Words at the Threshold: What We Say as We're Nearing Death


Lisa Smartt - 2017
    Until now, however, no author has systematically studied end-of-life communication by using examples from ordinary people. When her father became terminally ill with cancer, author Lisa Smartt began transcribing his conversations and noticed that his personality underwent inexplicable changes. Smartt’s father, once a skeptical man with a secular worldview, developed a deeply spiritual outlook in his final days — a change reflected in his language. Baffled and intrigued, Smartt began to investigate the near-death utterances of others, collecting over a hundred case studies with interviews and transcripts. In Words at the Threshold, Smartt decodes the symbolism of those last words, showing how the language of the dying points the way to a transcendent world beyond our own.

Last Wish


Betty Rollin - 1985
    Last Wish is an intimate, fiercely honest memoir of a daughter's struggle to come to terms with her terminally ill mother's decision to die. More than a examination of the ethical, spiritual, and technical aspects of assisted suicide, Last Wish is also a celebration of Rollin's imperfect family, a passionate testament to her mother's character and courage, and a compelling argument for the right of the terminally ill to a humane and dignified death. The PublicAffairs paperback edition includes a new foreword, questions for thought and discussion, and a helpful resource guide.

History of Medicine: A Scandalously Short Introduction


Jacalyn Duffin - 1999
    Organized conceptually around the major fields of medical endeavour - anatomy, physiology, pathology, pharmacology, surgery, obstetrics, psychiatry, pediatrics, and family medicine - this book is an accessible overview of medical history as a vibrant component of social, intellectual, and cultural history, and as a research discipline in its own right.Each chapter begins in antiquity and ends in the twentieth century. Throughout, Duffin shows that alternative interpretations can be found for most elements of our past and that topics of interest can go well beyond 'great men' and 'great discoveries' to include ideas, diseases, patients, institutions, and great mistakes. This approach does not mean that the 'great men' (and women) are neglected; rather they appear in context. Medical disasters such as chloramphenicol and thalidomide, are covered along with the triumphs, and examples from Canada's past, largely ignored in other medical histories, are included. A chapter on methodology, suggestions for further reading with special attention to Canadian sources, and a careful index make it possible to research a specific event or historical debate, or to satisfy a more general curiosity.By presenting the material in a structure that resonates with the broad outlines of medical training, and by focusing on the questions asked most often, this text is a relevant guide for students to the history of the profession they are about to embrace, and for those who would teach them, be they physicians or historians. Duffin's clear and entertaining prose and the many illustrations will help to demystify medicine for general readers and for students in other domains, such as history, philosophy, and sociology.

Die Wise: A Manifesto for Sanity and Soul


Stephen Jenkinson - 2015
    It does not suggest ways to make dying easier. It pours no honey to make the medicine go down. Instead, with lyrical prose, deep wisdom, and stories from his two decades of working with dying people and their families, Stephen Jenkinson places death at the center of the page and asks us to behold it in all its painful beauty. Die Wise teaches the skills of dying, skills that have to be learned in the course of living deeply and well. Die Wise is for those who will fail to live forever. Dying well, Jenkinson writes, is a right and responsibility of everyone. It is not a lifestyle option. It is a moral, political, and spiritual obligation each person owes their ancestors and their heirs. Die Wise dreams such a dream, and plots such an uprising. How we die, how we care for dying people, and how we carry our dead: this work makes our capacity for a village-mindedness, or breaks it.

Cemetery Stories: Haunted Graveyards, Embalming Secrets, and the Life of a Corpse After Death


Katherine Ramsland - 2001
    We all die, and for most of us, a cemetery is our final resting place. But how many people really know what goes on inside, around, and beyond them?Enter the world of the dead as Katherine Ramsland talks to mortuary assistants, gravediggers, funeral home owners, and more, and find out about:Stitching and cosmetic secrets used on mutilated bodiesEmbalmers who do more than just embalmThe rising popularity of cremation artGhosts that infest graveyards everywhereIf you've ever scoffed at the high price of burying the dead, or ever wondered how your loved ones are handled when they die, or simply stared at tombstones with morbid fascination, then take a trip with Katherine Ramsland and learn about the booming industry -- and strange tales -- that surround cemeteries everywhere.

When We Die: The Science, Culture, and Rituals of Death


Cedric A. Mims - 1999
    This far-reaching discussion considers mortality from the personal and the universal perspective, generously citing past and present poets and physicians from a diverse and telling range of traditions. Mims, who for two decades served as Professor of Microbiology at London's Guys Hospital, brings a humane, inquisitive, and learned sensibility to his topic. "This book is a light-hearted but wide-ranging survey of death, the causes of death, and the disposal of corpses," writes Mims. "It tells why we die and how we die, and what happens to the dead body and its bits and pieces. It describes the ways corpses are dealt with in different religions and in different parts of the world; the methods for preserving bodies; and the ways--fascinating in their diversity--in which corpses or parts of corpses are used and abused." The volume also explores such crucial death-based notions as the afterlife, the soul, and the prospect of immortality. By way of the book's main focus, Mims continues: "We should take a more matter-of-fact view of death [and] accept it and talk about it more than we do--as we have done with the once taboo subject of sex." This is a work that any student of social anthropology will find equally enlightening and essential.

