Book picks similar to
Misdiagnosed: One Woman's Tour of -And Escape From- Healthcareland by Jody Berger
non-fiction
health
memoir
nonfiction
Lightning Flowers: My Journey to Uncover the Cost of Saving a Life
Katherine E. Standefer - 2020
Standefer finds herself asking one night after being suddenly shocked by her implanted cardiac defibrillator.In this gripping, intimate memoir about health, illness, and the invisible reverberating effects of our medical system, Standefer recounts the astonishing true story of the rare diagnosis that upended her rugged life in the mountains of Wyoming and sent her tumbling into a fraught maze of cardiology units, dramatic surgeries, and slow, painful recoveries. As her life increasingly comes to revolve around the internal defibrillator freshly wired into her heart, she becomes consumed with questions about the supply chain that allows such an ostensibly miraculous device to exist. So she sets out to trace its materials back to their roots.From the sterile labs of a medical device manufacturer in southern California to the tantalum and tin mines seized by armed groups in the Democratic Republic of the Congo to a nickel and cobalt mine carved out of endemic Madagascar jungle, Lightning Flowers takes us on a global reckoning with the social and environmental costs of a technology that promises to be lifesaving but is, in fact, much more complicated.Deeply personal and sharply reported, Lightning Flowers takes a hard look at technological mythos, healthcare, and our cultural relationship to medical technology, raising important questions about our obligations to one another, and the cost of saving one life.
Nowhere Girl: A Memoir of a Fugitive Childhood
Cheryl Diamond - 2021
The family are Sikhs. Today. In a few years they will be Jewish. Cheryl’s name is Harbhajan. Today. But in a few years she will be Crystal. By the time she turns nine, Cheryl has had at least six assumed identities. She has lived on five continents, fleeing the specter of Interpol and law enforcement. Her father, a master financial criminal, or so she believes, uproots the family at the slightest sign of suspicion. Despite the strange circumstances, Diamond’s life as a young child is mostly joyful and exciting, her family of five a tiny, happy circle unto themselves. Even as she learn how to forge identity papers and fix a car with chicken wire, she somehow becomes a near-Olympic-level athlete and then an international teenage model. She even publishes a book about it. As she grows older, though, things get darker. Her identity is burned again and again, leaving her with no past, no proof even that she exists, and her family—the only people she has in the world—begins to unravel. Love and trust turn to fear and violence. Secrets are revealed, and she is betrayed by those on whom she relies most. Slowly, Diamond begins to realize that her life itself might be a big con. Surviving would require her to escape, and we root for this determined woman as she unlearns all the rules of her family. Cinematic and witty, Nowhere Girl is an impossible-to-believe true story of self-discovery and triumph.
Tender Points
Amy Berkowitz - 2015
Named after the diagnostic criteria for fibromyalgia, the book-length lyric essay explores sexual violence, gendered illness, chronic pain, and patriarchy through the lenses of lived experience and pop culture (Twin Peaks, Teenage Mutant Ninja Turtles, noise music, etc.). Teaching Guide (or Book Club Guide) here: bit.ly/2aqJV2X
Mad, Bad, and Sad: Women and the Mind Doctors
Lisa Appignanesi - 2007
From Mary Lamb, sister of Charles, who in the throes of a nervous breakdown turned on her mother with a kitchen knife, to Freud, Jung, and Lacan, who developed the new women-centered therapies, Lisa Appignanesi’s research traces how more and more of the inner lives and emotions of women have become a matter for medics and therapists. Here too is the story of how over the years symptoms and diagnoses have developed together to create fashions in illness and how treatments have succeeded or sometimes failed. Mad, Bad, and Sad takes us on a fascinating journey through the fragile, extraordinary human mind.
When Breath Becomes Air
Paul Kalanithi - 2016
One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi's transformation from a naïve medical student "possessed," as he wrote, "by the question of what, given that all organisms die, makes a virtuous and meaningful life" into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality. What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir. Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. "I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything," he wrote. "Seven words from Samuel Beckett began to repeat in my head: 'I can't go on. I'll go on.'" When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both.
On Being Ill
Virginia Woolf - 1930
We cannot quote Shakespeare to describe a headache. We must, Woolf says, invent language to describe pain. And though illness enhances our perceptions, she observes that it reduces self-consciousness; it is "the great confessional." Woolf discusses the cultural taboos associated with illness and explores how illness changes the way we read. Poems clarify and astonish, Shakespeare exudes new brilliance, and so does melodramatic fiction!On Being Ill was published as an individual volume by Hogarth Press in 1930. While other Woolf essays, such as A Room of One’s Own and Three Guineas, were first published by Hogarth as individual volumes and have since been widely available, On Being Ill has been overlooked. The Paris Press edition features original cover art by Woolf’s sister, the painter Vanessa Bell. Hermione Lee’s Introduction discusses this extraordinary work, and explores Woolf’s revelations about poetry, language, and illness.
