A Thorn in My Pocket: Temple Grandin's Mother Tells the Family Story


Eustacia Cutler - 2004
    She tells of her fight to keep Temple in the mainstream of family, community, and school life, how Temple responded and went on to succeed, as Ms. Cutler puts it, beyond my wildest dreams. Ms. Cutler also explores the nature of the autism disorder as doctors understand it today, and how its predominant characteristics reflect our own traits in an exaggerated form.Insightful chapters include: And Baby Makes ThreeAs the Twig Is BentChildhoodThe Separate Worlds BeginThings Fall ApartAnd Start All Over AgainThe End of ChildhoodThen What Happened?Looking for the SourceThe Legacy of GenesWhat It Means to Be Human

Schuyler's Monster: A Father's Journey with His Wordless Daughter


Robert Rummel-Hudson - 2008
    Once they knew why she couldn’t speak, they needed to determine how to help her learn. They didn’t know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy.Schuyler’s Monster is more than the memoir of a parent dealing with a child’s disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child’s dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.

My Lobotomy: A Memoir


Howard Dully - 2007
    Yet somehow, this normal boy became one of the youngest people on whom Dr. Walter Freeman performed his barbaric transorbital—or ice pick—lobotomy.Abandoned by his family within a year of the surgery, Howard spent his teen years in mental institutions, his twenties in jail, and his thirties in a bottle. It wasn’t until he was in his forties that Howard began to pull his life together. But even as he began to live the “normal” life he had been denied, Howard struggled with one question: Why?“October 8, 1960. I gather that Mrs. Dully is perpetually talking, admonishing, correcting, and getting worked up into a spasm, whereas her husband is impatient, explosive, rather brutal, won’t let the boy speak for himself, and calls him numbskull, dimwit, and other uncomplimentary names.”There were only three people who would know the truth: Freeman, the man who performed the procedure; Lou, his cold and demanding stepmother who brought Howard to the doctor’s attention; and his father, Rodney. Of the three, only Rodney, the man who hadn’t intervened on his son’s behalf, was still living. Time was running out. Stable and happy for the first time in decades, Howard began to search for answers. “December 3, 1960. Mr. and Mrs. Dully have apparently decided to have Howard operated on. I suggested [they] not tell Howard anything about it.”Through his research, Howard met other lobotomy patients and their families, talked with one of Freeman’s sons about his father’s controversial life’s work, and confronted Rodney about his complicity. And, in the archive where the doctor’s files are stored, he finally came face to face with the truth.Revealing what happened to a child no one—not his father, not the medical community, not the state—was willing to protect, My Lobotomy exposes a shameful chapter in the history of the treatment of mental illness. Yet, ultimately, this is a powerful and moving chronicle of the life of one man. Without reticence, Howard Dully shares the story of a painfully dysfunctional childhood, a misspent youth, his struggle to claim the life that was taken from him, and his redemption.

Somebody Else's Kids


Torey L. Hayden - 1981
    . . "A small seven-year-old boy who couldn't speak except to repeat weather forecasts and other people's words . . . A beautiful little girl of seven who had been brain damaged by terrible parental beatings and was so ashamed because she couldn't learn to read . . . A violently angry ten-year-old who had seen his stepmother murder his father and had been sent from one foster home to another . . . A shy twelve-year-old from a Catholic school which put her out when she became pregnant . . ."What do we matter?""Why do you care?"They were four problem children-put in Torey Hayden's class because no one else knew what to do with them. Together, with the help of a remarkable teacher who cared too much to ever give up, they became almost a family, able to give each other the love and understanding they had found nowhere else.

