compelling and poignant. Unlike other chroniclers of illness, however, Kurland is a physician caring for critically ill children. Perhaps it is inevitable that his observations on life, death, and suffering should be so informed by his work. The result is a narrative that is both unique and deeply insightful.

Drunk Mom


Jowita Bydlowska - 2013
    Only one has told her story.three years after giving up alcohol, Jowita Bydlowska found herself throwing back a glass of champagne like it was lemonade. 'It's a special occasion,' she said to her boyfriend. And indeed it was. It was a party celebrating the birth of their first child. It also marked Jowita's immediate, full-blown return to alcoholism and all that entails for a new mother who is at first determined to keep her problem a secret. Her trips to bottle shops stores are in-and-out missions. Perhaps she's being paranoid, but she thinks people tend to notice the stroller. Walking home, she stays behind buildings, in alleyways, taking discreet sips from a bottle she's stored in the nappy bag. She know she's become a villain: a mother who drinks; a mother who endangers her child. She drinks to forget this. And then the trouble really starts. Jowita Bydlowska's memoir of her relapse into addiction is an extraordinary achievement. the writing is raw and immediate. It places you in the moment - saddened and appalled but never able to look away. With brutal honesty, DRUNK MUM takes us through the binges and blackouts, the self-deception and less successful attempts to deceive others, the humiliations and extraordinary risk-taking. She shines a light on the endless hunger of wanting just one more drink, and one more again, while dealing with motherhood, anxiety, depression - and rehab. Advance Praise for Drunk Mom: 'Jowita is matter of fact, funny, fearless, and irreverent as she lifts the veil to chronicle what it means to be a young mother when both baby and mother have their own bottles - the shame and the inner voices, as well as the joy and relief. this book is for anyone who has ever struggled to make it through a day.' - Laura Albert, a.k.a. Jt LeRoy, author of Sarah, the Heart Is Deceitful Above All things and Harold's End 'Drunk Mom is a stunning, harrowing read. Why harrowing? Not just because of the dramatic story, of a new mother at the edge of her tether. And not only because of Jowita Bydlowska's skill as a writer, and the crisp, original way she tells it. What's most harrowing about Drunk Mom is that you can't stop reading it-this, the dark, now-told tale that lurks in the shadow of every seemingly normal family.' - Ian Brown, author of the Boy in the Moon 'A brave, brilliant and scathing self-portrait. Full of energy and insight. If Frida Kahlo had been a writer, she might have been compared to Jowita Bydlowska.' - Patricia Pearson, author of A Brief History of Anxiety - Yours and Mine. 'Fearless and troubling, and so very humane, Bydlowska explodes the cutesy momoir genre. You'll read it in one sitting.' - Katrina Onstad, author of Everybody Has Everything.

Expecting Adam: A True Story of Birth, Rebirth, and Everyday Magic


Martha N. Beck - 1999
    This "rueful, riveting, piercingly funny" (Julia Cameron) book is written by a Harvard graduate--but it tells a story in which hearts trump brains every time. It's a tale about mothering a Down syndrome child that opts for sass over sap, and it's a book of heavenly visions and inexplicable phenomena that's as down-to-earth as anyone could ask for. This small masterpiece is Martha Beck's own story--of leaving behind the life of a stressed-out superachiever, opening herself to things she'd never dared consider, meeting her son for (maybe) the first time...and "unlearn[ing] virtually everything Harvard taught [her] about what is precious and what is garbage.""Beck [is] very funny, particularly about the most serious possible subjects--childbirth, angels and surviving at Harvard." --New York Times Book Review"Immensely appealing...hooked me on the first page and propelled me right through visions and out-of-body experiences I would normally scoff at." --Detroit Free Press"I challenge any reader not to be moved by it." --Newsday"Brilliant." --Minneapolis Star-Tribune

Tell Me Everything You Don't Remember: The Stroke That Changed My Life


Christine Hyung-Oak Lee - 2017
    By that afternoon, she saw the world—quite literally—upside down. By New Year’s Day, she was unable to form a coherent sentence. And after hours in the ER, days in the hospital, and multiple questions and tests, her doctors informed her that she had had a stroke. For months afterward, Lee outsourced her memories to a journal, taking diligent notes to compensate for the thoughts she could no longer hold on to. It is from these notes that she has constructed this frank and compelling memoir.In a precise and captivating narrative, Lee navigates fearlessly between chronologies, weaving her childhood humiliations and joys together with the story of the early days of her marriage; and then later, in painstaking, painful, and unflinching detail, the account of her stroke and every upset—temporary or permanent—that it caused. Lee illuminates the connection between memory and identity in an honest, meditative, and truly funny manner, utterly devoid of self-pity. And as she recovers, she begins to realize that this unexpected and devastating event has provided a catalyst for coming to terms with her true self—and, in a way, has allowed her to become the person she’s always wanted to be.

