Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties


Laurie Edwards - 2008
    Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived--they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness.Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals.Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

A Sniper in the Tower: The Charles Whitman Murders


Gary M. Lavergne - 1997
    He gunned down forty-five people inside and around the Tower before he was killed by two Austin police officers. In addition to promoting the rise of S.W.A.T. teams to respond to future crises, the murders spawned debates over issues which still plague America today: domestic violence, child abuse, drug abuse, military indoctrination, the insanity defense, and the delicate balance between civil liberties and public safety.

Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand


Julie Rehmeyer - 2017
    The top specialists in the world were powerless to help, and scientific research on her disease was at a near standstill. She was running out of money. And she was all alone, with no one to care for her.Having exhausted the plausible ideas, Rehmeyer turned to an implausible one. She followed the advice of strangers she'd met on the Internet. They struck her as crazy but they had recovered from chronic fatigue syndrome as severe as hers. Leaving behind everything she owned, she drove into the desert, testing the theory that mold in her home and belongings was making her sick. Stripped of the life she'd known and the future she'd imagined, Rehmeyer felt as though she were going to the desert to die.But she didn't die. She used her scientific savvy and investigative journalism skills to find a path to wellness and uncovered how shocking scientific neglect and misconduct had forced her, and millions of others, to go it alone. In stunning prose, Rehmeyer describes how her illness transformed her understanding of science, medicine, and spirituality. Through the Shadowlands will bring scientific authority to a misunderstood disease while telling an incredible and compelling story of tenacity, resourcefulness, acceptance, and love.

Chain Saw Confidential: How We Made the World's Most Notorious Horror Movie


Gunnar Hansen - 2013
    To critics, it was either "a degrading, senseless misuse of film and time" or "an intelligent, absorbing and deeply disturbing horror film." However it was an immediate hit with audiences. Banned and celebrated, showcased at the Cannes film festival and included in the New York MoMA's collection, it has now come to be recognized widely as one of the greatest horror movies of all time.A six-foot-four poet fresh out of grad school with limited acting experience, Gunnar Hansen played the masked, chain-saw-wielding Leatherface. His terrifying portrayal and the inventive work of the cast and crew would give the film the authentic power of nightmare, even while the gritty, grueling, and often dangerous independent production would test everyone involved, and lay the foundations for myths surrounding the film that endure even today.Critically-acclaimed author Hansen here tells the real story of the making of the film, its release, and reception, offering unknown behind-the-scenes details, a harrowingly entertaining account of the adventures of low-budget filmmaking, illuminating insights on the film's enduring and influential place in the horror genre and our culture, and a thoughtful meditation on why we love to be scared in the first place.

Napalm: An American Biography


Robert M. Neer - 2013
    On March 9, 1945, it created an inferno that killed over 87,500 people in Tokyo--more than died in the atomic explosions at Hiroshima or Nagasaki. It went on to incinerate sixty-four of Japan's largest cities. The Bomb got the press, but napalm did the work.After World War II, the incendiary held the line against communism in Greece and Korea--Napalm Day led the 1950 counter-attack from Inchon--and fought elsewhere under many flags. Americans generally applauded, until the Vietnam War. Today, napalm lives on as a pariah: a symbol of American cruelty and the misguided use of power, according to anti-war protesters in the 1960s and popular culture from "Apocalypse Now" to the punk band Napalm Death and British street artist Banksy. Its use by Serbia in 1994 and by the United States in Iraq in 2003 drew condemnation. United Nations delegates judged deployment against concentrations of civilians a war crime in 1980. After thirty-one years, America joined the global consensus, in 2011.Robert Neer has written the first history of napalm, from its inaugural test on the Harvard College soccer field, to a Marine Corps plan to attack Japan with millions of bats armed with tiny napalm time bombs, to the reflections of Phan Thi Kim Phuc, a girl who knew firsthand about its power and its morality.

Care Work: Dreaming Disability Justice


Leah Lakshmi Piepzna-Samarasinha - 2018
    Powerful and passionate, Care Work is a crucial and necessary call to arms.

