From the award-winning author of The Shell Collector and About Grace comes an evocative memoir of the timeless beauty of Rome and the day-to-day wonderment of living, writing, and raising twin boys in a foreign city.

    Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, the janitor asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime avoiding the sun. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side.A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in witchcraft, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations. Upon her return to Canada she discovers a family photograph from the past that might illuminate her daughter’s present. While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment.

    You discover that she has the same birthday, the same allergies, the same tics, and the same way of laughing. Looking at this person, you are able to gaze into your own eyes and see yourself from the outside. This identical individual has the exact same DNA as you and is essentially your clone.We don’t have to imagine.Elyse Schein had always known she was adopted, but it wasn’t until her mid-thirties while living in Paris that she searched for her biological mother. When Elyse contacted her adoption agency, she was not prepared for the shocking, life-changing news she received: She had an identical twin sister. Elyse was then hit with another bombshell: she and her sister had been separated as infants, and for a time, had been part of a secret study on separated twins.Paula Bernstein, a married writer and mother living in New York, also knew she was adopted, but had no inclination to find her birth mother. When she answered a call from the adoption agency one spring afternoon, Paula’s life suddenly divided into two starkly different periods: the time before and the time after she learned the truth. As they reunite and take their tentative first steps from strangers to sisters, Paula and Elyse are also left with haunting questions surrounding their origins and their separation. They learn that the study was conducted by a pair of influential psychiatrists associated with a prestigious adoption agency. As they investigate their birth mother’s past, Paula and Elyse move closer toward solving the puzzle of their lives.In alternating voices, Paula and Elyse write with emotional honesty about the immediate intimacy they share as twins and the wide chasm that divides them as two complete strangers. Interweaving eye-opening studies and statistics on twin science into their narrative, they offer an intelligent and heartfelt glimpse into human nature. Identical Strangers is the amazing story of two women coming to terms with the strange and unbelievable hand fate has dealt them, an account that broadens the definition of family and provides insight into our own DNA and the singularly exceptional imprint it leaves on our lives.

    He cried most of the time, and thrashed about as if in pain. He wasn't learning how to crawl, talk, or interact normally. Doctors told his parents to seek counseling, because nothing could help their son, and the quality of their own lives was at risk. Refusal to accept that advice changed their lives forever. What About the Boy? chronicles a family's rejection of hopelessness and their commitment to the pursuit of normalcy.

    She’d never hear him again if she didn’t survive the tragedy…Marie Lindstrom was ready to take on the world. After months of research poured into planning a birthday trip to remember, the mother of two beamed with happiness as they touched down in Thailand. And she was positive they were bound for a trek full of lasting memories… until the tsunami wave hit.Terrified by the prospect of losing all she held dear, Marie struggled to keep her head above water after being swept underground and enshrouded in darkness. But even after the catastrophe passed and she embraced what remained, the guilt accompanying her survival proved staggering.Would the soul-wrenching pain tear her apart or be miraculously transformative?No. 204 is Going Home is a heart-shaking memoir about the unbreakable strength of motherhood. If you like honest depictions of disaster, raw emotional transformations, and moving accounts of healing, then you’ll love Marie Lindstrom’s sail through calamity.Buy No. 204 is Going Home to stare into the maw of real-life terror today!

    Facing the devastating possibility that things would never be the same for their beloved son, they committed to staying strong as a family and finding a way to maintain their footing. But the journey would reshape their faith, their family, and their future in ways they never saw coming.What would it take for them to navigate the endless fallout of their son's life-transforming injury? How could they reconcile their grief over the life Zach lost, with gratitude for the life that remained? And how does a couple move forward together in their search for hope, rather than letting indefinable loss drive them apart?Hit Hard is the true story of the McLeods' journey through ambiguous loss--both having and not having their son. It's the story of a family who faced unexpected heartbreak, a story that offers us all glimpses of how we can pick up the pieces, redefine expectations, and trust God for hope in the midst of unresolved pain.

    In this book—the only one on the market dealing with the specific issues involved in toilet training children with autism—Maria Wheeler offers a detailed roadmap for success, based on over twenty years of experience. Easy-to-read bulleted lists offer over 200 do’s and don’ts, along with more than fifty real-life examples. Learn, among other things, how to:gauge “readiness" overcome fear of the bathroom teach how to use toilet paper, flush and wash up and deal with toileting in unfamiliar environments. A life preserver for parents and reluctant children!Helpful chapters include:The Importance of Toilet Training Determining Readiness Developing a Toileting Routine Dressing for the Occasion Habit Training Teaching Continence Communicating the Need to Use the Toilet When Toilet Training is Successful Toileting in Unfamiliar Environments Nighttime Training Support Strategies Common Problems (and Solutions) Associated with Toilet Training Persons with Autism

    This graphic novel offers an engaging and accessible insight into the lives and minds of autistic women, using real-life case studies.The charming illustrations lead readers on a visual journey of how women on the spectrum experience everyday life, from metaphors and masking in social situations, to friendships and relationships and the role of special interests.Fun, sensitive and informative, this is a fantastic resource for anyone who wishes to understand how gender affects autism, and how to create safer supportive and more accessible environments for women on the spectrum.