Slow Dancing with a Stranger: Lost and Found in the Age of Alzheimer's


Meryl Comer - 2014
    With harrowing honesty, she brings readers face to face with this devastating condition and its effects on its victims and those who care for them. Detailing the daily realities and overwhelming responsibilities of caregiving, Comer sheds intensive light on this national health crisis, using her personal experiences—the mistakes and the breakthroughs—to put a face to a misunderstood disease, while revealing the facts everyone needs to know.Pragmatic and relentless, Meryl has dedicated herself to fighting Alzheimer’s and raising public awareness. “Nothing I do is really about me; it’s all about making sure no one ends up like me,” she writes. Deeply personal and illuminating, Slow Dancing With a Stranger offers insight and guidance for navigating Alzheimer’s challenges. It is also an urgent call to action for intensive research and a warning that we must prepare for the future, instead of being controlled by a disease and a healthcare system unable to fight it.

Grave Matters: A Journey Through the Modern Funeral Industry to a Natural Way of Burial


Mark Harris - 2007
    Environmental journalist Mark Harris examines this new green burial underground, leading you into natural cemeteries and domestic graveyards, taking you aboard boats from which ashes and memorial "reef balls" are cast into the sea. He follows a family that conducts a home funeral, one that delivers a loved one to the crematory, and another that hires a carpenter to build a pine coffin.In the morbidly fascinating tradition of "Stiff, Grave Matters" details the embalming process and the environmental aftermath of the standard funeral. Harris also traces the history of burial in America, from frontier cemeteries to the billion-dollar business it is today, reporting on real families who opted for more simple, natural returns.For readers who want to follow the examples of these families and, literally, give back from the grave, appendices detail everything you need to know, from exact costs and laws to natural burial providers and their contact information.

28: Stories of AIDS in Africa


Stephanie Nolen - 2007
    It is essential reading for our times.In 28, Stephanie Nolen, the Globe and Mail’s Africa Bureau Chief, puts a human face to the crisis created by HIV-AIDS in Africa. She has achieved, in this amazing book, something extraordinary: she writes with a power, understanding and simplicity that makes us listen, makes us understand and care. Through riveting anecdotal stories – one for each of the million people living with HIV-AIDS in Africa – Nolen explores the effects of an epidemic that well exceeds the Black Plague in magnitude. It is a calamity that is unfolding just a 747-flight away, and one that will take the lives of these 28 million without the help of massive, immediate intervention on an unprecedented scale. 28 is a timely, transformative, thoroughly accessible book that shows us definitively why we continue to ignore the growth of HIV-AIDS in Africa only at our peril and at an intolerable moral cost.28’s stories are much more than a record of the suffering and loss in 28 emblematic lives. Here we meet women and men fighting vigorously on the frontlines of disease: Tigist Haile Michael, a smart, shy 14-year-old Ethiopian orphan fending for herself and her baby brother on the slum streets of Addis Ababa; Alice Kadzanja, an HIV-positive nurse in Malawi, where one in six adults has the virus, and where the average adult’s life expectancy is 36; and Zackie Achmat, the hero of South Africa’s politically fragmented battle against HIV-AIDS. 28 also tells us how the virus works, spreads and, ultimately, kills. It explains the connection of HIV-AIDS to conflict, famine and the collapse of states; shows us how easily treatment works for those lucky enough to get it and details the struggles of those who fight to stay alive with little support. It makes vivid the strong, desperate people doing all they can, and maintaining courage, dignity and hope against insurmountable odds. It is – in its humanity, beauty and sorrow – a call to action for all who read it.

The Greatest Benefit to Mankind: A Medical History of Humanity


Roy Porter - 1997
    . . alive and fascinating and provocative on every page."—Oliver Sacks, M.D.Porter's charting of the history of medicine affords readers the opportunity as never before to assess its culture and science and its costs and benefits to humankind. "A splendid and thoroughly engrossing book."--"L.A. Times." of illustrations.

Postmortem: How Medical Examiners Explain Suspicious Deaths


Stefan Timmermans - 2006
    From the grisly investigations showcased on highly rated television shows like CSI to the bestselling mysteries that revolve around forensic science, medical examiners have never been so visible—or compelling. They, and they alone, solve the riddle of suspicious death and the existential questions that come with it. Why did someone die? Could it have been prevented? Should someone be held accountable? What are the implications of ruling a death a suicide, a homicide, or an accident? Can medical examiners unmask the perfect crime?Postmortem goes deep inside the world of medical examiners to uncover the intricate web of social, legal, and moral issues in which they operate. Stefan Timmermans spent years in a medical examiner’s office following cases, interviewing examiners, and watching autopsies. While he relates fascinating cases here, he is also more broadly interested in the cultural authority and responsibilities that come with being a medical examiner. How medical examiners speak to the living on behalf of the dead is Timmermans’s subject, revealed here in the day-to-day lives of the examiners themselves.“Postmortem is a wake-up call to forensic pathology. . . .This book should be viewed as provocative, rather than threatening, and should be a stimulus for important discussions and action by the forensic pathology community.”—Journal of the American Medical Association

