Book picks similar to
The Development of Disability Rights Under International Law: From Charity to Human Rights by Arlene S. Kanter
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Memory's Last Breath: Field Notes on My Dementia
Gerda Saunders - 2017
Saunders' book is uncharted territory in the writing on dementia, a diagnosis one in nine Americans will receive. Based on the "field notes" she keeps in her journal, Memory's Last Breath is Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders nonetheless embarks on a personal investigation of the brain and its mysteries, examining science and literature, and immersing herself in vivid memories of her childhood in South Africa. Written in a distinctive voice without a trace of self-pity, Memory's Last Breath is a remarkable, aphorism-free contribution to the literature of dementia--and an eye-opening personal memoir that will grip all adventurous readers.
What Can a Body Do?: How We Meet the Built World
Sara Hendren - 2020
Yet unless, or until, a misfit between our own body and the world is acute enough to be understood as disability, we may never stop to consider--or reconsider--the hidden assumptions on which our everyday environment is built.In a series of vivid stories drawn from the lived experience of disability and the ideas and innovations that have emerged from it--from cyborg arms to customizable cardboard chairs to deaf architecture--Sara Hendren invites us to rethink the things and settings we live with. What might assistance based on the body's stunning capacity for adaptation--rather than a rigid insistence on "normalcy"--look like? Can we foster interdependent, not just independent, living? How do we creatively engineer public spaces that allow us all to navigate our common terrain? By rendering familiar objects and environments newly strange and wondrous, What Can a Body Do? helps us imagine a future that will better meet the extraordinary range of our collective needs and desires.
Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature
Rosemarie Garland-Thomson - 1996
Rosemarie Garland Thomson examines disabled figures in sentimental novels such as Harriet Beecher Stowe's Uncle Tom's Cabin and Rebecca Harding Davis's Life in the Iron Mills, African-American novels by Toni Morrison and Audre Lorde, and the popular cultural ritual of the freak show.
Life As We Know It: A Father, a Family, and an Exceptional Child
Michael Bérubé - 1996
When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the medical procedures, insurance guidelines, policies, and representations that surround every child our society designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person rather than as a medical, genetic, or social problem.
The Body in Pain: The Making and Unmaking of the World
Elaine Scarry - 1985
The book is an analysis of physical suffering and its relation to the numerous vocabularies and cultural forces--literary, political, philosophical, medical, religious--that confront it. Elaine Scarry bases her study on a wide range of sources: literature and art, medical case histories, documents on torture compiled by Amnesty International, legal transcripts of personal injury trials, and military and strategic writings by such figures as Clausewitz, Churchill, Liddell Hart, and Kissinger, She weaves these into her discussion with an eloquence, humanity, and insight that recall the writings of Hannah Arendt and Jean-Paul Sartre. Scarry begins with the fact of pain's inexpressibility. Not only is physical pain enormously difficult to describe in words--confronted with it, Virginia Woolf once noted, "language runs dry"--it also actively destroys language, reducing sufferers in the most extreme instances to an inarticulate state of cries and moans. Scarry analyzes the political ramifications of deliberately inflicted pain, specifically in the cases of torture and warfare, and shows how to be fictive. From these actions of "unmaking" Scarry turns finally to the actions of "making"--the examples of artistic and cultural creation that work against pain and the debased uses that are made of it. Challenging and inventive, The Body in Pain is landmark work that promises to spark widespread debate.
Animal's People
Indra Sinha - 2007
It is a dark world, shot through with flashes of joy and lunacy."I used to be human once. So I'm told. I don't remember it myself, but people who knew me when I was small say I walked on two feet, just like a human being..." Ever since he can remember, Animal has gone on all fours, his back twisted beyond repair by the catastrophic events of "that night" when a burning fog of poison smoke from the local factory blazed out over the town of Khaufpur, and the Apocalypse visited his slums. Now just turned seventeen and well schooled in street work, he lives by his wits, spending his days jamisponding (spying) on town officials and looking after the elderly nun who raised him, Ma Franci. His nights are spent fantasizing about Nisha, the girlfriend of the local resistance leader, and wondering what it must be like to get laid. When Elli Barber, a young American doctor, arrives in Khaufpur to open a free clinic for the still suffering townsfolk -- only to find herself struggling to convince them that she isn't there to do the dirty work of the Kampani -- Animal gets caught up in a web of intrigues, scams, and plots with the unabashed aim of turning events to his own advantage. Profane, piercingly honest, and scathingly funny, Animal's People illuminates a dark world shot through with flashes of joy and lunacy. A stunning tale of an unforgettable character, it is an unflinching look at what it means to be human: the wounds that never heal and a spirit that will not be quenched.
One of Us: Conjoined Twins and the Future of Normal
Alice Domurat Dreger - 2004
Anatomy matters, Alice Domurat Dreger tells us, because the senses we possess, the muscles we control, and the resources we require to keep our bodies alive limit and guide what we experience in any given context. Her deeply thought-provoking and compassionate work exposes the breadth and depth of that context--the extent of the social frame upon which we construct the normal. In doing so, the book calls into question assumptions about anatomy and normality, and transforms our understanding of how we are all intricately and inextricably joined.
Odd Girl Out: An Autistic Woman in a Neurotypical World
Laura James - 2017
A successful journalist and mother to four children, she had spent her whole life feeling as if she were running a different operating system to those around her. This book charts a year in her life and offers a unique insight into the autistic mind and the journey from diagnosis to acceptance. Drawing on personal experience, research and conversations with experts, she learns how 'different' doesn't need to mean 'less' and how it's never too late for any of us to find our place in the world. Laura explores how and why female autism is so under-diagnosed and very different to that seen in men and boys and explores difficulties and benefits neurodiversity can bring.