    At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life. Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is. Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

    The daughter they secreted away made all the difference.Joe and Rose Kennedy’s strikingly beautiful daughter Rosemary attended exclusive schools, was presented as a debutante to the Queen of England, and traveled the world with her high-spirited sisters. And yet, Rosemary was intellectually disabled — a secret fiercely guarded by her powerful and glamorous family.  Major new sources — Rose Kennedy’s diaries and correspondence, school and doctors' letters, and exclusive family interviews — bring Rosemary alive as a girl adored but left far behind by her competitive siblings. Kate Larson reveals both the sensitive care Rose and Joe gave to Rosemary and then — as the family’s standing reached an apex — the often desperate and duplicitous arrangements the Kennedys made to keep her away from home as she became increasingly intractable in her early twenties. Finally, Larson illuminates Joe’s decision to have Rosemary lobotomized at age twenty-three, and the family's complicity in keeping the secret.  Rosemary delivers a profoundly moving coda: JFK visited Rosemary for the first time while campaigning in the Midwest; she had been living isolated in a Wisconsin institution for nearly twenty years. Only then did the siblings understand what had happened to Rosemary and bring her home for loving family visits. It was a reckoning that inspired them to direct attention to the plight of the disabled, transforming the lives of millions.

    Roosevelt expresses her philosophy of life by relating the experiences which have enabled her to cope with personal and public responsibilities.

    Mark McConville's decades of experience as a family clinical psychologist, perhaps no problem has been more fraught than that of young adults who fail to successfully transition from adolescence into adulthood. These kids--technically adults--just can't get it together: They can't hold a job, they struggle to develop meaningful relationships, and they often end up back in their parents' spare bedroom or on the couch. In fact, studies show that 1 in 4 Americans aged 25 to 34 neither work nor attend school, and it's a problem that spans all socioeconomic and geographic boundaries.McConville investigates the root causes of this problem: Why are modern kids failing to launch in ever-increasing numbers? The key, McConville has found, is that they are struggling with three critical skills that are necessary to make the transition from childhood to adulthood--finding a sense of purpose, developing administrative responsibility, and cultivating interdependence. In Failure to Launch, McConville breaks these down into achievable, accessible goals and offers a practical guide for the whole family, to help parents instill those skills in their young adults--and to get their kids into the real world, ready to start their lives.

     Barbara Robinette Moss grew up in the red clay hills of Alabama, the fourth of eight children, in a childhood defined by close sibling alliances, staggering poverty, and uncommon abuse at the hands of her wild-eyed, charismatic, alcoholic father. In Fierce, Moss looks at what happens when a child of such a family grows up. At once poetic and plainspoken, Moss, a "powerful writer" (Chicago Tribune), paints a vivid, moving portrait of her persistent quest to reinvent her life and rebel against the rural indigence, addiction, and broken dreams she inherited from her parents. With warmth, insight, and candor, Moss tells the poignant story of finally leaving everything she knew in Alabama to fulfill her ambition to become an artist. It is an odyssey filled with gritty improvisation (bringing her son, Jason, to her night job to sleep on the floor), bittersweet pragmatism (filling her purse on a dinner date with shrimp, rolls, and even a doily, to bring home to a waiting eight-year-old), and staunch conviction and pride (chasing a mail carrier down the street to defend her use of food stamps). As with many other children of alcoholics, the legacy of her father's alcoholism catches up with Moss, and an abusive relationship -- an inheritance and addiction of its own sort -- threatens to destroy all that she has accomplished. But as Moss learns to cope with her anger and pain, parenthood helps her discover true strength. Ultimately, Fierce is a warm, honest, and triumphant story, from a writer celebrated for her Southern lyricism, about a woman determined to make it on her own -- to shrug off the handicaps of her childhood and raise her son responsibly and well.

    

    She is now bringing her message of self-acceptance, resilience, and joy to book readers. With a refreshingly unpretentious, funny, and galvanizing voice, Kuzmič goes behind the scenes to reveal how she went from broke and defeated to unshakably grounded and brimming with thankfulness. Illuminating the hard-won wisdom from a life always spent one step behind--whether it was as a high school student new to America, a suddenly single mother to two kids, a newlywed juggling two teens and a newborn, or the unexpected recipient of Oprah's attention and investment--Hold On, But Don't Hold Still is the book every mother needs to reassure her that she's not only fine just as she is, but that she already has more tools and support than she can possibly imagine. Sparkling with wit, this heartfelt memoir is like a long coffee date with a best friend, or the eleventh-hour text message that gives you just the boost you need to get through the night.*The Huffington Post