The Hospital: How I Survived the Secret Child Experiments at Aston Hall
Barbara O'Hare - 2017
We were human toys. Just a piece of meat for someone to play with.'Barbara O'Hare was just 12 when she was admitted to the psychiatric hospital, Aston Hall, in 1971. From a troubled home, she'd hoped she would find sanctuary there. But within hours, Barbara was tied down, drugged with sodium amytal - a truth-telling drug - and then abused by its head physician, Dr Kenneth Milner.The terrifying drug experimentation and relentless abuse that lasted throughout her stay damaged her for life. But somehow, Barbara clung on to her inner strength and eventually found herself leading a campaign to demand answers for potentially hundreds of victims.A shocking account of how vulnerable children were preyed upon by the doctor entrusted with their care, and why it must never happen again.
10% Happier: How I Tamed the Voice in My Head, Reduced Stress Without Losing My Edge, and Found Self-Help That Actually Works
Dan Harris - 2014
A lifelong nonbeliever, he found himself on a bizarre adventure, involving a disgraced pastor, a mysterious self-help guru, and a gaggle of brain scientists. Eventually, Harris realized that the source of his problems was the very thing he always thought was his greatest asset: the incessant, insatiable voice in his head, which had both propelled him through the ranks of a hyper-competitive business and also led him to make the profoundly stupid decisions that provoked his on-air freak-out.We all have a voice in our head. It’s what has us losing our temper unnecessarily, checking our email compulsively, eating when we’re not hungry, and fixating on the past and the future at the expense of the present. Most of us would assume we’re stuck with this voice – that there’s nothing we can do to rein it in – but Harris stumbled upon an effective way to do just that. It’s a far cry from the miracle cures peddled by the self-help swamis he met; instead, it’s something he always assumed to be either impossible or useless: meditation. After learning about research that suggests meditation can do everything from lower your blood pressure to essentially rewire your brain, Harris took a deep dive into the underreported world of CEOs, scientists, and even marines who are now using it for increased calm, focus, and happiness.10% Happier takes readers on a ride from the outer reaches of neuroscience to the inner sanctum of network news to the bizarre fringes of America’s spiritual scene, and leaves them with a takeaway that could actually change their lives.
Trauma Junkie: Memoirs of an Emergency Flight Nurse
Janice Hudson - 2001
They do their best work under pressure. Janice Hudson was an adrenaline-charged emergency room nurse in a San Francisco-area hospital when a friend told her about CALSTAR, a fledgling helicopter ambulance service with an opening for a flight nurse. Weeks later she was swooping over the Bay Area to scenes of shootings, accidents and disasters. The trauma junkie had found her element.Hudson spent ten years as a flight nurse, answering calls that were by turns horrifying, heroic and absurd. She decries her personal flights from hell that involved children and drunk drivers. In this moving story, she recalls her triumphs, like the time she performed a surgical cricothyrotomy on a patient as he hung upside down in his overturned car -- in the dark. And she shakes her head at some of the bizarre calls, like the one that took her to the scene of a suspicious mountain lion attack (there are no mountain lions in the Bay Area). But no matter what the call, CALSTAR and its dedicated crew braved danger and hardship to reach the scene of catastrophe in a race against time to bring help to those whose only hope of survival lay in the speed of the helicopter and the skill of the medical crew.A born storyteller, Janice Hudson writes with compassion, insight and wry humor. Trauma Junkie is an in-the-trenches account of emergency nursing at its most demanding.
Sybil: The Classic True Story of a Woman Possessed by Sixteen Personalities
Flora Rheta Schreiber - 1973
What happened during those blackouts has made Sybil's experience one of the most famous psychological cases in the world.
Galileo's Middle Finger: Heretics, Activists, and the Search for Justice in Science
Alice Domurat Dreger - 2015
For two decades, historian Alice Dreger has led a life of extraordinary engagement, combining activist service to victims of unethical medical research with defense of scientists whose work has outraged identity politics activists. With spirit and wit, Dreger offers in Galileo’s Middle Finger an unforgettable vision of the importance of rigorous truth seeking in today’s America, where both the free press and free scholarly inquiry struggle under dire economic and political threats.This illuminating chronicle begins with Dreger’s own research into the treatment of people born intersex (once called hermaphrodites). Realization of the shocking surgical and ethical abuses conducted in the name of “normalizing” intersex children’s gender identities moved Dreger to become an internationally recognized patient rights’ activist. But even as the intersex rights movement succeeded, Dreger began to realize how some fellow progressive activists were employing lies and personal attacks to silence scientists whose data revealed uncomfortable truths about humans. In researching one such case, Dreger suddenly became the target of just these kinds of attacks.Troubled, she decided to try to understand more—to travel the country to ferret out the truth behind various controversies, to obtain a global view of the nature and costs of these battles. Galileo’s Middle Finger describes Dreger’s long and harrowing journeys between the two camps for which she felt equal empathy: social justice activists determined to win and researchers determined to put hard truths before comfort. Ultimately what emerges is a lesson about the intertwining of justice and of truth—and a lesson of the importance of responsible scholars and journalists to our fragile democracy.