Waist-High in the World: A Life Among the Nondisabled


Nancy Mairs - 1997
    In a blend of intimate memoir and passionate advocacy, Nancy Mairs takes on the subject woven through all her writing: disability and its effect on life, work, and spirit.

Too Late to Die Young: Nearly True Tales from a Life


Harriet McBryde Johnson - 2005
    Born with a congenital neuromuscular disease, Johnson has never been able to walk, dress, or bathe without assistance. With assistance, she passionately celebrates her life's richness and pleasures and pursues a formidable career as an attorney and activist. Whether rolling on the streets of Havana, on the floor of the Democratic National Convention in Chicago, or in an auditorium at Princeton debating philosopher Peter Singer, Harriet McBryde Johnson defies every preconception about people with disabilities, and shows how a life, be it long or short, is a treasure of infinite value.

The Body Silent: The Different World of the Disabled


Robert Francis Murphy - 1987
    Robert Murphy was in the prime of his career as an anthropologist when he felt the first symptom of a malady that would ultimately take him on an odyssey stranger than any field trip to the Amazon: a tumor of the spinal cord that progressed slowly and irreversibly into quadriplegia. In this gripping account, Murphy explores society's fears, myths, and misunderstandings about disability, and the damage they inflict. He reports how paralysis—like all disabilities—assaults people's identity, social standing, and ties with others, while at the same time making the love of life burn even more fiercely.

The Day the Voices Stopped


Ken Steele - 2001
    In this powerful and inspiring story, Steele tells the story of his hard-won recovery from schizophrenia and how activism and advocacy helped him regain his sanity and go on to give hope and support to so many others like him. His recovery began with a small but intensely dramatic moment. One evening in the spring of 1995, shortly after starting on Risperdal, a new antipsychotic medicine, he realized that the voices that had tormented him for three decades had suddenly stopped. Terrified but also empowered by this new freedom, Steele rose to the challenge of creating a new life. Steele went on to become one of the most vocal advocates of the mentally ill, earning the respect not only of patients and families but also of professionals and policymakers all over America through his tireless devotion to a cause that transformed his life and that of countless others. The Day the Voices Stopped will endure as Ken Steele's testament for all who struggle with this heartbreaking disease.

Bodyminds Reimagined: (Dis)ability, Race, and Gender in Black Women’s Speculative Fiction


Sami Schalk - 2018
    Bridging black feminist theory with disability studies, Schalk demonstrates that this genre's political potential lies in the authors' creation of bodyminds that transcend reality's limitations. She reads (dis)ability in neo-slave narratives by Octavia Butler (Kindred) and Phyllis Alesia Perry (Stigmata) not only as representing the literal injuries suffered under slavery, but also as a metaphor for the legacy of racial violence. The fantasy worlds in works by N. K. Jemisin, Shawntelle Madison, and Nalo Hopkinson—where werewolves have obsessive-compulsive-disorder and blind demons can see magic—destabilize social categories and definitions of the human, calling into question the very nature of identity. In these texts, as well as in Butler’s Parable series, able-mindedness and able-bodiedness are socially constructed and upheld through racial and gendered norms. Outlining (dis)ability's centrality to speculative fiction, Schalk shows how these works open new social possibilities while changing conceptualizations of identity and oppression through nonrealist contexts.

Nothing About Us Without Us: Disability Oppression and Empowerment


James I. Charlton - 1998
    Nothing About Us Without Us is the first book in the literature on disability to provide a theoretical overview of disability oppression that shows its similarities to, and differences from, racism, sexism, and colonialism. Charlton's analysis is illuminated by interviews he conducted over a ten-year period with disability rights activists throughout the Third World, Europe, and the United States. Charlton finds an antidote for dependency and powerlessness in the resistance to disability oppression that is emerging worldwide. His interviews contain striking stories of self-reliance and empowerment evoking the new consciousness of disability rights activists. As a latecomer among the world's liberation movements, the disability rights movement will gain visibility and momentum from Charlton's elucidation of its history and its political philosophy of self-determination, which is captured in the title of his book. Nothing About Us Without Us expresses the conviction of people with disabilities that they know what is best for them. Charlton's combination of personal involvement and theoretical awareness assures greater understanding of the disability rights movement.