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son


Ian Brown - 2009
    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

Send in the Idiots: Stories from the Other Side of Autism


Kamran Nazeer - 2006
    In 1982, when he was four years old, Kamran Nazeer was enrolled in a small school in New York City alongside a dozen other children diagnosed with autism. Calling themselves the Idiots, these kids received care that was at the cutting edge of developmental psychology. Twenty-three years later, the school no longer exists.Send in the Idiots is the always candid, often surprising, and ultimately moving investigation into what happened to those children. Now a policy adviser in England, Kamran decides to visit four of his old classmates to find out the kind of lives that they are living now, how much they've been able to overcome—and what remains missing. A speechwriter unable to make eye contact; a messenger who gets upset if anyone touches his bicycle; a depressive suicide victim; and a computer engineer who communicates difficult emotions through the use of hand puppets: these four classmates reveal an astonishing, thought-provoking spectrum of behavior.Bringing to life the texture of autistic lives and the pressures and limitations that the condition presents, Kamran also relates the ways in which those can be eased over time, and with the right treatment. Using his own experiences to examine such topics as the difficulties of language, conversation as performance, and the politics of civility, Send in the Idiots is also a rare and provocative exploration of the way that people—all people—learn to think and feel. Written with unmatched insight and striking personal testimony, Kamran Nazeer's account is a stunning, invaluable, and utterly unique contribution to the literature of what makes us human.

As Nature Made Him: The Boy Who Was Raised as a Girl


John Colapinto - 2000
    The case would become one of the most famous in modern medicine—and a total failure. As Nature Made Him tells the extraordinary story of David Reimer, who, when finally informed of his medical history, made the decision to live as a male. A macabre tale of medical arrogance, it is first and foremost a human drama of one man's—and one family's—amazing survival in the face of terrible odds.

Raising Henry: A Memoir of Motherhood, Disability, and Discovery


Rachel Adams - 2013
    She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.

Ten Things Every Child with Autism Wishes You Knew


Ellen Notbohm - 2005
    Framed with both humor and compassion, the book defines the top ten characteristics that illuminate the minds and hearts of children with autism. Ellen's personal experiences as a parent, an autism columnist, and a contributor to numerous parenting magazines coalesce to create a guide for all who come in contact with a child on the autism spectrum. Don't buy just one of this book- buy one for everyone who interacts with your child! Give the gift of understanding. Helpful chapters include:My sensory perceptions are disordered Distinguish between won’t and can’t I am a concrete thinker. I interpret language literally Be patient with my limited vocabulary Because language is so difficult for me, I am very visually oriented Focus and build on what I can do rather than what I can’t do Help me with social interactions Identify what triggers my meltdowns

How Can I Talk If My Lips Don't Move: Inside My Autistic Mind


Tito Rajarshi Mukhopadhyay - 2008
    When he was three years old, Tito was diagnosed as severely autistic, but his remarkable mother, Soma, determined that he would overcome the problem by teaching him to read and write. The result was that between the ages of eight and eleven he wrote stories and poems of exquisite beauty, which Dr. Oliver Sacks called amazing and shocking. Their eloquence gave lie to all our assumptions about autism.Here Tito goes even further and writes of how the autistic mind works, how it views the outside world and the normal people he deals with daily, how he tells his stories to the mirror and hears stories back, how sounds become colors, how beauty fills his mind and heart. With this work, Tito whom Portia Iversen, co-founder of Cure Autism Now, has described as a window into autism such as the world has never seen gives the world a beacon of hope. For if he can do it, why can't others?Brave, bold, and deeply felt, this book shows that much we might have believed about autism can be wrong. Boston Globe

George and Sam


Charlotte Moore - 2004
    George and Sam are autistic. George and Sam takes the reader from the births of each of the two boys, along the painstaking path to diagnosis, interventions, schooling and more. She writes powerfully about her family and her sons, and allows readers to see the boys behind the label of autism. Their often puzzling behavior, unusual food aversions, and the different ways that autism effects George and Sam lend deeper insight into this confounding disorder.George and Sam emerge from her narrative as distinct, wonderful, and at times frustrating children who both are autistic through and through. Moore does not feel the need to search for cause or cure, but simply to find the best ways to help her sons. She conveys to readers what autism is and isn't, what therapies have worked and what hasn't been effective, and paints a moving, memorable portrait of life with her boys.