Hands of My Father: A Hearing Boy, His Deaf Parents, and the Language of Love
Myron Uhlberg - 2009
Translating from sign language to spoken language and back again, he enables his father to communicate with local shopkeepers, awakens his parents when his baby brother cries, and even interprets at a less-than-glowing parent-teacher conference. At times, he's embarrassed by his parents, and hurt that his father is called "dummy." But in the end, his overwhelming love and compassion leaves a lasting effect.
My Dyslexia
Philip Schultz - 2011
Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.In his moving memoir, Schultz traces his difficult childhood and his new understanding of his early years. In doing so, he shows how a boy who did not learn to read until he was eleven went on to become a prize-winning poet by sheer force of determination. His balancing act—life as a member of a family with not one but two dyslexics, countered by his intellectual and creative successes as a writer—reveals an inspiring story of the strengths of the human mind.
Seeing Voices
Oliver Sacks - 1989
Seeing Voices is, as Studs Terkel has written, "an exquisite, as well as revelatory, work."
Wide Awake: A Memoir of Insomnia
Patricia Morrisroe - 2009
So, armed with half a century of personal experience and a journalist’s curiosity, she set off to explore one of life’s greatest mysteries: sleep. Wide Awake is the eye-opening account of Morrisroe’s quest—a compelling memoir that blends science, culture, and business to tell the story of why she—and forty million other Americans—can’t sleep at night. Over the course of three years of research and reporting, Morrisroe talks to sleep doctors, drug makers, psychiatrists, anthropologists, hypnotherapists, “wake experts,” mattress salesmen, a magician, an astronaut, and even a reindeer herder. She spends an uncomfortable night wired up in a sleep lab. She tries “sleep restriction” and “brain music therapy.” She buys a high-end sound machine, custom-made ear plugs, and a “quiet” house in the country to escape her noisy neighbors in the city. She attends a continuing medical education course in Las Vegas, where she discovers that doctors are among the most sleep-deprived people in the country. She travels to Sonoma, California, where she attends a Dream Ball costumed as her “dream self.” To fulfill a childhood fantasy, she celebrates Christmas Eve two hundred miles north of the Arctic Circle, in the famed Icehotel tossing and turning on an ice bed. Finally, after traveling the globe, she finds the answer to her insomnia right around the corner from her apartment in New York City. A mesmerizing mix of personal insight, science and social observation, Wide Awake examines the role of sleep in our increasingly hyperactive culture. For the millions who suffer from sleepless nights and hazy caffeine-filled days, this humorous, thought-provoking and ultimately hopeful book is an essential bedtime companion. It does, however, come with a warning: Reading it will promote wakefulness.
Sad Girl Poems
Christopher Soto - 2016
Their first chapbook Sad Girl Poems delves into their relationship with domestic violence, queer youth homelessness, & the suicide of a close friend. Of the chapbook, Eileen Myles wrote "Sad Girl Poems are revolutionary and sad and finely wrought on the fly… I keep reading, needing to be living in the world of them.” CAConrad wrote “You are an asshole if you read this book and are not destroyed and renewed and see through the poet Loma a way to redemption for us all.” Christopher Soto is originally from the Los Angeles area but now lives in Brooklyn.
Feminist, Queer, Crip
Alison Kafer - 2013
Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a pre-determined limit. She juxtaposes theories, movements, and identities such as environmental justice, reproductive justice, cyborg theory, transgender politics, and disability that are typically discussed in isolation and envisions new possibilities for crip futures and feminist/queer/crip alliances. This bold book goes against the grain of normalization and promotes a political framework for a more just world.
Dr. Feelgood: The Story of the Doctor Who Influenced History by Treating and Drugging Prominent Figures Including President Kennedy, Marilyn Monroe, and Elvis Presley
Richard A. Lertzman - 2013
Kennedy code-named "Dr. Feelgood," developed a unique "energy formula" that altered the paths of some of the twentieth century's most iconic figures, including President and Jackie Kennedy, Marilyn Monroe, Frank Sinatra, and Elvis. JFK received his first injection (a special mix of "vitamins and hormones," according to Jacobson) just before his first debate with Vice President Richard Nixon. The shot into JFK's throat not only cured his laryngitis, but also diminished the pain in his back, allowed him to stand up straighter, and invigorated the tired candidate. Kennedy demolished Nixon in that first debate and turned a tide of skepticism about Kennedy into an audience that appreciated his energy and crispness. What JFK didn't know then was that the injections were actually powerful doses of a combination of highly addictive liquid methamphetamine and steroids.Author and researcher Rick Lertzman and New York Times bestselling author Bill Birnes reveal heretofore unpublished material about the mysterious Dr. Feelgood. Through well-researched prose and interviews with celebrities including George Clooney, Jerry Lewis, Yogi Berra, and Sid Caesar, the authors reveal Jacobson's vast influence on events such as the assassination of JFK, the Cuban Missile Crisis, the Kennedy-Khrushchev Vienna Summit, the murder of Marilyn Monroe, the filming of the C. B. DeMille classic The Ten Commandments, and the work of many of the great artists of that era. Jacobson destroyed the lives of several famous patients in the entertainment industry and accidentally killed his own wife, Nina, with an overdose of his formula.