Magnificent Desolation: The Long Journey Home from the Moon


Buzz Aldrin - 2009
    The event remains one of mankind’s greatest achievements and was witnessed by the largest worldwide television audience in history. In the years since, millions more have had their Earth-centric perspective unalterably changed by the iconic photograph of Aldrin standing on the surface of the moon, the blackness of space behind him and his fellow explorer and the Eagle reflected in his visor. Describing the alien world he was walking upon, he uttered the words “magnificent desolation.” And as the astronauts later sat in the Eagle, waiting to begin their journey back home, knowing that they were doomed unless every system and part on board worked flawlessly, it was Aldrin who responded to Mission Control’s clearance to take off with the quip, “Roger. Understand. We’re number one on the runway.”The flight of Apollo 11 made Aldrin one of the most famous persons on our planet, yet few people know the rest of this true American hero’s story. In Magnificent Desolation, Aldrin not only gives us a harrowing first-person account of the lunar landing that came within seconds of failure and the ultimate insider’s view of life as one of the superstars of America’s space program, he also opens up with remarkable candor about his more personal trials–and eventual triumphs–back on Earth. From the glory of being part of the mission that fulfilled President Kennedy’s challenge to reach the moon before the decade was out, Aldrin returned home to an Air Force career stripped of purpose or direction, other than as a public relations tool that NASA put to relentless use in a seemingly nonstop world tour. The twin demons of depression and alcoholism emerged–the first of which Aldrin confronted early and publicly, and the second of which he met with denial until it nearly killed him. He burned through two marriages, his Air Force career came to an inglorious end, and he found himself selling cars for a living when he wasn’t drunkenly wrecking them. Redemption came when he finally embraced sobriety, gained the love of a woman, Lois, who would become the great joy of his life, and dedicated himself to being a tireless advocate for the future of space exploration–not only as a scientific endeavor but also as a thriving commercial enterprise.These days Buzz Aldrin is enjoying life with an enthusiasm that reminds us how far it is possible for a person to travel, literally and figuratively. As an adventure story, a searing memoir of self-destruction and self-renewal, and as a visionary rallying cry to once again set our course for Mars and beyond, Magnificent Desolation is the thoroughly human story of a genuine hero.

Stigma: Notes on the Management of Spoiled Identity


Erving Goffman - 1963
    Disqualified from full social acceptance, they are stigmatized individuals. Physically deformed people, ex-mental patients, drug addicts, prostitutes, or those ostracized for other reasons must constantly strive to adjust to their precarious social identities. Their image of themselves must daily confront and be affronted by the image which others reflect back to them.Drawing extensively on autobiographies and case studies, sociologist Erving Goffman analyzes the stigmatized person’s feelings about himself and his relationship to “normals” He explores the variety of strategies stigmatized individuals employ to deal with the rejection of others, and the complex sorts of information about themselves they project. In Stigma the interplay of alternatives the stigmatized individual must face every day is brilliantly examined by one of America’s leading social analysts.

Asperger's Syndrome: A Guide for Parents and Professionals


Tony Attwood - 1997
    The book provides a description and analysis of the unusual characteristics of the syndrome and practical strategies to reduce those that are most conspicuous or debilitating. Beginning with a chapter on diagnosis, including an assessment test, the book covers all aspects of the syndrome from language to social behaviour and motor clumsiness, concluding with a chapter based on the questions most frequently asked by those who come into contact with individuals with this syndrome.Covering the available literature in full, this guide brings together the most relevant and useful information on Asperger's Syndrome, incorporating case studies from the author's own practical experience as a Clinical Psychologist, with examples of, and numerous quotations from people with Asperger's Syndrome.