Educated
Tara Westover - 2018
Born to survivalists in the mountains of Idaho, she prepared for the end of the world by stockpiling home-canned peaches and sleeping with her "head-for-the-hills bag". In the summer she stewed herbs for her mother, a midwife and healer, and in the winter she salvaged in her father's junkyard.Her father forbade hospitals, so Tara never saw a doctor or nurse. Gashes and concussions, even burns from explosions, were all treated at home with herbalism. The family was so isolated from mainstream society that there was no one to ensure the children received an education and no one to intervene when one of Tara's older brothers became violent.Then, lacking any formal education, Tara began to educate herself. She taught herself enough mathematics and grammar to be admitted to Brigham Young University, where she studied history, learning for the first time about important world events like the Holocaust and the civil rights movement. Her quest for knowledge transformed her, taking her over oceans and across continents, to Harvard and to Cambridge. Only then would she wonder if she'd traveled too far, if there was still a way home.Educated is an account of the struggle for self-invention. It is a tale of fierce family loyalty and of the grief that comes with severing the closest of ties. With the acute insight that distinguishes all great writers, Westover has crafted a universal coming-of-age story that gets to the heart of what an education is and what it offers: the perspective to see one's life through new eyes and the will to change it.
Dog Medicine
Julie Barton - 2015
She was one year out of college and severely depressed. Summoned by Julie's incoherent phone call, her mother raced from Ohio to New York and took her home.Psychiatrists, therapists and family tried to intervene, but nothing reached her until the day she decided to do one hopeful thing: adopt a Golden Retriever puppy she named Bunker.Dog Medicine captures in beautiful, elegiac language the anguish of depression, the slow path to recovery, and the astonishing way animals can heal even the most broken hearts and minds.
No Days Off: My Life with Type 1 Diabetes and Journey to the NHL
Max Domi - 2019
A portion of proceeds from the sale of this book will be donated to JDRF, the leading global organization funding type 1 diabetes research.“Max, you have type 1 diabetes,” the doctor said. My mom and I looked at each other. For her, time stood still for a second as our entire future as a family shifted. But I had no clue what the diagnosis meant. So I said the first thing that came to mind. “Can I still play hockey?” As a kid, when Max Domi was asked what he wanted to be when he grew up, he only ever had one answer: a hockey player. Growing up the son of a professional hockey player—Tie Domi—Max saw from an early age what it took to make the NHL: grit, talent, and the support of a team. Over countless hours in the garage, at the rink, and in the gym, Max chased his dream. It seemed that Max was born to be on the ice. But then, when he was twelve years old, Max started getting sick. And sicker. Eventually, he and his family learned the truth: Max had type 1 diabetes. Overnight, Max and his family found their lives upended. All Max wanted was to be a normal kid, but suddenly, the simplest things—a game of basketball with friends, a family meal, a school field trip—were complicated with a thousand different considerations. Would people notice or make fun of him if he carried his blood-testing kit everywhere? Would his teammates think he was weak if his blood sugar went low at hockey practice? How much insulin did he need after a meal? And all the while, the fear of what might happen if things went wrong hung over his head. Max had to grow up quickly. As he struggled to find his new normal, Max slowly began to realize that overcoming his disease demanded the same qualities that it took to be a hockey player—mental and physical toughness, maturity, and the love and care of family and friends. Bit by bit, he learned—sometimes the hard way—not just to control his diabetes, but to turn it into an advantage. If managing his disease was going to demand that Max be stronger, more prepared, and more disciplined than anyone else, then he wouldn’t just be good at those things: he’d be the best. He’d do whatever it took to move him closer to his dream of playing in the NHL. Inspiring, heartwarming, and exciting, No Days Off is a memoir about what it’s like to be a kid whose world is turned upside down, and what it takes to face adversity.
Damnation Island: Poor, Sick, Mad, & Criminal in 19th-Century New York
Stacy Horn - 2018
In 1828, when New York City purchased this narrow, two-mile-long island in the East River, it was called Blackwell’s Island. There, over the next hundred years, the city would send its insane, indigent, sick, and criminal. Told through the gripping voices of Blackwell’s inhabitants, as well as the period’s city officials, reformers, and journalists (including the famous Nellie Bly), Stacy Horn has crafted a compelling and chilling narrative. Damnation Island recreates what daily life was like on the island, what politics shaped it, and what constituted charity and therapy in the nineteenth century. Throughout the book, we return to the extraordinary Blackwell’s missionary Reverend French, champion of the forgotten, as he ministers to these inmates, battles the bureaucratic mazes of the Corrections Department and a corrupt City Hall, testifies at salacious trials, and in his diary wonders about man’s inhumanity to man. For history fans, and for anyone interested in the ways we care for the least fortunate among us, Damnation Island is an eye-opening look at a closed and secretive world. With a tale that is exceedingly relevant today, Horn shows us how far we’ve come—and how much work still remains.