No one in her family, in either the United States or Colombia, spoke of infectious diseases, and even into her thirties, she only knew that her aunt had died of a rare illness called Chagas. But as Hernández dug deeper, she discovered that Chagas—or the kissing bug disease—is more prevalent in the United States than the Zika virus. Today, more than three hundred thousand Americans have Chagas.Why do some infectious diseases make headlines and others fall by the wayside? After her aunt’s death, Hernández begins searching for answers about who our nation chooses to take care of and who we ignore. Crisscrossing the country, she interviews patients, epidemiologists, and even veterinarians with the Department of Defense. She learns that outside of Latin America, the United States is the only country with the native insects—the “kissing bugs”—that carry the Chagas parasite. She spends a night in southwest Texas hunting the dreaded bug with university researchers. She also gets to know patients, like a mother whose premature baby was born infected with the parasite, his heart already damaged. And she meets one cardiologist battling the disease in Los Angeles County with local volunteers. The Kissing Bug tells the story of how poverty, racism, and public policies have conspired to keep this disease hidden—and how the disease intersects with Hernández’s own identity as a niece, sister, and daughter; a queer woman; a writer and researcher; and a citizen of a country that is only beginning to address the harms caused by Chagas, and the dangers it poses. A riveting and nuanced investigation into racial politics and for-profit healthcare in the United States, The Kissing Bug reveals the intimate history of a marginalized disease and connects us to the lives at the center of it all.

    As an Ahmadi Muslim growing up in Pakistan, she faced regular threats from Islamic extremists who believed the small, dynamic sect to be blasphemous. From her parents, she internalized the lesson that revealing her identity could put her in grave danger.When her family came to Canada as refugees, Samra encountered a whole new host of challenges: bullies, racism, the threat of poverty, and an arranged marriage. Backed into a corner, her need for a safe space--in which to grow and nurture her creative, feminist spirit--became dire. The men in her life wanted to police her, the women in her life had only shown her the example of pious obedience, and her body was a problem to be solved.So begins an exploration of faith, art, love, and queer sexuality, a journey that takes her to the far reaches of the globe to uncover a truth that was within her all along. A triumphant memoir of forgiveness and family, both chosen and not, We Have Always Been Here is a rallying cry for anyone who has ever felt out of place and a testament to the power of fearlessly inhabiting one's truest self.

    In this extraordinarily candid and radically inventive memoir, Machado tackles a dark and difficult subject with wit, inventiveness and an inquiring spirit, as she uses a series of narrative tropes—including classic horror themes—to create an entirely unique piece of work which is destined to become an instant classic.

    Those 2300 words were life-altering for the People.com editor, turning her into an influential and outspoken public figure and a desperately needed voice for an often voiceless community. In these pages, she offers a bold and inspiring perspective on being young, multicultural, economically challenged, and transgender in America. Welcomed into the world as her parents’ firstborn son, Mock decided early on that she would be her own person—no matter what. She struggled as the smart, determined child in a deeply loving yet ill-equipped family that lacked the money, education, and resources necessary to help her thrive. Mock navigated her way through her teen years without parental guidance, but luckily, with the support of a few close friends and mentors, she emerged much stronger, ready to take on—and maybe even change—the world. This powerful memoir follows Mock’s quest for identity, from an early, unwavering conviction about her gender to a turbulent adolescence in Honolulu that saw her transitioning during the tender years of high school, self-medicating with hormones at fifteen, and flying across the world alone for sex reassignment surgery at just eighteen. With unflinching honesty, Mock uses her own experience to impart vital insight about the unique challenges and vulnerabilities of trans youth and brave girls like herself. Despite the hurdles, Mock received a scholarship to college and moved to New York City, where she earned a master’s degree, enjoyed the success of an enviable career, and told no one about her past. She remained deeply guarded until she fell for a man who called her the woman of his dreams. Love fortified her with the strength to finally tell her story, enabling her to embody the undeniable power of testimony and become a fierce advocate for a marginalized and misunderstood community. A profound statement of affirmation from a courageous woman, Redefining Realness provides a whole new outlook on what it means to be a woman today, and shows as never before how to be authentic, unapologetic, and wholly yourself.