In the Little World: A True Story of Dwarfs, Love, and Trouble


John H. Richardson - 2001
    Kopits takes me into an examining room and leans against the stainless steel bench and asks me what I'm writing about this time. When I tell him what I saw in Australia, he immediately starts to nod. "This is a great subject," he says. Then he stops, as if caught by the subject himself.I wait.After a moment, he continues. "What you are looking into is the abyss. This takes you to the very heart of a human being, to the deepest aspect of the soul.He gives me one of his solemn looks. "Because the thing is, you have to confront yourself."(from In the Little World) In 1997, almost by accident, John H. Richardson found himself sharing a hotel with more than a thousand dwarfs. Over the course of a single week, he witnessed love and anger, fear and bravery, arrogance and humility, even a bizarre romantic deception -- the entire spectrum of human emotion in one concentrated dose. But at the end of the week, he discovered that leaving the "Little World" wasn't as simple as checking out of a hotel. In fact, his journey would last a full two years.At a time when bigger often seems synonymous with better, and physical beauty serves as currency, the world of dwarfs usually passes beneath our notice. Now, in this groundbreaking work, awardwinning author John H. Richardson brings the Little World into focus.He introduces us to characters like a saintly but obsessed doctor and a mother who sacrifices her family to save her dwarf daughter. He follows two dwarf lovers from first meeting through the struggle to overcome their fear and shame and find the confidence to love each other. He becomes personally involved in a tangled and often confrontational friendship with a female dwarf. Through these stories and musings ranging from classic theories of beauty to the history of the disability movement to postmodern theories of difference, Richardson presents a world that is a skewed reflection of our own -- and offers us a glimpse into the essential human condition.

League of Denial: The NFL, Concussions and the Battle for Truth


Mark Fainaru-Wada - 2013
    That judgment, implausible even to a casual fan, also contradicted the opinion of a growing cadre of neuroscientists who worked in vain to convince the NFL that it was facing a deadly new scourge: A chronic brain disease that was driving an alarming number of players -- including some of the all-time greats -- to madness.League of Denial reveals how the NFL, over a period of nearly two decades, sought to cover up and deny mounting evidence of the connection between football and brain damage.Comprehensively, and for the first time, award-winning ESPN investigative reporters Mark Fainaru-Wada and Steve Fainaru tell the story of a public health crisis that emerged from the playing fields of our 21st century pastime. Everyone knew that football is violent and dangerous. But what the players who built the NFL into a $10 billion industry didn’t know – and what the league sought to shield from them – is that no amount of padding could protect the human brain from the force generated by modern football; that the very essence of the game could be exposing these players to brain damage.In a fast-paced narrative that moves between the NFL trenches, America’s research labs and the boardrooms where the NFL went to war against science, League of Denial examines how the league used its power and resources to attack independent scientists and elevate its own flawed research -- a campaign with echoes of Big Tobacco’s fight to deny the connection between smoking and lung cancer. It chronicles the tragic fates of players like Hall of Fame Pittsburgh Steelers center Mike Webster, who was so disturbed at the time of his death he fantasized about shooting NFL executives; and former Chargers great Junior Seau, whose diseased brain became the target of an unseemly scientific battle between researchers and the NFL. Based on exclusive interviews, previously undisclosed documents and private emails, this is the story of what the NFL knew and when it knew it – questions at the heart of crisis that threatens football, from the highest levels all the way down to Pop Warner.

Extreme Measures: Finding a Better Path to the End of Life


Jessica Nutik Zitter - 2017
    She elected to specialize in critical care--to become an ICU physician--and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and frail it was unimaginable he would ever come back to life. She began to question her choice. Extreme Measures charts Zitter's journey from wanting to be one kind of hero to becoming another--a doctor who prioritizes the patient's values and preferences in an environment where the default choice is the extreme use of technology. In our current medical culture, the old and the ill are put on what she terms the End-of-Life Conveyor belt. They are intubated, catheterized, and even shelved away in care facilities to suffer their final days alone, confused, and often in pain. In her work Zitter has learned what patients fear more than death itself: the prospect of dying badly. She builds bridges between patients and caregivers, formulates plans to allay patients' pain and anxiety, and enlists the support of loved ones so that life can end well, even beautifully.

Changing the Way We Die: Compassionate End of Life Care and The Hospice Movement


Fran Smith - 2013
    More than 1.5 million Americans a year die in hospice care—nearly 44 percent of all deaths—and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.Changing the Way We Die is a vital resource for anyone who wants to be prepared to face life’s most challenging and universal event. You will learn:— Hospice use is soaring, yet most people come too late to get the full benefits.— With the age tsunami, it becomes even more critical for families and patients to choose end-of-life care wisely.— Hospice at its best is much more than a way to relieve the suffering of dying. It is a way to live.