Love Works Like This: Moving from One Kind of Life to Another


Lauren Slater - 2002
    Slater, career-oriented and willfully autonomous, charts her own personal journey and decision-making process, starting with a list of the pros and cons, about having a child. The cons are many, the pros only one: “learning a new kind of love.” But what will that love look like? How does one reconcile the needs of the self with the demands of others? How do couples go from the dyad that is a marriage to the triad that is a family? And how can Slater adjust to losing precious control of her own carefully developed life?Slater’s complex biological and psychological history also lies at the core of this unique and yet strikingly universal story. One of the first people ever to take Prozac, she chronicles the impossibly conflicting advice regarding pregnancy and antidepressants, and explains the rationale behind her eventual decision to stop taking the medication during her first trimester. This is Slater’s first encounter with self-sacrifice, and for her a crossroad at which modern medicine and basic human love meet. Love Works Like This is a richly written book by “an enormously poetic and ebullient writer” (Elle magazine), an author who writes with “beauty and bravery” (Los Angeles Times Book Review) about falling in love, about growing into the ability to put someone else’s life ahead of your own, and about the rich rewards we can draw from the courage to exchange one kind of happy life for another.

Three Little Words


Ashley Rhodes-Courter - 2008
    You must mind the one taking care of you, but she's not your mama." Ashley Rhodes-Courter spent nine years of her life in fourteen different foster homes, living by those words. As her mother spirals out of control, Ashley is left clinging to an unpredictable, dissolving relationship, all the while getting pulled deeper and deeper into the foster care system. Painful memories of being taken away from her home quickly become consumed by real-life horrors, where Ashley is juggled between caseworkers, shuffled from school to school, and forced to endure manipulative,humiliating treatment from a very abusive foster family. In this inspiring, unforgettable memoir, Ashley finds the courage to succeed - and in doing so, discovers the power of her own voice.

Dirty Secret: A Daughter Comes Clean About Her Mother's Compulsive Hoarding


Jessie Sholl - 2010
    Because if my mother is one of those crazy junk-house people, then what does that make me?When her divorced mother was diagnosed with cancer, New York City writer Jessie Sholl returned to her hometown of Minneapolis to help her prepare for her upcoming surgery and get her affairs in order. While a daunting task for any adult dealing with an aging parent, it's compounded for Sholl by one lifelong, complex, and confounding truth: her mother is a compulsive hoarder. Dirty Secret is a daughter's powerful memoir of confronting her mother's disorder, of searching for the normalcy that was never hers as a child, and, finally, cleaning out the clutter of her mother's home in the hopes of salvaging the true heart of their relationship before it's too late.Growing up, young Jessie knew her mother wasn't like other mothers: chronically disorganized, she might forgo picking Jessie up from kindergarten to spend the afternoon thrift store shopping. Now, tracing the downward spiral in her mother's hoarding behavior to the death of a long-time boyfriend, she bravely wades into a pathological sea of stuff: broken appliances, moldy cowboy boots, twenty identical pairs of graying bargain-bin sneakers, abandoned arts and crafts, newspapers, magazines, a dresser drawer crammed with discarded eyeglasses, shovelfuls of junk mail . . . the things that become a hoarder's treasures. With candor, wit, and not a drop of sentimentality, Jessie Sholl explores the many personal and psychological ramifications of hoarding while telling an unforgettable mother-daughter tale.

No One Cares About Crazy People: The Chaos and Heartbreak of Mental Health in America


Ron Powers - 2017
    Braided with that history is the moving story of Powers's beloved son Kevin--spirited, endearing, and gifted--who triumphed even while suffering from schizophrenia until finally he did not, and the story of his courageous surviving son Dean, who is also schizophrenic.A blend of history, biography, memoir, and current affairs ending with a consideration of where we might go from here, this is a thought-provoking look at a dreaded illness that has long been misunderstood.