    Years ago, when In the Heights was just starting off-Broadway, Maria got the word out to our community to support this new musical about our neighborhoods. She has been a champion of our triumphs, a critic of our detractors, and a driving force to right the wrongs our society faces. When Maria speaks, I’m ready to listen and learn.” —Lin-Manuel Miranda Emmy Award–winning journalist and anchor of NPR’s Latino USA, Maria Hinojosa, tells the story of immigration in America through her family’s experiences and decades of reporting, painting an unflinching portrait of a country in crisis.Maria Hinojosa is an award-winning journalist who has collaborated with the most respected networks and is known for bringing humanity to her reporting. In this beautifully-rendered memoir, she relates the history of US immigration policy that has brought us to where we are today, as she shares her deeply personal story. For thirty years, Maria Hinojosa has reported on stories and communities in America that often go ignored by the mainstream media. Bestselling author Julia Alvarez has called her “one of the most important, respected, and beloved cultural leaders in the Latinx community.” In Once I Was You, Maria shares her intimate experience growing up Mexican American on the south side of Chicago and documenting the existential wasteland of immigration detention camps for news outlets that often challenged her work. In these pages, she offers a personal and eye-opening account of how the rhetoric around immigration has not only long informed American attitudes toward outsiders, but also enabled willful negligence and profiteering at the expense of our country’s most vulnerable populations—charging us with the broken system we have today. This honest and heartrending memoir paints a vivid portrait of how we got here and what it means to be a survivor, a feminist, a citizen, and a journalist who owns her voice while striving for the truth. Once I Was You is an urgent call to fellow Americans to open their eyes to the immigration crisis and understand that it affects us all. Also available in Spanish as Una vez fui tú.

    But under the surface was a wild instability. The only child of parents continually battling drug and alcohol addictions, Madden confronted her environment alone. Facing a culture of assault and objectification, she found lifelines in the desperately loving friendships of fatherless girls.With unflinching honesty and lyrical prose, spanning from 1960s Hawai'i to the present-day struggle of a young woman mourning the loss of a father while unearthing truths that reframe her reality, Long Live the Tribe of Fatherless Girls is equal parts eulogy and love letter. It's a story about trauma and forgiveness, about families of blood and affinity, both lost and found, unmade and rebuilt, crooked and beautiful.

    With his trademark wit, humor, and radical compassion, Tan reveals what it was like to grow up gay in a traditional Muslim family, as one of the few people of color in Doncaster, England. He illuminates his winding journey of coming of age, finding his voice (and style!), and how he finally came out to his family at the age of 34, revealing that he was happily married to the love of his life--a Mormon cowboy from Salt Lake City.In Tan's own words, "The book is meant to spread joy, personal acceptance, and most of all understanding. Each of us is living our own private journey, and the more we know about each other, the healthier and happier the world will be."

    I was convinced that when they'd happen, the world would end.But the world didn't end. In fact, it pushed on and demanded to keep spinning through all sorts of mayhem, and I got through it. And because I persisted, I learned lessons about how to be a stronger, kinder, better human - lessons you can only learn by going through these sorts of things.This is for the people with minds that just don't stop; for those who feel everything seemingly a thousand times more than the people around them.Here are some words I wrote.

     R. Eric Thomas didn't know he was different until the world told him so. Everywhere he went—whether it was his rich, mostly white, suburban high school, his conservative black church, or his Ivy League college in a big city—he found himself on the outside looking in.In essays by turns hysterical and heartfelt, Eric redefines what it means to be an "other" through the lens of his own life experience. He explores the two worlds of his childhood: the barren urban landscape where his parents' house was an anomalous bright spot, and the verdant school they sent him to in white suburbia. He writes about struggling to reconcile his Christian identity with his sexuality, about the exhaustion of code-switching in college, accidentally getting famous on the internet (for the wrong reason), and the surreal experience of covering the 2016 election as well as the seismic change that came thereafter.Ultimately, Eric seeks the answer to the ever more relevant question: Is the future worth it? Why do we bother when everything seems to be getting worse? As the world continues to shift in unpredictable ways, Eric finds the answers to these questions by re-envisioning what "normal" means, and in the powerful alchemy that occurs when you at last place yourself at the center of your own story.For fans of Samantha Irby, Michael Arceneaux, and David Sedaris, Here for It will resonate deeply and joyfully with everyone who has ever felt pushed to the margins, struggled with self-acceptance, or wished to shine more brightly in a dark world. Stay here for it—the future may surprise you.