Girl in the Dark


Anna Lyndsey - 2015
    She was ambitious and worked hard; she had just bought an apartment; she was falling in love. But then she started to develop worrying symptoms: her face felt like it was burning whenever she was in front of the computer. Soon this progressed to an intolerance of fluorescent light, then of sunlight itself. The reaction soon spread to her entire body. Now, when her symptoms are at their worst, she must spend months on end in a blacked-out room, losing herself in audio books and elaborate word games in an attempt to ward off despair. It was during this period she began to write this book.

Wasted: A Memoir of Anorexia and Bulimia


Marya Hornbacher - 1997
    A vivid, honest, and emotionally wrenching memoir, Wasted is the story of one woman's travels to reality's darker side—and her decision to find her way back on her own terms.

Changing Normal: How I Helped My Husband Beat Cancer


Marilu Henner - 2016
    Within days of their first meeting in 2003, they were planning a life together, and soon they were inseparable as Michael became ever more integrated into Marilu’s family. But after only months they were thrown the ultimate curveball: Michael was diagnosed with bladder cancer, and then lung cancer. Marilu refused to lose the love of her life so easily. With the knowledge she had gained on her own health journey, chronicled in several of her bestselling books, Marilu set about finding a path for Michael that would use the best of Eastern and Western medicine to beat his cancers and return Michael to optimal health. Michael eschewed most traditional treatments and with Marilu’s help—aided by knowledgeable and sympathetic doctors—he forged his own path. In this moving and informative book, Marilu tells the story of their fast-paced romance and how this contrasted with the day-to-day battle for Michael’s life. Michael tells the story from his point of view: the search for the cause of his cancer, the mental anguish he felt as he realized how responsible he was for his condition, the physical and mental hardships that he had to overcome, and the triumph of love that made it all worthwhile. Not a “how-to” book in the traditional sense, Changing Normal is a book of empowerment, a call for all those facing similar challenges to take responsibility for their lives, to search for the causes of their illness and address them directly. Written with an engaging voice, a sense of humor, and life-changing wisdom, Changing Normal is a personal and touching look at how Marilu and Michael faced down a cancer diagnosis and came out the other side happier, healthier, and more in love than ever.

The Best of Us


Joyce Maynard - 2017
    Jim wore a rakish hat over a good head of hair; he asked real questions and gave real answers; he loved to see Joyce shine, both in and out of the spotlight; and he didn't mind the mess she made in the kitchen. He was not the husband Joyce imagined, but he quickly became the partner she had always dreamed of.Before they met, both had believed they were done with marriage, and even after they married, Joyce resolved that no one could alter her course of determined independence. Then, just after their one-year wedding anniversary, her new husband was diagnosed with pancreatic cancer. During the nineteen months that followed, as they battled his illness together, she discovered for the first time what it really meant to be a couple--to be a true partner and to have one.This is their story. Charting the course through their whirlwind romance, a marriage cut short by tragedy, and Joyce's return to singleness on new terms, The Best of Us is a heart-wrenching, ultimately life-affirming reflection on coming to understand true love through the experience of great loss.

No Footprints in the Sand: A Memoir of Kalaupapa


Henry Nalaielua - 2006
    During its century as a virtual prison, more than 8,000 people were exiled to Kalaupapa, until the introduction of sulfone drugs in the 1940s. Today fewer than 30 patients remain. This is Henry's story, an unforgettable memoir of the boy who grew to build a full and joyous life at Kalaupapa, and still calls it home today. No Footprints in the Sand is one of only a few memoirs ever shared with the public by a Kalaupapa patient. Its intimacy and candor make it, in the words of Pulitzer Prize-winning poet W.S. Merwin, a rare and precious human document. Nalaielua's story is an inspiring one; despite exile, physical challenges and the severing of family ties, he has faced life as an artist, musician and historian with courage, honesty, hope and humor.