    Schizophrenia is not a single unifying diagnosis, and Esme Weijun Wang writes not just to her fellow members of the "collected schizophrenias" but to those who wish to understand it as well. Opening with the journey toward her diagnosis of schizoaffective disorder, Wang discusses the medical community's own disagreement about labels and procedures for diagnosing those with mental illness, and then follows an arc that examines the manifestations of schizophrenia in her life. In essays that range from using fashion to present as high-functioning to the depths of a rare form of psychosis, and from the failures of the higher education system and the dangers of institutionalisation to the complexity of compounding factors such as PTSD and Lyme disease, Wang's analytical eye, honed as a former lab researcher at Stanford, allows her to balance research with personal narrative. An essay collection of undeniable power, The Collected Schizophrenias dispels misconceptions and provides insight into a condition long misunderstood.

    Tammet's ability to think abstractly, deviate from routine, and empathize, interact and communicate with others is impaired, yet he's capable of incredible feats of memorization and mental calculation. Besides being able to effortlessly multiply and divide huge sums in his head with the speed and accuracy of a computer, Tammet, the subject of the 2005 documentary Brainman, learned Icelandic in a single week and recited the number pi up to the 22,514th digit, breaking the European record. He also experiences synesthesia, an unusual neurological syndrome that enables him to experience numbers and words as "shapes, colors, textures and motions." Tammet traces his life from a frustrating, withdrawn childhood and adolescence to his adult achievements, which include teaching in Lithuania, achieving financial independence with an educational Web site and sustaining a long-term romantic relationship. As one of only about 50 people living today with synesthesia and autism, Tammet's condition is intriguing to researchers; his ability to express himself clearly and with a surprisingly engaging tone (given his symptoms) makes for an account that will intrigue others as well.

    Powerful and passionate, Care Work is a crucial and necessary call to arms.

    They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that her loved ones were not safe.Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. Pushed to the edge of the abyss, everything the couple had once taken for granted was upended.A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife in the Psych Ward is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach’s is an intensely personal odyssey through the harrowing years of his wife’s mental illness, anchored by an abiding devotion to family that will affirm readers’ faith in the power of love.

     A riveting, powerful telling of the story of the grassroots movement of activists, many of them in a life-or-death struggle, who seized upon scientific research to help develop the drugs that turned HIV from a mostly fatal infection to a manageable disease. Ignored by public officials, religious leaders, and the nation at large, and confronted with shame and hatred, this small group of men and women chose to fight for their right to live by educating themselves and demanding to become full partners in the race for effective treatments. Around the globe, 16 million people are alive today thanks to their efforts. Not since the publication of Randy Shilts's classic And the Band Played On has a book measured the AIDS plague in such brutally human, intimate, and soaring terms. In dramatic fashion, we witness the founding of ACT UP and TAG (Treatment Action Group), and the rise of an underground drug market in opposition to the prohibitively expensive (and sometimes toxic) AZT. We watch as these activists learn to become their own researchers, lobbyists, drug smugglers, and clinicians, establishing their own newspapers, research journals, and laboratories, and as they go on to force reform in the nation s disease-fighting agencies. With his unparalleled access to this community David France illuminates the lives of extraordinary characters, including the closeted Wall Street trader-turned-activist, the high school dropout who found purpose battling pharmaceutical giants in New York, the South African physician who helped establish the first officially recognized buyers club at the height of the epidemic, and the public relations executive fighting to save his own life for the sake of his young daughter. Expansive yet richly detailed, this is an insider's account of a pivotal moment in the history of American civil rights. Powerful, heart-wrenching, and finally exhilarating, How to Survive a Plague is destined to become an essential part of the literature of AIDS.

    By night, I am Glamrou, an empowered, fearless and acerbic drag queen who wears seven-inch heels and says the things that nobody else dares to. Growing up in a strict Iraqi Muslim household, it didn’t take long for me to realise I was different. When I was ten years old, I announced to my family that I was in love with Macaulay Culkin in Home Alone. The resultant fallout might best be described as something like the Iraqi version of Jerry Springer: The Opera. And that was just the beginning. This is the story of how I got from there to here: about my teenage obsession with marine biology, and how fluid aquatic life helped me understand my non-binary gender identity; about my two-year scholarship at Eton college, during which I wondered if I could forge a new identity as a British aristocrat (spoiler alert: it didn’t work); about discovering the transformative powers of drag while at university (and how I very nearly lost my mind after I left); and about how, after years of rage towards it, I finally began to understand Islam in a new, queer way. Most of all, this is a book about my mother. It’s the journey of how we lost and found each other, about forgiveness, understanding, hope – and the life-long search for belonging.